• The Journal of Korean society of community based occupational therapy
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• v.10 no.1
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• pp.39-49
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• 2020

Objective : The aim of this study was to investigate the care burden and life quality in family caregivers of community-dwelling patients using home mechanical ventilator(HMV) in Yeognam region. Methods : Survey performed to family caregivers of the patients using HMV in Yeognam region, Korea. The questionnaire is composed with patient care and the burden on caring. Korean version of Short Form Zarit Burden Interview(K-ZBI-12) and 3-Level version of EuroQol-5 Dimension applying Korean weight(KEQ-5D-3L) were also investigated. Statistical significance was accepted for p<.05. Results : A total 98 out of 150 questionnaires were analyzed. The K-ZBI-12(33.08±10.34) had a correlation with KEQ-5D-3L(0.71±0.25) negatively(p=.038). Patients' age, duration of HMV, financial burden and professional caregivers' care time had correlations with K-ZBI-12 positively(p<.05). KEQ-5D-3L correlated duration of HMV negatively(p=.017). Invasive ventilator group had lower KEQ-5D-3L than the non-invasive ventilator group(p=.008). K-ZBI-12 was lower in more than one caregiver care of patients than in one(p=.001). Conclusion : This study revealed high care burden and low quality of life in family caregivers of the patients with HMV in Yeongnam region, Korea. Efforts are needed to continually identify the needs of patients and their families, and the socioeconomic support and medical services associated with HMV.

• Journal of the Korea Academia-Industrial cooperation Society
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• v.16 no.6
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• pp.3954-3962
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• 2015

Purpose: The purpose of this study was to examine the burden and quality of life among family caregivers of terminal cancer patients and the relationship of these variables. Methods: Data were collected from 80 family caregivers and analyzed using SPSS 19.0 program. Results: Burden was found to have significant relationships with age, marriage, relations with patients, living together with patients and medical expense burden(p<.05). Quality of life was found to have significant differences according to age, marriage, educational background, relations with patients and living together with patients(p<.05). Burden and quality of life showed a negative correlation(r=-.538, p<.001). Conclusion: These results suggest that more attentions and interventions such as support programs should be given to family caregivers of terminal cancer patients, which can decrease the burden of family caregivers to enhance their quality of life.

• Journal of Hospice and Palliative Care
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• v.7 no.2
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• pp.153-168
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• 2004

Purpose: The purpose of tile study was to identify types of care needs of hospice patients and those from the family caregivers' perspective and to compare these two groups in reporting patients' care needs through Q-methodology. Methods: Twenty three Q-statements concerning care needs were selected through in-depth interviews of hospice patients. Data were collected from 20 hospice patients as well as 20 family caregivers respectively by sorting 23 Q-statements into 9 points standard. Data analysis was performed by using PC QUANL program. Results: Principal component analysis identified four types of care needs of the hospice patients. Overall, the accuracy of family caregiver reports was 48% in all types of care needs. Type 1 was named 'physical care needs type' for those whose greatest need was physical care to be free of pain and comfortable. The accuracy in Type 1 was 62.5%. Type 2 was named 'emotional care needs type' for those who would like to share love and intimacy with their family members. The accuracy in Type 2 was 20%. Type 3 was named 'spiritual care needs type' for those who would like to receive forgiveness from their God and prayers and visitation of clergy. The accuracy in Type 3 was 60%. Type 4 was named 'social care needs type' for those who would like to complete their ongoing work and to give service to others. The accuracy in Type 4 was 50%. Conclusion: There was a great difference between hospice patients and the family caregivers in reporting patients' care needs. Thus, hospice nurses need to educate family caregivers to more accurately assess patients' care needs.

• Korean Journal of Psychosomatic Medicine
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• v.9 no.1
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• pp.16-27
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• 2001

Objectives : This study was aimed to investigate stress and coping strategy in the families of schizophrenic patient, and changes of knowledge, stress and coping strategy after brief program of family education compared with control group Methods : The education group consisted of twenty four people who were families with schizophrenic patients and attended the brief program of family education. The control group consisted of twenty two people with schizophrenic inpatients. Self-report questionnaires such as Family Coping Questionnaire(FCQ), Patient Rejection Scale(PRS), Worry Questionnaire, Knowledge Questionnaire, Beck Depression Inventory(BDI), and State-Trait Anxiety Inventory(STAI) were administered to the education group and the control group, twice at the pre-test and post-test. Results : 1) In the education group, scores of worry questionnaire, BDI and STAI-S at the post-test were significantly lower than those at the pre-test. Social interests score of FCQ and knowledge questionnaire score at the post-test were significantly higher than those at the pre-test. In FCQ factors, social interests associated with avoidance strategy score at the post-test was significantly higher than that at the pre-test. However, in the control group, there was no significant difference in all questionnaires. 2) In the education group, significant positive correlation existed between calculated differences of worry questionnaire and STAI-S, and between worry questionnaire and STAI-T, whereas significant negative correlation existed between positive communication of FCQ and PRS, and between knowledge questionnaire and STAI-S. In the control group, significant negative correlation existed between information of FCQ and PRS, and between positive communication of FCQ and PRS. 3) In the education group, significant positive correlation existed between calculated differences of worry questionnaire and age of patient, whereas significant negative correlation existed between knowledge questionnaire and duration of illness. However, in the control group, there was no significant correlation. Conclusion : The brief program of family education was effective in increasing knowledge about schizophrenia, decreasing worry and anxiety about the patients in families with schizophrenic patient. In the education group as knowledge about schizophrenia increased, anxiety about schizophrenic patient decreased, but there was no significant correlation in the control group. As relative's rejection feeling about schizophrenic patient decreased, positive communication strategy increased in both groups. However, the control group was more affected by rejection feeling than the education group.

• Journal of Digital Convergence
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• v.16 no.4
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• pp.157-166
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• 2018

This study was conducted to identify the social perception of schizophrenic patients through films expressed in schizophrenic patients. We analyzed 48 films and scenarios that have been screened for the last 40 years by content analysis method to perceive interpersonal and emotional perception, perception of families and treatment measures. Patients were violent, dangerous, and burdensome to the family. However, specific experience or internal description has increased, and attitude of family or patients related to treatment has been more actively described since 1996. In conclusion, the perception of patients seen negative, want to avoid, giving burdens and pain to others. Therefore, to improve the social perception of mental disorders, it is necessary to make active use of films that have a high impact on public perception, and try to study the influence of visual media on perception change.

• Journal of Digital Convergence
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• v.17 no.3
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• pp.291-304
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• 2019

The purpose of this study was to identify factors influencing family caregivers' reaction of persons with cancer. The study participants were 130 cancer patients and their family caregivers. Data on participant characteristics, caregiver reaction, perceived social support, and cancer related health literacy were collected from July 17 to November 7, 2018 using a structured questionnaire. Data were analyzed with the SPSS/WIN 23.0 program for descriptive statistics, using independent t-test, one-way analysis of variance, Pearson's correlation coefficient and enter multiple regression analysis. The determining factors affecting caregivers' reaction were in case of spouse of patient(${\beta}=.252$, p=.002), subjective health status(${\beta}=-.207$ p=.012), and health literacy (self-care, patient's needs and preference) (${\beta}=-.411$, p<.001; ${\beta}=.247$, p=.037 respectively), and their explanation power was about 37.9%. This finding underscores the need for developing and application of the individualized education program with health literacy improvement strategies for family caregivers of cancer patients.

• Journal of Hospice and Palliative Care
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• v.10 no.3
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• pp.137-144
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• 2007

Purpose: The purpose of this study is to identify and assess the needs of the cancer patients and their families and provide basic data to meet with their needs. Methods: This is a descriptive study using questionnaire method. Questionnaire were collected by mail from 76 discharged patients from a hospice ward from May until the end of October, 2004, and data were analyzed by SPSS 10.0. Results: Admitted patients had needs of pain control (85.5%), non-pain symptoms (63.2%) such as vomiting, dyspnea, ascites, etc, and emotional and spiritual problem solving (28.9%, 14.5%). Interests of patients were health care of himself/herself (65.8%), concern for their spouses left alone (32.9%), and future of their children (15.8%). In families' needs of care of 5 areas, "information on patient's status and treatment/nursing care" was shown most high score ($3.48{\pm}0.62$). In detailed questions, they request most 'to inform the prognosis of patients' and the next is 'to inform the reasons that nursing care was required'. The next highest score was to 'inform family roles' ($3.39{\pm}0.64$), and next was spiritual support ($3.11{\pm}0.79$), and emotional support ($3.08{\pm}0.72$). Expectations of family on the treatment were comfortable dying (73.4%) scored the highest. Patients' families were satisfied with volunteer service most in service area (97.4%). The next was pain control (89.5%) and nursing service (77.6%). Conclusion: Health care staff should identify the actual needs of families caring cancer patients and they should operate realistic programme which can give continuous and assistance by reflecting individual needs and characteristics. With these srategies, the quality of life of patients and families can be improved. And then the intervention programme should be developed to measure subjective nursing care needs of terminally ill cancer patients and their families.

• Journal of Digital Convergence
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• v.15 no.9
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• pp.375-384
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• 2017

The Purpose of this study was to examine, the effects of depression, family Support, and medical suport on rehabilitation motivation among stroke patients. Participants in this cross- sectional, descriptive study were 206 stroke patients who completed a self-report structured questionnaire. The data were analyzed using descriptive statistics, t-test, one-way ANOVA, correlation and stepwise multiple regression analyses with IBM SPSS Win 22 Program. Family support, medical support, education and age were strong predictors of rehabilitation motivation in stroke patients. These variables explained 58.3% of the variance in rehabilitation motivation. Depression was not a predictor of rehabilitation motivation. A higher level of rehabilitation motivation was associated with lower levels of depression and higher levels of family support and medical support. These results show that effective strategies for improving family support and medical support. are needed to improving rehabilitation motivation among stroke patients.

• The Journal of the Korea Contents Association
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• v.22 no.6
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• pp.506-517
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• 2022

The study was conducted to identify and clarify the conceptual definitions and attributes of caregiving satisfaction in family caregivers of patients with dementia. The hybird model was used to perform the concept analysis of caregiving satisfaction. Results from both the theoretical review and a field study including 7 participants were included in final process. The concept of caregiving satisfaction was found to have three dimensions with seven attributes. Caregiving satisfaction by family caregivers of patients with dementia was defined as positive of aspects of caregiving usually experienced in three dimensions such as interpersonal dimensions (accomplishing a duty, reciprocity, strengthening of the relationship), role performance dimensions (feeling of accomplishment, emotional reward, emotional comfort) and meaning of role dimensions (positive meaning-making). Based on the results, a tool for measuring caregiving satisfaction among Koreans family caregivers of patients with dementia and effective programs for enhancing caregiving satisfaction should be developed in future studies.

• 대한근관절건강학회:학술대회논문집
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• 2002.11a
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• pp.257-261
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• 2002