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http://dx.doi.org/10.18598/kcbot.2020.10.1.04

Survey on the Care Burden and Quality of Life in Family Caregivers of Patients Using Home Mechanical Ventilator in Yeongnam Region, Korea  

Son, Ju-Hyun (Department of Rehabilitation Medicine, Pusan National University Yangsan Hospital)
Moon, Myung-Hoon (Department of Rehabilitation Medicine, Keunsol Hospital)
Cho, Mi-Kyung (Department of Rehabilitation Medicine, Pusan National University Hospital)
Yun, Ra-Yu (Department of Rehabilitation Medicine, Pusan National University Yangsan Hospital)
Huh, Sung-Chul (Department of Rehabilitation Medicine, Pusan National University Yangsan Hospital)
Min, Ji-Hong (Department of Rehabilitation Medicine, Pusan National University Yangsan Hospital)
Moon, Jung-In (Department of Occupational Therapy, Pusan National University Yangsan Hospital)
Kim, Soo-Yeon (Department of Rehabilitation Medicine, Pusan National University Yangsan Hospital)
Publication Information
The Journal of Korean society of community based occupational therapy / v.10, no.1, 2020 , pp. 39-49 More about this Journal
Abstract
Objective : The aim of this study was to investigate the care burden and life quality in family caregivers of community-dwelling patients using home mechanical ventilator(HMV) in Yeognam region. Methods : Survey performed to family caregivers of the patients using HMV in Yeognam region, Korea. The questionnaire is composed with patient care and the burden on caring. Korean version of Short Form Zarit Burden Interview(K-ZBI-12) and 3-Level version of EuroQol-5 Dimension applying Korean weight(KEQ-5D-3L) were also investigated. Statistical significance was accepted for p<.05. Results : A total 98 out of 150 questionnaires were analyzed. The K-ZBI-12(33.08±10.34) had a correlation with KEQ-5D-3L(0.71±0.25) negatively(p=.038). Patients' age, duration of HMV, financial burden and professional caregivers' care time had correlations with K-ZBI-12 positively(p<.05). KEQ-5D-3L correlated duration of HMV negatively(p=.017). Invasive ventilator group had lower KEQ-5D-3L than the non-invasive ventilator group(p=.008). K-ZBI-12 was lower in more than one caregiver care of patients than in one(p=.001). Conclusion : This study revealed high care burden and low quality of life in family caregivers of the patients with HMV in Yeongnam region, Korea. Efforts are needed to continually identify the needs of patients and their families, and the socioeconomic support and medical services associated with HMV.
Keywords
Home mechanical ventilator; Family; Care burden; Life quality;
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1 EuroQol Group (1990). EuroQol-A new facility for the measurement of health-related quality of life. Health Policy, 16(3), 199-208.   DOI
2 Gelinas, D. F., O'Connor, P., & Miller, R. G. (1998). Quality of life for ventilator-dependent ALS patients and their caregivers. Journal of the Neurological Sciences, 160(Suppl. 1), S134-S136.   DOI
3 Gratao, A. C. M., Brigola, A. G., Ottaviani, A. C., Luchesi, B. M., Souza, E. N., Rossetti, E. S., et al. (2019). Brief version of Zarit Burden Interview(ZBI) for burden assessment in older caregivers. Dementia & Neuropsychologia, 13(1), 122-129.   DOI
4 Higginson, I. J., Gao, W., Jackson, D., Murray, J., & Harding, R. (2010). Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions. Journal of Clinical Epidemiology, 63(5), 535-542.   DOI
5 Hind, M., Polkey, M. I., & Simonds, A. K. (2017). AJRCCM: 100-year anniversary. Homeward bound: A centenary of home mechanical ventilation. American Journal of Respiratory and Critical Care Medicine, 195(9), 1140-1149.   DOI
6 Hwang, M. S., Lee, M. K., & Song, J. R. (2014). The factors affecting burdens and quality of life of the family caregivers of patients with rare and incurable diseases using home ventilators. Korean Society of Adult Nursing, 26(2), 191-202.   DOI
7 Kaub-Wittemer, D., Steinbuchel, N., Wasner, M., Laier-Groeneveld, G., & Borasio, G. D. (2003). Quality of life and psychosocial issues in ventilated patients with amyotrophic lateral sclerosis and their caregivers. Journal of Pain and Symptom Management, 26(4), 890-896.   DOI
8 Kim, D. H., Kang, S. W., & Choi, W. A. (2014). Home mechanical ventilation in South Korea. Yonsei Medical Journal, 55(6), 1729-1735.   DOI
9 Chio, A., Calvo, A., Moglia, C., Gamna, F., Mattei, A., Mazzini, L., et al. (2012). Non-invasive ventilation in amyotrophic lateral sclerosis: A 10 year population based study. Journal of Neurology, Neurosurgery and Psychiatry, 83(4), 377-381.
10 Bae, K. Y., Shin, I. S., Kim, S. W., Kim, J. M., Yang, S. J., Mun, J. U., et al. (2006). Care burden caregivers according to cognitive function of elderly persons. Journal of the Korean Society of Biological Therapies in Psychiatry, 12, 66-75.
11 Douglas, S. L., & Daly, B. J. (2003). Caregivers of long-term ventilator patients: Physical and psychological outcomes. Chest, 123(4), 1073-1081.   DOI
12 Korea Centers for Disease Control & Prevention. (2020). 2020 희귀질환자 의료비지원사업 안내. Retrieved March 16, 2020, from https://helpline.nih.go.kr
13 Kim, D. H., Kang, S. W., Choi, W., Moon, J. H., Baek, J. H., Choi, S. H., et al. (2010). A research on the management of ventilatory insufficiency in patients with neuromuscular diseases. Journal of Korean Academy of Rehabilitation Medicine, 34(3), 347-354.
14 Kim, M. S., Shin, H. I., Min, Y., Kim, J. Y., & Kim, J. S. (2011). Correlation between severe ALS patientcaregiver couples' characteristics and caregivers' health related quality of life. Journal of Korean Academy of Nursing, 41(3), 354-363.   DOI
15 Korea Centers for Disease Control & Prevention. (2011). Validity and reliability evaluation for EQ-5D in Korea. Retrieved March 16, 2020, from http://www.ndsl.kr
16 Korea Ministry of Government Legislation. (2015). 보건복지부 고시 제2015-231호, 2015. 12. 23. Retrieved March 16, 2020, from http://www.law.go.kr
17 Korea Ministry of Government Legislation. (2019). 보건복지부 고시 제2019-127호, 2019. 6. 26. Retrieved March 16, 2020, from http://www.law.go.kr
18 Korea Ministry of Health and Welfare. (2019). 시도별 장애인활동지원 현황. Retrieved March 16, 2020, from https://www.data.go.kr/dataset/3084474/fileData.do
19 Lee, Y. K., Nam, H. S., Chuang, L. H., Kim, K. Y., Yang, H. K., Kwon, I. S., et al. (2009). South Korean time trade-off values for EQ-5D health states: Modeling with observed values for 101 health states. Value in Health, 12(8), 1187-1193.   DOI
20 Lewarski, J. S., & Gay, P. C. (2007). Current issues in home mechanical ventilation. Chest, 132(2), 671-676.   DOI
21 Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. Gerontologist, 20(6), 649-655.   DOI
22 Min, Y., Kim, J. Y., Kim, M., Kim, J. S., Kim, H. L., & Shin, H. I. (2010). Quality of life and care burden of caregivers of ventilator-dependent amyotrophic lateral sclerosis patients. Journal of Korean Academy of Rehabilitation Medicine, 34(4), 442-450.
23 Park, J. H., Kang, S. W., Kim, E. J., & Ha, Y. R. (2004). Quality of life in patients with neuromuscular disease using mechanical ventilatory support. Journal of Korean Academy of Rehabilitation Medicine, 28(2), 157-162.
24 Park, K. H., Kim, H. Y., Nam, Y. H., Kim, J., Joo, I. S., Sung, J. J., et al (2006). Preliminary study on clinical characteristics and caregivers' burden of Korean patients with amyotrophic lateral sclerosis: Survey based on database of Korea ALS association. Journal of the Korean Neurological Association, 24(3), 252-259.
25 Tsara, V., Serasli, E., Voutsas, V., Lazarides, V., & Christaki, P. (2006). Burden and coping strategies in families of patients under noninvasive home mechanical ventilation. Respiration, 73(1), 61-67.   DOI