• Title/Summary/Keyword: 환자 및 보호자

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The Perception and Emotional Experiences of Rare and Intractable Diseases in Caregivers and Pediatric Patients with Mitochondrial diseases (미토콘드리아 질환 소아 환자 보호자에서의 질환 인식 및 정서변화)

  • Eom, Soyong;Lee, Joo Young;Hyun, Jiah;Lee, Young-Mock
    • Journal of The Korean Society of Inherited Metabolic disease
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    • v.17 no.1
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    • pp.1-10
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    • 2017
  • Purpose: This study aimed to investigate the perception and emotional experiences in rare and intractable diseases for caregivers of pediatric patients with mitochondrial diseases in order to provide therapeutic interventions for patients, caregivers, and families. Methods: A total of 83 caregivers of pediatric patients with mitochondrial diseases were recruited from the pediatric mitochondrial disease clinics of the Gangnam Severance Hospital in South Korea. Participants completed the survey about their perception of mitochondrial disease and emotional experiences after the diagnosis, and these clinical data were analyzed accordingly. Results: Surveys from a total of 83 caregivers of patients were analyzed, and the patients' age ranged from 6 to 12 years (33%), followed by ages 1 to 6 years (30%). Children with mitochondrial diseases were between 0 and 0.5 years of age at the time of first symptom onset (43%), and the duration of illness lasted more than 10 years in most cases (42%). Prior to diagnosis of mitochondrial diseases, the amount of awareness the caregivers had was 'Not at all' for both rare and intractable diseases and mitochondrial diseases in 44 cases and 68 cases, respectively. For the caregivers' emotional experiences, the most common initial responses were 'Discouraged/despair', 'Helpless/lethargic', and 'Disconcerted'. 'Anxious', 'Committed to treatment', and 'Responsibility as family members' were the most common emotional responses from the caregivers, followed by 'Disconcerted' and 'Helpless/lethargic'. Conclusion: It is important to consider the level of perception and emotional experiences of caregivers and patients with rare and intractable mitochondrial diseases for planning treatment programs.

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A Study on the Activation of Service for Patients and Carers in the Library in Hospital (병원 내 도서관의 환자 및 보호자를 위한 서비스 활성화 방안 연구)

  • Shin, Youngji;Lee, Seok Hyoung;Noh, Younghee
    • Journal of Korean Library and Information Science Society
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    • v.51 no.3
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    • pp.149-169
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    • 2020
  • This study focused on library services for patients and carers and conducted an awareness survey on the current status of library services for patients and carers in hospitals in Korea and on future library services for patients and carers. Through this, the ways to activate library services for patients and carers in the hospital were sought. Based on the results of the study, the research team proposes the following measures: First, the legislation for the mandatory establishment of libraries in hospitals and standards for the size, book collection, and manpower of libraries in hospitals should be enacted. Second, cooperation between the Ministry of Culture, Sports and Tourism, and the Ministry of Health and Welfare is essential to lay the foundation for the mandatory and voluntary establishment of hospital libraries at the national level in the future. Third, the operation of regional representative libraries, public libraries, and other institutions should be considered.

A SURVEY OF GUARDIANS' COGNITION LEVEL AND SATISFACTION RATE ABOUT CONSCIOUS SEDATION (의식하 진정법에 관한 보호자의 인식도 및 만족도 조사)

  • Choi, Han-Ju;Park, Jae-Hong;Kim, Gwang-Chul;Choi, Sung-Chul
    • Journal of the korean academy of Pediatric Dentistry
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    • v.35 no.4
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    • pp.700-708
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    • 2008
  • The aim of this study was to recognize guardians' desire and awareness on sedation, and to guide guardians' satisfaction and cooperation. Followings are the conclusion : 1. Information supply about conscious sedation were restrictive and insufficient. 2. Both first-visit guardians and guardians of sedated patients were interested in decrease of dental fear. 3. Both first-visit guardians and guardians of sedated patients were satisfied with psychological improvement better than behavior improvement. Therefore, decrease of patients'ear and anxiety was essential. 4. Both first-visit guardians and guardians of sedated patients didn't recognize accurate safety of conscious sedation.

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A Convergent Study of the Physical Related Quality of Life Using SF-8 of Stroke Patient's Caregiver (뇌졸중 환자 보호자의 SF-8을 이용한 신체건강관련 삶의 질 융복합적 연구)

  • Kim, Young-Ran;Kim, Young-il;Kim, Min-jeong
    • Journal of the Korea Convergence Society
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    • v.8 no.12
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    • pp.119-127
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    • 2017
  • This paper convergent examined caregiver burden, depressive symptoms and health related quality of life of 226 caregivers of stroke patients, who had been hospitalized in 7 general hospitals located in Cheongju and Daejeon Metropolitan city. The quality of life was measured using SF-8, which is a short version of HRQoL. According to Multiple regression Analysis, dependence of a patient were important factors in the physical related quality of life. These results suggest that in order to improve the quality of life related to the physical health of the stroke patient's caregiver, the elderly long-term care insurance system and the caregiver system and the ward of the Ministry of Health and Welfare are expanded ward without a caregiver. There is a need to raise expectations for recovery through education and family support groups.

A Phenomenological Study on Psychosocial Nursing Care in Korea (한국에서의 사회심리적 간호에 관한 현상학적 연구)

  • Yi, Myung-Sun
    • Journal of Korean Academy of Nursing
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    • v.24 no.2
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    • pp.226-240
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    • 1994
  • 본 연구의 목적은 한국의 사회심리적 간호현상을 밝힘에 있다. 이를 위한 자료는9명의 임상경험이 많은 병원 간호사들을 심층면담하여 수집하였으며, 분석은 해석학적 현상학과 근거 이론 방법에서 사용하는 계속비교 분석 방법을 이용하였다. 사회심리적 간호는 ‘정보제공’, ‘위로’, ‘상담’, ‘지도’의 네가지 범주로 구분되었다. 이 중에서 정보제공이 가장 많이 사용되었고 중요하게 여겨 진 반면, 상담과 지도는 흔히 사용되지 않았다. 이는 상담과 지도는 고도의 의사소통 기술, 인간관계에 대한 이해, 그리고 타인에 대한 감성등이 요구되었기 때문이다. 사회심리적 간호제공에 방해를 주는 요인도 밝혀졌다. 첫째, 가족이나 보호자들의 상주로 인해 간호사들이 사회심리적 간호의 임을 이들에게 떠넘기는 경향이 있었다. 둘째, 간호사의 특성, 즉 치료적 인간관계를 확립할 수 있는 간호사의 능력부족이 방해요인이었다. 셋째, 신체적 간호만을 중시하고 높은 간호사대 환자 비율을 가진 병원 시스템이 방해요인이었다. 넷째, 조밀한 병상등의 병원환경도 해요인으로 나타났다. 사회심리적 간호는 간호사-환자-보호자 관계를 치료적으로 형성 유지할 수 있는 간호사의 능력에 따라 결정되었기 때문에 이에 대한 분석을 계속하였으며, 치료적 관계형성과 유지에 영향을 주는 요인은 다음과 같이 나타났다. 첫째, 간호사의 기술적, 신체적 간호의 유능성이 치료적 관계형성에 필요하였다. 둘째, 환자 및 보호자와 신뢰관계를 구축할 수 있는 능력이 필요하였다. 셋째, 환자의 요구에 따르는 역할을 제대로 수행할 수는 능력이 필요하였다. 즉, 치료적 관계형성은 환자와의 신뢰형성만으로는 부족하며, 환자와 보호자의 요구에 따르는 역할, 즉 정보제공자, 위로자, 상담자, 지도자의 역할까지도 수행할 수 있어야 함을 의미한다. 이 외에도, 간호사들이 치료적 관계를 형성하고 유지하기 위하여 사용한 대책들을 제시하고 논의하였다. 본 연구는 한국의 사회심리적 간호의 범주, 방해요인, 촉진요인 등을 설명하고 기술하였기에, 우리나라의 간호사들이 사회심리적 간호를 위해 어떠한 일들을 주로 수행하며, 어떻게 환자 및 보호자들과 상호작용하면서 간호중재를 펴나가는가를 이해하는데 도움을 주리라 여겨진다.

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Monitoring of Methicillin Resistant Staphylococcus aureus from Medical Environment in Korea. (국내 의료 환경 중의 Methicillin 내성 Staphylococcus aureus의 모니터링에 관한 연구)

  • Kwon, Young-Il;Kim, Tae-Woon;Kim, Hae-Yeong;Chang, Yun-Hee;Kwak, Hyo-Sun;Woo, Gun-Jo;Chung, Yun-Hee
    • Microbiology and Biotechnology Letters
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    • v.35 no.2
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    • pp.158-162
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    • 2007
  • Methicillin-resistant Staphylococcus aureus (MRSA) is one of a major nosocomial pathogen worldwide and the emergence of this strain has become a major clinical problem. This study was performed for 13 hospitals with more than 400 beds in the country by collecting samples including hands and nasal cavities of doctors, nurses, guardians and patients. Also, additional 320 samples of hands and nasal cavities of 160 community resident in different locations and regions were collected. In all of medical environments and community resident, 625 strains of S. aureus were detected. Among 625 strains of S. aureus, 585 strains(93.6%) showed the resistance to at least one kind of antimicrobial and 112 strains (17.9%) showed multi-drug resistance with the resistance to 4 different types of antimicrobial. Total 152 MRSA strains (24.3%) were isolated from medical environment and community resident. In nasal cavity and hand, 49 MRSA (19.4%) and 103 (27.6%) MRSA were isolated, respectively Minimum inhibitory concentration(MIC) test is used to measure for susceptibility of MRSA isolated to oxacillin. At a concentration $16{\mu}g/ml$ of oxacillin, 11 strains were inhibited. 32 strains at $32{\mu}g/ml$, 41 strains at $64{\mu}g/ml$, 3 strains at $128{\mu}g/ml$, 25 stains at $256{\mu}g/ml$ and 40 strains at over $256{\mu}g/ml$ were inhibited. It was considered that medical environment showed higher than livestock and marine environments in MRSA detection rate.

Analysis of the Perception of Hospice and Narcotic Analgesics by Family Caregivers of Terminal Cancer Patient (말기 암 환자 보호자의 호스피스와 마약성 진통제에 대한 인식도 분석)

  • Kwak, Kyung-Sook;Chun, Sung-Ho;Ha, Jung-Ok;Lee, Kyung-Hee
    • Journal of Hospice and Palliative Care
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    • v.9 no.2
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    • pp.106-111
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    • 2006
  • Purpose: In terminal cancer patients, pain control with narcotic analgesics and supportive care by hospice are very useful treatment modality. However, many patients and their caregivers are poorly compliant in using narcotic analgesics for fear of addiction and tolerance. And also many patients and family caregivers are reluctant to accept hospice, presuming that hospice means patient's condition is no longer reversible and progressively deteriorating. The purpose of this study was to evaluate and analyze the perception of using narcotic analgesics and hospice by family caregivers of terminal cancer patients who play a critical role in health care in Korean culture. Methods: A total of 54 terminal ranter patient's family caregivers participated in this study. Questionnaire consisted of 15 questions about narcotic analgesics and hospice. Results: The study revealed following results. 1) family caregivers who are not aware of hospice are more than half (56.7%). 2) 81.8% of family caregivers agreed that hospice care is beneficial to terminal cancer patients. 3) 85.1% of family caregivers were under financial burden. 4) 83.2% of patient complained pain in 24 hours. 3) while 88.5% of family caregivers believed that narcotic analgesics can control pair, 79.1% and 79.6% of them also believed that use of narcotic analgesics would result in addiction and tolerance, respectively. Conclusion: There still exist barriers to family caregivers in using narcotic analgesics for pain control. And also, terminal cancer patient's family caregivers have poor information about hospice. Therefore, educational intervention about narcotic analgesics by pharmacist and doctors are needed for proper pain control for terminal ranter patients. In addition, more precise information about hospice care should be provided for terminal cancer patients and their family caregivers.

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Uncertainty and Performance of Infection Control in Caregivers of Vancomycin-Resistant Enterococci Patients (반코마이신 내성 장구균 환자 보호자의 질병 불확실성과 감염관리 수행)

  • Lee, Eunsuk
    • The Journal of the Korea Contents Association
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    • v.15 no.6
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    • pp.346-357
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    • 2015
  • Purpose: This descriptive study was to examine uncertainty and performance of infection control in the VRE patients' caregivers. Methods: The participants were 82 caregivers who involved with the VRE patients care in D tertiary hospital in D metropolitan city. Data were analyzed with number, percentage, t-test, and ANOVA using SPSS/Win 21.0. Results: The participants' uncertainty was 56.99 and performance of infection control was 35.09. Performance of infection control was significantly different by age (F=121.38, p<.001), education (F=102.77, p<.001), relationship with the patient (F=17.80, p<.001), hours of caring per day (t=3.14, p=.002), and type of family (t=-8.65, p<.001). There was a significant negative correlation between participants' uncertainty and performance of infection control (r=-.96, p<.001). Conclusion: The results of the study will be used to develop nursing intervention program and standard protocol for infection control for the VRE patients' caregivers.

Design and Implementation of an OSGi-based Old Age Patient Care System in Embedded Programming on RFIDs and Infrared Sensors (RFID와 적외선 센서의 임베디드 프로그래밍을 통한 OSGi 기반 노령 환자 케어 시스템의 설계 및 구현)

  • Cha, Si-Ho;Kim, Dae-Young;Choi, Jae-Ho;Lee, Jong-Eon;Kim, Kyu-Ho;Cho, Kuk-Hyun
    • The Journal of Korean Institute of Communications and Information Sciences
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    • v.33 no.11B
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    • pp.1005-1012
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    • 2008
  • According to an aging population has dramatically increased in over the world, silver care becomes more important than other field. In this paper, we design and implement an old age patient care system that allows a carer to instantly monitor the status of proteges and notifies emergency of a patient to a medical institute. The system uses RFIDs and infrared sensors implemented in embedded software to analyze the activity and movement detection of the elderly. And the home gateway allows easy integration with heterogeneous devices by employing OSGi that is a middleware standard for home gateways. We can verify the information on the activity per day and the activity per week by Web browsers and view realtime video on the elderly by Web Cam using the implemented system. The system also can send us cell phone messages and E-mail in case of emergency.

Institutionalization of a Patient-Sitter Program in Acute Care Hospitals (보호자 없는 병원 제도화 방안)

  • You, Sun-Ju;Choi, Yun-Kyoung
    • The Journal of the Korea Contents Association
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    • v.13 no.6
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    • pp.370-379
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    • 2013
  • In an effort to resolve the burden of patients hiring patient sitters, this study sought to review the Ministry-of-Health-and-Welfare-initiated pilot program of running hospitals without patient-sitter to identify its background, operation method, performance results, and limitations. Based on the review, the study derived the necessity of introducing a hospital system without patient-sitter as well as its operation and systemization methods. The ministry-initiated pilot programs were conducted twice: in 2007, and in 2010. A review of the 2007 pilot program revealed that the patients and families' satisfaction score with nursing services was 9.1 points (on a 10-point scale), their intention to reuse the service was 97.8%, and their intention to recommend the service was 98.0%, all high scores. Appropriate nursing manpower, derived from the 2007 pilot project, indicated 2.3 patients per nurse and 4.0 patients per nurse aid. The 2010 pilot project results indicated that the patients and families' satisfaction was high at 8.0-9.1 points (on a 10-point scale), and that the intention to reuse and recommend the service was also high. Compared with the 2007 pilot project, however, the types of medical institutions and the nurse to patient ratios were diverse, offering limitations. In conclusion, to systemize hospitals without patient-sitter, it is necessary to develop policies designed to establish criteria for the appropriate nurse to patient ratio and skill-mix, to standardize the work, to prepare finances for securing nursing staff, to evaluate the nursing demands, and to monitor the quality management.