• 한국가족관계학회지
• /
• 제21권1호
• /
• pp.3-27
• /
• 2016

Objective: The purpose of this study was to explore the essence of disabled parents' experiences of raising children. Method: Five families, which were composed with parents with physical disabilities and children, were participated into this study. One-time interview was conducted with mother of each family and it was recorded, coded, and analysed using method of Giorgi's phenomenological study. Result: Three superordinate themes, nine subordinate themes, and 22 concepts were derived. The essence of disabled parents' experiences of raising children was "disabled parents' growth with their children despite of prejudice." This represented that even though disabled parents faced with diverse kinds of difficulties, they put their heart and soul into raising their children and they encouraged their children to have their feet on the ground firmly. Finally, disabled parents went out into the world with their children. Conclusion: The current study illustrated how those stories about raising children could be interpreted from the perspective of the family relation, and suggested possible ways to support disabled parents for raising children.

• 디지털융복합연구
• /
• 제14권11호
• /
• pp.389-397
• /
• 2016

본 연구의 목적은 장애아동의 어머니를 대상으로 가족건강성이 양육스트레스에 미치는 영향을 확인하는 것이다. 연구설계는 서술적 조사연구이다. 연구대상자는 D시와 C시에 거주하고 있는 장애아동의 어머니 178명이다. 수집된 자료는 SPSS 21 program을 이용하였으며, 기술통계, t-test, 분산분석, 상관관계 및 다중회귀분석을 이용하여 분석하였다. 연구결과, 대상자가 지각한 가족건강성과 양육스트레스는 유의한 부적 상관관계가 있었다. 다중회귀분석결과, 종교가 없는 경우, 장애아동의 치료기간이 길수록, 가족건강성이 높을수록 양육스트레스가 낮게 나타났으며, 이들 변수는 장애아동 어머니의 양육스트레스의 총 28.5%를 설명하였다. 따라서 본 연구는 장애아동의 주 양육자인 어머니들을 대상으로 가족건강성이 장애아동 부모의 양육스트레스에 대한 주요한 영향요인임을 확인할 수 있었다. 추후 이러한 연구결과를 토대로 장애아동 가족의 가족건강성을 증진시키기 위한 다양한 전략을 모색해야 할 것이다.

• 대한간호학회지
• /
• 제29권2호
• /
• pp.238-247
• /
• 1999

The purpose of this study was to describe the relationship between family stress and adaptation in families with a disabled child through literature review using McCubbin's Double ABCX family crisis framework. The literature review focused on (1) family stress and factors affecting family stress, (2) the critical individual, familial and social resources which families acquire and employ over time in managing crisis situation. (3) the changes in definition and meaning families develop in an effort to make sense out of their predicament. (4) the coping strategies families employ. and (5) the range of outcomes of these family efforts The results showed that families reported financial difficulties and the burden of care-giving demands as major family stressors. Siblings of disabled children manifested depressive symptoms and social isolation. but was not consistent study results. The parents' views of the cause of the disabling condition fundamentally affected their behavior toward their disabled child. Especially. the fathers' views of the child's characteristics made the greatest contribution to positive changes in the mothers' perceptions. The term perceived social support refers to the cognitive appraisal by individuals that they are cared for and valued, that significant others are available to them if needed, and that they are satisfied with their interpersonal relationships. The perceived social support was more protective than social support source. network size and network density. Parental adaptation was found to be related to the child's communication competence rather than family coping strategies proposed by Lazarus and Folkman. One study results showed that there was no difference in depressive symptoms and physical health between mothers with a disabled child and those without all though mothers with a disabled child had negative attitudes and perceived themselves as having significantly less social support and lower family functioning. But a longitudinal study revealed decreases in the negative impact of the child and increases in sibling and overall family adaptation.

• 대한가정학회지
• /
• 제44권12호
• /
• pp.179-188
• /
• 2006

This study compared parental satisfaction between mothers who have young children with and without disabilities. The study subjects were 100 mothers who take care of disabled children and 123 mothers who take care of non-disabled children. The children's ages were from 3 to 6 years. The results of this study were as follows First, the mothers who take care of disabled children had lower mother's parental satisfaction than those who have ordinary mothers. Second, the children's age and the degree of disability had an affirmative influence on the parental satisfaction of the mothers who have disabled children. There were significant differences in the parental satisfaction of the mothers who have ordinary children according to mothers' age and their educational background. The parental satisfaction in both mother groups increased with increasing parenting efficacy, marital satisfaction and family support, and with decreasing parenting stress. Finally, parenting efficacy, children's age, parenting stress, and family support significantly predicted the parental satisfaction of the mothers who have disabled children while parenting efficacy, parenting stress, and educational background significantly predicted the parental satisfaction of the mothers who have ordinary children.

• 가족자원경영과 정책
• /
• 제17권2호
• /
• pp.75-91
• /
• 2013

This study is focused on the amount of time spent on child care by mothers with preschool children with developmental disabilities. It is designed to find out how much time mothers spend taking care of their children and to identify related factors. The subjects of this study are 162 mothers of children with developmental disabilities residing in Seoul. The findings are as follows: First, mothers with preschool children with developmental disabilities spent 6 hours and 50 minutes per day caring for their children during weekdays and 6 hours and 10 minutes on weekend days. This is double the amount of time spent by the average mother with preschool children. Second, mothers spent much more time caring for their disabled children than they do for their children without disabilities. Third, determinants of a mother's time for caring their disabled child during weekdays were mother's employment, the number of children, and gender of the disabled child. On weekend days, determinants of mother's care time were the number of children and husband's help for childrearing.

• 디지털융복합연구
• /
• 제11권9호
• /
• pp.239-246
• /
• 2013

본 연구는 가족탄력성이 장애아동 가족의 비 장애형제자매가 장애아동을 대하는 긍정적 태도에 어떠한 영향을 미치는지 알아보고자 실시하였다. 이를 검증하기 위해 6개 기관의 협력을 받아 총 110명의 비 장애형제자매를 대상으로 설문조사를 실시하였다. 설문지는 부모의 일반적 특성과, 장애아동의 일반적 특성, 비 장애 형제자매의 일반적 특성, 수용적 지지적 태도, 가족탄력성으로 구성되었다. 수집된 자료는 일반적 특성에 따른 비 장애 형제자매의 긍정적 태도의 유의성 검정을 위해 t-검정, ANOVA을 실시하였고, 가족탄력성이 비 장애 형제자매의 긍정적 태도에 미치는 영향을 알아보기 위해 상관관계와 회귀분석을 실시하였다. 구조방정식검정을 위해 AMOS18을 사용하였다. 그 결과, 장애아동에 대한 비 장애 형제자매의 긍정적 태도와 가족탄력성은 신념체계와 조직패턴, 의사소통과정의 하부 영역들과 정적인 상관관계를 보이고 있으며, 가족탄력성의 전체 설명량은 50%로 높은 영향력을 보이고 있다. 본 연구의 결과로 보아 가족이 위기에 처했을 때 가족 구성원이 협력적 노력과 문제해결을 위한 소통, 그리고 적극적인 노력을 하려는 경향을 보일 때 장애아동에 대한 비 장애형제의 긍정적 태도는 높아진다는 것을 증명할 수 있었다.

• 한국생활과학회지
• /
• 제16권1호
• /
• pp.17-26
• /
• 2007

The purpose of this study was to compare parenting stress between mothers who have young children with and without disabilities. The subjects of this study were 100 mothers who take care of disabled children and 123 mothers who take care of non-disabled children. The children's ages were from 3 to 6 years. The results of this study were as follows; First, the mothers who have disabled children have more parenting stress than those who have ordinary children. Second, the mothers who have developmentally disabled children had more parenting stress than mothers who had other disabled children. Children's and mothers' ages had an influence on the parenting stress of the ordinary mothers. The mothers who had children with and without disabilities got less parenting stress as the mothers received more higher parenting efficacy, parent role satisfaction, marital satisfaction and family support.

• 사회복지연구
• /
• 제42권2호
• /
• pp.443-465
• /
• 2011

본 연구는 장애아동 아버지의 양육참여와 양육행동, 장애자녀에 대한 태도 및 친밀감을 향상시킬 수 있는 가족탄력성 증진 프로그램을 개발하고 적용하여 그 효과성을 검증하는데 목적이 있다. 프로그램은 가족탄력성의 개념을 기반으로 하위요인인 신념체계, 조직패턴, 의사소통과정을 포함하는 내용으로 구성하였고, 서울소재 복지관의 초등학생 장애자녀를 둔 아버지를 대상으로 주 1회 매 2시간씩, 총 7회기로 진행되었다. 연구결과, 통제집단은 결과에 유의미한 차이를 보이지 않았지만 프로그램에 참여한 실험집단 아버지들은 양육참여 정도와 장애자녀에 대한 태도에서 유의미한 향상을 보였다. 따라서 가족탄력성 증진 프로그램을 통해 장애아동 아버지들이 적극적으로 양육에 참여하게 되고 장애자녀에 대해 긍정적으로 인식하게 되었음을 보여줌으로써 가족탄력성 프로그램의 효과성을 입증하였다. 이러한 결과를 바탕으로 장애아동 아버지에 대한 사회복지 실천현장에서의 개입 방안에 대한 함의를 제언하였다.

• 한국간호교육학회지
• /
• 제14권2호
• /
• pp.315-323
• /
• 2008

Purpose: This study was performed to compare mothers' health promotion behaviors between those who have a disabled child and those who have a healthy child. Method: The participants were 243 mothers from 24 Daycare Centers for Children with Disabilities and 310 mothers from 5 child daycare centers. Mothers with preschool children completed self-report questionnaires, asking about health behaviors for preschool children. Data from these surveys was analyzed using the ANOVA, t-test, and $x^2$-test with the SPSS 15.0 Win program. Result: Mothers with disabled children showed less health promotion behaviors than the mothers' of children without disabilities. Two sub-categories, activity-exercise and health perception-health management pattern, showed significant differences between the two groups. In addition, mothers' health behaviors for disabled children were significantly different according to the children's age, mothers' employed status, and number of children in the family. Conclusion: These results suggest that mothers with disabled preschool children are likely to practice less health promotion behaviors with their children compared to others. These findings suggest that health promotion support programs for mothers with disabled children should be developed and offered. For effective intervention, pediatric nurses also need to be involved in the health of disabled children.

• 디지털융복합연구
• /
• 제19권10호
• /
• pp.419-425
• /
• 2021

본 연구는 장애아동 주 양육자의 행복감에 관련성이 있다고 규명된 요인들 간의 직접·간접효과를 분석하여, 장애아동 주 양육자의 행복감을 향상시키는 정책적인 대안을 탐색하는데 있다. 연구수행을 위해 전라북도 3개 지역을 대상으로 장애자녀의 주양육자 430명을 대상으로 수집된 자료를 활용하여 장애자녀 주 양육자의 사회적지지, 양육스트레스, 가족건강성과 행복감의 영향력에 대해서 살펴보았다. 주요 분석결과는 다음과 같다. 첫째, 사회적지지는 장애자녀주 양육자의 행복감에 직접적인 영향을 미침과 동시에 가족건강성을 통한 간접적인 영향력을 가지고 있는 것으로 나타났다. 둘째, 장애자녀 주 양육자의 가족건강성이 사회적 지지와 행복감 사이에서 매개효과가 있는 것으로 나타났다. 연구결과를 바탕으로 하여 장애자녀 주양육자에 대한 사회적지지, 가족건강성, 행복감을 증진하기 위한 사회복지적 융복합적 제언을 제시하였다.