• Title/Summary/Keyword: Caregiver education

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The Myth of Not Disclosing the Diagnosis of Cancer: Does it Really Protect Elderly Patients from Depression?

  • Silay, Kamile;Akinci, Sema;Ulas, Arife;Silay, Yavuz Selim;Akinci, Muhammed Bulent;Ozturk, Esin;Canbaz, Merve;Dilek, Imdat;Yalcin, Bulent
    • Asian Pacific Journal of Cancer Prevention
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    • v.16 no.2
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    • pp.837-840
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    • 2015
  • Background: The disclosure of a diagnosis of cancer is complex, particularly in older patients. The aim of this study was to investigate the association between age and not knowing the diagnosis, and its impact on mood. Materials and Methods: The study included 70 patients with various types of solid and hematologic cancer in early stages, which were followed up in an outpatient oncology/hematology clinic in Turkey between January, 2014 and June, 2014. Initially the caregivers of patients were asked whether the patients knew their diagnosis or not. A questionnaire for the Geriatric Depression Scale was then administered to the patients. Patient age, gender, marital status and education level were noted and analyzed with respect to knowing the diagnosis and depression. Results: Of the 70 patients, 40% of them were female. The mean age was $68.2{\pm}8.9$. The rate of the patients who does not know their diagnosis was 37.1% (n=26). The overall depression rate with GDS was found 37.1% (n=26) among the participants. There was no association with knowing the diagnosis (p=0.208) although the association between not knowing the diagnosis and age was significant (p=0.01). Conclusions: In this study we revealed no association between not knowing the diagnosis and depression in elderly patients. Contrary to what some has thought, the patient is not protected from psychological distress by not being informed about the diagnosis. We believe this study and similar ones will help to discuss and further explore patient autonomy, the principle of respect to self-determination and end of life issues in different cultures.

The Homecare Needs of Cancer Patients (암환자의 퇴원 후 가정간호 요구)

  • Kwon, In-Soo;Eun, Young
    • Journal of Korean Academy of Nursing
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    • v.29 no.4
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    • pp.743-754
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    • 1999
  • The purpose of this descriptive study was to identify the homecare needs of patients with cancer and to provide a basis of interventions. One hundred and two patients at one general hospital in Gyeongnam responded to a questionnaire developed on the basis of care needs perceived by nurses caring for hospitalized patients with cancer. The questionnaire was a Likert type 5 point scale with 56 items on five need categories ; 1) informational 2) physical care : 3) emotional care 4) socioeconomic care and 5) special care needs. Internal consistency of this questionnaire was Cronbach's $\alpha$=.9101 for total items. The data was collected from March 1st to May 31th, 1998, by two graduate nurses. In the data analysis, mean & standard deviation were calculated to identify the degree of care need of each item, and the t-test & ANOVA were done to determine the effects of patients' demographic background on their care needs. The findings are summarized as follows ; 1) The mean score of total of need items was 3.048. Of the four need categories the highest score was informational at 3.4, followed by emotional care, 3.063, physical care, 2.623, and socioeconomic care, 2.599. 2) In the informational need category there were four subcategories with 19 items. Medication and pain control had the highest score, 3.755 ; second was diet and exercise, 3.613 ; third was disease and treatment process, 3.337 ; and last was personal hygiene and infection prevention at 2.687. 3) In the physical care need category there was nine items, IV infusion for nutrition and management of treatment complication was above 3.2 points and the remaining items were in the 2.847-2.070 score ranges. 4) In the emotional care need category there were seven items. The highest need was in support for relationships with health personnel, 3.673. The need for support of religions beliefs and support for having a religion were low at about 2 points. 5) In the socioeconomic care need category there were six items. Support for medical insurance expansion and financial support were above 3 points. Legal support and support for caring of children were low in the care needs. 6) In the special care need category the there were 15 items. Informational need about immunization and informational need about effects of disease on growth and development were high, above 4.1 points. Need for decubitus care and prevention, sitz bath and incontinence care were low, below 2 points. 7) There were significant differences in degree of care need according to admission rate, education level, marital status, religion and caregiver's religion. In conclusion, homecare needs perceived by hospitalized patient's with cancer was moderate, but informational need was higher than direct care need, leading to the conclusion that the provision of sufficient information to patients with cancer at discharge is needed. Nursing interventions should be developed considering the patient's background.

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Effects of Long Term Care Hospital Care-givers' Fall Prevention Self Efficacy and Fall Prevention Health Belief on Fall Prevention Awareness (요양병원 간병사의 낙상예방효능감과 낙상예방건강신념이 낙상예방인지도에 미치는 영향)

  • Jung, Ji-Young;Park, Yoon-Ji;Jung, Gye Hyun
    • The Journal of the Korea Contents Association
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    • v.15 no.2
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    • pp.333-343
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    • 2015
  • The purpose of this study is to investigate the factors that affect the fall prevention awareness of care-givers working at long-term care hospitals. A convenience sampling method was used to select care-givers who worked at 7 different long term care hospitals which were located in D city and N city. Data were collected from July 2014 to August 2014. 200 data were used for analysis out of 215 data which were collected. The hierarchical regression analysis reveals the following results: Firstly, the effects of care-givers' education level, certificate status, period of work experience and fall-related learning hours on their fall prevention awareness level were statistically significant. Secondly, among fall prevention health beliefs, perceived benefit, perceived disability, perceived sensitivity and self-efficacy were positively related to the level of fall prevention awareness. Thirdly, while such factors as perceived benefit, perceived sensitivity and self-efficacy showed positive effects on the fall prevention awareness, the period of work experience had negative effects. The regression model shows the power of explanation of 31.7 percents. In conclusion, the study suggests a fine-tuned program to improve care-givers' fall prevention awareness in a way of promoting fall prevention self-efficacy, perceived benefits and perceived sensitivity while considering the care-givers' period of work experience.

The Effects of Toddlers' Characteristics and Child Care Environments on Toddlers' Behaviors in Child Care Center (영아특성 및 보육환경(보육시설과 교사)변인이 영아의 놀이실 행동에 미치는 영향)

  • Choi, Ji Hyun;Park, Hye Won
    • Korean Journal of Childcare and Education
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    • v.1 no.1
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    • pp.103-124
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    • 2005
  • This study aims to investigate and analyze how toddlers' characteristics and child care center's environments including facilities and care-givers' characteristics affect toddlers' behavior in child care center using observational methods. Total 40 toddlers in same numbers of boys and girls participated in this study. Average age of tollers were the 31.7 months ranging from 27 months to 35 months. The toddlers were observed with the observation schedule modified from observation categories of Holloway and Reichhart-Erickson(1988). Data were analysed by Pearson's correlation, t-test, one away ANOVA, Duncan Test and stepwise regression using the SPSSWIN Version. The results of the study were as follow: First, the toddlers' behaviors were related to all the toddlers' characteristics. Second, the toddlers' behaviors were related to all the characteristics of the child care facilities such as the types of facilities, the class size and the caregiver-toddler ratio. Third, the toddler' behaviors were related to caregivers' variables such as the total care experience in centers, the experience with toddler care, the martial status, the certificate types except the child rearing experience and the educational level. Fourth, the toddlers' characteristics were more significantly related to the behavior of them than those of child care centers' environment.

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A Study on the Effect of Ethical Management on Organizational Transparency and Performance in Long-Term Care Institutes: With a Focus on the Mediation Effect of Organizational Culture (노인장기요양기관의 윤리경영이 조직투명성 및 경영성과에 미치는 영향 연구: 조직문화의 매개효과를 중심으로)

  • Nam, Hee Soo
    • Asia-Pacific Journal of Business Venturing and Entrepreneurship
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    • v.12 no.4
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    • pp.201-215
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    • 2017
  • The purpose of this study is to define the relationship between ethical management, organizational culture, and management performance in long-term care institutes for the elderly while identifying the level of ethical management, organizational culture, and management performance of caregivers and the impact and mediation of the relationships between them based on the hypothesis. The results show that caregivers in the Gyeonggi region scored 2.929 out of 5 in ethical management, 3.393 in organizational culture, 2.925 in organizational transparency and 3.185 in management performance. The levels of ethical management, organizational culture and management performance in caregivers are lower than those of welfare workers, social workers, and nursing assistants. This is due to their relatively low level of education, wages and working environment. This study determined that there is a significant relationship between variables in terms of correlation between ethical management, management performance, organization transparency, and organizational culture. Second, the authors adopted hypotheses that ethical management has a statistical effect on organizational transparency, management performance, and organization culture. Third, the authors concluded that organizational culture has a direct impact on organization transparency and there is a significant mediation effect between ethical management, organizational transparency, and management performance. Based on these results, we propose the following: First, ethical leadership at the core of ethical management. Second, awareness in organizational transparency. Third, balanced management performance. Fourth, a flexible organizational culture that can respond to ethical management environment must be established.

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UK and Sweden Work-Family Policy on Work.Care Citizenship (노동권.부모권 관점에서 본 영국과 스웨덴의 일-가족양립정책)

  • Kim, Na Yeon
    • Korean Journal of Childcare and Education
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    • v.9 no.1
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    • pp.51-79
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    • 2013
  • This study was done to find out how women acquire their work citizenship through work-family reconciliation policies from the point of view of labour right and care right. This study investigated how labour right and care right, established by work-family reconciliation policies, are organized on a national level through the methods of socialization of the care such as the strategies of familization, de-familization, commodication and decommodication because paid labour and unpaid care work can be concretely embodied by such strategies. Actually in the care systems in the UK and Sweden, gender roles related to the responsibility for care was assumed differently. For that reason, the socialization of the care in these countries have been developed in a different way. And different results have been created from the two different countries in labour rights and care righst of man and women. The matter whether a society regards a woman as a laborer or caregiver especially has been an important starting point for the way in which social sharing of care develops. Work-family reconciliation policies stated in this study are very important factors. We can understand that care is not simply a duty of a man or a woman but an important human desire, which has to be granted to both a man and a woman as one of their own individual rights.

A Study on the Effectiveness of Social Work Intervention for the Family Caregivers of Older Persons with Stroke (뇌졸중 기능손상 노인의 가족수발자에 대한 사회복지실천 개입의 효과에 관한 연구)

  • Lee, In-Jeong
    • Korean Journal of Social Welfare
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    • v.53
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    • pp.231-255
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    • 2003
  • The purpose of this study was to determine the effectiveness of social work intervention for the family caregivers of the older persons with stroke. Twelve caregivers were assigned to either a treatment group or a control group. The treatment group intervention consisted of 8 weekly, 2-hour sessions which included education, peer and professional support, individual counselling. Wilcoxon test of the pretest and posttest scores of the two groups showed that those in the treatment program experienced significant decrease in caregiving burden and loneliness compared with caregivers who received no intervention. They also experienced increase in self-esteem, self-efficacy in dealing with caregiving tasks, satisfaction with a relationship with the care-receiver, emotional support. Most of these intervention effects were maintained in the 3-month follow-up measurement except loneliness and the caregiver-carereceiver relationship. Caregivers in the treatment group showed overall satisfaction with the program and willingness to continue to attend in the interventions. Based on these findings, implications for social work practice including self-help groups, psychotherapy for the caregivers, expanding social work intervention for the family caregivers of the older persons were discussed.

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Discordance between Physician and the General Public Perceptions of Prognostic Disclosure to Children with Serious Illness: a Korean Nationwide Study

  • Kim, Min Sun;Lee, Jihye;Sim, Jin-Ah;Kwon, Jung Hye;Kang, Eun Joo;Kim, Yu Jung;Lee, Junglim;Song, Eun-Kee;Kang, Jung Hun;Nam, Eun Mi;Kim, Si-Young;Yun, Hwan-Jung;Jung, Kyung Hae;Park, June Dong;Yun, Young Ho
    • Journal of Korean Medical Science
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    • v.33 no.49
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    • pp.327.1-327.10
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    • 2018
  • Background: It is difficult to decide whether to inform the child of the incurable illness. We investigated attitudes of the general population and physicians toward prognosis disclosure to children and associated factors in Korea. Methods: Physicians working in one of 13 university hospitals or the National Cancer Center and members of the general public responded to the questionnaire. The questionnaire consisted of the age appropriate for informing children about the prognosis and the reason why children should not be informed. This survey was conducted as part of research to identify perceptions of physicians and general public on the end-of-life care in Korea. Results: A total of 928 physicians and 1,241 members of the general public in Korea completed the questionnaire. Whereas 92.7% of physicians said that children should be informed of their incurable illness, only 50.7% of the general population agreed. Physicians were also more likely to think that younger children should know about their poor prognosis compared with the general population. Physicians who opposed incurable illness disclosure suggested that children might not understand the situation, whereas the general public was primarily concerned that disclosure would exacerbate the disease. Physicians who were women or religious were more likely to want to inform children of their poor prognosis. In the general population, gender, education, comorbidity, and caregiver experience were related to attitude toward poor prognosis disclosure to children. Conclusion: Our findings indicate that physicians and the general public in Korea differ in their perceptions about informing children of poor prognosis.

Influences of Self-esteem, Rehabilitation Motivation on Quality of Life in Stroke Pateints with Rehabilitation Therapy (재활치료 중인 뇌졸중 환자의 자아존중감, 재활동기가 삶의 질에 미치는 영향)

  • An, Eun-Seo;Suh, Soon-Rim;Kim, Eun-Hee
    • Journal of the Korea Academia-Industrial cooperation Society
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    • v.20 no.3
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    • pp.176-187
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    • 2019
  • This study was conducted to investigate the levels of self-esteem, rehabilitation motivation and quality of life and to identify the influencing factors of quality of life in stroke patients who were receiving rehabilitation therapy. Data were collected from February 22 to March 20, 2016 using self-administered questionares and the data from 216 participants were analyzed using SPSS WIN 21.0 program(SPSS Inc., Chicago, IL, USA). The results of this study were as follows: the mean self-esteem was 3.09/5, rehabilitation motivation was 3.60/5, and quality of life was 2.95/5. Sex, age, education, caregiver, occupation, duration after attack, the degree of disability(dependence), and cognitive function were significantly associated with quality of life. There was positive correlation between quality of life and self-esteem(r=.45, p<.001) and there was positive correlation between quality of life and rehabilitation motivation(r=.27, p<.001). Variables such as self-esteem, duration after attack, the degree of disability(dependence), and cognitive function explained 43.6%(F=14.87 p=<.001) of the variance in quality of life in model 3. Consequently, it is needed to develop and apply nursing intervention and programs for improving self-esteem during rehabilitation in order to improve quality of life of stroke patients.

Relationship between the Characteristics of Caregivers and Adults with Intellectual Disability and the Social Support, Family Function, and Rehabilitation Needs in Caregivers (성인기 지적장애인과 주부양자의 특성, 사회적지지, 가족기능, 재활의 필요성 사이에 관련성)

  • Moon, Jonghoon;Kim, Yesoon;Oh, Hyunmin;Hong, Bokyoon;Ho, Seunghee
    • Journal of The Korean Society of Integrative Medicine
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    • v.6 no.4
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    • pp.171-182
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    • 2018
  • Purpose : The purpose of this study was to examine the relationship between the characteristics of caregivers and adults with intellectual disability, and social support, family function, and rehabilitation needs in caregivers. Methods : A total 98 pairs of adults with intellectual disability and their caregivers participated in this study. The researchers examined the general characteristics of the adults with intellectual disability and their caregivers. The evaluation included analysis of the level of activities of daily living, ability to communicate, and health status of the adults with intellectual disability, while the family income, health status, utility and the need for rehabilitation, social support (multidimensional scaled perceived social support, MSPSS) and family function (adaptation, partnership, growth, affection, resolve, and APGAR index) of the caregivers were measured. The data collected were analyzed to determine the relationship of the characteristics of adults with intellectual disability and the social support, family function, and rehabilitation needs of caregivers using regression and correlation analysis. Results : The rehabilitation needs were significantly correlated with the age of the adults with intellectual disability (p<.01), and the subjective health status of the caregivers (p<.05). The education level of the caregivers affected social support significantly ($R^2=.058$, p=.021). The communication ability of the adults with intellectual disability affected family function ($R^2=.071$, p=.01). The social support of caregivers had a significant effect on family function ($R^2=.488$, p<.001). Conclusion : These findings suggest that the barriers to community rehabilitation should be lowered, and the authors discussed the results of the present investigation.