Journal of The Korean Society of Integrative Medicine (대한통합의학회지)

Korean Society of Integrative Medicine (대한통합의학회)
권호 표지
DOI QR코드

DOI QR Code

Relationship between the Characteristics of Caregivers and Adults with Intellectual Disability and the Social Support, Family Function, and Rehabilitation Needs in Caregivers

성인기 지적장애인과 주부양자의 특성, 사회적지지, 가족기능, 재활의 필요성 사이에 관련성

  • Moon, Jonghoon (Dept. of Healthcare and Pubic Health Research, National Rehabilitation Research Institute, National Rehabilitation Center) ;
  • Kim, Yesoon (Dept. of Healthcare and Pubic Health Research, National Rehabilitation Research Institute, National Rehabilitation Center) ;
  • Oh, Hyunmin (Dept. of Healthcare and Pubic Health Research, National Rehabilitation Research Institute, National Rehabilitation Center) ;
  • Hong, Bokyoon (Dept. of Occupational Therapy, Graduate School of Yonsei University) ;
  • Ho, Seunghee (Dept. of Healthcare and Pubic Health Research, National Rehabilitation Research Institute, National Rehabilitation Center)
  • 문종훈 (국립재활원 재활연구소 건강보건연구과) ;
  • 김예순 (국립재활원 재활연구소 건강보건연구과) ;
  • 오현민 (국립재활원 재활연구소 건강보건연구과) ;
  • 홍보균 (연세대학교 대학원 작업치료학과) ;
  • 호승희 (국립재활원 재활연구소 건강보건연구과)
  • Received : 2018.08.27
  • Accepted : 2018.10.12
  • Published : 2018.12.30
Download PDF
⟨ Previous Next ⟩

Abstract

Purpose : The purpose of this study was to examine the relationship between the characteristics of caregivers and adults with intellectual disability, and social support, family function, and rehabilitation needs in caregivers. Methods : A total 98 pairs of adults with intellectual disability and their caregivers participated in this study. The researchers examined the general characteristics of the adults with intellectual disability and their caregivers. The evaluation included analysis of the level of activities of daily living, ability to communicate, and health status of the adults with intellectual disability, while the family income, health status, utility and the need for rehabilitation, social support (multidimensional scaled perceived social support, MSPSS) and family function (adaptation, partnership, growth, affection, resolve, and APGAR index) of the caregivers were measured. The data collected were analyzed to determine the relationship of the characteristics of adults with intellectual disability and the social support, family function, and rehabilitation needs of caregivers using regression and correlation analysis. Results : The rehabilitation needs were significantly correlated with the age of the adults with intellectual disability (p<.01), and the subjective health status of the caregivers (p<.05). The education level of the caregivers affected social support significantly ($R^2=.058$, p=.021). The communication ability of the adults with intellectual disability affected family function ($R^2=.071$, p=.01). The social support of caregivers had a significant effect on family function ($R^2=.488$, p<.001). Conclusion : These findings suggest that the barriers to community rehabilitation should be lowered, and the authors discussed the results of the present investigation.

Keywords

References

  1. Kang WJ(2011). The effects on care-giving burden by the visually impaired and the main care-givers. Korean J Clin Socl Work, 8(1), 1-30.
  2. Ko KW, Nam JY(2016). The mediation effects of disability acceptance on the relationships between social support of mothers with the disabled children and the family function - Focusing on the interactive effects by disability types. J Critical Soc Welfare, 53, 409-441.
  3. Keum HS, Shin YH, Kim HY(2016). Development of prediction model for depression among parents with disabled children : Based on the mediation effect of social supports and family resilience. Journal of the Korea Academia-Industrial cooperation Society, 17(2), 171-178. https://doi.org/10.5762/KAIS.2016.17.2.171
  4. Kim GE(2010). Caregiving satisfaction of elderly mothers of adults with intellectual disability. Graduate school of Ehwa University, Republic of Korea, Doctoral dissertation.
  5. Kim GE(2011). Caregiving appraisal of elderly mothers of adults with intellectual disability. Korean J Gerontol Soc Welfare, 52, 369-390.
  6. Kim DH, Oh MH, Park KA, et al(2014). Effect of stroke patient's ADL and self-esteem on the caregiving burden of caregivers. J Rehabil Res, 18(2), 247-266.
  7. Kim MR, Kim NY(2013). A study on the level of depression and parent efficacy of the mothers of children with disabilities in some areas of Daejeon. Journal of Digital Convergence, 11(8), 303-313. https://doi.org/10.14400/JDPM.2013.11.12.303
  8. Kim MH, Jang S(2011). Experience of older disters without disability as caregivers of adult with intellectual disability. Korean J Family Soc Work, 32, 37-67.
  9. Kim MH, Jang S(2012). Lives of sibling caregivers of adult with intellectual disability after the death of parents. Family and Culture, 24(1), 139-176.
  10. Ministry of Health & Welfare(2014). Disability registration status. Korea Institute for Health and Social Affairs.
  11. Ministry of Health & Welfare(2017). Disability registration status. Korea Institute for Health and Social Affairs.
  12. Seo BJ, Yoon JO, Kim WH(2016). Mediating effect of family resilience on the impact of parenting burden of parents with children with intellectual disability on the quality of life. Journal of Intellectual Disabilities, 18(2), 101-115.
  13. Son WI, Jo SH(2014). The effects of the playing exercise program for 10 weeks on body composition and physical fitness in the mentally handicapped. Journal of the Korea Academia-Industrial Cooperation Society, 15(3), 1548-1556. https://doi.org/10.5762/KAIS.2014.15.3.1548
  14. Song MY, Choi KG(2007). The decision factor on primary care-giver's burden for senile dementia elderly. Korean J Gerontol Soc Welfare, 37, 131-160.
  15. Shin JS, Lee YB(1999). The effects of social supports on psychosocial well-being of the unemployed. Korean J Soc Welfare, 37(37), 241-269.
  16. Sim MK(2004). Testing of resiliency model of families of children with cancer. Graduate school of Yonsei University, Republic of Korea, Unpublished doctoral dissertation.
  17. Oh HK, Jeon HY(2004). A study on the degree of burdens and needs of social support of family members with disabled child -focused on the life span of disabled child-. Korean J Family Social Work, 9(1), 79-100.
  18. Yoon BB, Kwak GW(1985). The study of family APGAR score as the evaluation method of the family function. Korean J Family Med, 6(12), 13-17.
  19. Jang S(2010). Experience of older sisters as caregivers of adult brothers with intellectual disability. J Rehabil Res, 14(3), 121-149.
  20. Choi SK(2008). The social worker's recognitions of the physical & psychological care-giving burdens that the parents of the adult intellectual disabled experience. Soc Sci Res, 24(1), 89-112.
  21. Barnes C(2003). Rehabilitation for disabled people: A 'sick' joke?. Scand J Disabil Res, 5(1), 7-23. https://doi.org/10.1080/15017410309512609
  22. Bruckner J, Herge EA(2003). Assessing the risk of falls in developmental disabilities. Top Geriatr Rehabil, 19(3), 206-211. https://doi.org/10.1097/00013614-200307000-00007
  23. Cole BS, Cain MW(1996). Social work students with disabilities: A proactive approach to accommodation. JSWEP, 32(3), 339-349.
  24. Cummins RA, McCabe MP, Romeo Y, et al(1997). An initial evaluation of the comprehensive quality of life scale-intellectual disability. Int J Disabil Dev Educ, 44(1), 7-19. https://doi.org/10.1080/0156655970440102
  25. Dahlem NW, Zimet GD, Walker RR(1991). The multidimensional scale of perceived social support: a confirmation study. J Clin Psychol, 47(6), 756-761. https://doi.org/10.1002/1097-4679(199111)47:6<756::AID-JCLP2270470605>3.0.CO;2-L
  26. De Ligt J, Willemsen MH, Van Bon BW, et al(2012). Diagnostic exome sequencing in persons with severe intellectual disability. N Engl J Med, 367(20), 1921-1929. https://doi.org/10.1056/NEJMoa1206524
  27. Emerson E(2003). Prevalence of psychiatric disorders in children and adolescents with and without intellectual disability. J Intellect Disabil Res, 47(1), 51-58. https://doi.org/10.1046/j.1365-2788.2003.00464.x
  28. Greenberg JS, Seltzer MM, Greenley JR, et al(1993). Aging parents of adults with disabilities: The gratifications and frustrations of later-life caregiving. Gerontologist, 33(4), 542-550. https://doi.org/10.1093/geront/33.4.542
  29. Hill C, Rose J(2009). Parenting stress in mothers of adults with an intellectual disability: Parental cognitions in relation to child characteristics and family support. J Intellect Disabil Res, 53(12), 969-980. https://doi.org/10.1111/j.1365-2788.2009.01207.x
  30. Jeevanandam L(2009). Perspectives of intellectual disability in Asia: epidemiology, policy, and services for children and adults. Curr Opin Psychiatry, 22(5), 462-468. https://doi.org/10.1097/YCO.0b013e32832ec056
  31. Kim HW, Greenberg JS, Seltzer MM, et al(2003). The role of coping in maintaining the psychological well-being of mothers of adults with intellectual disability and mental illness. J Intellect Disabil Res, 47(4-5), 313-327. https://doi.org/10.1046/j.1365-2788.2003.00493.x
  32. Kwok HW, Cui Y, Li J(2011). Perspectives of intellectual disability in the people's republic of China: epidemiology, policy, services for children and adults. Curr Opin Psychiatry, 24(5), 408-412. https://doi.org/10.1097/YCO.0b013e328348810c
  33. Lanphear BP, Hornung R, Khoury J, et al(2005). Low-level environmental lead exposure and children's intellectual function: an international pooled analysis. Environ Health Perspect, 113(7), 894-899. https://doi.org/10.1289/ehp.7688
  34. Lillo P, Mioshi E, Hodges JR(2012). Caregiver burden in amyotrophic lateral sclerosis is more dependent on patients' behavioral changes than physical disability: a comparative study. BMC Neurol, 12(1), 156. https://doi.org/10.1186/1471-2377-12-156
  35. Maes B, Broekman TG, Dosen A, et al(2003). Caregiving burden of families looking after persons with intellectual disability and behavioural or psychiatric problems. J Intellect Disabil Res, 47(6), 447-455. https://doi.org/10.1046/j.1365-2788.2003.00513.x
  36. Mary BS, Richard FI, James RP(2002). Metal retardation. 6th ed, Publishing as Prentice Hall.
  37. Maulik PK, Mascarenhas MN, Mathers CD, et al(2011). Prevalence of intellectual disability: a meta-analysis of population-based studies. Res Dev Disabil, 32(2), 419-436. https://doi.org/10.1016/j.ridd.2010.12.018
  38. Mugno D, Ruta L, D'Arrigo VG, et al(2007). Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder. Health Qual Life Outcomes, 5(1), 22-30. https://doi.org/10.1186/1477-7525-5-22
  39. Smilkstein G(1978). The family APGAR :A proposal for a family function test and its use by physicians. J Fam Pract, 6(6), 1231-1239.
  40. Sonnander K, Claesson M(1997). Classification, prevalence, prevention and rehabilitation of intellectual disability: an overview of research in the people's republic of China. J Intellect Disabil Res, 41(2), 180-192. https://doi.org/10.1111/j.1365-2788.1997.tb00694.x
  41. Verdonschot MM, De Witte LP, Reichrath E, et al(2009). Community participation of people with an intellectual disability: a review of empirical findings. J Intellect Disabil Res, 53(4), 303-318. https://doi.org/10.1111/j.1365-2788.2008.01144.x
  42. Zimet GD, Dahlem NW, Zimet SG, et al(1988). The multidimensional scale of perceived social support. J Pers Assess, 52(1), 30-41. https://doi.org/10.1207/s15327752jpa5201_2