• Child Health Nursing Research
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• 제12권1호
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• pp.44-56
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• 2006

Purpose: The purpose of this study was to investigate the health education needs of mothers who are nurturing children with disabilities. Method: A descriptive study was done and the participants were 108 mothers of children with disabilities such being mentally challenged, developmentally delayed or having a disability involving brain damage. The questionnaire was a health education need assessment with 11 categories(58 items) developed by Han et al. The data were analyzed using SPSS program. Results: The mean score for health education needs of the mothers of children with disabilities was 3.83 (SD=0.58) out of a maximum 5. The health education need for acquisition of knowledge and information had the highest score (4.40±0.54) followed by health education needs for cognitive development and learning (4.31±0.64), interpersonal relationships (4.04±0.65) and behavior and emotion (4.04±0.79). There were significant differences between the children's sex (t=2.08, p=.04), birth order (t=2.17, p=.03), grade of disability (F=3.32, p=.02) and sex education suitable to the child's in age. Conclusion: The health education needs of mothers of children who are disabled were very high and varied. Therefore, it was important to develop comprehensive education programs which include this content and provide opportunities for mothers of children with disabilities to receive this education.

• 대한간호학회지
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• 제52권3호
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• pp.308-323
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• 2022

Purpose: This study aimed to construct and test a predictive model for the quality of life (QOL) in mothers of children with developmental disabilities (DB). The hypothesized model included severity of illness, distress, uncertainty, self-help, and parenting efficacy as influencing factors, QOL as a consequence based on the Braden's Self-Help Model. Methods: The data were collected through a direct and online surveys from 206 mothers in 8 locations, including welfare or daycare centers, developmental treatment centers, and The Parents' Coalition for the Disabled located in two provinces of Korea. Data were analysed using SPSS/WIN 23.0 and AMOS 21.0 program. Results: The fit indices of the predictive model satisfied recommended levels; 𝛘² = 165.79 (p < .001), normed 𝛘² (𝛘²/df) = 2.44, RMR = .04, RMSEA = .08, GFI = .90, AGFI = .85, NFI = .91, TLI = .93, CFI = .95. Among the variables, distress (β = - .46, p < .001), parenting efficacy (β = .22, p < .001), and self-help (β = .17, p = .018) had direct effects on QOL. Severity of illness (β = - .61, p = .010) and uncertainty (β = - .08, p = .014) showed indirect effects. The explanatory power of variables was 61.0%. Conclusion: The study results confirm the utility of Braden's Self-Help Model. They provide a theoretical basis for improving QOL in mothers of children with DB. Nursing intervention strategies that can relieve mothers' distress and uncertainty related to disease and enhance parenting efficacy and self-help behavior should be considered.

• 한국생활과학회지
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• 제13권5호
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• pp.625-636
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• 2004

The purpose of this study is to examine the types of the stress and coping behaviors perceived by mothers of children with disabilities, and to investigate factors affecting their life satisfaction. For this study, we surveyed 239 mothers living in the city. The results are as follows: First, we can categorize the stress into parental stress, economic stress, child developmental stress, physical stress, and emotional stress. Second, we can classify the coping behaviors into active efforts, avoidance, and emotional diversion. Lastly, life satisfaction of mothers of children with disabilities tends to depend on such factors as emotional stress, husband's support, parental stress, emotional diversion coping, economic stress, school- children, and their education.

• 재활복지
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• 제20권1호
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• pp.43-64
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• 2016

본 연구는 성인발달장애인 자녀를 돌보는 어머니의 대처자원과 돌봄스트레스와의 관계를 파악하고 그에 따른 실천적 차원의 개선방안을 제시하고자 하는 데 있다. 연구를 위해 만18세 이상에 속한 성인발달장애인 자녀를 돌보고 있는 주돌봄자인 어머니 119명을 대상으로 조사한 자료를 위계적 중다회귀분석방법을 통해 분석하였다. 연구결과 첫째, 돌봄스트레스는 어머니의 연령이 높은 50세 ~ 54세 집단이 연령이 낮은 49세 이하 집단보다 높게 나타났고, 가구 소득은 200만원 이하 집단이 550만원 이상집단보다 스트레스가 높게 나타났으며, 또한 취업 중인 경우가 그렇지 않은 경우보다 돌봄스트레스를 더 많이 받는 것으로 나타났다. 둘째, 어머니의 대처자원 중 사회적 대처자원인 가족지지와 친구지지가 돌봄스트레스에 영향을 미치는 것으로 나타났다. 즉 가족지지와 친구지지가 어머니의 돌봄스트레스를 완화시키는 것으로 나타났다. 이 같은 결과에 근거하여 주 돌봄자의 돌봄을 완화를 위해 정부정책 중 장애인활동지원제도와의 연계를 통한 돌봄부담의 경감과 어머니의 연령, 경제수준, 취업여부 등 개별적인 특성에 입각한 돌봄지원계획의 수립을 지원하고 가족 내 외의 다양한 자원들을 활용한 어머니를 직 간접적으로 지원해 줄 수 있는 사회적 지지망 구축 및 동일한 성인발달장애인 자녀를 둔 어머니들과의 자조모임 등 관련 프로그램 개발을 제안하였다.

• 대한감각통합치료학회지
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• 제3권1호
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• pp.67-77
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• 2005

Objective : The purpose of this paper was to suggest a model of the parent educational program with a sensory integration approach for developmental disabilities. Methods : A questionnaire survey were conducted to investigate the needs of the parent educational program and the satisfaction on after of the parent educational program with sensory integration for developmental disabilities. The parent educational program was completed by 8 mothers and each one children with developmental disabilities ranging in age from five to six years for five weeks. The parent educational program with sensory integration approach were consisted of the lecture, an exploration group and individual counseling for parent and individual evaluation and treatment, and group treatment for children. Results : 1. In the needs of the parent education, 50% for active participation of parent and 40% for the understanding with children. 2. In the satisfaction for the parent educational program with sensory integration, 9.3/10point for a individual education with the home program, 9.0/10point for the understanding with children, 8.7/10point for the chance of a participation in sensory integration program, 6.7/10point for a individual treatment, 5.7/10point for a group treatment. Conclusion : The parent educational program with sensory integration suggest that its useful program to understanding their children and sensory integration for parent.

• 대한물리치료과학회지
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• 제13권2호
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• pp.27-36
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• 2006

The purpose of this study would like to analyze statically significant difference for low back-pain frequency of mother after development-disability children. Seven nursery children with disability conducted survey from 122 mothers cared children with disability. Survey data was obtained from April 14. 2006 to May 23. 2006. The results were as follows: According to walking-existence, assistance walking, and disability-degree, low back pain incidence frequency of mothers were statically significant difference, (p<0.05). Low back pain incidence frequency of walker-ability population was 51.4%, but low back pain incidence frequency of walker-disability population was 80.0%. then low back pain incidence frequency of mothers to walking-existence was differed amount. Disabled not statically significant difference to encephalopathy and disability-type1 and disability -type2 (p>0.05). children with disability-degree and assistance walking benchmarked low back pain disability-measure. Low back pain degree not relevancy statically significant. Physical load was statically significant difference between Oswestry's low back pain score and reach effect to child-cared(p<0.05). As development-children with disability of disable degree, Mother appeared to highly low back pain frequency rate and appeared to large reach effect child-cared owing to physical load of low back pain. So hereafter, location and person request to approach with more clinical and objectively. As approach result, it will help to stress solution of children with disability owing to develop to low back pain class and family capable strengthening program and so on.

• 한국비블리아학회지
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• 제19권2호
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• pp.107-128
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• 2008

이 연구는 정신적 장애의 일종인 발달장애아를 둔 가족의 정보빈곤 양상을 묘사하고자 한 사례연구이다. 일반적으로 장애인들은 가족에 대한 의존이 높다. 발달장애와 같은 정신적 장애인의 경우는 생활의 모든 것을 절대적, 배타적으로 가족에게 의존한다. 정보의 관점에서 볼 때에도 본인의 정보요구에 대한 정확한 인지가 없고 정보활용능력이 부족한 정신적 장애인은 정보중개자로서의 가족의 역할에 지대한 영향을 받는다. 따라서 가족은 일상 속에서 장애아의 교육과 치료를 위한 정보적 도움을 절실하게 필요로 한다. 이러한 배경에서 이 연구는 발달장애아를 둔 가족의 삶 속에서 나타나는 일상적 고민과 정보요구 그리고 그에 대한 대처 양상을 통해 정보추구행태에 나타나는 특성을 살펴보았다. 또한 그 과정에서 그들에게 노정되어 있는 정보빈곤의 양상과 그러한 정보빈곤을 만들어낸 내 외적 요인을 파악하고자 하였다.

• 한국가족복지학
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• 제23호
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• pp.43-70
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• 2008

본 연구는 지적 장애인을 돌보는 어머니의 사회적 지지가 돌봄 자기효능감에 주는 영향을 분석하였으며, 이 영향이 장애인 자녀가 속한 생애주기에 따라 달라지는가를 탐색하였다. 530명의 사례에 대한 분석 결과, 전체집단에서 어머니가 지각한 사회적 지지가 많을수록 돌봄 자기효능감이 높은 것으로 나타났다. 그런데 자녀 생애주기의 조절효과를 살펴본 결과, 아동의 어머니 집단에 비교해 청소년의 어머니 집단과 성인의 어머니 집단에서 효과의 크기가 통계적으로 유의하게 달랐다. 각 집단에 대한 분석 결과, 아동의 어머니 집단에서는 사회적 지지가 돌봄 자기효능감에 영향을 주지 않은 반면, 청소년의 어머니 집단과 성인의 어머니 집단에서는 사회적 지지가 돌봄 자기효능감에 영향을 주는 것으로 나타났다. 본 연구를 통해 장애인 가족 연구에서 생애발달적 관점이 지지되었으며, 실천적으로는 청소년기와 성인기의 자녀를 둔 장애인 가족에 대한 사회적 지지의 중요성이 더욱 강조되어야 할 것으로 생각되었다.

• Child Health Nursing Research
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• 제14권3호
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• pp.261-268
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• 2008

Purpose: This study was conducted to estimate the prevalence of questionable development according to developmental screening testing for children, and to explore biological and environmental risk factors of developmental delays. Method: The study participants were 153 children under two years of age. A questionnaire and Home Observation for measurement of the Environment (HOME) inventory were used to collect data, and Korean Denver II was administered. Results: The overall prevalence of questionable development was 11.1%. Significant differences in biological factors between the normal development group and questionable development group were the rate of prematurity, twins, the educational level of mother and father's and the presence of an illness in the mother (p<.10). Maternal acceptance in HOME was significantly different between the two groups. The factors related to questionable development that were significant in the logistic regression analysis were prematurity (OR=3.56, p=.026), and maternal acceptance in HOME score (OR=.629, p=.028). Conclusion: Early developmental screening tests seem necessary for all children, especially for prematurely born children. Also, child rearing environments were identified as significant factors in the development of all children. These findings suggest that the HOME scores might be useful in identifying children at risk for developmental delays, and that interventions for these children will probably be more effective if their mothers are helped to provide a more appropriate social environment.

• 한국콘텐츠학회논문지
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• 제14권1호
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• pp.280-293
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• 2014

본 연구는 강점관점을 토대로 학령 전 발달장애아를 둔 어머니의 적응유연성이 양육스트레스에 미치는 영향을 분석하고자 하였다. 연구대상은 서울시 소재 어린이집 및 복지관에 다니는 학령 전 발달장애 자녀를 둔 어머니이며, 수집된 자료 중 170부가 최종 분석되었다. SPSS 18.0을 이용하여 분석한 결과, 첫째, 발달장애아 어머니의 적응유연성은 보통 수준 이상이었으며, 하위차원별 점수는 사회적 자원이 가장 높고, 다음으로 성격구조화, 사회적 성취, 개인의 강점, 미래에 대한 인식, 가족응집력의 순이었다. 둘째, 조사대상자의 양육스트레스는 5점 만점에 2.71점으로 보통 이하였으며, 하위차원별로는 부모의 고통이 가장 높게 나타났다. 셋째, 발달장애아 어머니의 적응유연성과 양육스트레스는 부적 상관관계를 보였으며, 회귀분석 결과 장애자녀 적응행동과 적응유연성 중 미래인식, 개인의 강점, 사회적 자원의 세 가지 하위 차원이 양육스트레스에 유의미한 영향을 주는 요인이었다. 넷째, 장애자녀 및 어머니의 일반적 특성보다는 어머니의 적응유연성 관련 변인들이 양육스트레스를 설명하는 데 있어 더 중요한 예측변수로 나타났다.