• 한국사회복지학
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• 제46권
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• pp.263-289
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• 2001

Many studies have shown that the parents of developmentally disabled children are adversely affected by the experience of raising a child of this type. However, the range of reactions to parenting a handicapped child is quite varied and is presumably affected by a wide variety of variables. This study examined a number of demographic and psychosocial variables to determine which particular combination could best predict the current level of stress and coping behavior of mothers. Among predictor variables, marital satisfaction and dysfunctional attitude are variables that I am particularly interested in which can mediate parental stress. Five variables are found to be related to the stress of mothers, that is, level of disability, level of needed help, marital satisfaction, type of disability, father's education level. Also variables that affect four different types of stress (which are four factors of QRS-F) are analysed and the results presented. Among these variables, some are pre-determined and some are intervenable. We should make an effort to make changes in those intervenable variables such as marital satisfaction, beliefs and attitude about disability, and level of needed help. In future research we need to search and clarify the beliefs and attitude that help mothers adjust to a life with a disabled child. Also governmental support and policy making to reduce the burden of these mothers should be accompanied as well.

• 대한간호
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• 제31권5호
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• pp.72-87
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• 1992

This study was designed to develop and lest a structural model for paternal adaplation and family stress in the families with the handicapped children. A hypothetical model was constructed on the basis of family stress theory developed by McCubbin etc. The model included 6 theoretical concepts and 11 paths. For the purpose of the model testing, empirical data were collected from May to August, 1992. The subject of the study constituted 190 mothers whose children admitted in the five special schools and one privale institutes in Seoul and Choong Nam. In data analysis, SPSS PC+ and PC-LISREL 7.13 computer program were utilized for descriptive and covariance structure analysis. The results of lhe study were as follows. (1) Hypothetical model showed a good fit to the empirical data [Chi-square = 21.19 (df = 7, P = o. 003), Goodness of Fit Index=O.986, Adjusted Goodness of Fit Indes=0.946, Root Mean Square lesidual=0.048), Non Normed Fit Index = 0.80, Normed Fit Index=0.91]. (2) The results of Hypothesis testing indicated: 1) Social support(${\gamma}_11=.238$, T=2.352), Family Functioning(${\gamma}_12=.729$, T=5.957) had direct effects on situational definition. 2) life event stress(${\gamma}_23=.284$, T=5.220) had direct effects on the effect of the handicapped chid on the family. 3) Family functioning(${\gamma}_32=-.239$, T= -3.370) had direct effects on paternal adapation. From the above results, the significance of this study can be delineated as follows : The construction and testing of the comprehensive model seem to be the first trial in Korea. The model was supported by empirical dala. Thus it was suggested that model could be adequately applied to framily nusing care with the handicapped.

• 대한간호학회지
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• 제26권1호
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• pp.165-176
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• 1996

The purpose of this study was to contribute to family nursing in the areas of reducing stress and improving coping for parents of mentally retarded children. Data were collected through self-report questionnaires during a period of 2 months between November 1994 and January 1995 in the Kyoung-in area. The subjects consist of 176 parents (88 mothers and 88 fathers) of mentally retarded children attending schools for the handicapped. The levels of general stress and of parental role stress were measured with the General stress scale and the Parental role stress scale, respectively. The coping scale developed by Folkman ＆ LaZarus was adopted to measure the level of coping, and the patterns of adaptation scale developed by Damrosch ＆ Perry was adopted to measure the patterns of adaptation. The data were analyzed by a SAS program using Fisher's exact test, paired t-test, and oneway ANOVA. The results are as follows ; 1. The level of general stress was significantly higher in mothers than in fathers. Mothers experienced a significantly greater level of parental role stress than fathers did. No significant difference in the level of coping was observed between mothers and fathers. There were differences in maternal and paternal patterns of adaptation. 2. The adaptation pattern of fathers was different according to their level of general stress, parental role stress and coping. The adaptation pattern of mothers was not different according to their level of general stress and parental role stress, but was according to their level of coping. 3. General stress experienced by fathers was different according to education, health status and support from their spouses. Satisfaction with family life, satisfaction with spouse and the support from spouse influenced coping used by fathers. Their level of parental role stress was not associated with any of their general characteristics. 4. In mothers, the level of general stress was different according to their health status, the level of parental role stress was related to satisfaction with family life and satisfaction with spouse. Their level of coping was associated with the sup port from spouse. The above findings indicate that mothers did not have more coping strategies than fathers did, despite the results which showed that mothers experienced greater stress than fathers did. Especially, the adaptation pattern of mothers was different according to their level of coping. Hence, nursing interventions directed at managing stress and improving coping should be used with mothers who use adaptation pattern 1. In particular, fathers should actively participate in parenting, and support their spouses.

• 보건교육건강증진학회지
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• 제10권1호
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• pp.21-33
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• 1993

Human health is affected by physical, social, cultural, economic, and political environment. To improve health status, of the people we need much support from social system and to make social supporting system effective for health promotion, we need health information. Because, the health information is basic to the social supporting system for health promotion. So, we should construct health information systems as follows : 1. Health information system for children 2. Health information system for families 3. Health information system for adolescents 4. Health information system for mothers 5. Health information system for workers 6. Health information system for physical handicapped 7. Health information system for elders

• 한국전문물리치료학회지
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• 제5권2호
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• pp.65-80
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• 1998

Parents of handicapped children are experiencing difficulties in their children's care, social isolation, change of life style and lirnited leisure time. Because the parents should take care of the children's daily life, they have lots of psychological and physical stress. Chronic stress of parents puts stress to the other family members and affects the development of children with handicap. The purpose of this study were to identify the level of stress in each of parents of children with motor problem, the characteristics of the children and general information related with the children, and to analyse the stress by reasons. Specially organized questionnaire were used for an investigation method. "Test of stress in mother who has children with chronic illness" by Kim Hee-soon were modified and used. The questionnaire answered by 43 mothers and 35 fathers were analyzed. Data analysis includes frequency analysis, Pearson correlation coefficients, paired-samples t-test and MANOV A by SPSSWIN. The results were as follows: 1) Degree of handicap was most moderate (46.5%), level of motor development was most pull to walk (34.9%), and combined handicap was 69.8%. 2) Sexual distribution represented that 51.2% male and 48.8% female. The cost of physical therapy was 69.8% in no more than 100,000 won. 3) The mean of age, for the mother was 32.8 years and 35.3 years. Level of motor development that mother and father expect was 88.4%, 83% walk alone. 4) Both mother and father experienced stress in other of Part II (changes in father was the illness status of the child and difficulty in taking care of child), Part III (prognosis of the child's condition), Part I (social-personal relationships and the responsibility of the care givers). In the total score of stress, mother's stress is indicated higher level than father's stress. 5) There was no correlationship between characteristics and stress of mother and father. 6) There was no statistically significant difference between characteristics and related general information of children with handicap and stress of mother and father. As a results, the mother of children with handicap are experiencing more stress than the father. Both of parents have the most difficulties in the changes in the illness status of the child and difficulty in taking care of child. This study can be used as resources of education, therapy and counselling for children with handicap and their parents. This study, also, can be used to encourage the quality of Iife for the children with handicapped and their family.

• 아동학회지
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• 제1권
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• pp.65-81
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• 1980

This study is aimed at investigating the compensatory education which was already implemented or is being implemented in the U.S.A. and Japan; and at studying the types of programs and their characteristics; and at sounding out the possibilities of the application of such programs in family and social conditions is Korea. In order to achieve the above mentioned objectives, the established items for the study are as follows: (1) Various types of early children's education (2) Programs of compensatory education for the disadvantaged Children (3) Head Start Program, Early Training Project and Montessori School (4) Integrated Preschool Programs (5) Day-Care Center for employed mothers We investigated the various compensatory education programs for the preschool children who are in economically, socially, culturally disadvantaged conditions. Head Start Programs were federally supported programs for preschool children and opened as summer programs in 1965 for the first time. The purpose of Head Start has been to give preschool children the kinds of experiences they need in preparation for school. The Head Start children were found to be significantly better prepared for school than the normal children. However, after six to eight months, their initial advantages had virtually. disappeared and then the simple problem with Head Start and other such programs was that little long-term good could be evidenced unless the high quality educational environment was maintained. Therefore, to solve this problem, three other programs were funded as part of the overall Head Start. These three programs are the Parent-Child Center, Home Start, and the Child and Family Resources Program. The Early Training Project for disadvantaged children was implemented by Klaus and Gray of Peabody College in 1962. The program was a field research study concerned with the development and testing over time of procedures for improving the educability of young children from low income homes. Its major concern was to study whether it was possible to offset the progressive retardation observed in the public schooling careers of children, living in deprived circumstances. Children, who were trained through the Early Training Project were superior to control groups in the test of IQ and vocabulary as well as linguistic abilities, and preparation for reading. This project showed the possibilities which could prevent preschool children from being disadvantaged socially, culturally and mentally. In 1907, Montessori School was established by Maria Montessori in Italy and her school program has been introduced at present to several countries in the world as one compensatory educations. She first began her experimental methods with retarded children, followed by disadvantaged children from the tenements of Rome. The Montessori approach futures a prepared environment and carefully designed, self-correcting materials. The Montessori curriculum presents tastes that feature sequence, order, and regularity, in addition to those that develop motor and sensory skills. She was interested in children's intellectual development and in developing good work habits. One of the latest developed programs for disadvantaged children is "Integrated Preschool Program" which has successfully integrated handicapped and nonhandicapped children. Several studies have showed that handicapped children in integrated school environments are accepted by and interact with their nonhandicapped peers. In fact, this program provides a number of potential, and perhaps opportunities for nonhandicapped children to serve as valuable resources in fostering the development of their handicapped peers. Next we turn to Japanese programs which are divided into two different types. One is Day-Care Center which was established by Child Welfare Law and the other is kindergarten organized by School Education Law. The kindergarten opened in 1876 and it has been part of school systems since 1947 by the implementation of education law, and the Day-Care Center which started in 1890 for the employed mothers. was changed into Day-Nursery by the enactment of child welfare law in 1947. The laws and operational regulations for the Day-Nursery were set up and were put in effect by the establishment standard acts of children welfare facilities, and the Day-Nursery has been operated in various types by the increasing demand, chiefly because of the socio-economical changes of family structures in both urban and suburban areas. Nursery education for physically and mentally disadvantaged children is for those who are blind, deaf and dumb, mentally retarded; physically disadvantaged by accidents or diseases. Montessori education in Japan was started in 1968 and many research groups for studying Montessori were organized. In 1977, Montessori remedial education society was also organized in which they started a number of studies; a study for developing materials; in-service training for the remedial education; and seminars and lectures, etc It is strongly suggested that we study the early educations that are being implemented in Japan and a variety of compensatory educations that were already implemented in the U.S.A. and modify them for the organization of our own model and properly accommodate them to our social needs.

• 한국콘텐츠학회논문지
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• 제14권1호
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• pp.280-293
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• 2014

본 연구는 강점관점을 토대로 학령 전 발달장애아를 둔 어머니의 적응유연성이 양육스트레스에 미치는 영향을 분석하고자 하였다. 연구대상은 서울시 소재 어린이집 및 복지관에 다니는 학령 전 발달장애 자녀를 둔 어머니이며, 수집된 자료 중 170부가 최종 분석되었다. SPSS 18.0을 이용하여 분석한 결과, 첫째, 발달장애아 어머니의 적응유연성은 보통 수준 이상이었으며, 하위차원별 점수는 사회적 자원이 가장 높고, 다음으로 성격구조화, 사회적 성취, 개인의 강점, 미래에 대한 인식, 가족응집력의 순이었다. 둘째, 조사대상자의 양육스트레스는 5점 만점에 2.71점으로 보통 이하였으며, 하위차원별로는 부모의 고통이 가장 높게 나타났다. 셋째, 발달장애아 어머니의 적응유연성과 양육스트레스는 부적 상관관계를 보였으며, 회귀분석 결과 장애자녀 적응행동과 적응유연성 중 미래인식, 개인의 강점, 사회적 자원의 세 가지 하위 차원이 양육스트레스에 유의미한 영향을 주는 요인이었다. 넷째, 장애자녀 및 어머니의 일반적 특성보다는 어머니의 적응유연성 관련 변인들이 양육스트레스를 설명하는 데 있어 더 중요한 예측변수로 나타났다.

• 재활복지
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• 제20권4호
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• pp.79-106
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• 2016

본 연구는 중증뇌병변장애인 자녀를 둔 어머니들에게 장애교육 현상이 어떻게 경험되고 있으며 그 경험의 의미와 본질을 분석하는 것을 목적으로 한다. 연구를 위해 7명의 중증뇌병변장애인 자녀를 둔 어머니들을 연구참여자로 선정하여 심층면담을 실시하였고, 구술 원자료를 Rennie(2000; 2006; 2007)의 해석학적 질적연구방법론을 적용하여 분석하였다. 분석 결과 53개의 의미단위와 16개의 하위범주 및 7개의 해석학적 범주를 구성하였다. 해석학적 범주는 '매일매일 통곡하는 마음', '자원의 사회적 동원', '앞만 보고 전진', '계란으로 부순 바위', '먼 곳 바라보기', '더불어 사는 교육', '장애교육의 주체화'이었다. 연구참여자들에게 장애자녀 교육은 체념단계, 추스림 단계, 비전세우기 단계와 도전단계, 작은 성취 단계를 통하여 최종적으로는 공동체에 희망걸기 단계로 나아가는 좌절과 희망세우기의 동시경험으로 나타났다. 연구참여자들이 보이는 반복적인 공통의 행위패턴을 분석한 결과 추수형, 현실전략형 및 불굴의 도전형의 세 가지 유형을 보이고 있었다. 이들의 교육경험의 핵심범주는 '중증장애 절망을 교육을 통해 희망으로 바꾸어가는 연단의 과정'이었다고 결론지었다. 이와 같은 연구결과를 바탕으로 중증뇌병변장애인 자녀를 둔 어머니들의 교육경험의 실태와 사회구조적 문제에 대한 논의를 하였고, 어머니들의 장애자녀 교육지원을 위한 구체적 제언을 하였다.

• 한국산학기술학회논문지
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• 제17권6호
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• pp.338-346
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• 2016

본 연구는 발달장애 아동을 가진 어머니를 대상으로 한 건강교육프로그램을 개발하고 건강관리행위와 양육스트레스 수준을 비교하여 효과를 검정한 비동등성 사전사후 대조군 실험설계 연구이다. 연구대상자는 발달장애 아동의 어머니로 실험군 28명과 대조군 26명으로 총 54명이다. 건강교육프로그램은 전문가 집단 토론과 선행연구들을 토대로 하여 개발하였으며, 프로그램 적용은 주 2회 교육으로 총 4주간 이루어졌다. 프로그램의 전반 2주간은 신체적 건강교육 내용이며, 후반 2주간은 사회심리적 교육내용으로 구성하였다. 사전, 사후, 추후를 통해 자료 수집을 하였으며, 수집된 자료는 repeated measure ANOVA를 통해 분석하였다. 연구결과 프로그램 적용 전, 프로그램 적용 후, 그리고 4주후에 따라 건강관리행위 수준은 향상되고, 양육스트레스는 유의하게 감소하는 것을 확인하였다. 또한 실험군이 대조군에 비해 유의한 차이를 보였다. 이러한 결과는 본 연구를 통해 개발된 건강교육프로그램이 대상자의 건강요구에 적합하였고, 건강관리행위 수준 향상과 양육스트레스를 감소시키는 데 효과적임을 알 수 있었다. 향후에도 발달장애 아동의 건강증진을 위해 다양한 건강교육프로그램 개발과 연구가 지속되어야 할 것이다.

• 한국보육학회지
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• 제19권1호
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• pp.159-174
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• 2019

본 연구는 중증장애아동의 주 양육자인 어머니가 낮병원과 보육서비스 기관 이용을 통해 자녀와 본인의 삶에 어떤 변화를 경험했는지, 어려움이 있었다면 무엇인지 알아보고, 중증장애아동의 의료적 욕구와 발달과업에 대한 욕구를 모두 충족시킬 수 있는 정책적 실천적 개선점을 논의하고자 하였다. 연구대상은 1년 이상 낮병원 이용 경험이 있고, 어린이집 또는 유치원을 이용한 장애아동 어머니 9명을 눈덩이 표집방법으로 모집하여 포커스그룹 면담 또는 개별면담을 실시하였다. 분석결과 중증장애아동 어머니는 자녀가 성장함에 따라 낮병원외의 기관을 알게 되고 이용하게 되면서 차츰 삶의 균형을 찾아가기 시작했다. 처음으로 자녀와 떨어져 지내며 걱정을 보이기도 했지만, 차츰 긍정적으로 생각하며 자녀와 떨어져 있는 시간에 적응하고 있었다. 연구 참여자들은 중증장애아동인 자녀도 낮병원 외에 어린이집이나 유치원을 이용하게 되면서 표정이 밝아지거나, 웃는 모습을 보이는 등 다양한 경험을 긍정적으로 하고 있다고 느꼈다. 이를 통해 연구 참여자들은 주변사람과의 쉼을 느끼고 재충전 되는 경험을 했다. 본 연구 결과를 통해 수요자 관점에서의 보육, 복지, 의료에 대한 종합적 정책적 제언을 논의하였다.