• 한국가족관계학회지
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• 제21권1호
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• pp.3-27
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• 2016

Objective: The purpose of this study was to explore the essence of disabled parents' experiences of raising children. Method: Five families, which were composed with parents with physical disabilities and children, were participated into this study. One-time interview was conducted with mother of each family and it was recorded, coded, and analysed using method of Giorgi's phenomenological study. Result: Three superordinate themes, nine subordinate themes, and 22 concepts were derived. The essence of disabled parents' experiences of raising children was "disabled parents' growth with their children despite of prejudice." This represented that even though disabled parents faced with diverse kinds of difficulties, they put their heart and soul into raising their children and they encouraged their children to have their feet on the ground firmly. Finally, disabled parents went out into the world with their children. Conclusion: The current study illustrated how those stories about raising children could be interpreted from the perspective of the family relation, and suggested possible ways to support disabled parents for raising children.

• 대한지역사회영양학회지
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• 제8권6호
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• pp.840-855
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• 2003

This study was conducted to compare the eating habits of disabled and non-disabled children in Seoul and Gangneung. Korea. Questionnaires about eating habits were answered by the children's parents and their teachers. The subjects of this study consisted of 146 disabled children (108 boys and 38 girls) from two special education schools and 241 non-disabled children (control group,120 boys and 121 girls) from two elementary schools in Seoul and Gangneung, respectively. The percentage of the children who required more than 30 minutes to eat was 11.3% in the disabled group and 2.5% in the non-disabled group. In the disabled group,44.0% ate excessive amounts of food or could not control their intake. The percentage of the children whose frequency of eating breakfast was less than 1 to 2 times per week was 21.0% in the disabled group and 9.7% in the non-disabled group. Also, 7.6% of the disabled group and 13.9% of the non-disabled group had snacks more than three times per day. The percentage of children who were able to eat by themselves was lower in the disabled group (47.9%) than in the non-disabled group (87.8%). Of the remainder of the disabled group,28.6% spilled food, and 14.3% needed the aid of others when picking up side dishes. The percentage of parents who worried about their children's eating an unbalanced diet was 48.5% in the disabled group and 41.8% in the non-disabled group. In addition, there were problems with eating behaviors in 22.7% in the disabled group, and with under-eating (15.9%) and with excessive intake of instant foods (16.8%) in the non-disabled group. These results suggest that the eating habits and eating behaviors of disabled children are different from those of non-disabled children. Thus, nutritional educational programs and educational materials for disabled children and their parents should be developed.

• 대한간호학회지
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• 제34권5호
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• pp.663-672
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• 2004

Purpose: This study describes the ecological variables effect on child abuse potential and the results from a prevention program for parents with disabled children aiming at decreasing child abuse potential. Method: Data was collected from 30 parents with disabled preschoolers attending an early education center in a community. The program consisted of handouts, small group lectures, support group meetings on understanding the disabled child-parents relationship, communication skill improvement, non-punitive discipline techniques, and influences of child abuse. A non equivalent pre-post test design was employed. Result: Ecological variables, and parenting self-efficacy, had a significant effect on child abuse potential in parents with a disabled child. By regression parenting self-efficacy showed(27.1 %) child abuse potential. Both parenting self-efficacy and beliefs in corporal punishment directly related to (52.0%) child abuse potential in parents. The program was effective inbringing some positive changes on pareting self-efficacy beliefs in corporal punishment, and child abuse potential toward disabled children. However, marital discord was not significantly effected. Conclusion: Child abuse prevention programs should decrease thechild abuse potential in parents. Thus I recommend a child abuse prevention program development; for parents with disabled adolescents, and teachers in disabled child education.

• 재활간호학회지
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• 제11권1호
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• pp.32-40
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• 2008

Purpose: This study used a phenomenological method, which is a qualitative study, in order to understand the vivid experience of parents who have a disabled child. Methods: The number of participants was 10. The subjects of this study were parents who are raising their disabled child who attends a special school or normal middle or high schools in D city. The period for collecting materials was from September 2005 to July 2007. The phenomenological analysis method suggested by Giorgi was used. Results: The meanings of the child parenting experience of parents with a disabled child are (1) feeling of frustration of the delayed treatment, (2) difficult to accept the diagnosis of disability, (3) having eyes centered on her child, (4) accepting the disabled child, (5) giving all his energy to his disabled child, (6) making efforts for his family's unity, (7) recognizing the difficulty of parenting disabled child, (8) recognizing the difficulty of education for disabled child, (9) feeling pitiful for his their normal children, (10) planning for disabled child's future. Conclusions: All the programs for disabled child should be programed for their entire life. It is necessary to provide physical, psychological, emotional, social and economic nursing intervention to relieve or reduce the burden of parents with disabled children.

• 재활치료과학
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• 제9권1호
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• pp.69-78
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• 2020

목적 : 본 연구의 목적은 학령기 전 장애아동과 비장애아동 부모들에게 자녀의 놀이에 관한 포괄적인 설문을 시행하여 놀이 인식을 알아보고 각 부모에게 실질적으로 필요한 놀이의 방향성을 제시하는 것이다. 연구 방법 : 선행연구들을 토대로 제작된 설문지를 설문요청에 동의한 대상자 700명에게 발송하였다. 미회수 및 불성실한 설문을 제외하고 총 596부의 설문지가 분석되었으며 이 중 106부가 장애아동 부모의 설문지였다. 자료 분석을 위해 SPSS Window 23 프로그램을 활용하였으며, 빈도분석과 독립표본 T 검정이 시행되었다. 결과 : 장애 아동 부모는 비장애 아동 부모에 비해 자녀와의 놀이를 더 중요하게 인식하고 있었으며 통계적으로 유의한 차이를 보였다(p<0.01). 자녀와의 놀이에 대한 즐거움 인식은 장애 아동과 비장애 아동 부모 간에 큰 점수 차이를 보였지만 통계적으로 유의하지는 않았다(p=0.053). 자녀와의 놀이 참여시간은 장애아동과 비장애 아동 모두 부 보다 모와의 참여시간이 많았다. 모의 경우 장애아동의 모가 놀이참여 시간이 더 많았고, 부의 경우 비장애 아동의 부가 더 많았다. 장애아동과 비장애 아동 부모 모두 장난감을 사주는 빈도는 '보통' 정도가 가장 많았으며 두 집단 간에 큰 차이를 보이지 않았다. 장애아동과 비장애 아동 부모 모두 놀이 정보를 습득하기 위해 인터넷을 주로 이용하였으며, 놀잇감을 살 때 고려사항은 흥미 유발, 발달수준, 안전 순이었다. 결론 : 본 연구를 통해 학령전기 장애 아동과 비장애 아동 부모의 놀이 인식 및 참여 실태를 비교할 수 있었다. 본 연구를 토대로 부모들이 놀이 시 실질적으로 필요한 부분을 알 수 있고, 추후 아동을 대상으로 한 놀이 연구의 기초자료로 제공될 수 있을 것이다.

• 한국산학기술학회논문지
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• 제13권7호
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• pp.2991-2999
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• 2012

본 연구는 일반학부모의 장애아에 대한 태도가 통합보육태도에 미치는 영향을 알아보는데 목적을 갖고, 2012년 3월 2일부터 10일까지 J지역 소재 통합보육시설에 다니고 있는 일반 자녀를 둔 학부모 150명을 대상으로 설문조사하였는데 그 결과를 요약하면 다음과 같다. 첫째, 장애아에 대한 태도가 통합보육 일반 태도에 미치는 영향을 검증한 결과 인지적, 감정적 요소가 일반 태도에 통계적으로 유의한 정(+)의 영향을 미치는 것으로 나타났다. 둘째, 장애아에 대한 태도가 통합보육 유아활동 및 교사관심에 미치는 영향을 검증한 결과 인지적, 행동적 요소가 유아활동 및 교사관심에 통계적으로 유의한 정(+)의 영향을 미치는 것으로 나타났다. 셋째, 장애아에 대한 태도가 통합보육 행동문제에 미치는 영향을 검증한 결과 인지적, 감정적, 행동적 요소가 행동문제에 통계적으로 유의한 정(+)의 영향을 미치는 것으로 나타났다. 이상의 연구결과를 종합해 보면 일반학부모의 장애아에 대한 태도에 따라 통합보육태도에 차이가 있음을 알 수 있다. 이는 일반학부모의 장애아에 대한 인지적, 감정적 요소에서 차이를 보여 이들 요인의 인식 개선시 통합보육태도를 높이는 긍정적인 요소로 작용할 수 있음을 시사한 것으로 볼 수 있다. 이 같은 결과는 통합보육이 장애유아와 일반유아 모두가 서로의 다양성을 인정하며, 이질적인 상대의 존재를 받아들이고, 존중하며 함께 배우려는 학부모의 인식전환이 선행되어져야 할 것을 시사한 것으로 해석할 수 있다.

• 한국융합학회논문지
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• 제10권5호
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• pp.297-311
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• 2019

본 연구는 복지관을 이용하는 장애부모를 둔 비장애 아동들을 대상으로 현상학적 연구방법을 통해 장애부모를 둔 비장애 아동의 행복한 삶의 본질적 의미를 밝히고자 시도되었다. 그 결과 행복한 삶과 관련된 76개 의미 있는 진술, 20개의 주제 8개의 범주가 도출 되었으며 아동이 행복한 삶의 본질적인 의미로는 '부모님이 행복해 하는 삶', '부모가 인정받는 삶', '부모님이 건강한 삶' '다른 가족과 다를 것이 없는 삶' 4개의 범주로 나타났고, 아동이 행복한 삶을 살기 조건으로는 '경제적으로 안정된 삶', '장애에 대한 인식이 긍정적인 사람과의 만남의 삶' '함께 여행하는 삶', '아동으로 인정받는 삶' 으로 나타났다. 이를 통해 볼 때 아동들에게는 이 시기가 중요한 만큼 더욱더 행복한 삶을 느낄 수 있는 개입방안과 장애인을 바라보는 인식개선 및 옹호자의 역할이 절실히 필요하다고 본다.

• 한국학교보건학회지
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• 제18권2호
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• pp.27-43
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• 2005

Purpose： The purpose of this study was to estimate obesity rate among mentally disabled children in six public schools in Korea. Furthermore, this study identified several factors that correlated with these children's obesity. The results of this study can help identify mentally disabled children who are at an increased risk for obesity and can be used to promote good health in this population. Methods： 1,102 subjectsfrom six public special schools were classified 4 groups who assessed for BMI for age-gender specific reference chart(1998) based on our previous data. Moreover, 207 parents were surveyed to identify predisposing factors for children's obesity, including characteristics of the children and parents, socioeconomic factors, children's eating habits, and children's exercise habits. Results： The prevalence of obesity among the 1,102 mentally disabled children was 17.3%. There was a statistically significant correlation between obesity and factors, such as age, maternal education, parents' perceptions about their child's obesity, frequency of breakfast, and exercise habits. Each of these factors was determined to have a statistically significant influence on obesity when all other factors were controlled in a multivariate analysis with multiple logistic regression analysis. Conclusions： Parental perceptions had an especially strong impact on the weight of their mentally disabled child. This is presumably due to the great influence that parents have on the lifestyles of their children, including dietary habits and frequency of exercise. Furthermore, the rate of obesity was directly proportional to the age of the child. The results of this study strongly indicate the need for preemptive health education programs that stress weight management for mentally disabled elementary school students.

• Child Health Nursing Research
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• 제26권3호
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• pp.338-347
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• 2020

Purpose: The Life Transition Scale (LTS) consists of 24 items that assess the life transition process of parents of autistic children. This study aimed to examine the validity and reliability of the LTS in parents of children with a wide spectrum of disabilities. Methods: Data were collected from 260 parents of children with disabilities through self-report questionnaires. Validity was examined using exploratory and confirmative factor analysis to determine the factor structures of the LTS; socio-demographic differences in LTS scores were examined using the t-test or ANOVA. Reliability was examined using Cronbach's α coefficient. Results: A four-factor structure was validated (χ²=640.0, p<.001, GFI=.81, RMSEA=.07, NNFI=.89, CFI=.89, PNFI=.74, Q [χ²/df]=2.60). The validity of the LTS was verified by exploratory factor analysis, with factor loading ranging from .30 to .80. There were significant differences in the accepting phase according to children's and parents' age and the type of disability, and in the wandering phase according to parental gender, educational level, job, and socioeconomic status. The Cronbach's αs for the reliability of each of the four structures were acceptable, within a range of .80~.90. Conclusion: The LTS is a valid and reliable measurement to assess the life transition process of parents with disabled children.

• 대한지역사회영양학회지
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• 제9권2호
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• pp.121-134
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• 2004

Purpose of this study was to compare nutrient intakes of disabled children and non-disabled children. Subjects consisted of 86 disabled children from a special education school and 127 non-disabled children from an elementary school in Seoul. Nutrient intakes were assessed by modified 24-hr recall method, with the help of children's parents and teachers. Almost all nutrient intakes (energy, protein, fat, carbohydrates, vitamin B$_1$ and niacin) of children with cerebral palsy were significantly lower than those of other groups. But nutrient intakes per body weight of children with cerebral palsy were not significantly different with those of other groups. There was no significant difference between disabled and non-disabled children in almost % RDA (rate of actual intake to RDA) except of energy %RDA in children with cerebral palsy. NARs (nutrient adequacy ratio) for energy and vitamin B$_1$ of children with cerebral palsy were significantly lower than those of children with autism and mental retardation, and non-disabled children. The proportions of energy, carbohydrate and protein intakes from lunch were significantly higher than those from breakfast and dinner in children with mental retardation and autism. The nutrient intakes of disabled children were different between other groups according to the type of handicap. For example, children with cerebral palsy had the risk of undernutrition. On the other hand, autistic children had the tendency of overnutrition. These results suggest that nutrition educational programs and educational materials for disabled children, their teachers and their parents should be developed considering the type of handicap.