• 재활간호학회지
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• 제11권1호
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• pp.32-40
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• 2008

Purpose: This study used a phenomenological method, which is a qualitative study, in order to understand the vivid experience of parents who have a disabled child. Methods: The number of participants was 10. The subjects of this study were parents who are raising their disabled child who attends a special school or normal middle or high schools in D city. The period for collecting materials was from September 2005 to July 2007. The phenomenological analysis method suggested by Giorgi was used. Results: The meanings of the child parenting experience of parents with a disabled child are (1) feeling of frustration of the delayed treatment, (2) difficult to accept the diagnosis of disability, (3) having eyes centered on her child, (4) accepting the disabled child, (5) giving all his energy to his disabled child, (6) making efforts for his family's unity, (7) recognizing the difficulty of parenting disabled child, (8) recognizing the difficulty of education for disabled child, (9) feeling pitiful for his their normal children, (10) planning for disabled child's future. Conclusions: All the programs for disabled child should be programed for their entire life. It is necessary to provide physical, psychological, emotional, social and economic nursing intervention to relieve or reduce the burden of parents with disabled children.

• 대한간호학회지
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• 제34권5호
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• pp.663-672
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• 2004

Purpose: This study describes the ecological variables effect on child abuse potential and the results from a prevention program for parents with disabled children aiming at decreasing child abuse potential. Method: Data was collected from 30 parents with disabled preschoolers attending an early education center in a community. The program consisted of handouts, small group lectures, support group meetings on understanding the disabled child-parents relationship, communication skill improvement, non-punitive discipline techniques, and influences of child abuse. A non equivalent pre-post test design was employed. Result: Ecological variables, and parenting self-efficacy, had a significant effect on child abuse potential in parents with a disabled child. By regression parenting self-efficacy showed(27.1 %) child abuse potential. Both parenting self-efficacy and beliefs in corporal punishment directly related to (52.0%) child abuse potential in parents. The program was effective inbringing some positive changes on pareting self-efficacy beliefs in corporal punishment, and child abuse potential toward disabled children. However, marital discord was not significantly effected. Conclusion: Child abuse prevention programs should decrease thechild abuse potential in parents. Thus I recommend a child abuse prevention program development; for parents with disabled adolescents, and teachers in disabled child education.

• 한국주거학회논문집
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• 제20권6호
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• pp.77-88
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• 2009

The nursing space and sanitary space are main living spaces for children in the child care center. The purpose of this study is to examine the characteristics in terms of planning by mainly focusing on the nursing space and sanitary space of the disabled child care center in Japan. Since Japan has cultural backgrounds similar to those of Korea while providing systematic child care centers according to the symptom and grade of disability, it is anticipated that this case study on the disabled child care center in Japan will help establish standards related to disabled child care centers in Korea. To conduct the study in a more efficient way, the case study was divided into the space planning of nursing spaces and sanitary spaces and the installation of sanitary tools and handrails in the disabled child care center. The findings of investigating into actual conditions were analyzed by comparing them with Japanese laws and literary and documentary records relevant to this study. Through this study, it is expected that Korean child care centers, having constantly expanded their quantitative growth, will also improve the qualitative level of their atmospheres so that they may provide more proper conditions even for disabled children to get better used to child care centers in Korea.

• 아동학회지
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• 제27권6호
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• pp.123-148
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• 2006

In this study of the formation of concepts of inclusion by non-disabled preschoolers in inclusive classroom settings, the researcher conducted participant observation and in-depth interviews from March 2004 through June 2005 in a single day care center offering inclusive education in Kyung-gi Province. The non-disabled children exhibited changes in their conception of disability through interactions with disabled children. The non-disabled children could be grouped into three categories: those who were wary of or disregarded disabled peers; those who disregarded disabled peers while helping them out; and those who actively cared for their disabled peers. Not all children went through the same developmental stages. The speed and degree of change in conception varied depending on the individual.

• 사회복지연구
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• 제42권2호
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• pp.443-465
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• 2011

본 연구는 장애아동 아버지의 양육참여와 양육행동, 장애자녀에 대한 태도 및 친밀감을 향상시킬 수 있는 가족탄력성 증진 프로그램을 개발하고 적용하여 그 효과성을 검증하는데 목적이 있다. 프로그램은 가족탄력성의 개념을 기반으로 하위요인인 신념체계, 조직패턴, 의사소통과정을 포함하는 내용으로 구성하였고, 서울소재 복지관의 초등학생 장애자녀를 둔 아버지를 대상으로 주 1회 매 2시간씩, 총 7회기로 진행되었다. 연구결과, 통제집단은 결과에 유의미한 차이를 보이지 않았지만 프로그램에 참여한 실험집단 아버지들은 양육참여 정도와 장애자녀에 대한 태도에서 유의미한 향상을 보였다. 따라서 가족탄력성 증진 프로그램을 통해 장애아동 아버지들이 적극적으로 양육에 참여하게 되고 장애자녀에 대해 긍정적으로 인식하게 되었음을 보여줌으로써 가족탄력성 프로그램의 효과성을 입증하였다. 이러한 결과를 바탕으로 장애아동 아버지에 대한 사회복지 실천현장에서의 개입 방안에 대한 함의를 제언하였다.

• 대한간호학회지
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• 제29권2호
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• pp.238-247
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• 1999

The purpose of this study was to describe the relationship between family stress and adaptation in families with a disabled child through literature review using McCubbin's Double ABCX family crisis framework. The literature review focused on (1) family stress and factors affecting family stress, (2) the critical individual, familial and social resources which families acquire and employ over time in managing crisis situation. (3) the changes in definition and meaning families develop in an effort to make sense out of their predicament. (4) the coping strategies families employ. and (5) the range of outcomes of these family efforts The results showed that families reported financial difficulties and the burden of care-giving demands as major family stressors. Siblings of disabled children manifested depressive symptoms and social isolation. but was not consistent study results. The parents' views of the cause of the disabling condition fundamentally affected their behavior toward their disabled child. Especially. the fathers' views of the child's characteristics made the greatest contribution to positive changes in the mothers' perceptions. The term perceived social support refers to the cognitive appraisal by individuals that they are cared for and valued, that significant others are available to them if needed, and that they are satisfied with their interpersonal relationships. The perceived social support was more protective than social support source. network size and network density. Parental adaptation was found to be related to the child's communication competence rather than family coping strategies proposed by Lazarus and Folkman. One study results showed that there was no difference in depressive symptoms and physical health between mothers with a disabled child and those without all though mothers with a disabled child had negative attitudes and perceived themselves as having significantly less social support and lower family functioning. But a longitudinal study revealed decreases in the negative impact of the child and increases in sibling and overall family adaptation.

• 한국간호교육학회지
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• 제14권2호
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• pp.315-323
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• 2008

Purpose: This study was performed to compare mothers' health promotion behaviors between those who have a disabled child and those who have a healthy child. Method: The participants were 243 mothers from 24 Daycare Centers for Children with Disabilities and 310 mothers from 5 child daycare centers. Mothers with preschool children completed self-report questionnaires, asking about health behaviors for preschool children. Data from these surveys was analyzed using the ANOVA, t-test, and $x^2$-test with the SPSS 15.0 Win program. Result: Mothers with disabled children showed less health promotion behaviors than the mothers' of children without disabilities. Two sub-categories, activity-exercise and health perception-health management pattern, showed significant differences between the two groups. In addition, mothers' health behaviors for disabled children were significantly different according to the children's age, mothers' employed status, and number of children in the family. Conclusion: These results suggest that mothers with disabled preschool children are likely to practice less health promotion behaviors with their children compared to others. These findings suggest that health promotion support programs for mothers with disabled children should be developed and offered. For effective intervention, pediatric nurses also need to be involved in the health of disabled children.

• 한국주거학회논문집
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• 제19권4호
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• pp.121-134
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• 2008

A study on child care centers has been developed with a focus on normal children. Also the child care centers which take care of children with disability are rare. In Seoul, Korea, only 2% of children with disability are taken care of in child care centers. And even the disabled children at the child care centers are mostly mentally or emotionally disabled because the building, programs and services of the centers are restrictive to the children with severe physical disabilities. In Korea, it is not yet an obligation for child care centers to adopt Disability Accessibility Guidelines to make facilities accessible by the disabled. Also, Korea does not have specific design guidelines or legal standards. This study aims to review the legal standards and design guidelines which are applicable to child care centers for children with disability through a reference review. Japanese legal standards and references were collected and analyzed. As a result, we categorized the guidelines according to contents such as locations, areas, space organizations, nursing spaces, sanitary spaces, and doors and corridors. The goal of this study is to provide the basic information to develop domestic design guidelines to ensure that the child care centers are welcoming and usable for everyone possible.

• 한국콘텐츠학회논문지
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• 제17권1호
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• pp.594-610
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• 2017

본 연구의 목적은 장애아동 어머니의 양육부담이 부부갈등에 미치는 영향을 파악하고 사회적 지지체계와 사회활동이 양육부담과 부부갈등의 관계에서 어떻게 조절효과를 보이는가를 검증하는 것이다. 본 연구의 조사대상자는 인천 시내의 특수학교에 등록하여 교육과 치료를 받고 있는 발달장애아동의 어머니로, 모두 124명에 대한 분석이 진행되었다. 주요 연구결과는 다음과 같다. 첫째, 발달장애아동에 대한 양육부담은 부부 갈등을 증가시켰다. 둘째, 발달장애아동 양육부담이 부부 갈등에 미치는 영향에 있어서 비공식적인 사회적 지지가 유의미한 조절요인임을 확인하였다. 셋째, 발달장애아동의 양육부담이 부부갈등에 미치는 영향에서 일반적인 사회 활동이 유의미한 조절요인으로 밝혀졌다. 이상의 연구결과를 통해 발달장애아동 어머니의 부부갈등에 대한 정책적 실천적 함의를 제시하였다.

• Journal of Dental Anesthesia and Pain Medicine
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• 제16권3호
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• pp.213-216
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• 2016

Children with an intellectual disability often demonstrate lack of cooperation during dental treatment and require behavioral management. A child with mild intellectual disability can be managed adequately using restraints and medication. However, in cases of profound intellectual disability, dental treatment under general anesthesia is usually required. In cases where the patient is an intellectually disabled child who has intellectually disabled parents, it is difficult to evaluate the patient's preoperative condition and to obtain consent for treatment under general anesthesia. Furthermore, they are unable to respond to emergencies after treatment. Therefore, dental treatment should be performed under general anesthesia with hospitalization for children with an intellectual disability. This case presents the dental treatment of an intellectually disabled child, who has intellectually disabled parents, and who required general anesthesia and hospitalization.