• Title/Summary/Keyword: Caregivers of disabled children

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The Study on the Mediating Effect of Parenting Stress and Family Strength in the Relationship between Social Support and Happiness of the Primary Caregivers of Disabled Children (장애자녀 주양육자에 대한 사회적지지와 행복감의 관계에서 양육스트레스와 가족건강성의 매개효과 연구)

  • Han, Hee-Chang;Kim, Woong-Soo
    • Journal of Digital Convergence
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    • v.19 no.10
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    • pp.419-425
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    • 2021
  • This study explores effective ways to improve the happiness of the primary caregiver of disabled children based on the comprehensively identification of their influencing factors. Based on the results of a comprehensive review of the relationship between the influencing factors, this study seeks to explore directions and policy alternatives that are effective in improving the happiness of the primary caregiver of disabled children. The effects of social support, parenting stress, family strength, and happiness were examined in this study using data collected from 430 primary caregivers of disabled children in three regions of Jeollabuk-do. The main findings of the analysis are as follows: First, it was discovered that social support has a direct effect on the happiness of the primary caregiver of disabled children, as well as an indirect effect via family strength. Second, the primary caregivers of disabled children's family strength was discovered to have a partial mediating effect on the relationship between social support and happiness. Convergence suggestions were presented based on the research findings to promote social support, family strength, and feelings of happiness for primary caregivers of children with disabilities.

The Study on the Mediating Effect of Caring Empowerment in the Relationship between Caring Burden and Life Design of Caregivers of Disabled Children (장애자녀부모의 돌봄부담감과 라이프디자인의 영향관계에서 돌봄효능감의 매개효과 연구)

  • Lee, Yu-Ri
    • Journal of Digital Convergence
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    • v.15 no.2
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    • pp.503-510
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    • 2017
  • This study aimed to investigate the mediating effect of caring empowerment in the relationship between caring burden and life design. To get the results, a survey was conducted, targeting caregivers of disabled children and caring burden, caring empowerment, life design measures were used in the survey. Key outcomes of the analysis were as follows. First, it was verified that caring burden and caring empowerment, caring empowerment and life design had a direct relationship. Second, it was analyzed that caring empowerment had a full mediating effect in the relationship between caring burden and caring empowerment. Based in these results, comprehensive interventions for activating life design were proposed.

The Burden of Aged Parents Caring for Adult Children with Disabilities (성인이 된 장애자녀를 돌보는 노인부모의 부양부담감)

  • Suk, Min-Hyun;Kim, Eun-Hye
    • Research in Community and Public Health Nursing
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    • v.21 no.4
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    • pp.439-447
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    • 2010
  • Purpose: This study was to describe the burden of aged parents caring for adult children with disabilities and related factors. Methods: The subjects were 123 caregivers aged over 65 who were caring for 18-year-old or older children with disabilities. The research tool of this study was a structured questionnaire on family burden. Data were collected from June 3 to 25, 2010, and analyzed by Cronbach's alpha, mean, standard deviation, t-test, and ANOVA using SAS 9.2 program. Results: The major findings of this study were as follows. Elderly parents caring for adult children with disabilities perceived a moderate level of burden. The burden from concern over their children's future was highest, and economic and physical burdens were higher when the parents were younger. Burden was significantly different according to parents' characteristics such as gender, perceived health status, disease, the costs of caring for disabled children, and children's characteristics such as disability rating, health status, and ADL. Conclusion: In order to reduce the burden of elderly parents caring for adult children with disabilities, we need to improve their health status and assess comprehensive policies.

Studies on Family Caregiving, Clothing and Nutrition of Disabled Elderly -(Part 2) Family Relationship and Caregiving of Disabled Elderly- (거동 불편 노인의 가족관계와 의.식생활에 관한 연구 -(제2보) 거동 불편 노인의 가족 관계 및 지지 실태 연구-)

  • 박충선
    • Journal of the Korean Home Economics Association
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    • v.29 no.3
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    • pp.71-83
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    • 1991
  • This study examines a pattern of family caregiving and its effect on life satisfaction of disabled elderly people. Data were gathered through the use of face-to-face interview method from a sample of 135 elderly aged over 60. One-third of the elderly respondents have no family caregiver. Most of caregivers provide routine household chores and physical help, but persnal care such as bathing and changing clothes was taken by elderly people themselves. The caregiver in an elderly couple is most likely the wife. When a spouse is unavailable, daughters-in law usually assume the role of a primary caregiver. Sex difference has been found in the most comfortable caregiver for the elderly. The most comfortable caregiver for the elderly men is shown to be their spouse, whereas the one for the elderly women is show to be their daughter-in-law. Most of the disabled elderly are emotionally dependent on their son(usually their eldest son), but physically dependent on their spouse, daughter-in-law, or daughter. The caregivers are dominated by women. Among those elderly receiving care from their children, the relationship between the aged their caregiver is found to be closer than the past when the aged were healthy: however, this relationship is found to be almost the same as the past among those elderly receiving care from their spouse. Finally, the degree of family solidarity, satisfaction with received cares, and the relationship with caregivers are found to be closely related to life satisfaction of the elderly respondents.

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A study on the mediating effect of intellectual wellness in the relationship between physical and emotional wellness of caregivers of children with disabilities (장애아동 주양육자의 물리적환경과 정서적 환경 관계에서 지적 웰니스의 매개 작용)

  • Kang, Jisoon;Lee, Hyunju;Shim, Oksu
    • Journal of the Korean Applied Science and Technology
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    • v.38 no.2
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    • pp.497-510
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    • 2021
  • The purpose of this study is to investigate the mediating effect on intellectual wellness between the physical and emotional wellness of the caregivers of children with disabilities and to provide the relevant data necessary for the response of the caregivers of disabled children. The study subjects were 177 caregivers of children with disabilities, and data were collected from June 2019 to November 2019. Data analysis was performed using the PROCESS macro. Independent sample t-test and one-way batch analyses were conducted to analyze the general characteristics and variables of the collected data. Through this, Scheffé's post-test was performed for variables with statistically significant differences. The relationship between variables was analyzed by Pearson correlation and hierarchical multiple accounting analyses. The results of the study indicate that the physical and intellectual wellness of the main caregivers of children with disabilities provide a direct effect on their emotional wellness as well, and that intellectual wellness provides a mediating effect between physical wellness and emotional wellness. It was found that the influence of the physical environment of children with disabilities is also important, but emotional wellness can be improved only when the main caregivers are provided with an appropriate and sufficient intellectual education. Therefore, the expansion of various educational programs for the main caregivers of children with disabilities could contribute to the improvement of their own overall wellness.

Care and future expectations of families with severe disabilities (중증장애 가족의 돌봄과 미래기대)

  • Shin, Kyung-An
    • Journal of Industrial Convergence
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    • v.18 no.6
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    • pp.139-146
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    • 2020
  • Care of people with severe disabilities requires care throughout their life cycle compared to non-disabled families. For this reason, carers of severely handicapped families are highly likely to have negative feelings throughout the family as well as daily stress. Disabled families also have a high rate of experiencing difficulties between non-disabled children or married couples in life centered on the disabled. In particular, the rapid aging in Korea affects the lives of the elderly disabilities along with the aging of the caregivers. The study explored alternatives to realistic support through the past and present experiences of caregivers with disabilities through qualitative research methods, and derived hopes and expectations for the future as follows.First, after confirming the disability for infants and toddlers with disabilities, information about the support system or system is provided from the rating agency. Second, providing "customized care support" suitable for the type of disability or individual characteristics at the social, political, institutional, and economic levels. Third, the provision of programs for non-disabled children and the provision of healing programs only for families with disabilities or those with disabilities. Fourth, the provision of spaces and programs that provide rest and rest for adults with disabilities. Fifth, the application of a long-term care system for the elderly reflecting the aging age of the disabled and institutionalization of community care for the disabled. The research is meaningful in that it presents discussion points for improving the quality of life of adults and the elderly with disabilities.

Educational Needs of Primary Caregivers of Children with Intellectual Disability in Mongolia (몽골 지적장애아동 주양육자의 교육요구)

  • Kim, Jinhee;Park, Seo Jin;Lee, Eun Young
    • Journal of the Korea Convergence Society
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    • v.10 no.3
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    • pp.319-334
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    • 2019
  • This study was conducted to identify the caregiver's educational needs for health care of children with intellectual disability in Mongolia. Data were collected from 150 family caregivers of children with disability in Mongolia between September 30 and October 31, 2017. The questionnaire included a scale for health care education needs in the form of 10 categories, 35 items, 5-point Likert's type. The mean score of educational needs of the primary caregiver were $4.05{\pm}0.65$. The category of information and knowledge acquisition showed the highest score ($4.48{\pm}0.57$). There were statistically significant differences in educational needs of the caregiver according to monthly income (F=7.07, p<.001), presence of a secondary caregiver (t=-2.70, p=.008), other disabled children status (t=2.02, p=.046), occupation status of disabled child's mother (F=3.87, p=.023), and multiple handicaps of caring child (t=-2.60, p=.010). The findings on caregiver's educational needs in this study can help inform planning of caregiving support services for children with intellectual disability in Mongolia.

A study on the factors of convergent caring competency for promotion of caregivers' wellness of disabled children (장애자녀 돌봄제공자의 웰니스 증진을 위한 융복합 돌봄역량 요인 연구)

  • Lee, Yu-Ri;Kim, Nam-Jung
    • Journal of Digital Convergence
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    • v.14 no.2
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    • pp.479-487
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    • 2016
  • This study aimed to investigate the difference of the disabilities type of caring competency, caring appraisal(caring burden, caring satisfaction), self-help group support for parents who have children with disabilities. The data were collected by a self-reported questionnaire from 301 parents who have disabled children(180 mental disabilities & 121 physical disabilities). Given the three types of invariance satisfied, latent means analysis(LMA) is performed to test mean differences on the four factors across the two groups. According to LMA where the parents who have children with physical disabilities are used as the reference group, the parents who have children with mental disabilities showed higher latent mean values on the self-help group support and caring burden. However, the parents who have children with physical disabilities showed higher latent mean values on the caring satisfaction and caring competency.

Association between Satisfaction with Assistive Technology Devices and Psychosocial Impact among Some Mentally or Physically Disabled Children (뇌병변 및 지체 장애아의 보조공학기기 사용 만족도와 심리사회적 영향의 관련성)

  • Jang, Kyoung-Lae;Ryu, So Yeon;Park, Jong;Han, Mi Ah
    • Journal of agricultural medicine and community health
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    • v.42 no.3
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    • pp.132-144
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    • 2017
  • Objectives: The purpose of this study was to identify the association between satisfaction with assistive technology devices and psychosocial impact among some mentally or physically disabled children. Methods: The study subjects were 120 disabled children and their primary caregivers who were using rental assistive technology devices in Gwangju and Jeollanam-Do. Data were collected by structured questionnaire composed of general characteristics of subjects, characteristics related with using assistive devices. Quebec User Evaluation of Satisfaction with assistive Technology 2.0 (QUEST 2.0) and Psychosocial Impact of Assistive Device Scale (PIADS). The statistical analysis were performed by descriptive statistics, t-test, ANOVA and Pearson's correlational analysis. Results: The total mean score for QUEST 2.0 was $4.08{\pm}0.66$ (satisfaction with devices, $4.01{\pm}0.70$; satisfaction with the assistive devices service, $4.14{\pm}0.90$) and the mean of PIADS was $1.00{\pm}0.75$ (ability, $0.99{\pm}0.78$; adaptability, $1.04{\pm}0.86$; self-respect, $0.99{\pm}0.74$). The scores of PIADS was statistically significant difference according to usage time of assistive devices. The PIADS was significantly positive correlated with QUEST 2.0 Conclusions: The mentally or physically disabled children reported that the higher level of satisfaction and the more positive impact of psychosocial aspect with assistive technology devices. It would be necessary to perform further studies for addressing the effects of assistive technology devices.

Photo Comics Courses targeting Mothers of Developmentally Disabled Children: A Case Study (발달장애 어머니 대상의 <포토툰 수업> 사례연구)

  • Kwon, Kyoung-Min
    • Cartoon and Animation Studies
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    • s.50
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    • pp.131-151
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    • 2018
  • Notwithstanding various discourses among scholars on the unique characteristics of comics, in Korea there is nevertheless a scarcity of quality research on the subject. Therefore, to promote quality research, it is important to consider how to best use source materials in the field of comics scholarship. Source materials can generally be categorized into three types: pre-existing comics, scholar-generated comics and user-generated comics. For this study, user-generated comics are the primary source materials, specifically comics created by mothers of children with disabilities. It is intended that this research will contribute to the future direction of education for mothers who suffer from a relative sense of alienation as the primary caregivers of children with special needs. Although therapeutic arts and cultural programs make a tremendous difference in the lives of these mothers, teaching methodology and educational opportunities are extremely limited. Furthermore, existing scholarship focuses primarily on either the psychological transformation of the individual or a phenomenological approach for parents to understand and deal with the problematic behavior of children with disabilities. However, this research does little to help improve learning programs for these parents. Against this backdrop, this research sets out to consider the potentiality and effectiveness of using comics in the education of mothers of children with disabilities. These mothers, by creating comics, develop better awareness of themselves in a positive and enriching way. It is therefore hoped that this research provides a useful analysis for developing the potentiality and effectiveness of these programs.