Research in Community and Public Health Nursing (지역사회간호학회지)

Korean Academy of Community Health Nursing (한국지역사회간호학회)
권호 표지

The Burden of Aged Parents Caring for Adult Children with Disabilities

성인이 된 장애자녀를 돌보는 노인부모의 부양부담감

  • Suk, Min-Hyun (Department of Nursing, CHA University) ;
  • Kim, Eun-Hye (Department of Seniors Business Management and Welfare, CHA University)
  • 석민현 (차의과학대학교 건강과학대학 간호학과) ;
  • 김은혜 (실버산업복지학과)
  • Received : 2010.09.29
  • Accepted : 2010.12.07
  • Published : 2010.12.31
Download PDF
⟨ Previous Next ⟩

Abstract

Purpose: This study was to describe the burden of aged parents caring for adult children with disabilities and related factors. Methods: The subjects were 123 caregivers aged over 65 who were caring for 18-year-old or older children with disabilities. The research tool of this study was a structured questionnaire on family burden. Data were collected from June 3 to 25, 2010, and analyzed by Cronbach's alpha, mean, standard deviation, t-test, and ANOVA using SAS 9.2 program. Results: The major findings of this study were as follows. Elderly parents caring for adult children with disabilities perceived a moderate level of burden. The burden from concern over their children's future was highest, and economic and physical burdens were higher when the parents were younger. Burden was significantly different according to parents' characteristics such as gender, perceived health status, disease, the costs of caring for disabled children, and children's characteristics such as disability rating, health status, and ADL. Conclusion: In order to reduce the burden of elderly parents caring for adult children with disabilities, we need to improve their health status and assess comprehensive policies.

Keywords

References

  1. Choi, K. J., & Baek, H. J. (2006). Burden and quality of life in caregivers of patients with rare and incurable disease. Journal of Korean Academy of Community Health Nursing, 17 (3), 364-375.
  2. Eley, D. S., Boyes, J., Young, L., & Hegney, D. G. (2009). Accommodation needs for carers of and adults with intellectual disability in regional Australia: Their hopes for and perceptions of the future. Rural and Remote Health, 9 (3), 1239.
  3. Greenberg, J. S., Seltzer, M. M., & Greenley, J. R. (1993). Aging parents of adults with disabilities: The gratifications and frustrations of later-life caregiving. The Gerontologist, 33 (4), 542-550. https://doi.org/10.1093/geront/33.4.542
  4. Haveman, M., Berkum, G., Reijunders, R., & Heller, T. (1997). Differences in service needs, time demands, and caregiving burden among parents of persons with mental retardation across the life cycle. Family Relations, 46, 417-425. https://doi.org/10.2307/585101
  5. Hong, Y. S., Suh, M. J., Kim, K. S., Kim, I. J., Cho, N. O., Choi, H. J., et al. (2000). Relations between perceived burden and social support of stroke patient's family caregiver. Journal of Korean Academy of Nursing, 30 (3), 595-605.
  6. Korea Disables People's Development Institute(2009). 2009 Data on Registered Disabled . Seoul: Author.
  7. Kim, H. O., & Jung, K. H. (2007). A study on the needs of health & community services among the disabled at home in rural areas. Journal of Korean Academy of Nursing, 18 (3), 480-491.
  8. Kim, H. R. (2003). Health status among community elderly in Korea. Journal of Korean Academy of Nursing, 33 (5), 544-552.
  9. Kim, Y. J., & Lee, P. S. (1999). A study of burden and depressive reactions of families who cared for patients suffering from senile dementia. Journal of Korean Academy of Nursing. 29 (4), 766-779.
  10. Lee, H. J., & Eo, Y. S. (2000). A study on family functioning and burden of parents with cerebral palsy children. Journal of Korean Academy of Child Health Nursing, 6 (2), 199-211.
  11. Lee, J. Y., & Kim, Y. A. (2009). Relationship between family burden, family support, depression, and satisfaction of the elderly caregiver. Journal of Korean Academy of Community Health Nursing, 20 (1), 41-48.
  12. Lee, M. S. (1995). A study of burden in mothers of children with congenital metabolic disorders. Journal of Korean Academy of Child Health Nursing, 1 (1), 26-36.
  13. Ll cer, A., Zunzunegui, M. V., Gutierrez-á Cuadra, P., Béland, F., & Zarit, S. H. (2002). Correlates of wellbeing of spousal and children carers of disabled people over 65 in Spain. European Journal of Public Health, 12 (1), 3-9. https://doi.org/10.1093/eurpub/12.1.3
  14. Maurer, F. A., & Smith, C. M. (2009). Community/Public health nursing practice: Health for families and populations(4th ed.). St. Louis: Saunders.
  15. Ministry of Health and Welfare (2009a). 2008 Survey on the Status and Needs of the Elderly in Korea. Seoul: Author.
  16. Ministry of Health and Welfare (2009b, December). 2009 Registered Disabled Persons(National). Seoul: Author.
  17. Ministry of Health and Welfare (2010). 2010 Elderly Health and Welfare Service Guide. Seoul: Author.
  18. Oh, K. S., Chae, S. M., & Cheon, N. Y. (2002). The reliability and validity of family burden questionnaire. Journal of Korean Academy of Child Health Nursing, 8 (3), 272-280.
  19. Paik, S. H., & Park, I. S. (1996). Social support and burden in mothers of children with cancer. Journal of Korean Academy of Child Health Nursing, 2 (1), 27-54.
  20. Park, H. R., Park, S. N., Jung, K. H., & Kim, H. J. (2001). The hope, burden and family function in mothers of children with cancer. Journal of Korean Academy of Child Health Nursing, 7 (1), 51-61.
  21. Park, J. S., & Oh, Y. J. (2003). A study health problem and Perceived health status of the rural elderly. Journal of Korean Academy of Community Health Nursing, 14 (2), 274-286.
  22. Ryu, H. S., Hwang, R. I., Suk, M. H., & Chin, D. L. (2005). A study on evaluation of district visiting nursing services of urban health center. Journal of Korean Academy of Community Health Nursing, 16 (2), 127-136.
  23. Smith, G. C., Hatfield, A. B., & Miller, D. C. (2000). Planning by older mothers for the future care of offspring with serious mental illness. Psychiatric Services, 51 (9), 1162-1166. https://doi.org/10.1176/appi.ps.51.9.1162
  24. Son, Y. J., Choi, E. Y., & Song, Y. A. (2008). A study on the health status and need of health education of the elderlyfocuses on some elders living in Jeju. Journal of Korean Academy of Community Health Nursing, 19 (2), 143-156.
  25. Suh, M. H., & Oh, K. S. (1993). A study of well-being in caregivers caring for chronically ill family members. Journal of Korean Academy of Nursing, 23 (3), 467-486.
  26. Sung, M. H., & Paik, S. N. (1999). A study on burden and quality of life in mothers of child with nephrotic syndrome. Journal of Korean Academy of Child Health Nursing, 5 (2), 125-135.
  27. Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20 (6), 649-655. https://doi.org/10.1093/geront/20.6.649