• Women's Health Nursing
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• v.17 no.3
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• pp.285-293
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• 2011

Purpose: This study was designed to examine the relationship between perceived entrapment to depression and subjective well-being of women as family caregivers caring for elderly dementia patients. Methods: One hundred and sixty-nine women family caregivers were recruited from two high schools located in Seoul, Korea for this descriptive study. The instruments used were The Entrapment Scale, The Center for Epidemiology Studies Depression Scale (CES-D) and Subjective well-being scale. Results: The score of perceived entrapment significantly correlated with depression and subjective well-being. The significant predictor of depression in women caregivers was perceived entrapment, 50.3% of the variance in depression. Also, perceived entrapment was predictor of subjective well-being in women caregivers, explaining 41.4% of the variance in depression. Conclusion: This study showed that perceived entrapment is an important predictor for depression and subjective well-being. Therefore, in order to reduce depression in women caregivers, it is necessary to design an intervention program that helps with coping and reduces perceived entrapment.

• Women's Health Nursing
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• v.7 no.4
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• pp.657-665
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• 2001

여성건강은 개인 뿐만 아니라 가족, 사회, 국가적으로 대단히 중요하다. 왜냐하면 미래사회의 자원인 인간을 출산하고 양육하는 것과 직접적으로 관련이 있기 때문이다. 여성은 스스로 자신의 몸을 지키고 건강행위를 위한 결정을 할 수 있어야 한다. 특히 출산과 관련하여 여성은 자신의 건강을 유지 증진 할 수 있는 능력이 있어야 한다. 한나라의 발전수준은 모자보건의 수준으로 결정하며 영아 사망률과 모성사망률은 국가 발전의 수준을 대표한다. 본 연구는 한국의 여성과 어린이 건강 실태를 살펴보았다. 모성사망률과 영아사망률은 여성의 산전간호 수진률의 증가와 영아 예방접종률의 증가로 점차 감소하고 있다. 그러나 모유수유률의 감소와 영아의 사고발생률이 증가하는 것은 자라나는 어린이의 건강을 위협한다. 어린이 사고는 환경과 돌보는 어른들의 부주의에 의해서 발생되는 경우가 대부분이므로 어린이 사고를 방지하고 모유수유률을 증가시키는 예방전략이 필요하다. 여성의 흡연, 음주, 약물의 사용이 증가하는 것과 여성폭력이 증가하는 것은 여성건강을 위협하는 중요한 요인이다. 또한 식습관 장애와 같은 잘못된 건강행위는 여성의 건강을 위협할 뿐 아니라 자녀출산에도 부정적인 영향을 미친다. 여성과 어린이의 건강을 유지 증진하기 위해서는 여성이 여성으로서의 인식을 가지고 건강관리기관을 찾고 건강관리를 할 수 있는 능력을 가져야 한다. 그러므로 간호사를 비롯한 의료인은 여성이 스스로 판단하고 결정하고 자가간호 할 수 있는 힘과 의지와 정보를 제공해야 한다. 이를 위해 여성건강전문간호사가 필요하다. 또한 국가와 사회단체(NGO)가 함께 여성건강이 국가적인 사업임을 인식하고 지원과 관심을 기울여야 한다.

• Journal of Hospice and Palliative Care
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• v.1 no.1
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• pp.56-64
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• 1998

Purpose : Seoul National University Hospital developed a group counseling program for the terminal cancer patients and their family members. This program consists of each of doctor, nutritionist, nurse, pharmacist, and social worker to provide them with the information and to enhance their ability to cope with terminal cancer. This research aims to introduce this new program per se, and to appreciate its validity and applicability to the terminal cancer patients and their family members by analyzing the concerns and specific questions of the participants. Methods : The methodological approach employed in this research is 1996 content analysis of the group counseling reports, and interview of the 312 participants. The analysis includes the general characteristics of the subjects, family relationship to the patients, times of attendance to the group session, source of information to the program. Results : The participants consist of 261 family members(84%) and 51 patients(16%). Majority responded to the program with a single-attendance. Diagnosis are mainly lung cancer, stomach cancer, liver cancer. The ratio of participants by family members is decreased in the order of spouse, children, daughter-in-law, brothers and sisters, and parents. The source of information to the program is largely through medical staff(69%) as compared with posters in the hospital (26%). The participants are interested primarily in the medical information. Their interests are various, such as pain control, patient care, nutrition, psychosocial problem and etc. Conclusion : This program is characterized largely as a family-supporting program which primarily offers information for terminal cancer. This program is a sort of a hospice program, which maximizes the present quality of living of the terminal cancer patients as long as life continues by encouraging them to live with terminal cancer. Thus, this group program can be employed as an active support network for the patients and their family. In order to develop comprehensive care-giving services, it is required to have 24-hour telephone service, hospice facilities, home care service, and communication between the referral hospitals and the primary care physicians, in particular. Such a development of services is the ultimate goal for improving care. But the immediate goal of the program is to make possible better education for the patients and their family to live with terminal cancer.

• Korean Journal of Social Welfare
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• v.59 no.2
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• pp.65-88
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• 2007

This study evaluates psychometric properties of the Revised Memory and Behavioral Problems Checklist(RMBPC) in Korean version. The sample includes 387 South Korean family caregivers who provide the majority of day to day tasks and emotional care for their older family members with physical and/or cognitive disabilities. The psychometric properties of the RMBPC are verified by item analysis, exploratory factor analysis(EFA) & confirmatory factor analysis(CFA). For cross-validity, the randomly divided two samples are used: one sample for EFA(n=193, 387/2) and the other sample for CFA(n=194, 387/2). The internal consistency of the K-RMBPC is excellent, and the convergent and criterion-related validity of the K-RMBPC with related variables is empirically confirmed. An EFA based on the Principal Component Analysis(PCA) method with varimax rotation explains 65.85% of variance accounted for by the three factors. A CFA also verifies that the model fit was acceptable. The shorter Korean version of the RMBPC is found reliable and valid. The translated checklist would be very useful for clinical and research settings by (a) focusing on observable, conceptually relevant, potentially modifiable behaviors and (b) using objective criteria within a self-administered framework, to enable clinicians and researchers to pinpoint areas of disturbance and target intervention goals for patients and caregivers in a cost-effective manner.

• Issues in Feminism
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• v.11 no.2
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• pp.49-83
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• 2011

This article explores the characteristics of care and care labor which is core keyword of the welfare state and the way of institutionalization of care labor, focusing specially on differences among women. Caring is defined by the expression of morality and labor accompanied by concrete action. But, care labor in the welfare state is defined by "activities involved in caring for the ill, elderly, handicapped and dependent", and I think, that definition is more useful than the narrow one for policy institutionalization. But the latter definition intentionally separates the domestic work from care work. Care labor is considered to be different from the market labor in terms of motivations, but there are some limits in standardization and commercialization of the traits of emotional and moral engagement. Thus, requiring of emotional motivation as one of the job descriptions is not realistic. Welfare state is institutionalizing women's unpaid care work in family through de-familization, and its policy tools are cash benefits and services for care-related, which influence to the female wage worker and fulltime housewife, care receiver and care giver, and polarization of women's class in a very different way. Cash benefits enhances the division of gender labor, polarizes the care laborer and weakens of expansion the care as decent job. The movement of feminist welfare state have a vision of universal service expansion and need the policy list for de-gendering of care labor.

• Journal of Hospice and Palliative Care
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• v.10 no.3
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• pp.137-144
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• 2007

Purpose: The purpose of this study is to identify and assess the needs of the cancer patients and their families and provide basic data to meet with their needs. Methods: This is a descriptive study using questionnaire method. Questionnaire were collected by mail from 76 discharged patients from a hospice ward from May until the end of October, 2004, and data were analyzed by SPSS 10.0. Results: Admitted patients had needs of pain control (85.5%), non-pain symptoms (63.2%) such as vomiting, dyspnea, ascites, etc, and emotional and spiritual problem solving (28.9%, 14.5%). Interests of patients were health care of himself/herself (65.8%), concern for their spouses left alone (32.9%), and future of their children (15.8%). In families' needs of care of 5 areas, "information on patient's status and treatment/nursing care" was shown most high score ($3.48{\pm}0.62$). In detailed questions, they request most 'to inform the prognosis of patients' and the next is 'to inform the reasons that nursing care was required'. The next highest score was to 'inform family roles' ($3.39{\pm}0.64$), and next was spiritual support ($3.11{\pm}0.79$), and emotional support ($3.08{\pm}0.72$). Expectations of family on the treatment were comfortable dying (73.4%) scored the highest. Patients' families were satisfied with volunteer service most in service area (97.4%). The next was pain control (89.5%) and nursing service (77.6%). Conclusion: Health care staff should identify the actual needs of families caring cancer patients and they should operate realistic programme which can give continuous and assistance by reflecting individual needs and characteristics. With these srategies, the quality of life of patients and families can be improved. And then the intervention programme should be developed to measure subjective nursing care needs of terminally ill cancer patients and their families.

• Journal of Hospice and Palliative Care
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• v.3 no.1
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• pp.28-38
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• 2000

Purpose : This study examined characteristics of, problems of and services provided to hospice recipients and their family members at a home hospice organization. Methods : The subjects were 113 people who were discharged from one free-standing home hospice organization between November, 1994 and lune, 1999. Since the opening of the organization in November of 1994, it has provided hospice services at patients' homes with no charge. Data were collected from those subjects' records. Results : The average age of the subjects was 57.1 years; those aged 60 and over were 54%. Spouse was the most frequent(50.9%) primary caregiver followed by daughter-in-law and daughter. All the subjects were diagnosed as having cancer. Of those 41 subjects who did not know their terminal stage in the beginning, 31 subjects came to know their states. Of the subjects, 72.7% were referred from their physicians. On the average, the service duration and the number of home visits were 6.8 weeks and 7.2 times, respectively. Pain was the most prevalent problem of the subjects(89.4%). Medication management was the most frequently provided service followed by psychological supports. The reasons for discharge were death(88.5%) and refusal(8%). Home was the most frequent place of death(60%). Conclusion Home hospice service providers should be trained particularly in working with elders and in managing cancer pain. People need to be referred at an appropriate time for achieving goals of hospice. Community recognition of hospice services needs to be promoted.

• 재활복지
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• v.20 no.1
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• pp.43-64
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• 2016

This study is to reveal the effects affecting mother' coping resources on caring stress of mothers caring for adult children with developmental disabilities. The research data was collected from the service users recruited from two disability organizations and the disabled community welfare centers in South Korea. The survey was limited to mothers caring for adult children with developmental disabilities over the age of 18. The samples of the study consisted of 119 mothers. The data were analysed through SPSS statistical program. It was used for the analysis method of Frequency analysis, T-test, ANOVA and Step wise regression. Analysis results are as follows: the family support and friend support of social coping resources is affecting in caring stress of mothers. Also, the mothers who is working are more caring stress than unemployed mothers and the mothers who is between 50age and 54age are more caring stress than the mothers of under 49 age. Based on these results, I proposed the idea of several programs for social work practice for community welfare centers based on the results.

• Journal of Korean Academy of Nursing
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• v.45 no.2
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• pp.202-210
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• 2015

Purpose: The purpose of this study was to describe depression, caregiving burden and the correlation of the two variables in the families of patients with amyotrophic lateral sclerosis (ALS) and to clarify factors predicting caregiving burden. Methods: A descriptive and cross-sectional study was conducted with 139 family members who provided care to patients with ALS. The characteristics of patients and families, Korean-Beck Depression Inventory (K-BDI), Korean version of Zarit Burden Interview (K-ZBI) and Korean-Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (K-ALSFRS-R) were used as study measures. Results: The mean score for K-BDI was 19.39 out of 63 suggesting sub-clinical depression and 38.2% of the family members exhibited depression. The mean score for K-ZBI was 66.03 out of 88. The predictors for K-ZBI were K-BDI, age of family member, length of time spent per day in caring, relationship to patient and K-ALSFRS-R. Conclusion: The results of this study suggest that levels of depression and caregiving burden are high among family members caring for patients with ALS. As depression is associated with caregiving burden, screening and emotional supports should be provided to reduce the burden of care for these family. Support programs to alleviate the care burden are also needed, considering family demographics, time per day in caring giving and K-ALSFRS-R.

• Journal of Korean Academy of Nursing
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• v.27 no.4
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• pp.787-795
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• 1997

This descriptive study was conducted to ascertain whether the needs of patients with cancer, their caregivers and their nurses changed according to the illness phases and if the perceived needs of the three groups were different for three categories of nursing needs. At two hospitals in Seoul and Choongnam, three groups of subjects, -patients with cancer(79), caregivers(92), and nurses(72) - responded to a questionnaire consisting of items on educational need(11 items), physical need(8 items), emotional need(9 items) using a 4-point Likert scale. The patients and caregivers were selected according to the phase of the cancer (initial, intermediate or recurred, terminal phases). Finding revealed that the level of perception and degree of satisfaction of the needs were low, just around two points in patients and caregivers. Of the three categories of needs, physical needs were received the highest score and the degree of satisfaction of physical needs was also the highest. There was no significant difference between the level of perception and satisfaction of needs in patients and caregivers according to the phases of the illness and the degree of per reception and the satisfaction of the patients were not significantly different and caregivers showed the same result. There was a significant difference in the level of importance of the needs of nurses according to the phases of the cancer. They perceived emotional needs were the most important in first phase and second phase, physical needs in third phase and the educational needs were more important in the first phase than in any other phase. The degree of importance of needs was significantly lower than the degree to which needs were addressed, according to the nurses response. In a comparison of patient and caregiver's perceived degrees of need, and need satisfaction, and nurse's perceived degree of need provision, patient and caregiver scores were lower than the nurses.