Depression and Caregiving Burden in Families of Patients with Amyotrophic Lateral Sclerosis
![]() |
Oh, Juyeon
(College of Nursing, Hanyang University.Hanyang Cell Therapy Center, Hanyang University Seoul Hospital)
An, Ji Won (Department of Nursing, Far East University) Oh, Ki-Wook (Department of Neurology, College of Medicine, Hanyang University.Hanyang Cell Therapy Center, Hanyang University Seoul Hospital) Oh, Seong-Il (Department of Neurology, Busan Paik Hospital, Inje University College of Medicine) Kim, Jung A (College of Nursing, Hanyang University) Kim, Seung Hyun (Department of Neurology, College of Medicine, Hanyang University.Hanyang Cell Therapy Center, Hanyang University Seoul Hospital) Lee, Jeong Seop (College of Nursing, Hanyang University) |
1 | Bede P, Oliver D, Stodart J, van den Berg L, Simmons Z, O Brannagain D, et al. Palliative care in amyotrophic lateral sclerosis: A review of current international guidelines and initiatives. Journal of Neurology, Neurosurgery, and Psychiatry. 2011;82(4):413-418. http://dx.doi.org/10.1136/jnnp.2010.232637 DOI ScienceOn |
2 | Lillo P, Mioshi E, Hodges JR. Caregiver burden in amyotrophic lateral sclerosis is more dependent on patients' behavioral changes than physical disability: A comparative study. BMC Neurology. 2012;12:156. http://dx.doi.org/10.1186/1471-2377-12-156 DOI |
3 | Lee HS, Kim DK, Ko HJ, Ku HM, Kwon EJ, Kim JH. Measurement of stress in the caregivers of dementia patients: Reliability and validity of the revised-memory and behavior problem checklist and the burden interview. The Korean Journal of Clinical Psychology. 2004;23(4):1029-1050. |
4 | National Health Insurance. Long term care insurance [Internet]. Seoul: Author; 2013 [cited 2014 September 1]. Available from: http://www.longtermcare.or.kr/portal/longtermcare/sub02_03.jsp. |
5 | Neudert C, Oliver D, Wasner M, Borasio GD. The course of the terminal phase in patients with amyotrophic lateral sclerosis. Journal of Neurology. 2001;248(7):612-616. DOI |
6 | Gauthier A, Vignola A, Calvo A, Cavallo E, Moglia C, Sellitti L, et al. A longitudinal study on quality of life and depression in ALS patientcaregiver couples. Neurology. 2007;68(12):923-926. http://dx.doi.org/10.1212/01.wnl.0000257093.53430.a8 DOI ScienceOn |
7 | Bae JS, Hong YH, Baek W, Sohn EH, Cho JY, Kim BJ, et al. Current status of the diagnosis and management of amyotrophic lateral sclerosis in Korea: A multi-center cross-sectional study. Journal of Clinical Neurology. 2012;8(4):293-300. http://dx.doi.org/10.3988/jcn.2012.8.4.293 DOI ScienceOn |
8 | Andersen PM, Abrahams S, Borasio GD, de Carvalho M, Chio A, Van Damme P, et al. EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS)-revised report of an EFNS task force. European Journal of Neurology. 2012;19(3):360-375. http://dx.doi.org/10.1111/j.1468-1331.2011.03501.x DOI ScienceOn |
9 | Sohn EH, Kim BJ, Kim JK, Bae JS, Baek W, Suh BC, et al. Establishment and perspective of the Korean ALS registry. Korean Journal of Clinical Neurophysiology. 2011;13(2):71-79. |
10 | Logroscino G, Traynor BJ, Hardiman O, ChioA, Couratier P, Mitchell JD, et al. Descriptive epidemiology of amyotrophic lateral sclerosis: New evidence and unsolved issues. Journal of Neurology, Neurosurgery, and Psychiatry. 2008;79(1):6-11. http://dx.doi.org/10.1136/jnnp.2006.104828 DOI ScienceOn |
11 | ChioA, Gauthier A, Vignola A, Calvo A, Ghiglione P, Cavallo E, et al. Caregiver time use in ALS. Neurology. 2006;67(5):902-904. http://dx.doi.org/10.1212/01.wnl.0000233840.41688.df DOI ScienceOn |
12 | Chappell NL, Dlitt BH, Hollander MJ, Miller JA, McWilliam C. Comparative costs of home care and residential care. The Gerontologist. 2004;44(3):389-400. DOI |
13 | Park KH, Kim HY, Nam YH, Kim J, Joo IS, Sung JJ, et al. Preliminary study on clinical characteristics and caregivers' burden of Korean patients with amyotrophic lateral sclerosis; Survey based on database of Korea ALS association. Journal of the Korean Neurological Association. 2006;24(3):252-259. |
14 | Aoun SM, Bentley B, Funk L, Toye C, Grande G, Stajduhar KJ. A 10-year literature review of family caregiving for motor neurone disease: Moving from caregiver burden studies to palliative care interventions. Palliative Medicine. 2013;27(5):437-446. http://dx.doi.org/10.1177/0269216312455729 DOI ScienceOn |
15 | Miyashita M, Narita Y, Sakamoto A, Kawada N, Akiyama M, Kayama M, et al. Care burden and depression in caregivers caring for patients with intractable neurological diseases at home in Japan. Journal of the Neurological Sciences. 2009;276(1-2):148-152. http://dx.doi.org/10.1016/j.jns.2008.09.022 DOI ScienceOn |
16 | Qutub K, Lacomis D, Albert SM, Feingold E. Life factors affecting depression and burden in amyotrophic lateral sclerosis caregivers. Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration. 2014;15(3-4):292-297. http://dx.doi.org/10.3109/21678421.2014.886699 DOI ScienceOn |
17 | Kim HY, Park KH, Koh SH, Lee SC, Nam YH, Kim J, et al. Korean version of amyotrophic lateral sclerosis functional rating scale-revised: A pilot study on the reliability and validity. Journal of the Korean Neurological Association. 2007;25(2):149-154. |
18 | Yun MH, Choi-Kwon S. Quality of life and the factors related to family caregivers caring for those with amyotrophic lateral sclerosis. Perspectives in Nursing Science. 2011;8(1):62-72. |
19 | Kim MS, Shin HI, Min Y, Kim JY, Kim JS. Correlation between severe ALS patient-caregiver couples' characteristics and caregivers' health related quality of life. Journal of Korean Academy of Nursing. 2011;41(3):354-363. http://dx.doi.org/10.4040/jkan.2011.41.3.354 DOI ScienceOn |
20 | Brooks BR, Miller RG, Swash M, Munsat TL. El Escorial revisited: Revised criteria for the diagnosis of amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders. 2000;1(5):293-299. DOI ScienceOn |
21 | Rhee MK, Lee YH, Park SH, Sohn CH, Chung YC, Hong SK, et al. A standardization study of Beck depression inventory I: Korean version (K-BDI): Reliability and factor analysis. Korean Journal of Psychopathology. 1995;4(1):77-95. |
22 | Pagnini F, Rossi G, Lunetta C, Banfi P, Castelnuovo G, Corbo M, et al. Burden, depression, and anxiety in caregivers of people with amyotrophic lateral sclerosis. Psychology, Health & Medicine. 2010;15 (6):685-693. http://dx.doi.org/10.1080/13548506.2010.507773 DOI ScienceOn |
23 | Pagnini F, Lunetta C, Rossi G, Banfi P, Gorni K, Cellotto N, et al. Existential well-being and spirituality of individuals with amyotrophic lateral sclerosis is related to psychological well-being of their caregivers. Amyotrophic Lateral Sclerosis. 2011;12(2):105-108. http://dx.doi.org/10.3109/17482968.2010.502941 DOI ScienceOn |
24 | Rhee YS, Yun YH, Park S, Shin DO, Lee KM, Yoo HJ, et al. Depression in family caregivers of cancer patients: The feeling of burden as a predictor of depression. Journal of Clinical Oncology. 2008;26(36):5890-5895. http://dx.doi.org/10.1200/jco.2007.15.3957 DOI ScienceOn |
25 | Rabkin JG, Wagner GJ, Del Bene M. Resilience and distress among amyotrophic lateral sclerosis patients and caregivers. Psychosomatic Medicine. 2000;62(2):271-279. DOI |
26 | Rabkin JG, Albert SM, Rowland LP, Mitsumoto H. How common is depression among ALS caregivers? A longitudinal study. Amyotrophic Lateral Sclerosis. 2009;10(5-6):448-455. http://dx.doi.org/10.1080/17482960802459889 DOI |
27 | ChioA, Gauthier A, Calvo A, Ghiglione P, Mutani R. Caregiver burden and patients' perception of being a burden in ALS. Neurology. 2005;64(10):1780-1782. http://dx.doi.org/10.1212/01.wnl.0000162034.06268.37 DOI ScienceOn |
28 | Choi-Kwon S, Kim HS, Kwon SU, Kim JS. Factors affecting the burden on caregivers of stroke survivors in South Korea. Archives of Physical Medicine and Rehabilitation. 2005;86(5):1043-1048. http://dx.doi.org/10.1016/j.apmr.2004.09.013 DOI ScienceOn |
29 | Kim SR, Chung SJ, Im JH, Lee MC. The caregivers' burden in Parkinson's disease. Journal of the Korean Neurological Association. 2005;23(3):335-340. |
30 | Oh J, An JW, Oh S-i, Oh KW, Kim JA, Lee JS, et al. Socioeconomic costs of amyotrophic lateral sclerosis according to staging system. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration. 2015 February 3. [Epub ahead of print]. http://dx.doi.org/10.3109/21678421.2014.999791 DOI ScienceOn |
![]() |