• Title/Summary/Keyword: mothers with disabled children

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A Study on Experience of Day Hospital and Day Care Service Use of The Mothers with Severely Disabled Children (중증장애아동 어머니의 낮병원 및 보육서비스 이용 경험에 관한 연구)

  • Jeon, Ji Hye;Won, Young Mi
    • Korean Journal of Child Education & Care
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    • v.19 no.1
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    • pp.159-174
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    • 2019
  • Objective: The study wanted to find out what changes the mother, who is the main parent of the severely disabled children, experienced in their lives through the use of day hospitals and child care services, and what difficulties they had, and discussed policy practical improvements that could satisfy both the medical and developmental needs of the severely disabled. Methods: The participants of the study were 9 mothers of a child with severe disabilities who had experience using hospitals and kindergarten. They were recruited by snowball sampling method. Focus group interview and individual interview were conducted. Results: As a result of the analysis, the mother of severely handicapped child gradually began to seek the balance of life as her child grew and became aware of the institution other than the day hospital. - (e.g) Although I was distracted and worried for the first time, I was gradually adjusting to the time away from my child thinking positively. Children with severe disabilities were also positively influenced by various experiences. They become to show som positive behavior or feeling such as brightening facial expressions or smile as they were using daycare centers or kindergartens in addition to daytime hospitals. Conclusion/Implications: Through the results of this study, comprehensive policy proposals on child care, welfare, and medical care were discussed.

A Study on the Effect of Caregiving Burden of a Developmentally Disabled Child on Marital Conflict -Moderating Effects of Social Support and Social Activities- (발달장애아동 어머니의 양육부담이 부부갈등에 미치는 영향 -사회적 지지체계와 사회활동의 조절효과를 중심으로-)

  • Park, Sun-Won
    • The Journal of the Korea Contents Association
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    • v.17 no.1
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    • pp.594-610
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    • 2017
  • The purpose of this study was to investigate the effect of caregiving burden of a developmentally disabled child on marital conflict and to examine the moderating effects of social support and social activities. For the purpose, a total of 124 mothers of developmentally disabled children who were enrolled at specialized school in Incheon were surveyed from May 15, 2011 to May 31, 2011 by using self-reported questionnaires. Our analysis on the data suggested as follows: first of all, the burden from caregiving a developmentally disabled child was a significant predictor of marital conflict. In addition, informal social support and participation in social activities moderated the relationship between the caregiving burden and marital conflict. Based on the findings, we provide measures to resolve the family problems of those with a disabled child.

Path Model Analysis of the Maternal Childhood Attachment, Emotions, Parenting Behaviors and Children's Behavioral Problems (어머니의 아동기 애착, 정서, 양육행동과 아동의 문제행동의 경로모형 분석)

  • Kwahk, So-Hyeon;Kim, Soon-Ok
    • Journal of Families and Better Life
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    • v.24 no.6 s.84
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    • pp.95-116
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    • 2006
  • The purpose of this study was to validate a hypothetical path model of maternal childhood attachment, emotions, parenting behaviors, and child behavioral problems. The research was conducted with 240 sets or mothers and their children 70 mother-child teams from seven counseling organizations including the Children's Counseling Clinic, Community Social Welfare Service Center, and Welfare Service Center for the Disabled in Seoul, Incheon, and Pyeongtaek, and 170 elementary school children from Seoul and their mothers. Consequently, a total of 200 mother-child teams were selected for this study. The data in this study were analyzed with SPSS 12.0 program and LISREL 8.3 program. The result of this study is as follows: (1) Examining the path of paternal attachment and the internalizing and externalizing behavioral problems, it was noted that paternal attachment had the indirect effect of anxiety and over-protection on the path to internalizing problems and the indirect effect of anxiety also noted is that there is a full-mediation of anxiety and over-protection between paternal attachment and the internalizing problems. (2) Examining the path of maternal attachment and the internalizing problems, it was noted that maternal attachment has direct effect on the internalizing problems. Maternal attachment has the indirect effect of self-esteem depression, anxiety and over-protection on the Path, and the indirect effect of self-esteem, anxiety and over-protection. (3) Examining the path of maternal attachment and the externalizing problems, it was noted that maternal attachment has direct effect on the externalizing problems and on the path to the externalizing problems, and maternal attachment has the indirect effect of depression, the indirect effect of self-esteem and authoritarian control, and the indirect effect of self-esteem and depression.

Information Poverty Viewed Through the Families of Children With Developmental Disabilities (발달장애아 가족의 정보빈곤 양상에 관한 연구)

  • Seo, Ok-Youn;Chang, Durk-Hyun
    • Journal of the Korean BIBLIA Society for library and Information Science
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    • v.19 no.2
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    • pp.107-128
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    • 2008
  • The purpose of this study is to portray the phenomena of information poverty of the families of children with developmental disabilities. The focus was especially put on investigating their information needs of everyday lives and information-seeking behaviors. The sample group includes six children with developmental disabilities and their families, mainly mothers. The investigation was conducted by the participant observation and in-depth interviews. The study found out that they sought the formal information sources such as medical specialists and special agencies first with which they were not satisfied. As a result, they rather relied on informal information sources. And the information from 'the group of families of children with developmental disabilities' was thought to be the most reliable information for them. In terms of information related behaviors, the strongest information needs were regarding the children's special education, especially to the school education, and they made effort to seek reliable information. They, however, tended to passively treat their personal concerns that are not related to their disabled children. This study found out that their information poverty is in terms of the information environment, information sources and their attitude to information, and that it comes from the external(social) factors as well as internal(individual) ones.

Child Care Histories of Low-Income Families in the U.S. (미국 저소득층 가정의 보육형태의 생애사적 연구)

  • Auh, Seong-Yeon
    • Journal of the Korean Home Economics Association
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    • v.48 no.6
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    • pp.103-118
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    • 2010
  • This study used qualitative data to examine how low-income families confront the child care needs of their children in the midst of changes in public policy. The data were drawn from in-home interviews conducted every 6 months with 22 mothers who were welfare-dependent at the start of the research. This research depicted several life stories of the circumstances of poor children that have not had much previous attention in the literature: the general flows and the special conditions of child care among the low-income families with or without a disabled child were reported. The results in this study suggested that enabling families, through both social support and public funding, find affordable and quality child care would be one pathway to foster self-sufficiency in these families.

Lived experience of mothers who have child with cerebral palsy (뇌성마비아 어머니의 경험)

  • Lee Hwa Za;Kim Yee Soon;Lee Gee Won;Gwan Soo Za;Kang In Soon;An Hea Gyung
    • Child Health Nursing Research
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    • v.2 no.1
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    • pp.93-111
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    • 1996
  • The purpose of the study is to identify the lived experience of mothers who have children with cerebral palsy in order to understand their agony. Moreover, the result of study was to find some nursing intervention for disabled children and their mothers. For this purpose, ten mothers who are willing to cooperate with this research were selected at random from those who have children with the cerebral palsy, currently using the municipal facilities for the handicapped with cerebral malfunction. Data collection was done from October 4, 1994 th December 31, 1994. The data were collected by asking the mothers mentioned above with some unstructured open-ended questions, recorded on the tapes with permission by the interviewee in order to prevent missing of the interviewed contents. These collected data have been substantiated and properly analyzed on the basis of phenomenological approach initiated by Colaizzi's method. The results and validity are proved to be credible by means of the individual checking of the interviewed mothers. The results of this study are as follows : 1. When the mother is first informed of the diagnosis of cerebral palsy on her child, she usually misses the crucial timing needed for proper treatment of the child's disorder because she is notified through the doctor's indifference and his apparently inactive, matter-of-fact attitude. At first she suspects the doctor's diagnosis and tries to attribute it to the unknown cause from a certain genetic problem and then she quickly wants to deny the whole situation that her child is really suffering from the cerebral palsy. The reality is too much for her to accept as it is and she would not believe her child is abnormal. Therefore, she even attempts depend on the power of God for its solution. 2. The mother, who goes thorough this kind of uncommon experiences, is totally devoted to the treatment and care of the child and completely ignores her own life and happiness. At the same time, she feels sorry for her other normal children she believes having not enough care and concern. Also, she feels sorry for the sick child when the child's brothers or sisters show special concern for the patient out of sympathy. It is sorry and not satisfied for her that the child is growing with abnormality and neighbor other around have inappropriate attitudes. Likewise, she is discontent with her husband's lack of concern about the child's treatment. She believes that the health care system in this society isn't fulfilling its due purpose. In the state of her utmost distress and anxiety, she always feels the need of competent consultants, and is angry about that her child is treated as an abnormal being, she is trying to hide the child from other people and to make him or her disappear, if possible. Although she doesn't have harmonious relation with her husband, she id happy when he shows his affection for the child and she feels relieved and thankful when the relatives don't mention about the child's condition Since the child's overall status of health is continuously in unstable conditions, requiring her all-time readiness for an emergency, she feels guilty of her child's illness toward the fEmily members as if it was her own fault to have borne such an abnormal child and she feels responsible for the child morally and financially if necessary Because her life is centered on taking care of the child, she cannot afford to enjoy her own life and happiness. She is a lonely mother, fatigued, with no proper relationship with other people around her. With this sense of guilt and responsibility as a mother of an unusual disease, she has no choice but to grieve her destiny from which she is not allowed to escape. 3. Nevertheless, the mother with the child suffering from the cerebral palsy does not easily give up the hope of getting her child cured and she believes that in the long run, though slower than hoped, her abnormal son or daughter will be eventually cured to become a normal sibling someday. This kind of hope is sustained by the mother's strong faith coming from observing the progress of other similar children getting better. Sometimes she is encouraged to have this faith by other mothers who share the same painful experiences, believing that her child will improve even more rapidly than others with the same palsy. Full of hope, she painstakingly waits for the child's healing. Moreover, she plans to have another child. she thinks that the patient child's brothers and sisters only can truly understand and look after the patients. However, when she notices that the progress of other children under the treatment does not look so hopeful, she is distressed by the thoughts that her child may never get well. Too, she is worried that the patient's brother or sister will be born as the same invalid with the cerebral disease. She is discouraged to have another baby as much as she is encouraged to. She is also troubled by the thought that in case she has another baby, she will have to be forced. to neglect the patient child, especially when she does have an extra hand or some reliable person to help her with taking care of the patient.

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A Study of Developing Comprehensive Policies for Low-Income Single-parent Households - Using a Concept of Social Exclusion (사회적 배제 집단으로서의 저소득 모자가족과 통합적 복지대책 수립을 위한 연구)

  • Song, Da-Young
    • Korean Journal of Social Welfare
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    • v.54
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    • pp.295-319
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    • 2003
  • The study starts from the critical thought on why most of female-headed single-parent families are under poverty regardless of their hard working. The study is to explore the lives of low-income single-parent families as working poor and to develop comprehensive policies for them out of poverty and other social vulnerability, using the concept of social exclusion which has been broadly introduced in the field of social science. Specifically, the study aims to analyse the process of social exclusion of low-income single-parent households, by comparing the differential lives in the economic, social, political aspects among male-headed dual-parent household, female-headed single-parent household, and poor female-headed lone-parent household who is under the public poverty line. The study was based on the secondary data analysis. A total of 3182 samples(the first 2508, the second 235, and the third 439) were included. Using SAS 6.12, frequency, chi-square, means, and ANOVA were utilized for the statistical analysis. Results show that single mothers, on the whole, are vulnerable population in terms of employment, housing stability and income. Also, low-income households of single mothers are more negatively affected by the IMF economic crisis and carry more pessimism on their future. In comparison with male-headed households, single mothers have fewer support from social insurance as well as family resources and higher burdens of additional caring need for the old, the disabled, and the chronically ill. These findings identify the reality in which female-headed households with dependent children are exposed to the overall social vulnerability and thus are easily trapped into the social disadvantaged. finally, the study suggests the development of comprehensive policies and counter-measurements for low-income female-headed families to be the primary member in our society.

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A Study on the Tendency of Standardization Related to Universal Design (유니버설 디자인 관련 표준화 동향에 관한 연구)

  • Lee, Ho-Soong
    • Archives of design research
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    • v.18 no.1 s.59
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    • pp.175-184
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    • 2005
  • With the rapid progress of the aging society in Korea, the silver generation is emerging as another class of users in the new population structure. This is a social issue to be dealt with, and the effect of such a change is being observed dearly in the design area. In addition, there are increasing demands for consideration of minor groups of users including the elderly, the disabled, the left-handed, children and pregnant women and nursing mothers, who have been treated as the weak. Such a human-centered idea may be the manifestation of the recovery of humanity and the self-realization of human beings through experiences and reflections of the industrial society of the past. The present study examined the tendency of design standardization centering on universal design, which has emerged in response to user-centered social needs, and suggested general considerations for the necessity of introducing such standards. These days the meanings of standardization are not limited to quality, performance, safety and economic aspect. Standardization is required to consider the diversity and the welfare of human beings. In addition, one of the important functions of standardization is to provide designers with important clues and guidelines for designing. In reality, however, standardization has been rejected by the circle of design for the reason that it deters free creation, so research on the introduction of standardization has been at standstill. As ISO/IEC Guide71 was published in November 2001, based on which, the Korea Standards Association established KS A ISO/IEC Guide71 without changing its contents. In companies' manufacturing activities, the progress of standardization in connection to universal design is growing more important. However, usefulness and interchangeability for the absolute majority resulting from standardization are incomparable. Lastly, the realization of universal design requires human-centered design mind, based on users' experiences and needs, the characteristics of the human bodies and inconvenient elements rather than standards for the sake of standardization.

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A Survey of Role Perception and Function Performance Related to Public Health Service among the Medical Staff in a National Hospital (일개 공공병원 종사자의 공공보건의료에 대한 인식과 기능수행에 대한 조사연구)

  • Cho, Young-Hye;Lee, Sang-Yeoup;Jeong, Dong-Wook;Choi, Eun-Jung;Kim, Yun-Jin;Lee, Jeong-Gyu;Go, Yu-Young;Lee, Yu-Hyone;Bae, Mi-Jin;Kim, Chang-Hoon
    • Journal of agricultural medicine and community health
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    • v.37 no.2
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    • pp.67-75
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    • 2012
  • Objectives: While there have recently been efforts to improve public health service at a governmental level, there is actually insufficient research on awareness of the roles related to public health service among hospital employees. This study examined role perception and function performance related to public health service among the medical staff in a national hospital. Methods: 15% were randomly sampled from each type of occupation among the medical staff in a national university hospital, a survey was conducted in 323 persons, and there were a total of 265 participants (80.2%): 103 doctors(38.9%), 98 nurses (37.0%), and 64 others (24.1%). Results: The hospital employees had insufficient awareness of their roles as public health service providers in terms of six required items for public health service: 1) services for supporting establishment, implementation, and assessment of public health service policies, 2) participation in the health service activities and support services by central or local governments, 3) technological support and educational services for private health service institutions, 4) health service for unprivileged brackets, 5) health service that requires association with other areas dealing with geriatric, disabled, and mentally-disordered people, and 6) health service for children and mothers. Conclusions: In general, since the hospital employees had insufficient awareness of their roles and responsibilities as public health service providers, it is necessary to secure manpower exclusively in charge of public health service and provide education about strategic public health service.