• Title/Summary/Keyword: mothers with disabled children

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Survival of Mothers with Disabled Children in Social Welfare Institutions : Growing from Passive Actors to Active Actors (뇌병변 장애자녀 어머니들의 사회복지제도 속에서 생존하기 : 수동적 행위자에서 능동적 행위자로 거듭나기)

  • Cho, Yu-Jin;Kim, Suyoung
    • Korean Journal of Social Welfare Studies
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    • v.47 no.1
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    • pp.93-121
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    • 2016
  • The aim of this study is to reveal development processes of mothers with disabled children as active human agents utilizing social welfare institutions. Many social welfare studies have generally described welfare service users as passive subjects alienated from welfare information and subordinate to dominant welfare system. However, this investigation indicates that they do not merely remain as passive policy targets. They also perform as active actors who seek for useful information, strategically acquire profits in the given system despite institutional constraints, and create new welfare institutions. Through in-depth interviews with 11 mothers of disabled children with brain lesions, this study has derived a grounded theory on the mothers' maturation processes in interaction with social welfare institutions, which consist 6 stages(entering, awakening, exploring, struggling, resigning and utilizing period). This substantive analysis on the survival processes of mothers with disabled children in the social welfare system provides empirical knowledge and evidence about relationship between the structure and agents. It also suggests a practical policy proposal for disabled people and their families based on these stages.

The Process of Overcoming Prejudice and Discrimination Experiences of Mothers with Disabilities (장애아동 어머니가 겪는 편견 및 차별경험 극복과정)

  • Oh, Yeon Soo
    • The Journal of the Korea Contents Association
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    • v.19 no.2
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    • pp.477-490
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    • 2019
  • This study analyzes the process of overcoming prejudice and discrimination experiences of mothers with disabilities and looks for improvement points. It is interviewed 9 mothers of children with disabilities who were experiencing prejudice and discrimination while raising children with disabilities. The data collection was conducted from October to November, 2018 and one by on one in depth interview by using semi - structured questionnaires. Data analysis was done through consensual qualitative research (CQR). The result of CQR while it is a experiencing the process of prejudice and discrimination as well as coping the raising disabled children. 'Prejudice and discrimination experience of mothers with disabilities' and 'overcoming of discrimination experiences of mothers with disabilities' were derived. And the seven sub-regions, 28 categories, were finally constructed. The results of the study are as follows. Firstly, Prejudice and discrimination experiences of mothers with disabilities in raising children with disabilities are view of looking at children with disabilities comparing to those of normal children and children with disabilities. It seems that they want to treat the disabled child as the general child with an attitude of understanding and accepting the disabled child rather than looking at the disabled child with wrong perception, prejudice, stereotypes and rejection. Secondly, The process of overcoming the discrimination experiences of the mother of the disabled child is strengthening the cohesion and cohesion within the family in the process of accepting and coping with the disability family of the child with disabilities even if they raise the child with disability and have difficulties such as recognition bias and discrimination of the general public. Based on the results of this study, we suggested practical and policy implications for the mother's psychological stability of the child with disability and the disabled child's healthy life.

Study of Lyric Analysis Using a Mind-map on Parenting Stress in Mothers of Children with Disability (마인드맵을 활용한 노래가사분석(Lyric Analysis) 활동을 통한 장애아동 어머니의 양육스트레스 감소에 관한 연구)

  • Kim, Jin
    • Journal of Music and Human Behavior
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    • v.7 no.2
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    • pp.23-45
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    • 2010
  • The purpose of this study is to determine the effects of lyric analysis using the mind-map technique on parenting stress of mothers with disabled children. Six mothers performed psychological tests to confirm the level of parenting stress. Participants attended a total of fourteen lyric-analysis using mind-map programs and the Questionnaire on Resource and Stress (QRS) was administered before the first session and after the last session. Results showed a significant difference (p<.05) in perceived parenting stress. Also positive changes were observed from video analysis of each session. Overall, this study suggests that the lyric analysis based on the application of mind-map may have the positive influence on the parenting stress of mothers raising disabled children.

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The Perceived Stress and Life-Satisfaction among Mothers of Children with Disability - with focus on the Cerebral Palsy - (장애아동 어머니가 인지하는 스트레스와 생활만족도의 영향요인분석 -뇌성마비 중심으로-)

  • Lee, Hyo Jeong
    • Journal of Korean Physical Therapy Science
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    • v.20 no.1
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    • pp.77-88
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    • 2013
  • Purpose : The purpose of this study was to examine the levels and influencing factors of the perceived stress and life-satisfaction among mothers of children with disability. Methods : 55 mothers were selected for this study and the self-reporting method to the structured questionnaire were used to collect the data. The data were analyzed with the frequency, t-test, one-way ANOVA, Duncan test using SPSS 14.0 for window programs. Results : Firstly, the level of total perceived stress of the mothers of children with cerebral palsy was 44.28/75, and the average of the items of the perceived stress was 2.95/5. The highest level of subcategory of the perceived stress, 10.82/15, was in parent role stress, and the lowest level of subcategory of the perceived stress, 3.88/10, was in children developmental stress. There were statistically significant differences in the mother's level of stress according to their ages, employment, occupation, and daily activity time and sleeping time. Secondly, the level of life-satisfaction was 3.17/7, and statistically significant difference was found by the treatment cost. Conclusions : We suggest that these variables need to be considered when the stress intervention programs for the mothers of children with cerebral palsy are developed.

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Comparison of low back pain frequency mother owing to severity of Developmental-children with disability (발달장애아동의 중증도에 따른 어머니의 요통 빈도 비교)

  • Lim, Hyoung-Won
    • Journal of Korean Physical Therapy Science
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    • v.13 no.2
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    • pp.27-36
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    • 2006
  • The purpose of this study would like to analyze statically significant difference for low back-pain frequency of mother after development-disability children. Seven nursery children with disability conducted survey from 122 mothers cared children with disability. Survey data was obtained from April 14. 2006 to May 23. 2006. The results were as follows: According to walking-existence, assistance walking, and disability-degree, low back pain incidence frequency of mothers were statically significant difference, (p<0.05). Low back pain incidence frequency of walker-ability population was 51.4%, but low back pain incidence frequency of walker-disability population was 80.0%. then low back pain incidence frequency of mothers to walking-existence was differed amount. Disabled not statically significant difference to encephalopathy and disability-type1 and disability -type2 (p>0.05). children with disability-degree and assistance walking benchmarked low back pain disability-measure. Low back pain degree not relevancy statically significant. Physical load was statically significant difference between Oswestry's low back pain score and reach effect to child-cared(p<0.05). As development-children with disability of disable degree, Mother appeared to highly low back pain frequency rate and appeared to large reach effect child-cared owing to physical load of low back pain. So hereafter, location and person request to approach with more clinical and objectively. As approach result, it will help to stress solution of children with disability owing to develop to low back pain class and family capable strengthening program and so on.

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Comparison of Play Perception and Play Participation of Parents of Disabled Children and Non-disabled Children in Preschool Age (학령전기 장애 아동 부모와 비장애 아동 부모의 놀이 인식과 놀이 참여 비교 연구)

  • Park, DaSol;Lee, EunYoung;Lee, SunHee;Park, Hae Yean
    • Therapeutic Science for Rehabilitation
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    • v.9 no.1
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    • pp.69-78
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    • 2020
  • Objective : The purpose of this study was to conduct a comprehensive survey of children's play in parents of disabled and non-disabled children prior to commencing school. This study aimed to further understanding play recognition and to present a specific direction of play necessary to each parent. Methods : A questionnaire based on prior studies was sent to 700 people who had previously agreed to the take part. A total of 596 questionnaires were analyzed. Uncollected and insincere surveys, of which 106 were questionnaires for parents of disabled children, were exclused from analysis. The SPSS Window 23 program was used for data analysis and frequency analysis and the independent sample T test were performed. Results : Disabled children's parents perceived playing with their children as more important than that of non-disabled children's parents(p<0.01). There was no statistical difference between disabled children and non-disabled children's parents, but there were some differences(p=0,053). Both disabled and non-disabled children had more time to participate with their mothers than with their fathers. Mothers with disabilities had more time to play however, fathers with no disabilities had more time. Both disabled and non-disabled children's parents had the most "ordinary" frequency of buying toys and there was very littele difference between the 2 groups. Both disabled and non-disabled children's parents primarily used the internet to acquire play information, and consideration when buying fun was followed by interest inducement, development level and safety. Conclusion : Through this study, it was possible to compare the status of play recognition and participation by parents of children with or without disabilities. Based on this study, parents will be able to find out what they really need to play and will be provided as a basis for future play studies for children.

Coping Behavior According to the Personality Type of Mothers of Children with Disabilities (장애아동 어머니의 성격유형에 따른 대처행동에 관한 연구)

  • Cho, Mi-Lim
    • Journal of Korea Entertainment Industry Association
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    • v.15 no.8
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    • pp.403-409
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    • 2021
  • The aim of this study is to investigate the coping behavior according to the personality type of mothers of children with disabilities. The study included 102 mothers of children with disabilities and the study was conducted from june to september in 2020 based on the questionnaire about the personality type and coping behavior. Personality types were evaluated using Enneagram, and coping behavior was evaluated using the Korean Coping Behavior Scale for Parents of Children and Adolescents with Disabilities As a result of the study, the belly type was the most common personality type of mothers with disabilities. As for coping behavior, active problem-solving for children with disabilities showed the highest score. As a result of analyzing the coping behavior according to the personality type of mothers of children with disabilities, there were significant differences in the coping behavior, strengthening marital cooperation, and pursuing social-emotional support. As a result of post-verification, there were significant differences between heart type and belly type in coping behavior, strengthening marital cooperation, and pursuing social-emotional support, and heart type scored higher than belly type. When conducting interventions for families of disabled children, it will be possible to provide more effective services by predicting coping behaviors according to the personality type of mothers of disabled children and presenting individualized programs.

Development of a Tool to Measure Maternal Behavior for Health Promotion for Preschool Children with Disabilities (학령전기 장애아동의 건강증진을 위한 어머니의 행위 측정도구 개발)

  • Lee, Ae-Ran;Han, Kyung-Ja
    • Child Health Nursing Research
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    • v.13 no.4
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    • pp.444-453
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    • 2007
  • Purpose: The purpose of this study was to develope a tool to assess mothers' behavior related to healt promotion if their preschool children had disabillties. Method: The research design was a methodological study. This tool was developed in 4 stages: first, a content matrix as a conceptual framework was developed using Gordon's 11 functional health promotion patterns and 5 categories (Lee, Jung & An, 1996); second,40 preliminary items were selected through references and interviews with 9 mothers of children with disabilities; third, 2 items were discarded after content validity was done by 3 experts; fourth, reliability and validity were tested with a sample of 243 mothers of children with disabilities who were of preschool age. Results: The final tool consisted of 19 items and Cronbach's alpha coefficient for internal consistency was .82. Five factors were extracted by factor analysis and they explained 55.58% of the total variance. Conclusions: This tool was identified to have a high degree of reliability and validity. So it can be utilized to assess mothers' behavior in providing health promotion for their children who have disabilities.

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Involvement of Mothers of Developmentally Delayed Children in Home Treatment (발달장애 아동 어머니의 가정치료 참여도)

  • Doo, Jung Hee;Kim, Suhn-Yeop
    • Physical Therapy Korea
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    • v.2 no.2
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    • pp.24-39
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    • 1995
  • For the purpose of clarifying to what degree the mothers of developmentally delayed children are involved in treating their child at home. 193 mothers were sampled from 220 mothers of developmentally delayed children below 12 years of age who have visited one of four institutions: the Rehabilitation Hospital of Yonsei Medical Center, Inchon Severance Hospital, Disabled Welfare Center in Myongil-dong, and Nambu Disabled Welfare Hall. The study period was from Mar. 25, 1995 through Apr. 15, 1995. A questionnaire survey was conducted listing the characteristics of the developmentally delayed children, their mothers, mother's satisfaction with their therapists, and the actual conditions of the home treatment. 1. The mothers who treat their child at home for more than 31 minutes a day show a high involvement score, while the mothers of those who give treatment for less than 30 minutes a. day show a low involvement score. That is, the longer the treatment, the greater the involvement score. This indicates a statistically significant result(p<0.01). 2. In cases where a child's father is involved in the home treatment, his/her mother discloses a statistically high involvement score(p<0.001). 3. The result of analysis of cases where other family members, relatives or friends (fathers excepted) reveals a statistically significant high involvement score(p<0.05) for the mother. 4. Mothers in general represent a statistically significant high involvement in home treatment. In the meantime, the mothers in a nuclear family show a higher involvement home treatment than mothers in an extended family(p<0.01). 5. Among those respondents who think that home treatment is helpful and that mothers' involvement in home treatment is helpful, the mothers record a statistically significant high involvement score(p<0.05). When seen from the above perspectives, it seems of much significance that fathers and other relatives or family members play an important role in enhancing the involvement of mothers in home treatment. One point to note here is that providing a long home treatment time is crucial. Therefore, it is recommended that family members have access to rehabilitation treatment for training developmentally delayed children or their care giver; and moreover, we needed to carry out family training or at least arrange for meetings between the family members and medical personnel involved in the child's rehabilitation.

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Correlationship between Satisfaction of Disabled Females with Mental, Visual and Hearing Disability in Raising Children : Mediating Effect of Communication between Parent and Child (시각, 청각, 지적 여성장애인의 양육부담과 부모역할만족도와의 관계 : 자녀와의 의사소통 매개효과)

  • Jeon, Sunyoung;Lee, Seonggyu;Jung, Eunjue;Kim, Junghee
    • Korean Journal of Social Welfare
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    • v.66 no.3
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    • pp.297-319
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    • 2014
  • This research seeks to clarify correlationship between satisfaction of visually impaired, hearing impaired and mentally disabled mothers and their burden of raising their children and whether communication between their children mediates their relationship. This research tries to set a standard performing method to alleviate burden of raising children and devise an effective parenting method. The study was done in cooperation with 13 welfare centers for the disabled in the Seoul area, 23 and performed 300 questionnaires were distributed. Hearing impaired person had answered by themselves, and visually impaired were provided with disability aid, by reading the questionnaire to them. 210 responses were collected, and 187 were used for final analysis. Analysis showed that burden of fostering showed a negative correlation between satisfaction as a mother and availability for communication. Moreover, communication with the children were shown to mediate the satisfaction as a parent and burden of raising the children. Thus, the goal is to reduce the burden of fostering for female disabled and increase their satisfaction as a parent as well as enhancing their communicational skills.

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