• 한국생활과학회지
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• 제16권1호
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• pp.17-26
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• 2007

The purpose of this study was to compare parenting stress between mothers who have young children with and without disabilities. The subjects of this study were 100 mothers who take care of disabled children and 123 mothers who take care of non-disabled children. The children's ages were from 3 to 6 years. The results of this study were as follows; First, the mothers who have disabled children have more parenting stress than those who have ordinary children. Second, the mothers who have developmentally disabled children had more parenting stress than mothers who had other disabled children. Children's and mothers' ages had an influence on the parenting stress of the ordinary mothers. The mothers who had children with and without disabilities got less parenting stress as the mothers received more higher parenting efficacy, parent role satisfaction, marital satisfaction and family support.

• 한국간호교육학회지
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• 제14권2호
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• pp.315-323
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• 2008

Purpose: This study was performed to compare mothers' health promotion behaviors between those who have a disabled child and those who have a healthy child. Method: The participants were 243 mothers from 24 Daycare Centers for Children with Disabilities and 310 mothers from 5 child daycare centers. Mothers with preschool children completed self-report questionnaires, asking about health behaviors for preschool children. Data from these surveys was analyzed using the ANOVA, t-test, and $x^2$-test with the SPSS 15.0 Win program. Result: Mothers with disabled children showed less health promotion behaviors than the mothers' of children without disabilities. Two sub-categories, activity-exercise and health perception-health management pattern, showed significant differences between the two groups. In addition, mothers' health behaviors for disabled children were significantly different according to the children's age, mothers' employed status, and number of children in the family. Conclusion: These results suggest that mothers with disabled preschool children are likely to practice less health promotion behaviors with their children compared to others. These findings suggest that health promotion support programs for mothers with disabled children should be developed and offered. For effective intervention, pediatric nurses also need to be involved in the health of disabled children.

• 한국생활과학회지
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• 제20권1호
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• pp.119-132
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• 2011

The purpose of this study was to explore the parenting experiences of mothers of disabled children. The study focused on how mothers of disabled children prepared for their children's transition to elementary school and how they experienced their children's adjustment to school. Twenty mothers of children with developmental or intellectual disabilities participated in the study. Each mother had experienced an inclusive education program at an elementary school for more than a year. Twelve mothers have children with intellectual disabilities and eight have children with developmental disabilities. Individual in-depth interviews were carried out to collect qualitative data. To analyze the data, the research followed the phenomenological analysis method of Giorgi. The results showed that mothers of disabled children were actively involved with inclusive day care centers and therapy programs to prepare for children elementary school. Most wished to send their children to a general elementary school with an inclusive program, although decision making was not easy. When their children entered elementary school, some mothers observed their children's struggle with school and their peer relationships. They sought support from teachers and other mothers. These mothers showed a desire for their children's social independence. This study highlighted the necessity to develop support programs for disabled children and their mothers.

• 대한가정학회지
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• 제44권12호
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• pp.179-188
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• 2006

This study compared parental satisfaction between mothers who have young children with and without disabilities. The study subjects were 100 mothers who take care of disabled children and 123 mothers who take care of non-disabled children. The children's ages were from 3 to 6 years. The results of this study were as follows First, the mothers who take care of disabled children had lower mother's parental satisfaction than those who have ordinary mothers. Second, the children's age and the degree of disability had an affirmative influence on the parental satisfaction of the mothers who have disabled children. There were significant differences in the parental satisfaction of the mothers who have ordinary children according to mothers' age and their educational background. The parental satisfaction in both mother groups increased with increasing parenting efficacy, marital satisfaction and family support, and with decreasing parenting stress. Finally, parenting efficacy, children's age, parenting stress, and family support significantly predicted the parental satisfaction of the mothers who have disabled children while parenting efficacy, parenting stress, and educational background significantly predicted the parental satisfaction of the mothers who have ordinary children.

• 한국보건간호학회지
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• 제21권2호
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• pp.206-216
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• 2007

Purpose: The purpose of this study was to investigate the perceived social support of mothers with disabled children. Method: This study was a cross-sectional, descriptive study using a questionnaire survey which included the standardized measure: personal resource Questionnaire 2000. Results: The participants were 98 mothers, each with one with disabled children. Of the 98 participant's children, 39.8% suffered mental retardation, 34.7% was developmentally disability, 16.3% was brain diseases and 9.2% was multiple disabled. The mean age of the disabled children was 8.2 years and of their mothers was 38 years. The order of the life events for which the need help for the subjects required help were 'when anger and frustration arise happened', 'difficulties in human relationship' and 'emergency situations'. The personal resources were spouse (38.1%), friends (20.9%) and parent (12.9%). The mean score of perceived social support was 5.48 out of a total of 7, indicating a slightly high on social support score. Significant differences were found in the level of perceived social support according to the school grade of disabled child's school grade (F=4.04, p= .02) and the mother having a job presence of mothers (t=2.49, p= .01). Conclusion: These findings indicate a need for nursing intervention programs for mothers with disabled children, including anger management, methods of human relationship, support for leisure time and long term illness and providing information.

• 대한간호학회지
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• 제39권5호
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• pp.673-682
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• 2009

Purpose: This study was done to develop a model which explains factors influencing caring behavior of mothers who have children with disabilities, and to verify the appropriateness of the model and the relationship among variables. Methods: The participants in the research were the mothers who had a 3 to 12 yr-old children with disabilities. The data were collected from 451 mothers through self-reported questionnaires from July 14 to 31, 2008. A total of the 371 data sets were analyzed using SPSS/WIN 11.5 and AMOS 5.0 version. Results: The children's behavior characteristics, social support, objective burden and parenting self-esteem had an impact on the mothers' caring behavior. Especially, parenting self-esteem including parenting satisfaction and self-efficacy was the most influential factor. These variables explained 77% of the mothers' caring behavior for these children. Conclusion: The results suggest that some strategies for promoting mothers' parenting self-esteem focused on parenting satisfaction and self-efficacy should be developed in order to help mothers in caring for their child who is disabled.

• 한국사회복지학
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• 제62권1호
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• pp.83-107
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• 2010

본 연구는 출생 3개월 이전에 정상아인줄 알고 입양한 후, 양육과정에서 장애가 드러난 장애아동을양육하는 입양어머니의 내적 경험을 Van Manen(2000)의 해석학적 현상학 연구방법으로 접근하였다. 서울 광주 경남 전북에서 6명의 어머니를 대상으로 심층 인터뷰하였다. 연구결과, '안개 속을 헤메임, 삭히는 시간, 고통 중의 감사, 세상에 당당히 맞섬, 내 삶의 중심으로 들어 온 아픈 아이, 아직 살아보지 않은 날에의 기대'로 도출된 본질적 주제를 통해 '아픈 아이의 꿈을 이뤄주고 싶은 엄마마음'으로 해석학적 글쓰기를 하였다. 조금은 부족한 아이이므로 더 잘 키워주어 아이의 꿈을 이뤄주고 싶은 어머니의 마음은 결국 한 생명에 대한 사랑이었다. 긴 가슴앓이의 시간 후, 입양어머니에게 아이의 장애는 짐이 아니라 새로운 세상에의 기대로 나타나고 있고, 아동의 홀로서기를 만들어내고 있으며, 세상의 모든 아이는 가정을 가질 수 있음을 나타내고 있다.

• 가족자원경영과 정책
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• 제17권2호
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• pp.75-91
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• 2013

This study is focused on the amount of time spent on child care by mothers with preschool children with developmental disabilities. It is designed to find out how much time mothers spend taking care of their children and to identify related factors. The subjects of this study are 162 mothers of children with developmental disabilities residing in Seoul. The findings are as follows: First, mothers with preschool children with developmental disabilities spent 6 hours and 50 minutes per day caring for their children during weekdays and 6 hours and 10 minutes on weekend days. This is double the amount of time spent by the average mother with preschool children. Second, mothers spent much more time caring for their disabled children than they do for their children without disabilities. Third, determinants of a mother's time for caring their disabled child during weekdays were mother's employment, the number of children, and gender of the disabled child. On weekend days, determinants of mother's care time were the number of children and husband's help for childrearing.

• 가정과삶의질연구
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• 제27권1호
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• pp.73-88
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• 2009

The purpose of this study was to investigate the influence of the factors such as self-esteem, social supports, socio-economic status of parents, degree of disability in child, stress coping, religion, and sports.exercise on the qualities of lives in mothers with disabled children. Data were collect from 45 institutions(schools from kindergarten to senior-high, special education institutes, and social welfare institutions) by self-report questionnaire, and the subjects of the study were 386 mothers in Seoul whose children were attending the schools or institutions. Findings according to socio-demographic variables are as follows: 1. Mothers with disabled children in this study thought their quality of life as average degree. 2. The younger the mothers and children, the higher the quality of life was. 3. The higher the educational level and monthly income, the higher the quality of life was. 4. There was no statistically significant difference between the existence and nonexistence of spouse, and between the existence and nonexistence of religion as well. Findings analyzed by multiple regression are as follows: 1. Among 7 independent variables 'self-esteem'(${\beta}$=.49, p<.001), 'social supports'(${\beta}$=.15, p<.01), and 'socio-economic status'(${\beta}$=.11, p<.05) were found to be statistically significant in quality of life in mothers, while the rests were found not significant. 2. 'Self-esteem' was found to be the most influencing variable, meaning that the psychological factor such as self-esteem is more important than environmental factors in qualities of lives in mothers. 3. The total amount of explanation of the model was Adjusted R square=.301, so that it can be said about 30% can be explained among total variance of the qualities of lives in mothers with disabled children. Conclusions and recommendations based on the results above are: First, it is strongly recommended to conduct programs promoting self-esteem in mothers with disabled children, and to include 'self-esteem' hereafter in the studies related to qualities of lives in mothers with disabled children. Second, comprehensive and practical countermeasures should to be formulated to back up expenses for education and medical care, purchasing relative tools and equipments, plus helping to find jobs.

• 한국생활과학회지
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• 제13권5호
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• pp.625-636
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• 2004

The purpose of this study is to examine the types of the stress and coping behaviors perceived by mothers of children with disabilities, and to investigate factors affecting their life satisfaction. For this study, we surveyed 239 mothers living in the city. The results are as follows: First, we can categorize the stress into parental stress, economic stress, child developmental stress, physical stress, and emotional stress. Second, we can classify the coping behaviors into active efforts, avoidance, and emotional diversion. Lastly, life satisfaction of mothers of children with disabilities tends to depend on such factors as emotional stress, husband's support, parental stress, emotional diversion coping, economic stress, school- children, and their education.