• Journal of Korean Academic Society of Home Health Care Nursing
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• v.10 no.1
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• pp.58-72
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• 2003

The purpose of this study was to describe the perceived burden of the terminally III patients's caregiver and to analyze relationship between the perceived burden and the various demographics, illness characteristics, family relationships, and economic factor of the family & patients. The sample of 132 caregivers who care for the terminally III patients Kyung-Gi province, Seoul, Korea. The period of this study was from August to September, 2002. The perceived burden of the family caregiver was measured by the burden scale(20 items, 4 point scale) developed by Montgomery et al. (1985). The Data was analyzed using SAS-program by t-test and ANOVA. The results were as follows; 1. The mean of the family caregiver's burden score was 3.02. The score showed that caregivers perceive severe the level of burden. The hight items of the family caregiver's burden were' I feel it is painful to watch patient's diseases'(3.77). 'I feel afraid for what the future holds for my patients'(3.66), 'I feel it reduced to amount of privacy time'(3.64). 2. The caregiver's burden was significantly related to patient's gender(F=3.17, p= 0.0020), patient's job(F=2.49, p=0.0476), caregiver's age(F=4.29, p=0.0030), and caregiver's job(F=2.49, p=0.0476). 3. The caregiver's burden according to illness characteristics showed no significant difference. 4. The caregiver's burden was significantly associated with patient's family relationship (F=4.05, p=0.0041), patient's care mean period in a day(F=47.18,

• The Korean Journal of Rehabilitation Nursing
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• v.1 no.1
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• pp.1-14
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• 1998

The purpose of this study was to identify the factors affecting family functioning of stroke patients. A descriptive survey research was conducted in which 65 stroke patients and their primary caregivers were conveniently sampled. Data were collected from July to September, 1998 through interviewing using a structured questionnare. The measuring instruments used were Barthel Index by Mahoney and Barthel(15 items), Quality of Relationship Scale by Archbold and Stewart(15 Items), Role Stress of Caregiver Scale by Yang(14 items), Situational Definition Scale by Lee(9 items), Family Hardiness Index by McCubbin, McCubbin. and Thompson(20 items), and Family Adaptability Cohesion Evaluation Scale(FACES-III) by Olson, Portner, and Lavee(20 items). The obtained data were analyzed using percentage, t-test, ANOVA, Duncan test, and Pearson coefficients correlation by SAS/PC program. The results were as follows; 1. Role Stress of Caregiver was not severe and Quality of Relationship was moderate. The level of Situational Definition of primary caregivers was not high but Family Hardiness and Family Functioning were rather high. 2. The following relationships between research variables and demographic characteristics of the primary caregivers of stroke patients were significantly different; occupation of caregiver between Quality of Relationship, occupation of caregiver between Situational Definition, family type between Role Stress, caregiving duration between Family Hardiness, caregiving duration between Family Functioning, and hospitalization days between Family Functioning. 3. The correlations between research variables were as follows; There was positively correlated between patient's ADL and Quality of Relationship. The relationship of the patient's ADL between Role Stress was negatively correlated. Quality of Relationship between Situational Definition, Family Hardiness, and Family Functioning were significantly correlated. The correlation of Situational Definition between Family Hardiness, and Situational Definition between Family Functioning were very high. As a result of these findings, Quality of Relationship, Role Stress, Situational Definition. and Family Hardiness were useful variables for identifying Family Functioning of stroke patients. It is important for the rehabilitation nurse to be knowledgeable about family functioning of stroke patients to promote rehabilitation process.

• Research in Community and Public Health Nursing
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• v.20 no.3
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• pp.361-370
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• 2009

Purpose: This study attempted to identify family functioning recognized by caregiver who support the elderly. Methods: Data was collected from 264 caregivers who live with elderly using questionnaires. The performance, satisfaction and importance of family functioning was assessed using the modified FFFS by Kang (1987) consisted of three dimension-'Relationship between Individual Family Members', 'Relationship between family and subsystem' and 'Relationship between family and broader social units'. The data was analyzed using SPSS/WIN by descriptive statistics, ANOVA and pearson's correlation. Results: The subjected Families showed a median level of performance (mean $4.06{\pm}0.65$) and a high level of satisfaction (mean $1.04{\pm}0.71$) in family functioning. Families recognized importance of family functioning above median level (mean $4.65{\pm}0.99$). There was statistically significant difference in family functioning according to and duration of illness, illness and ADL of the elderly. In dimension of the relationship between individual family members and relationship between family and subsystem, there are significantly positive correlation among all aspect of family functioning. In relationship between family and social units, there are negative correlations between performance and importance (r=-.215) and between satisfaction and importance (r=-.194) while there are positive relationship between performance and satisfaction. Conclusion: Considering the results of this study, family-focused nursing interventions for families with the elderly need to be developed.

• Journal of muscle and joint health
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• v.26 no.2
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• pp.102-110
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• 2019

Purpose: The purpose of this study was to investigate the factors affecting the quality of life of family caregivers of patients with Parkinson disease in Korea. Methods: A total of 162 family caregivers of patients with Parkinson disease who were visiting the D hospital in B city completed questionnaires, including general and disease-specific characteristics, family burden, patient-caregiver relationship satisfaction, family support and quality of life. Data were analyzed with t-test, ANOVA with $Scheff{\acute{e}}$ test, Pearson's correlation coefficient, and multiple regression analysis using SPSS 23.0. Results: The average score of the quality of life was $85.54{\pm}17.74$ (range: 26~130) among family caregivers of patients with Parkinson disease. Stepwise multiple regression analysis revealed that fifty percent of the quality of life was explained by family support, family burden, and patient-caregiver relationship satisfaction. Conclusion: Family support, family burden, and patient-caregiver relationship satisfaction were identified as factors affecting the quality of life of family caregivers of patients with Parkinson disease. Therefore, it is necessary to develop a program to enhance family support and reduce family burden to improve the quality of life of family members caring for patients with Parkinson disease.

• Journal of Korean Academy of Nursing
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• v.30 no.6
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• pp.1531-1542
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• 2000

In this paper, we examined the depression of stroke patient's caregivers and analyzed influencing factors of the depression. The subjects were 215 caregivers who have takencare of stroke survivors in their home. The conceptual model of this study consisted of the caregiver's depression, perceived burden, illness intrusiveness, and patient's ADL. Modified Korean CES-D, modified subjective and objective Burden Scale, Illness intrusiveness(II), and Instrumental Activity of Daily Living(IADL) were used to measure concepts. Path analysis was used to test the model of this study. The results were as follows: 1. The mean depression score was 11.6 which was below the cut-off score of the CES-D. This score indicates that the subjects were higher than normal adults' mean score but not depressive. Eighty-six out of 215 caregivers(40%) were above the cut-off score. This finding was different from previous research results, and the reason might be the patients' capability of ADL. In a group of low capability patient's activities of daily living, caregiver's depression score was 15.5. 2. Caregiver's depression was positively related to caregiver's burden and illness intrusiveness, but negatively related to patient's activities of daily living. 3. The caregiver's perceived burden and illness intrusiveness directly influenced on their depression. Furthermore, the and caregiver's illness intrusiveness led to depression indirectly through their burden. A patient's activities of daily living didn't influence directly on depression but indirectly through caregiver's illness intrusiveness and burden.

• Research in Community and Public Health Nursing
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• v.14 no.2
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• pp.351-361
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• 2003

Purpose: The purposes of this study were to understand the types of coping strategies that family caregivers experience during the process of caring demented elderly: to grasp the coping strategies used for resolving this problem: and to develop a substantive theory by analyzing the coping types of the family caregivers of demented elderly. Method: The methodology of data collection and analysis used in this study was grounded theory proposed by Strauss and Corbin (1990). The data was collected through in-depth interviews with participants using open-ended and descriptive questions about their coping experiences. All data were were audio-taped and transcribed. The data were collected from February, 2000 to February, 2001. The participants of this study were 17 women. Results: Caregiver's coping types varied according to 'family's support', 'the condition of caregiver's health', 'the relationship with dementia elderly', 'family perception of dementia', 'fixed idea of traditional female role' and 'economic state'. In this study, five types of coping strategies were emerged: active role allotment tyle, meaning grant tyle, devotion tyle, duty defense type, and pessimism type. Among these, those who belong to the types of active role allotment, meaning grant, and devotion, including caregiver's good health were found to adapt themselves to caregiver roles. Conclusion: The results of this study may be helpful for developing effective and individualized nursing strategies suitable for individual caregivers coping types. It is suggested to practice nursing mediation and to analyze the changes in nursing effect and family members' adaptation based on coping types of the well-adapted caregivers as we as on their affirmative coping strategy.

• Research in Community and Public Health Nursing
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• v.20 no.1
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• pp.41-48
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• 2009

Purpose: This study was aimed to explain the relationship of family burden, family support, depression and satisfaction among caregivers of the elderly. Methods: The study population were 126 caregivers of 5 elderly residing in institutionalized nursing homes in Seoul and Kyunggi. The research tool of this study was a structured questionnaire on family burden, family support, depression and satisfaction. The data were collected from March 13 to April 30, 2008, and analyzed by Cronbach's alpha, descriptive statistics, t-test, ANOVA and Pearson's correlation coefficient and multiple regression by using the SPSS/WIN 14.0 program. Results: The major findings of this study were as follows: a significant positive correlation between family support and depression (r=.65, p=.001) was found. A significant positive correlation between family support and satisfaction (r=.68, p=.001) was perceived. Significant factors influencing Satisfaction were Family Support, which explained 38.2% of the variance of Satisfaction of Elderly Caregiver. Conclusion: This study suggested that we should develop programs and policies to increase the satisfaction of caregivers for their family support. In conclusion, the study was done to give suggestions to improve caregiver satisfaction of the aged and to serve as a basis for policy strategies by examining the current conditions of the nursing facilities.

• Journal of Family Resource Management and Policy Review
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• v.23 no.3
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• pp.133-148
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• 2019

This study aimed to explore the moderating effect of family support resources on family caregiver burden as it in turn affects psychological well-being among middle-aged working mothers. Through purposive sampling, the study recruited 325 married employed mothers age 40-50 years who live in Seoul and who have more than 1 child and living parents or parents-in-law. The investigation was performed April 1-30, 2018, with the participants sampled from companies, schools and religious organizations in Seoul. The collected data were statistically analyzed using the SPSS 21.0 package. The results of this study were as follows: First, of all categories of caregiver burden, the score for burden of caring for elderly parents was 3.01 (SD = .81), slightly higher than the median of 3 points; childcare burden scored 3.16 (SD = .73), also higher than the median value; and family support resources scored 3.40 (.89), higher than the median of 3. Overall psychological well-being rated 3.25 (SD = .56). Second, health and educational level, the burdens of caring for elderly parents and childcare and family support resources were found to significantly affect psychological well-being. Third, family support resources, a moderating variable, were found to significantly moderate and ease the effect of childcare burden on middle-aged working mothers' psychological well-being. Furthermore, in the analysis of their moderating effect, family support resources were confirmed to positively affect psychological well-being by moderating childcare burden experienced by middle-aged working mothers.

• Journal of Korean Clinical Health Science
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• v.3 no.1
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• pp.290-298
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• 2015

Purpose. This study aimed to explore family caregivers' experiences with ventilator-dependent patients at home. Methods. The number of patients using mechanical ventilators at home is expected to increase and family caregivers must be able to care for them. However, few studies focus on the experiences of family caregivers. We conducted in-depth interviews with 11 family caregivers who cared for a ventilator-dependent patient at home in South Korea. Data were analyzed using phenomenological method of enquiry. Results. Statements generated from the interviews on the meaning of the family caregiver's experiences were organized into 27 themes, 5 theme clusters, and 2 categories. The theme clusters included endurance under the burden situation, role strain as a caregiver, separation from others, trying to find coping methods, and oriental ethnical customs. Family caregivers of patients using domestic mechanical ventilators need systematic education and emotional support to cope with the challenges of managing ventilator equipment and learning new ways of communicating with patients on the ventilators. Conclusion. These findings may contribute to family caregivers' knowledge and competence, thereby allowing them to better support their ventilator-dependent family members.

• The Korean Journal of Rehabilitation Nursing
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• v.5 no.1
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• pp.27-37
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• 2002

During acute stages of hospitalized stroke patients, family caregivers face many challenges. They often experience emotional distress, social isolation, and financial constraints. However, the burden of caregiving of stroke patients in acute stages has never been studied properly. The purpose of this study was to investigate the factors related to the caregivers' burden with acute stroke. The subjects were 123 acute stroke patients and their caregivers who were admitted to neurology and neurosurgery units at Dan Kook University Hospital in Chung-Nam area. An interview was performed with the use of standardized questionnaire which included data pertaining to the patients/caregivers characteristics, caregiver burden (Modified Zarit's Burden Scale), and social support (Personal Resource Questionnaire). Our results showed that the mean burden score was 3.11, indicating high level of burden. Among the sub-domain scores, financial burden was the highest. In univariate analysis, the factors related to caregiver burdens were: inability to communicate between patients and caregiver(p<.001); low cognitive function of the patients(p<.001); low level of ADL(p<.001); the gender of caregiver(p<.001); the current employment status of caregivers(p<.01); the presence of social support for caregiver(p<.001); and the availability of alternative caregivers(p<.001). In multiple regression analysis, social support for family caregivers (87%), low level of patient's cognition (2%), availability of 2nd caregiver (1%), and gender of caregiver (female, 0.4%) were significant explanatory factors of overall burden. The caregivers' burden in acute stages during hospitalization following stroke was high. Recognition of high levels of caregivers' burden and those relating factors affecting caregiver burden may allow us to develop different nursing strategies to unload the level of burden for caregivers in acute stages of stroke.