• Title/Summary/Keyword: family caregiver burden

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The Effects of disability in kind benefit and cash benefit policies on the main carer of a child with a disability service satisfaction (장애아동 현금급여 및 현물급여정책이 장애아동 주양육자의 서비스 만족도에 미치는 영향 연구)

  • Lee, Young-Kwang;Ji, Eun-Gu
    • Asia-pacific Journal of Multimedia Services Convergent with Art, Humanities, and Sociology
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    • v.7 no.2
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    • pp.701-710
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    • 2017
  • This study investigated the effect of cash benefit and in-kind benefit policy supported by disabled children on the satisfaction of service care of main caregiver. The results of this study are as follows. First, the parental stress, parenting burden, and family members' difficulties were investigated. However, the research on the salary policy supported by the handicapped children has been scarce, and it has been found that the research on the service satisfaction of the main caregiver is also insufficient by the type of salary. The purpose of this study is to examine the effect of variables (parents gender, child gender, parents age, child age, disability grade, average income) on service satisfaction. As a result, parents age, child age, and child gender showed statistically significant effects on service satisfaction. This resulted in statistically significant overall effects on the application process, economic burden, support and selection criteria, service volume, and overall satisfaction. Based on the results of the study, the implications for cash benefits and in-kind benefits could be improved by increasing the amount and scope of benefits, and customized services considering the age of the handicapped children, ultimately improving the service satisfaction of the main caregiver.

Factor Associated with the Unmet Healthcare Needs Types among Family Living with Dementia Patients (치매환자 동거 가족의 미충족 의료 유형별 관련 요인)

  • Kim, Bomgyeol;Noh, Young-Min;Lee, Yejin;Kim, Tae Hyun;Noh, Jin-Won
    • Korea Journal of Hospital Management
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    • v.25 no.1
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    • pp.21-31
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    • 2020
  • Purposes: Family living with dementia patients have the burden for caring and suffer from health problems. Therefore, proper supports for their health disorders are required. The purpose of this study with regard to this is to subdivide unmet healthcare needs of family living with dementia patients into affordability, accommodation, and accessibility and figure out the relevant factors. Methodology: The 2017 Community Health Survey was used, and 2,331 families living with dementia patients was included. To figure out the factors with regard to the types of unmet healthcare needs, multinominal logistic regression analysis was conducted. Findings: According to the analysis result, sex, age, monthly household income, economic activity, self-rated health, self-rated stress and perception of depressive symptoms turned out to be the factors related to unmet healthcare needs. Regarding affordability, unmet healthcare needs were low when the object was female, over 65, highly educated, and monthly household income were high. On the other hand, unmet healthcare needs was high when self-rated health was bad, self-rated stress was high, and had depression. With regard to accommodation, unmet healthcare needs were low when the object was over 65. Unmet healthcare needs were high when the object was female, economically active and had depression, and self-rated health was high. Regarding accessibility, unmet healthcare needs were low when the object was high school graduate, but it was high when self-rated health was bad. Practical Implication: This study confirmed that the family with dementia patients had a high proportion of unmet healthcare needs due to affordability and accommodation. The existing main discussion was that the experience of unmet healthcare needs normally occurred due to economic reasons, but a consideration on various cases and factors is required to ultimately achieve the policy goal to reduce the unmet healthcare needs of the family living with dementia.

Employment Status and Work-Related Difficulties among Family Members of Terminally Ill Patients Compared with the General Population

  • Kim, Seon Young;Chang, Yoon-Jung;Do, Young Rok;Kim, Sam Yong;Park, Sang Yoon;Jeong, Hyun Sik;Kang, Jung Hun;Kim, Si-Yung;Ro, Jung Sil;Lee, Jung Lim;Lee, Woo Jin;Park, Sook Ryun;Yun, Young Ho
    • Asian Pacific Journal of Cancer Prevention
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    • v.14 no.1
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    • pp.373-379
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    • 2013
  • Background: Although caregiving to patients with terminal illness is known to be a stressful burden to family members, little attention has been focused on work-related problems. We aimed to investigate employment status and work-related difficulties of family caregivers of terminal cancer patients, comparing with the general population. Methods: Using structured questionnaires, we assessed family caregivers of 481 cancer patients determined by physicians to be terminally ill, from 11 university hospitals and the National Cancer Center in Korea. Results: Among 381 family caregivers of terminal cancer patients (response rate, 87.6%), 169 (43.9%) were not working before cancer diagnosis, but currently 233 (63.7%) were not working. Compared with the general population (36.5%), the percentage of not working among the family caregivers was higher (OR=2.39; 95%CI=1.73-3.29). A major reason for not working was to provide assistance to the patients (71.6%). 40.6% of those who continued working and 32.3% of those who not working family members reported extreme fatigue. Caregivers of old age, those who were female, those with a lower household income, and those caring for patients with a low performance status were not working at a more significant rate. Conclusion: Family caregivers of terminal cancer patients suffer job loss and severe work-related difficulties, probably due to caregiving itself and to fatigue. We need to develop supportive programs to overcome the burden of caregivers of the terminally ill.

Perception about Shared Decision Making of Family Caregivers of Early Dementia Patients: A Qualitative Content Analysis Study (초기 치매환자 가족 돌봄제공자의 공유 의사결정에 대한 인식: 질적 내용분석 연구)

  • Kim, Yun-Jae;Song, Jun-Ah
    • 한국노년학
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    • v.38 no.3
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    • pp.501-519
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    • 2018
  • The purpose of this study was to explore perception about shared decision making of family caregivers of patients with early dementia (PWED). This study was conducted with a sample of 12 family caregivers (mean age = $71.4{\pm}10.4$) of PWED from three dementia safety centers in Seoul. In-depth interviews were done for each participant about shared decision making and data were analyzed using qualitative content analysis. Six categories and 17 sub-categories identified for participants' perception about shared decision making: means to facilitate communication with patients with dementia, means to secure autonomy of patients, opportunity to facilitate treatment, cause of increasing family caregivers' burden, cause of worsening relationship with patients, and option for choices depending on priority change. The findings of this study can provide a knowledge basis for health care professionals and policy makers to understand how family caregivers of PWED think about shared decision making. It would be of great value to develop educational programs and practical guidelines about shared decision making for PWED and their family, which may contribute to respecting PWED's self-determination right as well as reducing burden of their family.

Survey on the Care Burden and Quality of Life in Family Caregivers of Patients Using Home Mechanical Ventilator in Yeongnam Region, Korea (영남권역에서 가정용 인공호흡기를 사용하는 환자 가족간병인의 간병 부담과 삶의 질)

  • Son, Ju-Hyun;Moon, Myung-Hoon;Cho, Mi-Kyung;Yun, Ra-Yu;Huh, Sung-Chul;Min, Ji-Hong;Moon, Jung-In;Kim, Soo-Yeon
    • The Journal of Korean society of community based occupational therapy
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    • v.10 no.1
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    • pp.39-49
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    • 2020
  • Objective : The aim of this study was to investigate the care burden and life quality in family caregivers of community-dwelling patients using home mechanical ventilator(HMV) in Yeognam region. Methods : Survey performed to family caregivers of the patients using HMV in Yeognam region, Korea. The questionnaire is composed with patient care and the burden on caring. Korean version of Short Form Zarit Burden Interview(K-ZBI-12) and 3-Level version of EuroQol-5 Dimension applying Korean weight(KEQ-5D-3L) were also investigated. Statistical significance was accepted for p<.05. Results : A total 98 out of 150 questionnaires were analyzed. The K-ZBI-12(33.08±10.34) had a correlation with KEQ-5D-3L(0.71±0.25) negatively(p=.038). Patients' age, duration of HMV, financial burden and professional caregivers' care time had correlations with K-ZBI-12 positively(p<.05). KEQ-5D-3L correlated duration of HMV negatively(p=.017). Invasive ventilator group had lower KEQ-5D-3L than the non-invasive ventilator group(p=.008). K-ZBI-12 was lower in more than one caregiver care of patients than in one(p=.001). Conclusion : This study revealed high care burden and low quality of life in family caregivers of the patients with HMV in Yeongnam region, Korea. Efforts are needed to continually identify the needs of patients and their families, and the socioeconomic support and medical services associated with HMV.

A Convergence Study on Depression of Main Caregiver for Elderly in Korean Nursing Home (우리나라 요양시설 입소노인 주 돌봄자의 우울에 대한 융복합 연구)

  • Sung, Kyung Mi;Kim, Eun Jeong
    • Journal of Digital Convergence
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    • v.18 no.1
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    • pp.231-240
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    • 2020
  • The purpose of this study is to investigate the depression of the main caregivers for the elderly in Korea by using a descriptive survey study. A total of two hundred eight participants who admitted at five nursing homes located in G city were analyzed using SPSS 25.0. There was a significant difference in depression according to general characteristics: higher level in extended family in family type. Participants showed significantly higher level of depression in cases of less than five years' hospitalization periods or Decision maker of elderly's hospitalization high level burden for expenses among caring related characteristics. They also had higher level of depression in cases of high level burden for expenses. less than 60 minute in commuting time, or non-satisfaction for nursing home service among caring related characteristics. Although we need more evidences through future studies, the findings from this study will be useful in the development of nursing intervention program for reducing the depression of the main caregivers for elderly population.

Korean Caregiver's Perceived Benefits and Costs of the Coresidence with the Elderly Parents - focused on Rural and Urban Difference - (부양의식, 형제자매 지원과 노부모 동거에 대한 혜택-비용 지각 - 도시와 농촌 비교를 중심으로 -)

  • 한경혜;이정화
    • Journal of the Korean Home Economics Association
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    • v.39 no.11
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    • pp.129-144
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    • 2001
  • In spite of rapid sociocultural changes and an increase in the number of nuclear families in recent years, quite many families in Korea still have taken the extended family form where daughter-in-law provides care for the elderly parents. Even though the nature of the inter-generational relationship in Korea is reciprocal in many regards, most of the studies looked at the burden or costs of coresidence with the elderly parents while relatively little attention has been given to the positive side of the coresidence. This study is an attempt to fill this gap in the area. The purpose of this study is to examine not only the costs but also benefits of the coresidence with the elderly parents. We also explore whether there is a rural-urban differences in costs and benefits of coresidence and related factors. For the purpose, data were gathered from 876 daughters-in-law of three generational family both in rural and urban area, using structured questionnaire. The statistical methods used for data analysis were descriptive statistics, cross tables, and regression analysis with SPSS/PC+ program. The major findings of this study were as follows: Marital and economic status of the elderly parents, age, job status and filial responsibility attitude of caregiver, sibling support, and coresidence duration were the significant variables predicting the level of perceived benefits. Marital status of elderly parents, income, job status, educational level, and filial responsibility altitude of caregiver, residence region affected the level of perceived costs. Rural-urban differences are found in many aspects of coresidence experiences and related factors. Rural caregivers receive higher level of the sibling support, have more traditional final responsibility altitude and perceived less costs and more benefit than urban caregivers. There also are differences in the factors influencing the level of perceived costs and benefits between rural and urban area. Level of sibling support and final responsibility attitude have significant impact on both the perceived costs and benefits. But there are differences in terms of that perceived costs and benefits of urban caregivers are affected by job status of caregivers while those of rural caregivers are affected by educational level of caregivers and marital status of elderly. The results confirm that Korean caregivers experience both positive and negative aspects of coresidence and shows that the nature of the inter-generational relationships differ between rural and urban Korea.

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Factors Influencing Caregiver Reaction among Family Caregivers for Persons with Cancer (암환자 가족원의 건강정보이해력과 사회적 지지가 돌봄부담에 미치는 영향)

  • Park, Sang-Un;Kim, Hee-Jin;Kim, Geom-Nam;Park, Hye-Jeong;Gil, Cho-Rong;Lee, Ji-Yeon;Chang, Hee-Kyung
    • Journal of Digital Convergence
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    • v.17 no.3
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    • pp.291-304
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    • 2019
  • The purpose of this study was to identify factors influencing family caregivers' reaction of persons with cancer. The study participants were 130 cancer patients and their family caregivers. Data on participant characteristics, caregiver reaction, perceived social support, and cancer related health literacy were collected from July 17 to November 7, 2018 using a structured questionnaire. Data were analyzed with the SPSS/WIN 23.0 program for descriptive statistics, using independent t-test, one-way analysis of variance, Pearson's correlation coefficient and enter multiple regression analysis. The determining factors affecting caregivers' reaction were in case of spouse of patient(${\beta}=.252$, p=.002), subjective health status(${\beta}=-.207$ p=.012), and health literacy (self-care, patient's needs and preference) (${\beta}=-.411$, p<.001; ${\beta}=.247$, p=.037 respectively), and their explanation power was about 37.9%. This finding underscores the need for developing and application of the individualized education program with health literacy improvement strategies for family caregivers of cancer patients.

Quality of Life among Family Caregivers of Terminal Cancer Patient (말기 암 환자 가족 간병인의 삶의 질)

  • Jung, Jin-Gyu;Kim, Sung-Soo;Kang, Dong-Soo;Kim, Sung-Min;Lee, Dong-Hoon;Han, Kyung-Hee;Kim, Jong-Sung
    • Journal of Hospice and Palliative Care
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    • v.9 no.1
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    • pp.1-10
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    • 2006
  • Purpose: Terminal cancer influences on patients as well as their family members. This research was performed to evaluate the quality of lift of primary family caregivers and to investigate the influencing factors. Methods: The results of survey were collected from 81 family caregivers who were taking care of hospitalized terminal cancer patients at an oncology department of university hospital in Daejeon from March 2005 to January 2006 with questionnaires. The questionnaires were consisted of the general characteristics of the subjects, and 36-items short-form Health Survey (SE-36) Korean version to evaluate the quality of life of family caregivers, the characteristics of patients and family caregivers' caring trait. Results: Family caregivers' mean (${\pm}SD$) SF-36 score was 47.9 (${\pm}20.7$). Influential factors on family caregivers' life quality were daily raring hours, economic burden, type of treatment; only supportive care, caring duration, sex, the numbers of ADLs (activity of daily livings) items that patients needed help in order by stepwised multiple logistic regression analysis (overall $R^2=0.639$, P=0.044). Conclusion: Daily raring hours and economic burden were two influential modifiable factors on family caregivers' quality of life. Therefore, social supportive systems are required to reduce family caregivers' daily caring hour and economic burden.

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A Study on the Effect of Caregiving Stress to Partner Violence among Adult Children Caregiver for the Elderly with Dementia : Mediating Effect of Depression (치매환자 자녀의 부양부담이 배우자폭력에 미치는 영향 - 우울의 매개효과 검증 -)

  • Kim, Jae Yop;Hwang, Hyun Joo;Jeon, Ji Soo
    • Korean Journal of Family Social Work
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    • no.53
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    • pp.235-263
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    • 2016
  • The purpose of this study was to examine the relationships among caregiving stress, depression, and partner violence by gender. Data were gathered though questionnaires surveying 223 cases living in the Seoul and Kyeonggi, Pusan areas. In analyzing precess, the researchers used t-test, ANOVA, correlation and regression. Additionally, bootstrapping was used to verify the significant mediating effect of depression. The findings are follows: First, approximately 37.3 percent of adult children caregivers reported having experienced partner violence in the past year. And the depression mean score among adult children caregivers was 1.00, higher compared to 0.73 of general population. Female caregiving burden and depression level was higher than those of male. Second, the results from regression analysis revealed that caregiving stress influenced to partner violence positively. Depression has the full mediating effect between caregiving stress and partner violence. The results suggest a necessity of intervention to reduce caregiving stress, depression and prevent partner violence in the dementia caregiver's family. The implications for social work practice were also discussed.