• Title/Summary/Keyword: care burden of dementia

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Development and Evaluation of Community-based Respite Program for Family Caregivers of Elders with Dementia (치매노인 가족수발자를 위한 지역사회기반 휴식프로그램 개발 및 적용효과)

  • Cheon, Suk-Hee;Chang, Sung-Ok;Kong, Gye-Soon;Song, Mi-Ryeong
    • Journal of Korean Academy of Fundamentals of Nursing
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    • v.18 no.3
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    • pp.337-347
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    • 2011
  • Purpose: Purposes of this study were to develop a community-based respite program for family caregivers and to test the effects of the program. Methods: Focus group interviews were performed to extract meaning of respite care for family caregivers (13 participants) and a survey was done to identify respite needs of family caregivers (157 participants). The community-based respite program for family caregivers was developed based on results of the focus group interview and survey. The program was used with 41 participants (19 experimental and 22 control). Independent t-test and Mann-Whitney U-test were used to test differences between control and experimental groups for respite needs, burden of caregivers, subjective wellbeing, social support, fatigue and functional status of elders with dementia. Results: There were statistical differences in caregiver burden, subjective wellbeing, and social support after the program, but, none for respite needs, fatigue and functional status of elders with dementia. Conclusion: The results indicate that a respite program can be useful to decrease burden of caregivers and increase subjective wellbeing and perceived social support of family caregivers in community settings. Further intervention research is needed to increase the functional status of elders with dementia and decrease fatigue in caregivers.

Effects of Dongsasub Training for Family Caregivers of Patients with Dementia on their Burden, Depression, and Self-esteem (동사섭 훈련이 치매간병 가족의 부양 스트레스, 우울, 자아존중감에 미치는 효과)

  • Kim, Myoungsuk;Lim, Kyung-Choon
    • Journal of muscle and joint health
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    • v.23 no.1
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    • pp.9-18
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    • 2016
  • Purpose: The purpose of this study was to verify the effectiveness of Dongsasub training for the family caregivers of patients with dementia on their care burden, depression, and self-esteem. Methods: An one-group pretest-posttest quasi-experimental design was used. Six family caregivers recruited from a support center for dementia in Seoul and participated in this study. Once a week, the Dongsasub training was provided for 90 minutes during eight weeks. Results: Depression was significantly lower (z=-2.01, p=.044), and self-esteem was significantly higher (z=-2.21, p=.027) than before Dongsasub training. However, care burden was not significantly different between pre and post program (z=-1.58, p=.115). Conclusion: The results of this study indicate that the Dongsasub training can be used as a nursing intervention in community settings to decrease depression and improve self-esteem for the family caregivers of patients with dementia.

Caregiver Burden of Patients with Dementia and Day Care Center of Small Size Model within a Zone of Life (치매환자 부양자부담과 생활권 내 소규모 주·야간 돌봄 서비스 모델)

  • Na, Seung-kwon;Park, Eun-Ju
    • The Journal of Korea Institute of Information, Electronics, and Communication Technology
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    • v.9 no.4
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    • pp.428-438
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    • 2016
  • The aim of this study, in order to reduce the support burden of dementia primary caregiver, within the framework of long-term care insurance system to present its founding model for the development of new services. Previous research as analytical materials and based on the CARE study between 2012 to 2013. Primary caregiver burden of patient are both physical, psychological and economic aspects as well as difficulties in many aspects and had influence on many factors such as age, care burden, economic, health, and social support. It also came high-risk primary caregiver suffer from depression. This primary caregiver to take advantage of the elderly long-term care insurance system implemented at the time of the institutional support necessary for since 2008, presented additional services in this study. Of increasing the small sizes day care center (tentative name) to open an as established in the settlements at a scale of less than nine, within 5 minutes from the residence, limited dementia by expertise in the disease home care services scale model of the current system service It was to improve the quality of existing shares, small group sizes for day care centers and community life apart.

Needs for the Planning of Group Homes for the Elderly with Dementia of Lower Income Classes (저소득층의 치매노인 그룹홈 계획에 대한 요구)

  • 김대년;최정신;권오정
    • Journal of the Korean Home Economics Association
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    • v.40 no.4
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    • pp.1-12
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    • 2002
  • This study aimed to examine the needs for the planning of group homes for the elderly with dementia in lower income class, who have more economic burden on the caring the demented aged. The survey was conducted by questionnaires collected from 300 respondents from December 2000 to March 2001. Methods of analysis were frequency distribution, mean and chi-square test. The results of this study were as follows: 1) The respondents perceived that the responsibility to take care of the elderly with dementia belonged to their family, not to society or the government, and the sons and daughters had to share the burden placed on care-givers. 2) The awareness of group homes for dementia was relatively low. 3) The respondents' needs for the group homes with dementia could be summarized as follows; small scale plan with homelike atmosphere, a total of 6-8 residents, structural type of detached house or three-storied town house, 2-3 persons per individual room, and management system by non-profit organization or the government. There were no big differences between the respondents of this study and upper and middle class studies conducted by other research, except for some details. Referring to results of this study, it is asserted that group homes for the elderly with dementia would be embraced throughout the country if poetical assistance combined with economic support were provided.

A Study on the Development of Self-help Program with Care Burden for Families with Demented Elderly Persons (치매노인 가족의 부양부담 경감을 위한 자조집단프로그램 개발)

  • Kim, Joung-Soon;Lee, Su-Ill;Kim, Ki-Tae;Park, Nam-Hee
    • Research in Community and Public Health Nursing
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    • v.16 no.3
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    • pp.260-269
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    • 2005
  • Purpose: This study were to understand the caregiving situation of families with the demented elderly and to develop a self-help program for them. Method: A self-help program was designed to increase caregivers' confidence and skills in problem solving. In addition, it was designed to provide information about the demented elderly. The self-help program of this study was composed of nine sessions. Result: Family caregivers of elderly patients with dementia obviously experience high level of stress. which often leads the caregivers to negative outcomes such as depression, interference with social activities and health difficulties. That is, caring is stressful for caregivers because the demands of the caregiving situation tend to overwhelm the caregivers' coping resources. Therefore, families with demented elderly persons need assistances in order to be relieved from their care burden. Conclusion: The self-help program includes the understanding of dementia, the family caregiving experiences of the demented elderly persons, the time for self-care, the search for helping, the improving of interpersonal relations and communications.

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The Effect of Care Burden of Elderly Spouses Caring for Dementia Elderly on Life Satisfaction: The Moderating Effect of Social Support (치매 노인을 돌보는 노년기 배우자의 돌봄 부담감이 생활만족도에 미치는 영향: 사회적지지의 조절효과)

  • Park, Ju-Hee
    • Journal of Family Resource Management and Policy Review
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    • v.25 no.4
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    • pp.43-54
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    • 2021
  • The purpose of this study was to explore the effects of perceived care-related burden and social support on life satisfaction and the moderating effect of social support from elderly spouses caring for their elderly partners with dementia. The subjects were 165 spouses aged over 60 years, caring for their elderly partners afflicted with dementia, and living in Seoul and Gyeonggi Province. The analysis results are as follows: First, the quantified total care-related burden shouldered by the participant spouses was 3.76 points (SD = .57), which was slightly higher than the median value. In the case of social support, informal support was scored 2.65 (SD = .78), and formal support was scored 2.60 (SD = .77), which was lower than the median value. Life satisfaction earned a score of 3.11 points (SD = .78), which somewhat exceeded the median. Second, subjective health status, income level, burden from social activity, and informal support influenced life satisfaction. Put differently, the higher the subjective health status of a caring spouse, the higher the income level, the lower the social activity burden, the stronger the informal support, and the greater the life satisfaction. Third, the interaction terms of social activity burden and informal support were significant. Therefore, informal support had a moderating effect on the relationship between social activity burden and life satisfaction among the elderly with dementia. In other words, even though the caring spouses experienced a burden from social activities, the higher the frequency with which they accessed informal support, the lower the decrease in life satisfaction.

Development of Dementia Care Model in a Community (지역사회 치매관리 모형 개발 : 광명시의 경우)

  • 배상수;김동현;우영국;오진주;민경복;이수현;이미라;이상숙;표옥정
    • Health Policy and Management
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    • v.9 no.1
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    • pp.30-71
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    • 1999
  • There has been a dramatic increase in public awareness regarding dementia during recent years. However, dementia remains a family affair and patients do not receive adequate care in Korea. This study aims to assist patients and their caregivers by establishing Home and Community based Long-Term Care in a city. The data collected for analysis include five main categories: dementia prevalence, limitations of daily activities of patients, burden of caregivers, the services that patient's family want to utilize, the resources that handle dementia in the community. Major findings can be summarized as follows: 1)The prevalence rate of dementia for elderly people is 13.1 per 100 persons. Alzheimer's disease amount to 38.9% of dementia patients and vascular dementia account for 36.7% of them 2)Eight out of ten patients have mild dementia. Almost all patients have normal ADL. IADL, however, shows different picture. In every items of IADL, about 60% of patients reveals some limitations. 3)The proportion of patients who had medical diagnosis is as low as 20%. Families of patients think dementia as normal aging process and medical doctors in the community do not give special concern to dementia patients. 4)Caregivers does not have proper social support. They suffer from long care time, experience large obstacles in respect of health, daily living, and social activity. 5)Health center and Community welfare center have launched some programs-consultation, home-visiting nursing, day care center, voluntary force mobilization and so on-for dementia patients. But they do not perform expected roles and functions because of lack of skilled personnels and inadequate coordination of relevant organizations for dementia care. 6)Families of dementia patients prefer home helper and home-visiting nurse to hospitalization. For the future, however, demand for institution-based long-term services will increase. We develope community dementia care model based on above findings as follows: 1)Health center execute community cardiovascular control program for the prevention of vascular dementia. 2)Refer to epidemiologic characteristics of patients and preference of family, the most urgent task for dementia care in this city is to expand and organize Home and Community based Long-Term Care. 3)For the continuous and comprehensive care, care plan for a patient must be prepared. Case management team should be builded to prepare this plan and coordinate relevant resources. 4)Special long-term care unit for dementia will be needed in a near future. This unit should have multiple functions, such as day-care center, short stay facility, training center for relevant personnels, besides long-term nursing home considering effective care of dementia and efficient operation of the facility. 5)Voluntary workers deserve their due efforts. Incentive mechanisms must be developed to activate voluntary activities.

Development of a Korean Senile Dementia Management Model (한국형 치매환자 관리모형 개발)

  • Kim, Jung-Soon;Park, Nam-Hee;Kim, Myoung-Soo
    • Research in Community and Public Health Nursing
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    • v.15 no.3
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    • pp.450-459
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    • 2004
  • Purpose: The purpose of this study is to grasp the welfare service for the demented people staying at home and the service that caregivers want to use. Therefore, we are going to develop a Korean senile dementia-care management model. Method; It analyzed the data of 185 demented people and caregivers, who registered in 16 public dementia care centers in B city since June 2002. Results: 1) The types of services used by the aged people with dementia staying at home were, in the order of frequency of use, the day-care center(26.5%), and home-help service (21.6%). 2). The types of services according to the degree of dementia were as follows; mild cases: home care service (5.4%), moderate cases: day-care service (40.0%) and severe cases: day-care service (26.0%). 3). The caregivers who want to use senile welfare institutions accounted for 23.3%, and the major reason they could not use the institutions was due to their economic situation. 4) The Korean senile dementia care management system must be excuted, considering caregivers' economic state and severity of dementia. Since the system was actively operated, many small sized welfare service institutions showed development. Conclusion: The welfare services appropriate to the severity of dementia should be provided. With the model developed in this study, the dementia management requires sufficient care and should be achieved to reduce the caregivers burden.

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A Study on Differences in the Caregiving Burden of Primary Caregivers by Type of Caregiving -Focused on Caregivers in Home Stay, Day Care Center, and Nursing Home Situations- (부양형태에 따른 주부양자의 부양부담의 차이 및 영향 변수에 관한 연구 -재가, 주간보호시설, 시설거주 노인의 주부양자를 대상으로-)

  • Kim, Yun-Jeong
    • The Korean Journal of Community Living Science
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    • v.18 no.1
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    • pp.71-85
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    • 2007
  • This study investigates differences by type of caregiving using data on three groups of caregivers, 177 from home stay situations, 189 from day care centers, and 138 from nursing homes. First, the result shows that characteristics of both caregivers and elders differ by type of caregiving. Second, caregivers in the home stay situation have the highest caregiving burden of the three groups. Third, from examination of the related variables, the caregiving burden of home stay caregivers is affected by family income, caregivers' health, type of job, and whether or not the elder has symptoms of dementia. Also, the study reveals that emotional services for elders reduce the aggravation of family relations and economic burden, but that instrumental services highly increase economic burden. It reveals that caregivers of elders in day care centers, especially those who are in bad health, are more likely to experience feelings of constriction, aggravation of family relations and economic burden. On the other hand, caregivers who receive more emotional services have better experiences in family relations, including relations with the elder. In case of the elders of nursing homes, if the main caregiver is a daughter-in-law, aggravation of family relations is higher than if the main caregiver is a spouse. Finally, the caregiver's burden is affected by their own health and income, and by whether the elder has symptoms of dementia or stroke.

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A Review of the Effects of Respite Care for Patients with Dementia and Caregivers (치매노인과 부양자를 위한 휴식서비스의 효과에 대한 고찰 - 국외 휴식서비스 중재연구를 중심으로 -)

  • 김진선;이은현
    • Journal of Korean Academy of Nursing
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    • v.31 no.6
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    • pp.1077-1087
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    • 2001
  • The purpose of this study was to analyze the effects of respite care. The analysis was conducted by reviewing published intervention studies on the effects of formal respite care for caregivers of dementia patients, patients with dementia, and the prevented or delayed rate of institutionalization of the patients. Method: Two computerized databases (MEDLINE, CINAHL) were searched to find respite care-related articles published from the year of 1981 to 2000. A total of 49 published articles were identified. Of them, nine studies, which met for the inclusion criteria of this study, were included. Results: Results revealed that there was little evidence of the effect of respite care on, not only caregivers' burden, stress, depression and well-being, but also the rate of institutionalization of the patients. It was noteworthy that dementia patients reported fewer problems in behavior, although cognitive functioning and activity of daily living abilities continued to decline. However, these findings should be carefully interpreted because of methodological problems, such as non-random sampling, non random group assignment, a small sample size, uncontrolled confounding variables, limited period of services, and no specific types of services. Conclusion: It is recommended to conduct intervention studies of respite care being conducted in Korea with the corrections of methodological problems suggested from this study.

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