• Title/Summary/Keyword: Primary family caregivers

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Study on Spiritual Well-being and Family Support of Cancer Patients (암 환자가 지각한 가족 지지와 영적 안녕에 관한 조사 연구)

  • 김정순;전성숙;황보선;김은영
    • Korean Journal of Health Education and Promotion
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    • v.16 no.2
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    • pp.67-80
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    • 1999
  • This study was designed to provide the basic data of nursing intervention for alleviation of effective adjustment of cancer patients by identifying the correlation between the spiritual well-being and family support. The subjects for this study were 69 patients who were diagnosed as cancer and were admitted to a university hospital in Pusan. Data were collected during the period between December 1, 1998 and January 20, 1999 by interviewing with questionnaires. Family support questionnaire consisted of 11 questions answerable on a 5 point Likert scale developed by Kang Hyun Suk(1985). Spiritual well-being questionnaire consisted of 20 questions answerable on a 4 point Likert scale modified by Kang Jeong Ho(1996). The data were analyzed by in descriptive statistics, Pearson correlation coefficient, t-test and ANOVA using SPSS/WIN program. The results of this study were as follows. 1. The mean score for family support in cancer patients was 49.48, which indicated that cancer patients perceived their state of family support as high level. The mean score for spiritual well-being in cancer patients was 55.87, which indicated that cancer patients perceived their state of spiritual well-being as moderate level. Among the components of spiritual well-being, the mean score for religious well-being was 26.94 and for existential well-being 28.93. From the above, the mean score for existential well-being was higher than that of religious well-being. 2. There were statistically significant differences in family support according to the types of primary caregivers(F=3.48, p=0.008). The spouse caregiver showed the highest family support among the caregivers. There were statistically significant differences in spiritual well-being according to the job(F=2.20, p=0.046) and the level of perceived health status(F=2.71, p=0.05). There were statistically significant differences in religious well-being according to the religion(F=2.42, p=0.004) and the number of family members(F=3.38, p=0.040). And there were statistically significant differences in existential well-being according to the job(F=2.48, p=0.026) and the level of perceived health status(F=2.74, p=0.048). 3. There were positive correlation between spiritual well-being and the family support(r=0.481, p=0.000), between religious well-being and family support(r=0.336, p=0.008) and existential well-being and family support(r=0.519, p=0.000).

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Impact of Dental Treatment under General Anesthesia or Intravenous Sedation on Oral Health-related Quality of Life in Pediatric Dental Patients (전신마취 또는 정주진정 하 치과치료가 소아 환자의 구강 건강과 관련된 삶의 질에 미치는 영향)

  • Song, Jisoo;Kim, Youngjae
    • Journal of the korean academy of Pediatric Dentistry
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    • v.43 no.1
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    • pp.27-35
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    • 2016
  • The present study aimed to assess the perception of a child's primary caregiver on the oral health-related quality of life (OHRQoL) of dental treatment under general anesthesia (GA) or intravenous sedation (IV-SED) in pediatric dental patients. Self-administered questionnaires were completed before dental treatment under GA or IV-SED by 52 primary caregivers of healthy pediatric patients (10 years old or younger), and 43 (84%) of these caregivers completed the same questionnaires within 6 months after treatment. The Korean version of Child Oral Health Impact Profile (COHIP) and the Family Impact Scale (FIS) were used to assess OHRQoL in the questionnaires. The scores of COHIP and FIS improved after dental treatment. Demographic variables such as gender did not affect the improvement of COHIP and FIS, and age did not affect that of COHIP. However, baseline FIS score of younger patients was better than that of older patients before dental treatment. Regardless of the treatment variables, all COHIP and FIS scores were improved after dental treatment. COHIP score improved more in cases with pulp treatments compared to those without the treatments. On the other hand, FIS score improved less in cases with posterior stainless steel crown restorations compared to those without them. Anterior esthetic restorations and anterior teeth extractions did not affect the degree of improvement. Based on the primary caregiver's perceptions, the OHRQoL of healthy pediatric patients was improved by dental treatment under GA or IV-SED.

Quality of Life and Family Burden in Hemopoietic Stem Cell Transplantation Recipients (조혈모세포이식 환자의 삶의 질과 가족 부담감)

  • Bok, Ji-Na;Sohng, Kyeong-Yae;Park, Han-Jong
    • Asian Oncology Nursing
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    • v.5 no.2
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    • pp.136-145
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    • 2005
  • Purpose: To investigate the degree and relationship of the quality of life(QOL) and family burden in hematopoietic stem cell transplantation recipients(HSCTr) at admission and discharge to isolation unit. Method: Data were obtained by interviewing from 60 HSCTr and 50 of their primary caregivers' and were analyzed by SAS program. Result: The degree of quality of life in pre and post HSCTr was significantly lower in the group who had physical discomfort compared with those who had no physical discomfort. The mean score of quality of life in pre HSCTr was significantly lower compared with in post HSCTr. Objective burden of family was higher than subjective one. Conclusion: QOL in HSCTr showed lower in the group of who had medical history, physical discomfort, no hope for cure and more than 5 weeks of length of stay. On the basis of these results, it is necessary to develop nursing intervention and to apply nursing care for improving their quality of life.

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A Study on the SociodemographicCharacteristics and Life Satisfaction of Family Caregivers

  • Lim, Ahn-Na;Park, Young-Suk
    • International journal of advanced smart convergence
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    • v.7 no.3
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    • pp.140-145
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    • 2018
  • This study is based on the National Pension Research Institute's 2013 Korean Retirement and Income Study(KReIS) 5 Data for Parents and Children Care over 50 years old and analyzed the satisfaction level of life according to the characteristics of 226 people in society. The results showed that women were more satisfied with their lives than men, and when the age was lower, when they had spouses, and when they had independent economic power. As for the grandchildren caring provider, the higher the education levels, the higher the satisfaction with life. And across all areas, the grandchildren care provider showed greater satisfaction with life than the parents care provider. These results show that the burden of the parents' carers is as great as that. Suggestions based on these results are as follows. First, It is necessary to develop a health care program that can be easily accessed by family carers. Second, Direct economic support is needed, with the primary focus being on family carers. Third, services targeting parents care providers are needed. It is also necessary to form a network that can share the difficulties of parental care.

Patients' and Family Caregivers' Perception on Recovery from Mental Illness: "An Ongoing and Steady Change Together" (정신질환 회복에 대한 환자와 가족의 인식: "함께하는 지속적이고 꾸준한 변화")

  • Nam, Kyoung A;Jin, Juhye
    • Journal of Home Health Care Nursing
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    • v.27 no.3
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    • pp.344-355
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    • 2020
  • Purpose: Recovery has a growing influence on policy for individuals with mental illness and their families. This study was designed to examine the meaning of recovery from the perspectives of community-dwelling patients with mental illness and their families. Methods: Using a descriptive qualitative approach, in-depth, face-to-face interviews were conducted on 24 adults (14 patients with mental illness and 10 family members). All interviews were audiotaped, transcribed and analyzed using thematic analysis. Results: The findings showed that recovery for the patients with mental illness suggested gradual changes by individual will and self-awareness, the relationship with both their family and self-help group, and the support of a therapeutic environment. Seven primary themes emerged from the analysis: improving insight on illness, strong will toward hope, discovering changed myself, helping each other together, gradual influence of positivity, being oriented to a therapeutic setting, and recognizing of home as a calm place. Conclusion: The findings of this study revealed that based on the conceptual elements of recovery of the patients with mental illness and their families, we expect to improve the systematic, comprehensive, and quality mental health services.

The Realities in the Elderly Caregiving and Its New Direction: Revisiting Caregiving Researches in the 1990s (노인부양의 현실과 그 새로운 방향: 1990년대 연구를 중심으로)

  • 손태홍
    • Journal of the Korean Home Economics Association
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    • v.39 no.11
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    • pp.27-42
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    • 2001
  • This paper reviews researches related with the elderly caregiving, which hale published during the 1990s. After analyzingthe 29 articles in this field, the major findings are as follows: First, the advantageous position in life chances which is consisted of socioeconomic status and resources tends to reduce th burden for the elderly care. The higher in social status, the more resources older adults have, the more advantageous in controlling their relationship with their children and caregivers. Second, values based on familism is more associated with providing caregiving services for their parents than those of filial piety. Third, the tendency that daughter-in-law takes the role of the primary caregiver suggests a possibility of diminishing her enthusiasm, and finally comes to recognize her role as an enforced one, as time goes by. Fourth, cargiving burden affects the diverse aspects of caregiver's way of life. When the lower class elderly has dementia, caregiving stress and hassle have reached at their peak level. For meeting the needs of reducing the burden for the elderly care, this study suggests community- based approach for the elderly care. This approach attempts to share the caregiving burden with local community. To share the burden means that the boundaries of caregivers does not limit family members, but to expand community. This attempt includes a plan that establishes multipurpose community center which provides comprehensive services and care for the aged. The theoretical rationale of this approach are also discussed.

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A Study of Effect on Quality of Life of Cancer Patient's Caregiver : Focusing on the Mediating Effect of Feeling of Burden and Growth (사회적 지지와 암환자 가족의 삶의 질의 관계에서 돌봄부담감과 내적성장의 매개효과)

  • Rhee, Young-Sun
    • Korean Journal of Social Welfare
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    • v.61 no.2
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    • pp.325-348
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    • 2009
  • This study intends to investigate the main and mediating effects which caregiving appraisal and positive reappraisal exert on quality of life (QOL) of primary family caregivers of cancer patient considering the relationship with social support. The processes of this study areas follows. First, the variables which research model were chosen on the basis of stress-appraisal-coping theory through reviews of the previous studies. Second, a survey was conducted upon 295 primary caregiver of patient with cancer at National Cancer Center. Collected data were analyzed by SPSS 12.0 and SEM (Structural Equation Modeling) method using AMOS 5.0. The summary of the result is as follows. First, the entire model including measurement and structural model shows sufficient fit index of CFI(.951), TLI(.940) and RMSEA(.062). Second, the results of analysis of direct effects among variables are as follows. The 'Social support' has statistically significant direct effect on the 'feeling of burden' and 'growth'. The 'feeling of burden' has statistically significant direct effect on the 'growth' and 'QOL-mental and physical'. The 'growth' has statistically significant direct effect on the 'QOL-mental'. Third, the results of analysis of mediating effects of the 'social support and QOL' and 'feeling of burden and QOL' are as follows. The effects of 'social support' on 'QOL-mental' are significantly mediated by the 'feeling of burden' and 'growth'. The effects of 'social support' on 'QOL-physical' are significantly mediated by the 'feeling of burden'. The effects of 'feeling of burden' on 'QOL-mental' are significantly mediated by 'growth'. Through this research, these implications in social work study and practice are found: (1) this study extended the scope of study in the caregiver's health area from negative sides into positive ones by using growth variables as positive reappraisalof caregiving in research model, which has not been tried on the Korean family caregivers of the cancer patient. (2) The effects of positive reappraisal on QOL-mental can provide a foundational necessity for social workers to help family caregivers find positive meaning in their caregiving experience. This approach of social work practice will improve QOL of family caregivers. (3) This study present a framework including social support, negative appraisal, positive reappraisal, and QOL variables available to social work practice and explaining affective relationships among these variables in various aspects.

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A comparative study of quality of life of families with children born with cleft lip and/or palate before and after surgical treatment

  • Emeka, Christian I.;Adeyemo, Wasiu L.;Ladeinde, Akinola L.;Butali, Azeez
    • Journal of the Korean Association of Oral and Maxillofacial Surgeons
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    • v.43 no.4
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    • pp.247-255
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    • 2017
  • Objectives: The aim of this study was to compare the quality of life (QoL) of parents/caregivers of children with cleft lip and/or palate before and after surgical repair of an orofacial cleft. Materials and Methods: Families of subjects who required either primary or secondary orofacial cleft repair who satisfied the inclusion criteria were recruited. A preoperative and postoperative health-related QoL questionnaire, the 'Impact on Family Scale' (IOFS), was applied in order to detect the subjectively perceived QoL in the affected family before and after surgical intervention. The mean pre- and postoperative total scores were compared using paired t-test. Pre- and postoperative mean scores were also compared across the 5 domains of the IOFS. Results: The proportion of families whose QoL was affected before surgery was 95.7%. The domains with the greatest impact preoperatively were the financial domain and social domains. Families having children with bilateral cleft lip showed QoL effects mostly in the social domain and 'impact on sibling' domain. Postoperatively, the mean total QoL score was significantly lower than the mean preoperative QoL score, indicating significant improvement in QoL (P<0.001). The mean postoperative QoL score was also significantly lower than the mean preoperative QoL score in all domains. Only 3.2% of the families reported affectation of their QoL after surgery. The domains of mastery (61.3%) with a mean of $7.4{\pm}1.8$ and finance (45.1%) with a mean score of $7.2{\pm}1.6$ were those showing the greatest postoperative impact. The proportion of families whose QoL was affected by orofacial cleft was markedly different after treatment (95.7% preoperative and 3.2% postoperative). Conclusion: Caring for children with orofacial clefts significantly reduces the QoL of parents/caregivers in all domains. However, surgical intervention significantly improves the QoL of the parents/caregivers of these children.

Cost Analysis of Long Term Care Services (장기요양보호서비스의 비용분석)

  • Park, Changje;Kim, Soo-Young;Joo, Soo-Hyeon
    • 한국노년학
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    • v.29 no.3
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    • pp.1043-1061
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    • 2009
  • The purpose of this study is to evaluate cost side by type of long term care services economically, and then to discuss the findings and implications for the results of analysis. For this research, primary caregivers that provide care the elderly requiring long term care services sanctioned by National Health Insurance Corporation were drawn and surveyed. Among collected data, data for 422 primary caregivers were used for this study. The subjects used in this study consisted of family caregivers from various settings that give care to the elderly. The results of this study can be summarized as follows. First, caregiver's household income level is low. Therefore, caregiving families with the elderly are likely to have financial difficulties. Second, under coverage of long term care insurance system, the direct cost caregiving households pay for the elderly is still very high. Third, indirect cost of caregiving households accounted for the larger proportion caregiving costs. Fourth, social cost burden for caregiving the elderly is very high. This cost amount is appropriately equal to household income of caregivers surveyed in the research. Fifth, service use cost of caregiving households is differentiated by type of long term care service. Sixth, direct cost of caregiving households is statistically significantly differentiated by type of long term care service, but is differentiated less than service use cost. Seventh, social indirect cost for caregiving the elderly is statistically significantly differentiated by type of long term care service. Eighth, social cost amounts for the elderly utilizing long term care service is very high, total social cost per capita by types of long term care service tend to converge on average social cost per capita of total service.

What Do Mothers Consider When Choosing Screen Media Programs for Their Infants? (유아용 영상미디어 프로그램의 질에 대한 어머니들의 인식)

  • Kim, Yoon Kyung;Lee, Dongmee;Park, Ju Hee
    • Human Ecology Research
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    • v.60 no.1
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    • pp.115-130
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    • 2022
  • This study aimed to understand what factors the mothers of infants consider to be important when choosing screen media programs for their children, and to investigate whether those features differ according to maternal socio-demographic characteristics (i.e., age, education level, employment status, and family income). The study participants comprised 948 mothers who were the primary caregivers and had at least one child aged 4-6. They were asked to select three of the following aspects as critical criteria for determining if a given screen media program is appropriate for infants: (a) contents suitable to the child's developmental level, (b) behaviors of characters, (c) appearance of characters, (d) visual aspects of program, (e) duration of screen media program, (f) whether the screen media program includes instructive contents, and (g) whether the program leads to opportunities for conversations among family members and activities with children. Multiple response frequency analysis and multiple response cross-analysis were used to analyze the mothers' responses. The results revealed that the majority of the mothers reported that 'contents suitable to the child's developmental level' represented the first-ranked criterion for selecting screen media programs for their child, which was followed by 'behaviors of characters,' and 'whether the screen media program includes instructive contents.' However, such criteria for screen media programs for infants differed according to maternal age, education level, employment status, and family income. These outcomes suggest that different information needs to be provided based on maternal characteristics in order to help mothers determine the quality of screen media programs for their infants.