• Child Health Nursing Research
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• 제6권2호
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• pp.199-211
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• 2000

Today, more chronically ill and handicapped children are being cared for at home by a family member caregiver. The task of caring for a family member may feel burden that the caregiver has less time and money and more work. Family functioning and their burden have influence on coping and adaptation of families with chronically-ill children. This study attempted to identify the levels of burden and family functioning in families of children with cerebral palsy and to examine their relationships. The instruments were burden scale developed by Suh and Oh(1993), and a modified Feetham Family Functioning Survey based on Roberts and Feetham.(1982). The subjects were 98 parents of children, under 15 years, who have cerebral palsy and being treated and living in Pusan. Data were collected through a self-administered question- aire from April 26 to May 29. The collected data were tested using frequencies, percentiles, means, t-test, ANOVA, and Pearson correlation coefficient with SPSSWIN program. The results of this study were as follows ; 1. The mean rating scores of burden and family functioning were 2.79±.51 and 4.12±.69, respectively. 2. The relationships between general character- istics and burden were statistically significant difference : degree of children's handicap(F=6.333, P<.01). The relationships between general characteristics and family functioning were statistically significant differences : familial relation with the children(F=3.628, P<.05), caregiver's health status(F=4.359, P<.05), age of children (F=4.185, P<.05), and duration of treatment (F=6.802, P<.01). 3. In families of children with cerebral palsy, there was significantly negative correlation between the burden of parents and the performance of family functioning(r=-.230, P<.05). There were significantly negative correlations between the burden of parents and the satisfaction of family functioning (r=-.211, P<.05), and between the perceived importance and the satisfaction of family functioning(r=-.481, P<.01); however, there was a positive correlation between the performance and the perceived importance of family functioning(r=.425, P<.01). In conclusion, this study suggests that families of children with cerebral palsy need family-focused nursing interventions as supportive care for relieving their burden and for improving family functioning.

• Child Health Nursing Research
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• 제30권1호
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• pp.7-16
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• 2024

Purpose: Children with cerebral palsy (CP) and their parents experience various problems that can affect their quality of life. This study examined factors affecting the quality of life of children with CP. Methods: A cross-sectional study was conducted in Yogyakarta, Indonesia, from January to August 2019. The participants were consecutively recruited children with CP aged 2 to 18 years and their parents. Ninety-eight children with CP and their parents, specifically their mothers, were recruited. Children's health-related quality of life (HRQoL) was measured using the Pediatrics Quality of Life Cerebral Palsy. Parental HRQoL and stress were measured using the WHOQOL-BREF and Parenting Stress Index (PSI). Results: Functional level V was the most common category for both Gross Motor Function Classification System (GMFCS) and Bimanual Fine Motor Function (BFMF) (35% and 28%, respectively). Children's mean HRQoL was medium (49.81±20.35). The mean total PSI score was high (94.93±17.02), and 64% of parents experienced severe stress. Bivariate analysis showed that GMFCS, BFMF, number of comorbidities, presence of pain, and parental stress were significantly correlated with the total score for children's HRQoL (p<.05). Multiple linear regression analysis (p<.05) demonstrated that more severe GMFCS and parental stress were associated with lower mean HRQoL scores in children. Conclusion: Factors including the level of GMFCS and parental stress affected the HRQoL of children with CP. Parental stress management should be included in the comprehensive management of these children.

• 대한통합의학회지
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• 제8권4호
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• pp.183-190
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• 2020

Purpose : The purpose of this study was to investigate the effect of increased gait function enhancement exercise in three adolescent convulsive cerebral palsy sinuses on children's large movement function, balance and gait function, self-efficacy, and guardian attitude. Methods : The purpose of this study was to conduct a program to strengthen trunk muscles and strengthen walking ability 5 times a week for 8 weeks in 3 children with convulsive cerebral palsy in adolescence. The main reinforcement of the program was 20 minutes of muscle strength and 20 minutes of walking on a treadmill five times a week. Exercises were focused on the reinforcement of the flexor muscles of the proprioceptive neuromuscular promotion (PNF) and the extension of the legs in the bridge posture exercise and squat movements. Results : The results of GMFM-88 to determine the effects of this functional enhancement program on the body of children with convulsive cerebral palsy, and PBS & TUG to determine the effects of balance and gait ability were improved. In addition, parenting attitudes of guardians, self-efficacy of children, and self-efficacy of parents increased positively due to mental consequences. Conclusion : The results of GMFM-88 to determine the effects of this functional enhancement program on the body of children with convulsive cerebral palsy, and PBS & TUG to determine the effects of balance and gait ability were improved. In addition, parenting attitudes of guardians, self-efficacy of children, and self-efficacy of parents increased positively due to mental consequences.

• The Journal of Korean Physical Therapy
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• 제6권1호
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• pp.49-60
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• 1994

Stress is experienced when a person tries to maintain stability in the face of life change but is not able to meet the adaptive demands of change. This can be especially true for the parents who has a cerebral palsy childs who needs long term rare, where parents, are the primary source of care and responsibility. Successful coping leads to maintenance of the parents role and this has an effect on the health status of the child. This descriptive study was attempted to identify stress factors, levels and helpful coping patterns for parents who must take care of cerebral palsy children. Data were collected from 43 subjects who were parents of children diagnosed with cerebral palsy The informations gathered from March 25, 1994 to April 14, 1994 by means of structured questionnaires were analyzed. Two instruments were used to collect the data 1) Lee's stress questionnaire consisted of 33 stress factors and measured by four point Likert scale. 2) Modified Chronic Health Inventory for parents: The modified CHIP included 43 items of coping methods with four point Likert scale. The results of this study were as follows: 1) Stress items could have a maximum score of three points, for a total possible score of 132 points. The mean score for the total was 92.02 points. The item mean score was 2.85 points showing that the parents were experiencing moderate to much stress. 2) The items with the highest stress items were 16 items. The stress items with the lowest mean scores were 10 items. 3) Of the stress categories: The highest stress category was related to changes in the illness status of the child and difficulty in taking rare of the child. The second stressful category was related to the prognosis of the child's condition. The least stress was noticed to social-personal relationships and the responsibility of the care givers. 4) Items measuring coping in the parents had a maximum score of three points each with a total possible roping score of 172 points. The mean score for the total was 103,9 paints. The item mean score was 2.42 points indicating that there were responses of little helpful to moderately helpful on each coping pattern. 5) The most helpful coping items were 7 items. The least helpful coping items were 2 items. 6) Effectiveness of the coping for each patterns was examined : Understanding the illness condition from communication with parents of children with the same condition and consultation with the medical team was the most helpful coping pattern. Family's coorperation and integration and optimism were a moderately helpful coping pattern. Social support psychological stability and self esteem were the least helpful toping pattern. In conclusion, the highest stress for parents of children with cerebropalsy was found to be very stressful changes in the illness of the child and to taking care of a child who is suffering. The parents were helped by the coping methods using understanding of the illness condition through consultation with the medical learn and communication with parents in the same situation. Based on the knowledge, care could develop intervention strategies appropriate for them, help them to develop their effective coping patterns, and give support them in the process of coping with their stress.

• 대한물리치료과학회지
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• 제2권3호
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• pp.623-631
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• 1995

1) 뇌성마비아 부모 교육 프로그램에서 집단 교육이 보다 효과적이다. 2) 효과적인 부모교육 프로그램을 위해서 선행되어야 하는 것은, 뇌성마비아의 치료를 담당하는 물리치료사는 물리치료뿐만 아니라 치료 교육적인 측면의 사고와 인식을 갖고 있어야 한다. 또한 집단 교육을 위한 확고한 기준이 확립되어야 하고 감정의 수용이 자유로워야 하며 집단교육의 끝맺음의 시기 정하기, 체계화된 집단 교육의 진행등이 고려되어야 한다. 3) 참여하는 부모들은 자발적인 동기나 자발적인 의지에 의해서 집단교육이 이루어 지도록 해야 한다. 4) 물리치료 과정에서 물리치료사는 부모의 비합리적인 기대의 내용을 잘 파악하여야 하며, 현실적으로 가능한 기대를 가지도록 도와야 한다. 5) 장애에 대한 정보제공의 시기도 중요하다. 6) 물리치료사와 부모가 관계를 맺게 되는 상황과 시기는 매우 중요하며 부모 교육 프로그램에 중요한 단서를 제공해 주고 있다. 7) 부모 교육 프로그램 개발에서 장애아 부모의 태도가 장애요소로 나타날 수 있다. 8) 부모 교육 프로그램 개발에 있어서 대상의 계층을 정하는데 따르는 문제가 있다.

• Journal of Nutrition and Health
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• 제15권2호
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• pp.98-106
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• 1982

This study was carried out to investigate the nutritional status of physically handicapped children with cerebral palsy in order to contribute to their welfare by studying their healthy status, nutrient intake, daily energy expenditure, and living environment. The survey was conducted at two rehabilitation institutions from May 25 to June 30, 1981. A special questionnaire was designed to investigate the living environment. The 24 hr. recall method was used in evaluation the nutrient intake of 67 children. Anthropometric measurement was made of height, weight, chestgirth, upper-arm circumference, and triceps skinfold thickness. The biochemical status of the children with cerebral palsy was assessed with measurement of hemoglobin and hematocrit. The results may be summarized as follows : 1. The children with cerebral palsy, the intakes of all nutrients except vitamin A, thiamin, and ascorbic acid were lower than Korean recommend dietary allowances (1980). They had significantly higher intakes of vitamin A and calcium than the normal children, but the calcium intake was low as 62% of the Korea RDA. 2. All the children with cerebral palsy were very short and low weight in comparison with the accepted standards, but chestgirth was above the accepted standards for Korean school children. 3. The average hemoglobin value was 12.2gm%, hematocrit 39.3%, and mean corpuscular hemoglobin concentration (MCHC) 31.1%. 4. The possible etiological factors of cerebral palsy were, prenatal factors 16%, natal 44.9%, postnatal 27.5%, and unknown 11.6%. Eighty four percent of the children showed their first symptoms within the first year after birth. 5. Thirty percent of the parents said that the handicapped children lead to marital problems, and 84.1% of the parents mentioned that medical expenses for the children influenced their family finances.

• 동의신경정신과학회지
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• 제21권1호
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• pp.13-42
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• 2010

Objectives: This study is to investigate the method for assesment of cerebral palsy(CP), especislly focusing on function assesment Methods: We searched the recent date of the publication and paper in Cerebral Palsy Results: Measuring the function of children with cerebral palsy is mobility, self-care and social ability. Early adequate evaluation of motor development and prognosis of degree of long-term motor disability is very important not only for parents, but also for correct management of goal oriented rehabilitation treatment and for planning of preventive measures. 1. Gross Motor Function Classification System(GMFCS) is valuable to prognostication about gross motor progress in children with CP, using longitudinal observation. 2. Gross Motor Function Measure(GMFM) is the instrument most commonly used to measure gross motor function in children with cerebral palsy(CP). 3. Pediatric Evaluation of Disability Inventory(PEDI) is one of the most commonly used assessments for children with a disability. Conclusions: The functional Assesment of children with CP are used GMFCS, GMFM and PEDI.

• The Journal of Korean Physical Therapy
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• 제26권5호
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• pp.315-323
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• 2014

Purpose: This study was conducted in order to investigate the effect of motor ability on mastery motivation in children with cerebral palsy. Methods: Sixty children with cerebral palsy (5~12 years) and their parents participated in the study. Data on general characteristics and disability condition, Gross Motor Functional Classification System, Manual Ability Classification System, and The Dimensions of Mastery questionnaire were collected for this study. Independent t-test, and ANOVA were used for analysis of the effect of The Dimensions of Mastery questionnaire according to general and disability condition, Gross Motor Functional Classification System, and Manual Ability Classification System. Linear regression analysis was performed to determine the effects of Gross Motor Functional Classification System and Manual Ability Classification System on The Dimensions of Mastery questionnaire. SPSS win. 22.0 was used and Tukey was used for post hoc analysis, level of statistical significance was less than 0.05. Results: The Dimensions of Mastery questionnaire score showed statistically significant difference according to gender, region, type, disability rating, Gross Motor Functional Classification System, and Manual Ability Classification System (p<0.05). Gross Motor Functional Classification System and Manual Ability Classification System were the effect factor on The Dimensions of Mastery questionnaire significantly (p<0.05). Conclusion: These results suggest that motor ability of children with cerebral palsy was an important factor having an effect on The Dimensions of Mastery questionnaire.

• PNF and Movement
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• 제18권2호
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• pp.159-172
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• 2020

Purpose: The study sought to determine whether goal achievement, performance, satisfaction, activities of daily living, and gross motor function in children with spastic cerebral palsy are positive affected by goal-oriented functional task training. Methods: In a single case study, two 7-year-old girls diagnosed with spastic cerebral palsy were given functional task training based on individualized goals for 24 60-minute sessions over a period of 6 months. The individualized goals reflected the needs of both children and parents. The Canadian occupational performance measure (COPM) and the goal attainment scale (GAS) were used to measure goal performance and satisfaction before and after intervention. Independence of activities of daily living before and after intervention were assessed using the functional independence measure for children (Wee-FIM). And change of gross motor function were assessed using gross motor function measure (GMFM). Results: Clinically significant changes were observed in COPM and GAS, as well as positive changes in independence of gross motor function and activities of daily living. Conclusion: The findings indicate that goal-oriented functional task training addresses the needs of children with spastic cerebral palsy, which increases treatment satisfaction and has a positive effect on independent activities and participation in daily life.

• 대한물리의학회지
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• 제15권4호
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• pp.75-85
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• 2020

PURPOSE: Cerebral palsy is a common cause of disability in children, requiring constant rehabilitation. Improving balance in children with cerebral palsy helps to alleviate daily movement and the quality of life. This study examines a program that combines Resistance Exercise and Group Exercise, and investigates the effect on trunk control ability, balance ability, maximum grip strength, and quality of life of children with cerebral palsy. METHODS: Totally, 9 children with cerebral palsy participated in this study. Resistance exercise was performed for 8 weeks, 40 minutes every day. Group Exercise was conducted for 8 weeks, 40 minutes each Sunday. All participants were evaluated by the Korean version of the trunk control measurement scale, pediatric reach test, grip strength test, and KIDSCREEN-52. RESULTS: The trunk control ability was significantly improved in all subcategories (p < .05). In the pediatric reach test, the left and right directions were significantly improved (p < .05). Maximum grip strength was significantly improved in both hands (p < .05). The quality of life significantly improved in total score, physical well-being, general moods, self-perception, autonomy, relationship with parents, and home life (p < .05). CONCLUSION: Considering the encouraging results, we propose to use Resistance Exercise and Group Exercise as programs other than rehabilitation treatment in hospitals, to improve motor function and quality of life of children with cerebral palsy.