• Journal of the Korean Data and Information Science Society
• /
• 제25권1호
• /
• pp.37-52
• /
• 2014

본 연구는 가정 호스피스완화의료 제도도입방안 연구의 일부로 가정호스피스 기관들의 실태를 파악하여 가정 호스피스완화의료 표준지침 개발을 위한 기초자료로서 활용하기 위해 시행되었다. 별도의 인력을 배정하고 지속적으로 가정호스피스를 운영하고 있는 7개 기관의 실무자들을 대상으로 개방식 서면조사와 포커스그룹 인터뷰를 실시하였다. 인터뷰에 참여한 기관들은 24시간 on call 서비스, 의사와 간호사, 사회복지사, 사목자를 포함한 호스피스팀 구성, 정기적 팀회의, 사별가족관리 등을 가정 호스피스완화의료의 필수사항으로 여기고 있었고, 필수 시설은 방문간호사 사무실 및 물품준비 공간, 필수 장비는 방문용 가방으로 파악되었다. 방문을 가장 많이 하는 인력은 간호사였고, 가정방문서비스를 위한 전담인력을 두어야 한다는 데에 합의하였다. 가정호스피스 활성화의 장애요인으로 가정 호스피스에 대한 보험수가보상이 없어 팀원의 방문이 제한적이고, 집에서 처방변경이 어려우며, 24시간 주 7일 입원연계가 어려운 점, 가정 내 돌봄제공자가 없는 경우가 늘어나고 있는 점 등이 제시되었다. 가정호스피스 제도화를 위해 가정호스피스 서비스의 표준 개발은 매우 시급하고도 중요하며, 이에 본 연구의 결과는 서비스 표준안의 초안 마련에 근거자료로 활용될 것이다.

• Journal of Hospice and Palliative Care
• /
• 제11권1호
• /
• pp.12-29
• /
• 2008

목적: 본 연구는 의사, 간호사, 사회복지사, 사목자, 자원봉사자로 구성된 호스피스팀원들이 각자의 전문영역에서 중복되지 않으면서 필요한 정보를 효과적으로 공유할 수 있는 표준화된 기록지를 개발하여 호스피스 대상자들에게 적절한 돌봄을 제공하는데 도움을 주고자 수행되었다. 방법: 초기 개발된 기록지를 근거로 문헌 고찰과 전문가 집단의 자문을 통해 수정 보완하는 델파이 기법을 이용한 방법론적 연구이다. 결과: 각 전문가별로 총 27명의 자문가의 의견을 수렴하여 최종 11가지 가정 호스피스 팀 기록지가 개발되었다: 등록기록지, 초기 평가기록지 (의사용), 경과기록지(의사용), 방문 기록지 (간호사용, 봉사자용), 영적돌봄 초기 면담지, 방문 기록지 (사목자용),사회적 돌봄 면담지 (사회복지사용), 사별가족 초기 면담지, 사별가족 돌봄 기록지, 종결 기록지. 결론: 본 연구를 통해 개발된 11종의 호스피스 팀 기록지는 가정호스피스 팀원간의 의사소통을 원활히 하고 질 높은 서비스를 제공하는데 기여할 수 있으리라고 기대된다.

• 호스피스학술지
• /
• 제2권1호
• /
• pp.41-57
• /
• 2002

This study was done to examine spiritual well-being of hospice care service volunteers for the purpose of providing them with programs promoting coping skills in response to the wholistic needs of patient effectively, also providing data for professional or nonprofessional hospice training program. Subjects were 123 volunteers serving in 6 hospice centers in Jeonbuk province at present. Data collection were done from 16 Oct. 2000 to 17 Nov. 2000. questionnairs were consisted of activities of hospice care service volunteer and spiritual well-being. The study results were as follows 1.Mean of activities of hospice care service volunteers were 2.433, those activities were divided into 5 categories such as spiritual, activities of volunteer for themselves, psychosocial, physical area and bereavement. The highest mean score was spiritual area 2.578, activities of volunteers for themselves 2.525, psychosocial area 2.456, physical area was 2.359 and the lowest mean score was bereavement area 2.130. 2.Spiritual well-being of hospice care service volunteers was 5.25, the highest mean. In subcategories of spiritual well-being, religious spiritual well-being was higher than existential spiritual well-being, mean score for each one was 5.41, 5.10. 3.Statistically significant relations among demographic characteristics such as gender(t=2.72, P=.008), status of marriage(t=6.067, P=.003), occupation(F=3.795, P=.025), frequency of visiting for volunteered hospice care(F=3.833, P=.024) were noted. 4.Statistically significant demographic characteristics of hospice service volunteers was religion(t=-4.38, p=0.000), status of marriage(F=3.505, p=0.033), frequency of visiting for volunteered hospice care(F=3.107, p=0.048), level of satisfaction from hospice care volunteer service(F=3.610, p=0.030), hospice service volunteers doing more home visiting(5-9times/month) had higher status of spiritual well being than volunteer with less home visiting(1-4times/month) 5.A significant relationship between activities of hospice service volunteers and status of spiritual well-being was noted(r=.236, p=.004), activities of hospice service volunteers was related to both subcategories of spiritual well-being such as religious well-being(r=.210, p=.010) and existential well-being(r=.208, p=.011). From the results of the study It is noted that status of spiritual well-being for hospice volunteers influences on service activities. It means spiritual well-being should be considered as a essential character for hospice service volunteers, it also means that managing and maintaining of status of spiritual well-being for hospice service volunteers is important. On the base of the study recommendation are made as follows: 1.Considering status of spiritual well-being for hospice care service volunteers is needed to promote hospice care activities. 2.It is necessary to develope spiritual well-being programs for hospice care service volunteers and further study for effect validation of them is needed. 3.Further study to sort out effecting variables for hospice care service volunteer activities is needed. 4.It will be desirable to have spiritual well-being information included in the hospice education program.

• Journal of Hospice and Palliative Care
• /
• 제1권1호
• /
• pp.39-46
• /
• 1998

목적 : 오늘날 호스피스 운동은 만성질환자가 급격히 증가함에 따라 인간의 삶을 추구하여 이루어낸 가장 완벽한 대답의 하나가 되고 있다. 우리의 1996년, 1997년의 연구에서 말기환자와 그 가족들에 대한 조사를 통해 한국 호스피스의 현재 상황을 파악하였다. 또한 호스피스케어 팀과 자원봉사자와 호스피스환자 관리를 위한 정보서비스 시스템을 개발하였다. 본 연구는 호스피스 정보서비스 시스템를 통한 간호사의 가정방문 호스피스케어와 그 문제점을 분석하였다. 방법 : 1997년 10월 1일부터 1998년 3월 31일까지 서울대학교병원 등에서 의뢰받은 26명의 말기암환자를 대상으로 하였다. 데이터 베이스와 홈페이지를 통해 호스피스케어에 필요한 정보를 갖춘 호스피스 정보서비스 시스템을 인터넷을 통해 방문간호사에게 제공하였고 방문간호사들은 이 시스템을 교육받고 환자 방문시 노트북 컴퓨터를 소지하여 호스피스 정보서비스 시스템을 통해 호스피스케어를 제공하였으며 첫 방문시와 호스피스케어동안에 환자들의 신체적 심리적 사회적 자료를 수집하였다. 결과 : 연구기간동안 26명중 16명이 사망하였으며 사망자의 평균 생존기간은 20.7일이었다. 첫 방문시 식욕부진(96.2%), 거동장애(88.5%), 통증(84.6%)이 주요한 증상이었으며 226개의 간호진단 중 영양부족과 통증이 가장 흔한 진단이었다. 가족은 환자보다 호스피스케어를 더 잘 이해하고 더 요구하였다. 대부분의 환자와 가족들은 간호사에게 영적 사회적 간호를 요구하지 않았다. 결론 : 시범사업을 통해 환자와 방문 호스피스 간호사에게 통증과 영양 관리에 대한 보다 많은 정보를 제공하여야 하여야 함을 알 수 있었다. 호스피스 정보서비스 시스템은 영적 사회적 케어에 대한 정보와 인력을 보안되어질 필요가 있다.

• 한국보건간호학회지
• /
• 제18권1호
• /
• pp.178-186
• /
• 2004

The purpose of this study was to analyze the work of visiting health care providers in public health centers. A descriptive analysis of self-records for work data from 875 visiting health care providers working in 242 public health centers in South Korea was done. The results of the study are as follows: 1. The number of households for each visiting health care provider ranged from under 100 households to over 500 households. 2. Low performance was found for several items on the work list for visiting health care providers. 3. There were significant differences in the work performance of visiting health care providers between nurses and nursing assistants. 4. There were significant differences in the work performance of visiting health care providers according to region. In conclusion. work performance of visiting health care providers was low and differed according to type of occupation and region. This study suggest the need for further studies which analyse the quality of visiting health care providers and services, and the visiting health care system.

• 대한간호
• /
• 제36권3호
• /
• pp.49-69
• /
• 1997

The urgent needs to establish hospice care systems in Korea arise from the following reasons: 0) a drastic increase in chronically ill patients with the increase of aged population: (2) rapid changes in living environment from the traditional habitation (e. g., Many Koreans living in apartment complexes, which is the most popular form of modern residence in recent years, prefer to die in the hospital.): the overall increase in patients with advanced cancer: (4) recent trends in early discharge of terminally ill patients from the limited hospital facilities to accomodate other medical insurance beneficiaries; (5) easy acceptance of euthanasia owing to the recent social atmosphere that belittles the dignity of human life; (6) medical and nursing care of AIDS patient in terminal stage; (7) and the problem associated with inhumane medical care system, overtreatment, and groundless fears against narcotics. Terminally ill patients were used to be treated in the hospital in the past. In these days, however, they are forced to have home cares with little assistance from the qualified medical personnel because of insufficient hospital facilities, which are even short for the need of emergency patients and provide priority cares to medical insurance beneficiaries with other acute problems. And yet, neither are there any administrative organizations nor systematic medical studies that deal with the level of terminally ill patient's need, their family's problems and resources of hospice care systems in Korea. Thus, most patients are not able to get appropriate medical care at the terminal stage of their lives. The objective of this study is to make comprehensive database for various hospice care organization currently in operation, link them through medical information system, and develop an easily accessible hospice care model that meets the need of most Korean people. Our survey results may be summarized as follows: Nationally there are 40 organizations that provide partial or full hospice care. However, these organizations are not linked to any formal medical service network. Furthermore, the objective of hospice care, care principles, personnel with appropriate training, educational programs, standard for care, costs, consulting service to patients' family members, the extent of medical care from professional staff members, status of hospice facility, and management of those institutions are neither clearly defined nor organized compared to the international hospice care standards. The surveys on patients of terminal stage. grouped in hospice and non-hospice care patients. reveal what they want visiting nursing care to help their pain control. psychological. social and spiritual demands. While the more than 90% of hospice care patients want to reduce their pains. the non-hospice care patients. in addition to their desire for pain control. demanded more psychological. social and spiritual helps as well. The results of this research could be utilized to 0) define the standard of hospice care. (2) provide the guidance for hospice medical care costs. (3) establish the database of hospice care systems. (4) develop softwares. (5) build communication network through Medinet. and (6) provide an organized visiting home nursing care system. These information should be a valuable resource to many medical staffs who are involved in cancer therapy. nursing care. and social welfare programs.

• 보건의료산업학회지
• /
• 제10권3호
• /
• pp.85-97
• /
• 2016

Objectives : In this study, the awareness of hospice and the perceptions on the need for visiting palliative care and what constitutes a good death of the citizens of Busan were investigated. The purpose of this study was to develop a hospice system based on the needs of the citizenry of Busan by seeking solutions for current hospice strategies. Methods : One thousand Busan citizens from 20 to 80 years of age were surveyed in this study. Results : Busan citizens defined a good death as spending less than one month of time in the actual process of dying at home between the ages of 80-89 years. They knew about hospice a little and were aware of its necessity. They also knew about the necessity of visiting palliative care and were interested in receiving it when appropriate but did not know much about it. Conclusions : First, there is a large difference between Busan citizens' expectations on what constitutes a good death and what a good death really is. Second, Hospice palliative care should be provided to the community. Third, the older the patient is, the more palliative care visits are necessary. Fourth, 40s and 50s must make preparations for hospice palliative care in their future.

• 호스피스학술지
• /
• 제6권2호
• /
• pp.69-78
• /
• 2006

Purpose: This study was conducted to analysis relationship about quality of life and family burden of the home-based hospice patient families. Method: The subjects consisted of 94 families with home-based hospice patient. The ages of the subjects were 17-73 years with hospice patient who receivedhome visiting care and registered at 4 hospitals in Daegu and Kyung-Buk. The data was collected from March to November 2004. The instruments used for the study were Quality of Life Scale (GLS) and Family Burden Questionnaire (FBQ). The analysis was done using frequency, mean, standard deviation, correlation and stepwise multiple regression with SPSS WIN 11.0. Results: The results were as follows: 1. The mean score of family burden was 3.36 ($\pm0.55$). The highest mean score of family burden 6 factors were wellness of future 3.85($\pm1.10$), and the second was economic family burden 3.63($\pm0.97$). 2. The mean score of quality of life was 3.09 ($\pm0.48$). The lowest score of quality of life 6 factors were economic status 2.86($\pm0.54$), and the second was physical state and function 3.01($\pm0.62$). 3. In the home-based hospice patient families, family burden had significant negative correlation with quality of life(r=-0.25, p=0.012). 4. Emotional status accounted for 11% of family burden in the home-based hospice patient families by means of stepwise multiple regression. 5. Economical status accounted for 18 and age accounted for an additional 11% of quality of life in the home-based hospice patient families by means of stepwise multiple regression. Conclusion: The finding showed that family burden and quality of life of home-based hospice patient families were significantly negative correlation and the highest factor of family burden was wellness of future and the most important factor of quality of life was economic status.

• 한국농촌간호학회지
• /
• 제16권2호
• /
• pp.60-68
• /
• 2021

Purpose: This case report was attempted to present the process of the end of life nursing care provided by the visiting nurse. Methods: The subject was a person who was decided the long-term care Grade 1 and received a visiting nursing service, and the service was terminated on the death, and then was selected as a case with the consent of his family. The data were collected through long-term care benefit provision records and interviews with the visiting nurse. The nursing process was presented by applying the Omaha System. Results: The subject had digestion-hydration problems and respiration problems in the physiological domain, and the problems of role change, caretaking/parenting, spirituality, and grief in the psychosocial domain were identified. Depending on the problem, the end of life nursing care was provided to the subject and family members through activities on physical symptoms/signs, dietary management, end-life care, and coping skills. Conclusion: We expect that if the visiting nurse provides anticipatory guidance on the death process, the subject will be able to prepare for death comfortably with the family at home instead of vague fear of death.

• 호스피스학술지
• /
• 제7권1호
• /
• pp.29-45
• /
• 2007

People in the end of life and their families suffer in their physical disease and other aspects as a whole person. They need hospice care to palliate their total suffering in physical, emotional, social and also spiritual aspect through professional hospice team. To care their whole personal needs, hospice team must be a multi-discipline team which consists of medical doctors, nurses, social workers, pastors and volunteers. Recently those who die in hospice palliative care unit have trend to increase more than in home year by year. So it is necessary to develop the nursing intervention program to be performed by multi-discipline team approach for in-patient of hospice palliative care unit. The purposes of this study were to develop of wholistic hospice nursing intervention program for inpatient of hospice palliative care unit. The subjects of study were collected from 30 patients those who were over 18 years old and admitted in hospice palliative care unit of S hospital in P city with agreement in hospice palliative care in their terminal disease. The period of data collection was from December 15, 2003 to March 15, 2004. The result were as follows : 1. The result of Wholistic Hospice Nursing Program's development was as follow : A Wholistic Hospice Nursing Program was developed by me in this study is one of the service program for hospice palliative care unit. It was named as ‘Rainbow Program’ to be approached easily by hospice patients. The purposes of it are to improve the quality of life of the terminal patients with their dignity, to help them live in abundant and meaningful in their lives, to care them in peaceful in dying process with understanding them in whole personal, and also to palliate the grief and suffering of the bereaved. It was provided by hospice professionals(nurses, medical doctors, social worker, pastors, art therapists) and volunteers those who were educated in hospice for multi-diciplinary team approach to collaborate with each role play I 20-30 minuters of each through visiting their rooms individually and a place of hospice palliative care unit of S hospital in P city. The subjects of it were the terminal patients those who admitted hospice palliative care unit and their familes. with agreement in hospice palliative care in their terminal disease. The characteristics of it were multi-disciplinary team approach, whole personal care, individual care and total care according to their needs in their condition. The contents of it were pain control, symptom control, counseling patient, counseling family, hair cutting, hair shampooing, bed bath, recreation, taking a walk, event of culture(screen, recital, festival of praises, exhibition and so on), pastoral counseling, ritual service in bed, praying, service in bed, sing a worship praise, listening to the music, sharing remembrance of life, individual visiting music service(sing and praying), meditation Bible, art therapies(dance and drawing), social worker's counselling, confessing and sharing love and thanksgiving. The experimental group subjects participated in Wholistic Hospice Nursing Program which takes 120 minutes per session, total 10 sessions(total 1,200 minutes) altogether. In conclusion, this Wholistic Hospice Nursing Intervention can be used actively for whole personal well-being of the patients in hospice palliative in hospice palliative care unit and also applied in hospice practice as an useful model of multi-disciplinary team approach by hospice professionals.