• 제목/요약/키워드: Family-centered care

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초등학생이 경험하는 삶의 의미: 의미요법의 주요개념에 따른 내용분석 (Experiences of Meaning in Life among Elementary School Students: Content Analysis Based on Major Concepts of Logotherapy)

  • 강경아
    • Child Health Nursing Research
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    • 제23권1호
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    • pp.37-47
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    • 2017
  • Purpose: The purpose of this study was to explore the experience of the meaning in life for elementary school students. Methods: The conceptual framework was based on the five main concepts (meaning in life, creativity, experiences, attitudes, choice and responsibility) of logotherapy. Data from 1,600 higher grade elementary school students were analyzed for content of meaning in life. Results: The experiences of meaning in life were identified as follows: Important things in my life (people close to me, things that brings me happiness, to live in earnest, surrounding environment), Activities I like to do (relaxing, achievements, family relationships), Experiences that made me feel like I am loved (taken care of by family, material recompense, being respected), Times when I feel grateful (receive love and care, health), Importance of choices (consequences of bad choices, result of good life choices). Conclusion: These results suggest that elementary school students can understand meaning-centered health education and this kind of education is necessary to promote their wholistic health.

일 병원의 환자중심 지능형 병상 지원(Smart Bedside Station) 시스템의 이용현황 및 사용 만족도 (Utilization of and Satisfaction with Smart Bedside Station System as a Patient-centered Healthcare System)

  • 조문숙;박연환
    • 근관절건강학회지
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    • 제24권2호
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    • pp.89-100
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    • 2017
  • Purpose: The aim of this study was to examine the utilization of and satisfaction with the smart bedside station (SBS) system among users in a hospital. Methods: A cross-sectional descriptive design was used. The participants were 190 patients, 186 family caregivers, and 154 nurses in a hospital. Results: Around 78.1% of patients or family caregivers used the SBS system at least once during their hospital stay. The commonly used items on the SBS system menu were "lab findings", "hospital cost", "today's medication", and the "alarm message". Satisfaction with the SBS system of patients and family caregivers were significantly higher than those of nurses (F=39.88, p<.001). Conclusion: A patient-centered SBS system was a useful system that could increase patient satisfaction and comfort. More specific and technical service contents reflecting the current healthcare system should be added.

신생아집중치료실 입원 환아 부모의 간호요구 (Nursing Needs of the Parents of Infants in Neonatal Intensive Care Unit)

  • 박지선;방경숙
    • 동서간호학연구지
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    • 제20권2호
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    • pp.136-144
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    • 2014
  • Purpose: The purposes of this study were to identify the perceived nursing needs and the differences by general characteristics of parents of infants in a neonatal intensive care unit (NICU) and to provide useful evidences developing a new intervention for family-centered care in NICU. Methods: A convenience sample of 121 parents of infants in NICU was used and the participants asked to complete the Korean version of NICU Family Needs Inventory (NFNI) from April to May, 2014. Data were analyzed using descriptive statistics, t-test and ANOVA. Results: The participants reported high average score in the perceived nursing needs. In subscales, needs for assurance rated highest score and needs for information, proximity, support, and comfort were followed. Mothers reported higher nursing needs score than fathers except the subscale of support. Conclusion: The findings suggest that nurses in NICU actively provide information about treatment, nursing, results of laboratory tests, and current status to give reassurance to parents. Not only providing informational support of parents of NICU infants, but also finding methods to contact to parents is necessary. In addition, nurses need to provide optimized intervention in current healthcare system and hospital environment.

베트남 결혼이주여성의 임신, 분만, 산욕기 건강관리 경험 (Health Care Experiences of Vietnamese Marriage Immigrant Women during Pregnancy, Childbirth, and Postpartum Period in Korea)

  • 김선희
    • 한국보건간호학회지
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    • 제29권2호
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    • pp.325-343
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    • 2015
  • Purpose: This study was conducted in order to identify and describe the experiences of health care during pregnancy, birthing, and postpartum period for Vietnamese marriage immigrants. Methods: The participants were 15 Vietnamese married immigrant women who became pregnant and gave birth within the last five years. Data were collected by in-depth interview with Vietnamese women. Data were analyzed using Colaizzi's method of phenomenology. Results: Six theme clusters were extracted as follows: 'being left with no other option in loneliness and longing filled in a limited life', 'continued trials and errors amidst frustration and fear', 'silently following orders despite the quality of medical services that change with each medical care provider', 'compromise by selecting amidst confusion between the Korean way and the way at home', 'depending on family, who is the communication channel, but becoming disappointed', and 'finding the reason for existence and struggling by herself to become a mother amidst doubled confusion'. Conclusion: A program for effective empowerment of Vietnamese immigrant women should be developed. In addition multicultural family centered programs should be developed with emphasis on acceptance of women's culture, respect for her culture, and supports. Medical staffs and nurses should also improve culturally sensitive competence in order to provide care for immigrant women.

Palliative Care for Adult Patients Undergoing Hemodialysis in Asia: Challenges and Opportunities

  • Wei-Min Chu;Hung-Bin Tsai;Yu-Chi Chen;Kuan-Yu Hung;Shao-Yi Cheng;Cheng-Pei Lin
    • Journal of Hospice and Palliative Care
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    • 제27권1호
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    • pp.1-10
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    • 2024
  • This article underscores the importance of integrating comprehensive palliative care for noncancer patients who are undergoing hemodialysis, with an emphasis on the aging populations in Asian nations such as Taiwan, Japan, the Republic of Korea, and China. As the global demographic landscape shifts towards an aging society and healthcare continues to advance, a marked increase has been observed in patients undergoing hemodialysis who require palliative care. This necessitates an immediate paradigm shift to incorporate this care, addressing the intricate physical, psychosocial, and spiritual challenges faced by these individuals and their families. Numerous challenges impede the provision of effective palliative care, including difficulties in prognosis, delayed referrals, cultural misconceptions, lack of clinician confidence, and insufficient collaboration among healthcare professionals. The article proposes potential solutions, such as targeted training for clinicians, the use of telemedicine to facilitate shared decision-making, and the introduction of time-limited trials for dialysis to overcome these obstacles. The integration of palliative care into routine renal treatment and the promotion of transparent communication among healthcare professionals represent key strategies to enhance the quality of life and end-of-life care for people on hemodialysis. By embracing innovative strategies and fostering collaboration, healthcare providers can deliver more patient-centered, holistic care that meets the complex needs of seriously ill patients within an aging population undergoing hemodialysis.

Analysis of research on developmentally supportive care for prematurity in neonatal intensive care unit: a scoping review

  • Lee, Hanna;Park, Ji Hyeon;Cho, Haeryun
    • Child Health Nursing Research
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    • 제28권1호
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    • pp.9-22
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    • 2022
  • Purpose: The purpose of this study was to identify the gaps in research related to developmentally supportive care in the neonatal intensive care unit (NICU). The ultimate goal was to explore directions of further research on developmentally supportive care for premature patients. Methods: The Arksey and O'Malley scoping review method was used. Articles on developmentally supportive care for preterm infants in the NICU, written in English or Korean, were identified through electronic search engines. A total of 279 papers were identified in the initial search, of which 22 full-text papers were included in this review. Results: Several nursing studies have been published in the past 5 years. The important elements of developmentally supportive care were family-centered care and management of the NICU environment. The primary developmentally supportive care interventions were training programs to promote the care competency of NICU nurses. Conclusion: It is necessary to actively develop comprehensive developmental support interventions that consider the various elements of developmentally supportive care for preterm infants. Additional studies should be done to develop programs that provide direct intervention for premature infant and their families.

Clinical Experience of Nurses in a Consultative Hospice Palliative Care Service

  • Sinyoung Kwon;Jinyee Byun
    • Journal of Hospice and Palliative Care
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    • 제27권1호
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    • pp.31-44
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    • 2024
  • Purpose: The purpose of this qualitative study was to employ Colaizzi's phenomenological research method to elucidate and understand the essence of practical experiences among consultative hospice palliative care nurses working in hospice institutions. Methods: The participants in the study were 15 consultative hospice palliative care nurses with over 1 year of work experience in institutions located in S City, I City, and K Province in South Korea. Data were collected from 23 in-depth interviews and analyzed using Colaizzi's phenomenological qualitative method. Results: The practical experiences of consultative hospice palliative nurses were categorized into five categories, 10 theme clusters, and 25 themes. The five categories included "being aware of patients' situations at the time of transition to hospice palliative care," "empathizing with patients and their families by putting oneself in the other's shoes," "providing patient and family-centered end-of-life care," "experiencing difficulties in practical tasks," and "striving to improve hospice service quality." Conclusion: This study is significant in that it provides practical data for understanding the experiences of consultative hospice palliative care nurses caring for terminally ill patients. This could enhance our understanding of care solutions that effectively tackle the challenges consultative hospice palliative care nurses encounter while fulfilling their roles.

치매노인의 거주형태 및 서비스유형에 따른 간호관리의 효과분석 (A Study on the Effectiveness of Care of Patients with Alzheimer s Disease According to Residence Arrangement and Types of Services)

  • 홍여신;박현애;조남옥
    • 대한간호학회지
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    • 제26권4호
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    • pp.768-781
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    • 1996
  • The problem of care of patients and families with Alzheimer's disease has become a conscious raising social policy issue in Korea. The government of the Republic of Korea has become cognizant of the situation and has begun searching for ways to remedy it. Thus, there is a need for a comprehensive under-standing of the situation in which patients and their families are struggling and the enormous problems of care. With a realization of the urgent need, this study was done to investigate the situation and the care needs of families with patients with Alzheimer's Disease, and to compare the effectiveness of services utilized by the families in terms of cost and effects on patient's conditions and on family live. The Subjects for the study were 29 families with hospitalized patients, 25 families utilizing hospital outpatient clinics, 14 families utilizing day care facilities, and 16 families with homebound patients. A total of 84 families were interviewed by four trained interviewers using structured and semistructured questionnaires. The data produced from these interviews included : the patient's stage of Alzheimer's disease, patient's bizarre behavior, hours spent on patient care per day, family burden and quality of life, direct and indirect costs encountered in the care of patients, and the families' evaluation of the effectiveness of the services received. The data were analyzed to determine the relationships between family charactersistics, patient's conditions and services utilization. The effectiveness of each of the service entities was assessed through families evaluation and hoped for service and comparisons were made between services in terms of the cost-effectiveness ratios. After initial comparison of cost-effectiveness ratios, further analysis was done to compare between groups for incremental effectiveness for each incremental unit of cost to determine the most cost-effective service entities. The findings of the study are as fellows : 1. The choice of living arrangement and the types of services are a function of the stage of Alzheimer's condition and the economic status of the family. 2. Comparision of the cost of care showed that most expenses were encountered in by families with hospitalization, families using outpatient services, and families using day care services in that order. The least expense was involved in the care of homebound patients. The economic burden felt by families was in the same order as expenses. 3. The average number of hours spent on daily patient care was 9.9 hours for the outpatient clinic users, 9.7 hours for homebound patients, and 5.4 hours for day care users. 4. There were significant differences in the patient's conditions (CDRL), bizarre behaviors and the families's burden by living arrangement and /or types of service. However, no significant difference was found between groups in the family's quality of life. 5. The families rated the services of day care center as most effective for the care of the patients and families, except for a few families who had experienced some improvement in the patient's conditions. The outpatient clinic users expressed psychological comforts mainly in that the patient was being taken care of. For those hospitalized patients, families expressed the comfort of being relieved of the burden of care and that the patient is being professionally cared for. Form the analysis of the costs, hours of patient care, patient's bizarre behaviors, family's quality of life and burdens, and family's evaluation of services, it is concluded that up to the mid stage of Alzheimer's condition, the utilization of day care center services is found to be the most cost-effective, and toward the end stage of the Alzheimer's disease, it is hoped that there will be a establishment of long term or short term in-patient facilities for the protection of patients and preservation of the integrity of families for less cost. Thus. it was concluded that the family centered system of care is the most effective for Korea with systematic support systems developed for the care of patients and their families according to the needs of families as the patient's condition deteriorates.

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말기 환자의 공유 의료적 의사결정에 관한 의료인의 인식 유형 (Types of Shared Medical Decision Making for Terminally Ill Patients)

  • 조계화;김균무
    • Journal of Hospice and Palliative Care
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    • 제17권4호
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    • pp.278-288
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    • 2014
  • 목적: 의료가 복잡하고 전문화된 최근에는 의료학문간 소통과 융합이 강조되고 있다. 병원업무는 환자를 중심으로 여러 분야의 협동 체계를 통한 의사결정의 효율성이 요구된다. 이 논문은 말기 환자에 대한 의사와 간호사의 공유 의료적 의사결정에 대한 인식을 알아보고자 한다. 방법: Q 방법론을 적용하여 35개의 Q 진술문을 9점 척도의 정규분포로 39명에게 작성하도록 하였다. 수집된 자료는 QUANL PC 프로그램으로 분석하였다. 결과: 환자결정형, 의사결정형, 의료인 공유결정형, 환자 가족 결정형의 네 가지 유형으로 나타났다. 공통적으로 동의한 항목은 충분한 설명과 치료과정의 공유, 교육 등으로 나타났고, 부정적으로 생각한 항목은 치료에 법적 측면을 고려에 대한 내용이었다. 제1유형은 환자의 요구와 가치관을 존중하는 환자중심의 의사결정 방식을, 제2유형은 의사가 결정을 내리고 환자가 이를 따르는 방식을, 제3유형은 의료인 상호간의 협력적인 의사 공유를, 제4유형은 의료인뿐 아니라 가족 참여의 의사결정을 중요하게 생각하였다. 결론: 의료인 간의 생각이 다양하다는 것을 보여주며, 일반인과도 의견의 차이를 보여준다. 의사결정에 대한 의견의 공유와 추가적인 연구가 필요할 것으로 생각된다.

환자중심성의 개념적 구성 요소: 환자와 가족구성원의 관점 (Conceptual Constructs of Patient Centeredness: Perspective of Patients and Family Members)

  • 김은나;옥민수;신유경;조민우;이진용;도영경
    • 한국의료질향상학회지
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    • 제25권2호
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    • pp.26-43
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    • 2019
  • Purpose:The objective of this study was to identify the conceptual constructs of patient centeredness from the perspective of patients and family members in Korea, and to compare them with those included in the Picker Institute framework. Methods: Two focus group discussions were conducted. Each focus group consisted of six participants who had experienced being either a patient or a caregiver. We carried out a thematic analysis, and then compared the contents of our focus group discussions with the components of patient-centered care outlined by the Picker Institute. Results: Six conceptual constructs of patient centeredness emerged from the focus group discussions. Five of these overlapped with those outlined by the Picker Institute: 1)respect for patients' values, preferences, and needs, 2) coordination and integration of care, 3) information, communication, and education, 4) physical comfort, and 5) emotional support and alleviation for fear and anxiety. A new component that was not mentioned in the Picker Institute framework emerged from this study: "ease of making a complaint." Currently, "involvement of family and friends" and "continuity and transition" were not prominent components of patient centeredness according to our focus group discussions. Conclusions: This study presents the conceptual constructs of patient centeredness, five of which overlap with those outlined by the Picker Institute, and provides a qualitative basis of the patient experience survey currently being implemented by the Health Insurance Review & Assessment Service in Korea.