• Journal of Hospice and Palliative Care
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• 제2권1호
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• pp.16-22
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• 1999

목적 : 현대는 의료의 결정단계에 있어서 환자들의 보다 적극적인 참여요구와 자신의 삶에 관한 모든 것을 조절하고 결정한다는 개인의 권리에 대한 주장이 강조되고 있다. 특히 말기 질환에 대해서는 다양한 윤리 문제들이 사회적 관심의 초점이 되고 있다. 이에 저자는 임종진료에 대한 대학생들의 태도와 의사 결정에 영향을 미치는 요인 등을 분석함으로서 말기환자 관리에 도움이 되고자 본 연구를 시행하였다. 방법 : 1997년 6월 소극적 안락사에 대한 찬반여부, 호스피스에 대한 인식도, 임종에 대한 견해 등을 대학생 450명을 대상으로 설문조사를 실시하였고 337명(74.9%)이 설문에 응했다. 결과 : 수동적 안락사를 찬성한 대학생은 213명(63.2%)이 찬성하였다. 종교가 없는 대학생에서 안락사 찬성률이 높았다(70.5% 대 56.9%, P<0.05). 호스피스를 정확히 이해하고 있었던 대학생은 48명(14.2%)에 불과했다. 호스피스를 알게된 경로로는 텔레비전 43%, 책 33.5%, 종교단체 12% 등의 순이었다. 임종장소로는 76.5%가 집을 선호했고, 임종시 배우자가 같이 있어주기를 원했으며(51.6%), 미지의 세계에 대한 두려움이 가장 컸다(41.5%). 결론 : 안락사에 관해서는 약 2/3가 찬성하였으며 호스피스에 대한 인식도는 낮았다. 죽음을 앞둔 말기환자가 남은 여생동안 인간으로서의 존엄성과 높은 삶의 질을 유지하면서 삶의 마지막 수간을 평안하게 맞이하도록 도와주는 호스피스에 대한 지속적이고 적극적인 홍보와 호스피스병원과 병상확보 등 조직적이고 체계적인 노력이 필요하다.

• 보건행정학회지
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• 제28권3호
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• pp.222-225
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• 2018

Health policy is a historical product in the process of development, including the political and economic factors of the state as well as the social and cultural elements of the country. Bioethics began to debate the ethical questions that arise in the overall process of life's birth and death, and gradually evolved by presenting ethical directions for various social phenomena. Especially, according to the moral awakening of 'scientific medicine' which caused in some human problems in the rapidized scientific society from the late 19th century to the early 20th century, as a result of distress including the concept of various social relations, it is possible to say that it has reached the bioethics. Although health policy and bioethics are different in terms of starting and concept, they can be found in common with social, cultural, and political diversity in the times. In 2004, 'Bioethics Law' was enacted through the issue of research ethics in the life sciences. Therefore, in order to examine ethical aspects of current health policy direction and major issues, it can be divided into before and after enactment of 'Bioethics Law' in 2004. The authors would like to examine how the evolution of the ethical viewpoint on the health policy has changed in line with the enactment of the 'Bioethics Law' and how it is trying to solve it from an ethical point of view. Through the various events that took place in the 1990s and the 2000s, various discussions on bioethics were conducted in Korea. Prior to the enactment of the 'Bioethics Law,' ethical judgments of professions, distribution of healthcare resources, if the discussion focused on the ethical judgment of abortion, and the various events that appeared in the early 2000s became the beginning to inform that the ethical debate about the life, death, and dignity of human beings began in earnest in Korea with the enactment of the 'Bioethics Law.' Since then, 'Hospice and Palliative care Law' which was enacted in 2017, is based on the fact that the health policy of our country focuses on the treatment of the past diseases, health promotion, and delivery of health care services. It was an opportunity to let them know that even the quality problems were included. Therefore, considering the various circumstances, the ethical issue facing Korea's health care system in the future is the change of the demographic structure due to aging and what is to be considered as the beginning and the process of life in the overall process of life. It is the worry about how to die and when it sees as death. This has far exceeded the paradigm of traditional health care policies such as disease prevention and management and health promotion, and calls for innovative policy response at the national level that reflects the new paradigm, which in many cases creates a predictable ethical environment. And health policy should be shifted in the direction of future ethical review considering sustainability in the development process of future health care rather than coercive management.

• 대한간호학회지
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• 제24권2호
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• pp.190-205
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• 1994

Respect for human life and respect for human dignity are two basic values to which organized nursing has urged its members to adhere in their service to mankind. Thus it is the nurses’ duty to provide health care in support of sustenance of life and to pay respect for the patient’s right to dignity. In practice, however, nurses may experience dilemmas between these duties much due to the de velopment of modern advanced techniques. These dilemmas have become more complex and difficult to resolve. Nurses are often faced with situations in which the terminally ill refuse professional care, posing serious conflicts between respect for human life and respect for human rights to self-determination. In such cases, resolution of the problem is not a simple matter, thus requires intensive study into the ethical questions related to the situation. The purpose of this study was to identify ethical problems that nurses experience in caring for terminally ill patients and explore the ways to the resolution of problems within the context of the situations. The methodology used for the study was a case study method which ‘New Casuistry’ proposed by Jonsen & Toulmin(1988) and the ‘Specified Principlism’ proposed by Degrazia(1992) as an alternative to old deductive and intuitive method. Cases were developed through semistructured indepth interviews according to the casutistry method. A total of seven nurses were interviewd who were caring for therminally ill patients. Four cases out of a total 14 cases were related to the topic. Through the case analysis it became evident that nurses appreciated other values more often than respect for the patient’s right to self-determination. These other values were convenience and efficiency in nursing practice in case 1, preservation of life above all other values in case 2, provision of nursing care to fulfill the nurse’s professional obligation at most in case 3, and respect for the family’s demand against the patient’s wish in case 4. This study showed that the most important ethical problems were conflict between respect for the patient’s right to self-determination and sustenance of life for the fulfillment of professional obligation. For this problem, benefit /burden analysis from the perspective of the patient and family for the promotion of patient’s wellbeing may be a way to resolve the conflict. Further, through these analysis it was shown that physicians’ and families’ opinions dominated in the decision - making and the opinions of nurses’ and patients’ tended not to be reflected. Thus the patient's right to his or her care was not readily respected. To solve this problem. nurses should make efforts to communicate reciprocally with their patients, family members and physicians in an effort to respect for their patient’s rights to life and diginity from the point of view and values of the patient. It is also important that nurses provide good basic nursing care up to the time of death regardless of decisions about providing or not aggressive treat-ment for chronically and terminally ill patients.

• 의료법학
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• 제9권1호
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• pp.319-382
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• 2008

As a withdrawing care's study, the purpose of this study is searching about withdrawing care's acceptance and circumstances through Bora-mae hospital case(chapter 1). Withdrawing life-sustaining treatment has various forms. Though the meaning of euthanasia, death with dignity, natural death, physician assisted suicide are duplicated, the meaning of those are different slightly. Firstly, this study looks about the difference of the those meaning and acceptance range(condition) by withdrawing care's forms(chapter 2). Bora-mae hospital case sentenced guilty about physician who discharged incompetent patient who was after surgery by patient's wife determination. This Bora-mae case that sentenced guilty about discharge against medical advise(DAMA) that is regarded to custom has brought intensive confliction of legal, social, medical aspect, Bora-mae hospital case has many legal problems. First, as to criminal law rule 250(murder), the problem is whether discharge and withdrawing life-sustaining treatment is commission or omission. this study concluded omission(district court: omission, appeal, supreme court: commission). Because legal denounce point of discharge and medical treatment withdrawing is omission that physician who is obligatory on patient to cure. If physician's act is regarded omission, it is necessary to determine whether he has guardian status and obligation. Without guardian status and obligation, omission crime can't exist. This study decided that physician had guardian status and obligation and foundation of guardian status was pre-action or acceptance of emergency patient. Physician's medical treatment duty finished when patient(or patient's guardian) demands discharge. But when patient death is foreseen and other possible treatment does not exist, his duty of life prolonging treatment does not finish. This originate from physician's social responsibility and public status that limits patient's private liberty. This study regarded physician's action as accomplice about whether physician's discharging action is accomplice or the principal offender(district court: the principal offender, appeal, supreme court: accomplice). Though the principal offender needs criminal determination and action, there is no this common determination and functional action control of physician in Bora-mae case(chapter 3). Bora-mae hospital case partly originated from deficiency of legal, institutive system including medical security system shortage, the instruction is 1. medical security system strengthening, 2. hospital ethical committee's activity strengthening, 3. institutionalization of withdrawing life-sustaining treatment, 4. acceptance of pre-decision making system, 5. sufficient persuasion of physician for patient and faithful writing of medical paper, 6. respect for patients' self-determination and rights, 7. consciousness's changing for withdrawing life-sustaining treatment and persistent education about medical ethics(chapter 4). Considering Bora-mae case, medical sector is not the dead ground of a criminal punishment. Intervention of criminal law in medical sector give rise to ill effect, that is, excess medical examination and treatment, safeguard treatment, delay of discharge from a hospital. Because sufficient guarantee of life becomes mere empty slogan under situation that impose a burden of heavy cost to family or hospital, public and systematic solution should be given(chapter 5).

• 호스피스학술지
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• 제2권2호
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• pp.1-16
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• 2002

Hospice can not only help the dying persons to maintain the high quality of life and facing the death in comfortable and peaceful state, but also the bereaved family to relieve the grief and sufferings. We investigated the work of hospice performed by church base from March 2000 until recently and reported the results dividing them into three parts. 1)The application of resources in church to administration, education, nursing delivery of hospice in the aspects of management. 2)Spiritual and postmortal management relating hospice nursing and funeral in hospice practice. 3)Case report of hospice and the patients situation(5 in average a month). The expected effects of hospice practice using the resources in church are as follows. 1)Hospice practice can provide the highly qualified persons with the opportunities to do voluntary services and find their lives worth living. Consequently hospice contributes to the spreading of the volunteering culture. 2)The volunteers in hospice can grow mature spiritually and get interpersonal relationships among the volunteers. Doyle. D., Geoflrey.W.C., & Macdonald. N.(1988). Oxford Textbook of Palliative Medicine(2nd ed). New York :Oxford University Press. Woodruff. R.(1996). Palliative Medicine(2nd ed). Melburn: Asperula Pty Ltd. 3)Through the hospice activity, church can practice and show the moral. 4)The volunteers in hospice can make a organization with a hope to be a beautiful community in church. 5)The patients and their families can enjoy the high quality of life through the holistic care provided by 33 nursing practical items of hospice. 6)'Hospice newsletter' can be a useful vehicle to provide readers with hope and encouragement through the stories of the patient and the volunteers. The persons unaware of the hospice can be contacted with hospice by this 'Hospice newsletter'. 7)Irrespective of the economic status, all patients are served equally that hospice can contribute to dying with dignity and the equality of human being.

• Journal of Hospice and Palliative Care
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• 제22권4호
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• pp.156-165
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• 2019

목적: 본 연구는 임상실습을 경험한 간호대학생의 말기환자에 대한 주관적 태도 유형을 확인하고, 유형별 특성을 분석하기 위해 Q 방법론을 적용한 조사연구이다. 방법: 75개의 Q 모집단 중 최종 34개의 Q표본을 선정하고 임상실습을 경험한 간호대학생 43명의 P표본을 대상으로 9점 척도의 Q-분류를 하도록 하였다. 수집된 자료는 PC QUANAL Program으로 주요인분석을 하였다. 결과: 임상실습을 경험한 간호대학생의 말기환자에 대한 주관적 태도는 모두 3개 유형으로 나타났으며, 이들의 전체변량은 49.96%였다. 제1유형인 '생명의료 희망형'은 말기환자가 자신의 상태를 정확히 알고 생명을 연장하기를 원한다고 생각하였다. 제2유형인 '서비스 제공 요구형'은 말기환자가 미리 죽음을 준비할 수 있도록 다학제적인 간호와 이에 대한 제도가 마련되어야 한다고 생각하였다. 제3유형인 '죽음 수용 인식형'은 호스피스 병동에 입원하여 품위 있게 죽기를 원한다고 생각하였다. 결론: 본 연구를 통해 임상실습을 경험한 간호대학생의 말기환자에 대한 다양한 주관적 태도를 파악했으며, 이를 토대로 유형별 맞춤형 교육 프로그램이 개발된다면 말기환자에 대한 교육이 체계적으로 이루어질 것이다.

• 의료법학
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• 제9권1호
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• pp.385-411
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• 2008

The goal of medicine is to contribute to promoting national health by preventing diseases and providing treatment. The scope of modern medicine isn't merely confined to disease testing, treatment and prevention in accordance to that, and making experiments by using the human body is widespread. The advance in modern medicine has made a great contribution to valuing human dignity and actualizing a manly life, but there is a problem that has still nagged modern medicine: treatment and healing for terminal patients including cancer patients. In advanced countries, pain care and hospice medicine are already universal. Offering a helping hand for terminal patients to lead a less painful and more manly life from diverse angles instead of merely focusing on treatment is called the very hospice medicine. That is a comprehensive package of medical services to take care of death-facing terminal patients and their families with affection. That is providing physical, mental and social support for the patients to pass away in peace after living a dignified and decent life, and that is comforting their bereaved families. The National Hospice Organization of the United States provides terminal patients and their families with sustained hospital care and home care in a move to lend assistance to them. In our country, however, tertiary medical institutions simply provide medical care for terminal patients to extend their lives, and there are few institutional efforts to help them. Hospice medicine is offered mostly in our country by non- professionals including doctors, nurses, social workers, pastors or physical therapists. Terminal patients' needs cannot be satisfied in the same manner as those of other patients, and it's needed to take a different approach to their treatment as well. Nevertheless, the focus of medical care is still placed on treatment only, which should be taken seriously. Ministry for Health, Welfare & Family Affairs and Health Insurance Review & Assessment Service held a public hearing on May 21, 2008, on the cost of hospice care, quality control and demonstration project to gather extensive opinions from the academic community, experts and consumer groups to draw up plans about manpower supply, facilities and demonstration project, but the institutions are not going to work on hospice education, securement of facilities and relevant legislation. In 2002, Ministry for Health, Welfare & Family Affairs made an official announcement to introduce a hospice nurse system to nurture nurse specialists in this area. That ministry legislated for the qualifications of advanced nurse practitioner and a hospice nurse system(Article 24 and 2 in Enforcement Regulations for the Medical Law), but few specific plans are under way to carry out the regulations. It's well known that the medical law defines a nurse as a professional health care worker, and there is a move to draw a line between the responsibilities of doctors and those of nurses in association with medical errors. Specifically, the roles of professional hospice are increasingly expected to be accentuated in conjunction with treatment for terminal patients, and it seems that delving into possible problems with the job performance of nurses and coming up with workable countermeasures are what scholars of conscience should do in an effort to contribute to the development of medicine and the realization of a dignified and manly life.

• Journal of Hospice and Palliative Care
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• 제14권2호
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• pp.81-90
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• 2011

목적: 본 연구는 서울시 노원구 주민을 대상으로 자신의 인생회고 및 품위 있는 죽음에 대한 인식 정도를 파악하고자 수행되었다. 방법: 본 연구는 서울시 노원구에 거주하는 40대 이상 성인을 대상으로 설문에 참여할 것을 서면 동의한 160명의 자료가 분석되었다. 본 연구팀에 의해 개발된 설문지는 내용타당도 검증절차를 통해 일부 문항이 수정되었으며, 설문내용은 총 28문항이었다. 수집된 자료는 서술적 통계방법을 이용하여 분석하였다. 결과: 대상자들이 가장 힘들었다고 회고하는 연령대는 30~40대였고 반면 가장 보람되었다고 생각하는 기간도 30~40대였다. 가장 힘든 인생고비경험에서, 개인적으로는 가족이 건강을 잃었을 때, 부부 및 자녀와의 갈등이 가장 힘들었던 사건으로 회고하고 있었고, 가장 힘들었던 사회관계는 삶에 대한 상실감 경험, 실패, 친척 및 친구의 배신 등 이었으며, 가장 보람되었다고 회고하는 내용에서, 개인적 사건은 목표성취, 인생의 역경 극복이었고, 가족관계에서는 자녀로 인한 즐거움이 월등히 높았고, 사회관계에서는 직업을 통한 사회공헌, 봉사활동, 성실한 종교생활이었다. 가장 후회하는 삶의 경험에는, 자신의 삶에서는 목적 없이 바쁘게만 살아온 것, 여유 있는 시간을 갖지 못한 것이었고, 부모형제관계에서는 부모의 뜻을 잘 살피지 못하고 많은 시간을 갖지 못한 것과 형제들과 불화이었으며, 자녀와의 관계에서는 올바로 훈육하지 못한 것과, 사랑을 많이 주지 못한 것이었다. 직장 및 사회관계에서는 원하는 직업을 갖지 못한 것과 관계보다는 일 중심으로 살아온 것과 대인관계 기술부족이 두드러진 회고내용이었으며 건강에 관해서는 운동이 부족한 점 등이었다. 대상자들이 인식하고 있는 임종과 죽음준비에 대한 내용으로, 약 60%에서 자신의 종교에 대한 강한 믿음을 가지고 있었고, 약 50%에서 종교에 따른 내세관을 소유하고 있었다. 무의미한 연명치료로 생명을 연장하는 상황에 처했을 경우, 약 87% 이상에서 본인 및 가족의 경우 모두 무의미한 연명치료 중단 의사를 가지고 있었으며, 불치의 질병인 경우 진단을 정확히 말해주기 원함, 유언장 및 사전의료의향서 작성하기 원함이 4점 척도 중 약 3.1점 이상으로 높게 나타났다. 결론: 본 연구결과를 토대로 중 노년층을 위한 죽음 준비교육 내용 중 인생회고 시간에서는 과거의 경험을 후회하는 사건이 아닌 일어난 사실 그대로 받아들이며 자신의 삶으로 통합하도록 돕는 기회가 주어져야 하며, 사전의료의향서를 작성함으로 연명치료 중단, 심폐소생술 금지, 임종 장소 등 자기결정권이 부여되는 품위 있는 죽음을 준비할 수 있도록 하는 수요자 중심의 죽음 준비교육을 제공해야 하겠다.

• 한국응급구조학회지
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• 제6권1호
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• pp.39-53
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• 2002

This descriptive study was conducted to identify the attitude toward euthanasia of EMT and nursing students and to compare their attitude before and after clinical practice. The convenience sample was comprised of 40 first grade and 40 second grade EMT students attended at G college in G-city, and 40 first grade and 40 third grade nursing students attended at C college in C-province. The variable was tested with an euthanasia attitude scale developed by Kim Ae Kyoung(2001). The valid responses were obtained and analyzed by using SPSS PC+ from November 25 to December 6, 2002. The results showed that most of the respondents agreed to have positive attitude toward euthanasia in terms of client's right and client's quality of life. Also, they thought that euthanasia should be legalized and the right to die with dignity should be guaranteed. The EMT respondents having a clinical experience showed significantly higher score than respondents having no experience in the subarea of medical ethics, and nursing respondents who had a clinical practice showed significantly higher score than others no experience in the subarea of quality of life. But, the other sub-areas had no significant difference between the respondents before and after clinical practice. The attitude toward euthanasia composed of sub-areas such as being after the quality of life, having a high regard for a life and recognizing client's right was not affected by the single factor of clinical practice. Therefore, much supportive intervention need to be done for the students about the significant affecting factors found in this study like a religion, values, education and observing experience of someone's death.

• Journal of Hospice and Palliative Care
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• 제26권2호
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• pp.60-68
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• 2023

Purpose: For the dignity of patients nearing the end of their lives, it is essential to provide end-of-life (EoL) care in a separate, dedicated space. This study investigated the utilization of specialized rooms for dying patients within a hospice unit. Methods: This retrospective study examined patients who died in a single hospice unit between January 1, 2017, and December 31, 2021. Utilizing medical records, we analyzed the circumstances surrounding death, the employment of specialized rooms for terminally ill patients, and the characteristics of those who received EoL care in a shared room. Results: During the 1,825-day survey period, deaths occurred on 632 days, and 799 patients died. Of these patients, 496 (62.1%) received EoL care in a dedicated room. The average duration of using this dedicated space was 1.08 days. Meanwhile, 188 patients (23.5%) died in a shared room. Logistic regression analysis revealed that a longer stay in the hospice unit was associated with a lower risk of receiving EoL care in a shared room (odds ratio [OR]=0.98, 95% confidence interval [CI] 0.97~0.99; P=0.002). Furthermore, a higher number of deaths on the day a patient died was associated with a greater risk of receiving EoL care in a shared room (OR=1.66, 95% CI 1.33~2.08; P<0.001). Conclusion: To ensure that more patients receive EoL care for an adequate duration in a private setting, additional research is necessary to increase the number of dedicated rooms and incorporate them into the hospice unit at an early stage.