• The Journal of the Korea Contents Association
• /
• v.17 no.9
• /
• pp.498-509
• /
• 2017

Caregiving supports have been provided to decrease caregiving burdens of families of children with disabilities, but there are needs for improving caregiving services. The purpose of this study was to conceptualize content items and domains of caregiving supports from the perspectives of parents and service providers in order to help families of children with disabilities to decrease their caregiving burdens. This study used concept mapping that was useful for service-needs identification and program development. First, focus group interviews with two parent groups and one service provider group were conducted to generate a total of 31 items. Also, they sorted the items in terms of conceptual similarity and rated the items in terms of their needs. Next, the sorting data were analyzed using multidimensional scaling and cluster analysis and the rating data were calculated for mean. The results provided 31 content items in four domains: regular caregiving, activity-based caregiving, parent empowerment for caregving, and strengthening family relationships. All the domains were rated as important to decrease caregiving burdens. This study has practical implications for improving caregiving services and the related policies.

• Korean Journal of Culture and Social Issue
• /
• v.15 no.3
• /
• pp.339-357
• /
• 2009

As quickly becoming an ageing society in Korea, this study aims to investigate how family caregivers' burden with demented patients and social supports are related to their health and quality of life, and the interaction of caregiving burden and social supports on caregivers' health and quality of life. The participants were 207 family caregivers (106 females) of demented patients lived in Seoul, Kyunggi, and Chungcheong areas, whose average of age were 51.62 ( SD=9.25). The psychological tests used in this research included the following: Multidimensional Caregiver Burden Inventory, Chon's Physical Symptom Questionnaire, Hahn & Jang's Perceived Health Inventory, Negative Affect Self-Statement Questionnaire, and the Korean Version of Cambell's Subjective Well-being Scale, Social Support Survey in Medical Outcomes Study, and Kwon's Questionnaire for Maladjusted Problems of Demented. Results indicated that caregivers' burden with demented patient related to physical symptoms and depression positively, and perceived health and subjective well-being negatively. Social supports showed moderate effects on influences of caregiving burden in perceived health, depression, and subjective well-being of family caregivers with demented patients. It was identified the possibility of their buffering effect on negative results of caregiving burden with demented patients. Since caregiving burden accounted for the 34% of the variances for family caregivers' physical symptoms and depression, researchers discussed the promotion and intervention of their health and quality of life. Beside of different effects of social supports with level of caregiving burden, with previous studies it was discussed some saliant findings such as family caregivers with patients who showed severe dementia symptoms were perceiving even less supports from others.

• Journal of Families and Better Life
• /
• v.17 no.1
• /
• pp.103-120
• /
• 1999

The purpose of this study was to investigate the characteristics and caregiving behavior in families who awarded on filial piety. Using the qualitative method 137 families and social supports to them were analyzed,. The major findings can be summarized as follows (1) Most of caregivers were daughter-in -law over 40 years in 3-generation or 2-generation family. Elderly can be characterized as oldest-old dependent long-term care for more than 10 years. (2) These families showed very high family solidarity with strong collectivity. (3) Their economic emotional and service cares were family-centered with helps from their extended family. These families were supported emotional helps rather than instrumental helps from social network. It was concluded that to help family elder care social support program for the frail elder caregiving families should be complemented in their children support program family life enrichment program for the inter-generational relationship medical care program other social network program and religion program etc. And more concrete and qualified study for the adaptation of filial piety families should be followed.

• Journal of Korean Academy of Nursing
• /
• v.45 no.2
• /
• pp.202-210
• /
• 2015

Purpose: The purpose of this study was to describe depression, caregiving burden and the correlation of the two variables in the families of patients with amyotrophic lateral sclerosis (ALS) and to clarify factors predicting caregiving burden. Methods: A descriptive and cross-sectional study was conducted with 139 family members who provided care to patients with ALS. The characteristics of patients and families, Korean-Beck Depression Inventory (K-BDI), Korean version of Zarit Burden Interview (K-ZBI) and Korean-Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (K-ALSFRS-R) were used as study measures. Results: The mean score for K-BDI was 19.39 out of 63 suggesting sub-clinical depression and 38.2% of the family members exhibited depression. The mean score for K-ZBI was 66.03 out of 88. The predictors for K-ZBI were K-BDI, age of family member, length of time spent per day in caring, relationship to patient and K-ALSFRS-R. Conclusion: The results of this study suggest that levels of depression and caregiving burden are high among family members caring for patients with ALS. As depression is associated with caregiving burden, screening and emotional supports should be provided to reduce the burden of care for these family. Support programs to alleviate the care burden are also needed, considering family demographics, time per day in caring giving and K-ALSFRS-R.

• Journal of Families and Better Life
• /
• v.23 no.3 s.75
• /
• pp.103-114
• /
• 2005

The number of grandparents who have responsibility for raising their grandchildren is growing. The present study examines the extent of this phenomenon and some of the issues these grandparents face in surrogate parenting. The sample consists of 69 grandparents(63 grandmothers and 6 grandfathers) of grandchildren who have lived with them at least 6 months without their parents. The grandparents raising grandchildren reported that caregiving bought negative changes in relations with their own children, economic situation and health condition. They concerned most about the issue of good mannered behavior of grandchildren and making good friends and needed social supports in terms of house cleaning and cooking and transportation for after school activities. Caregiver burden was related to the number of family members, the degrees of life changes, economic hardship due to caregiving, grandchildren's school performance and the relations with granparents' own children.

• Research in Community and Public Health Nursing
• /
• v.29 no.4
• /
• pp.530-538
• /
• 2018

Purpose: This study tried to identify changes in family burden after the introduction of the long-term care insurance and to examine the factors influencing subjective and objective caring burden and depression of family caregivers of elders receiving home-based long-term care. Methods: Data were collected from 203 family caregivers of elders from August 1 to 31, 2015 using questionnaires. They were analyzed in descriptive statistics, t test, ANOVA test, and multiple regression analysis. Results: The mean score of depression was 7.24, which suggested mild depression level. The subjective family burden was 2.71 and the objective burden 3.04. The factors affecting depression included subjective burden (t=5.08, p<.001), objective burden (t=2.80, p=.006), time of elderly care per day (t=-3.61, p< .001), caregiving duration (t=3.33, p=.001), age (t=3.13, p=.002), family relationship (t=2.48, p=.014), and economic status (t=1.99, p=.047). Conclusion: The family burden was most important influencing factor on caregiver's depression. Therefore, services and supports to alleviate caregivers' burden in the home-based care should be added to long-term care.

• Journal of Digital Convergence
• /
• v.18 no.12
• /
• pp.389-399
• /
• 2020

Diverse official policies in community are available for caregivers to take care of the elderly in the US and the UK. This study aims to examine the recent changes in government supports based on The Recognize, Assist, Include Support and Engage (RAISE) in the US, and those by Carer Act 2014 in the UK, to take any good lessons for Korean policy. Caregivers will play a new role to develop innovative treatment for patient-centered care. The UK strengthens to provide various efforts for working carers while assuring economic efficiency in labor market with empirical evidence. The major four ways to support carers were developed agreed with the acknowledge of caregiving value and their human right; financial support, direct services for carers, flexible work time, and advocacy. Korean supports policies for carers in long-term care and social welfare will be more effective in community care system if more evidence based policies are prepared.

• 재활복지
• /
• v.21 no.3
• /
• pp.1-22
• /
• 2017

Although not many older Korean parents who take care of children with intellectual disabilities have been reported depression due to care-giving related stresses, little is known about how they could be protected from this. This study examines whether satisfaction with family relationships moderate the relationships between time demands, caregiving stress, and depression of older parents who take care of children with intellectual disabilities. The analyses were conducted based on data from the Korean National Survey on Individuals with Developmental Disabilities and their Families of 2011, and only a total of 276 parents, aged over 60 were examined. Multiple regression analysis shows that older parents with higher level of satisfaction with family relationships were less likely to be influenced by time demands of care-giving. This indicates that satisfaction with family relationships could buffer the relationships between time demands of care-giving, and depression. This finding suggests that satisfaction with family relationships is a protective factor, buffering the negative effects of time demands of care-giving and depression. This supports 'socio-emotional selectivity theory' which family relationships are important to older people. Therefore, it is highly recommended to develop practical intervention that can improve the level of satisfaction of family relationship of the older parents, and to make policy and institutional supplementation.

• Journal of Korean Academy of Nursing
• /
• v.43 no.3
• /
• pp.389-398
• /
• 2013

Purpose: The purpose of the study was to understand and describe the overcoming experiences of family members caring for elderly patients with dementia at home. Methods: Data came from autobiographies on the overcoming experiences of caregiving from 31 participants, who had submitted the autobiographies to a public contest held by the Seoul Metropolitan Center for Dementia in 2012. Data were analyzed using qualitative content analysis. Results: Four overcoming stages emerged from the analysis: confronting stage; challenging stage; integrating stage; and transcendental stage, representing transformation of experiences from frustration and suffering to happiness and new hope in life. The confronting stage illustrates severe negative feelings and exhaustion occurring after the diagnosis of dementia. The challenging stage signifies major driving forces in taking good care of their patients. It includes tender loving memories about the patients as well as family and social supports. The integrating stage shows genuine empathy for the patients' situation and the happiness of 'here and now', while the transcendental stage represents new hope in the future. Conclusion: Health professionals need to support caregivers to find true meaning of caring and happiness in everyday life, while providing specific information on dementia care and relieving various negative feelings.