• Title/Summary/Keyword: Caregivers

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Burden and Quality of Life in Main Caregivers of Cancer Patients Treated with Chemotherapy (화학요법을 받는 암환자 주보호자의 부담감과 삶의 질)

  • Na, Duck-Mi;Chung, Young;Yang, Kyung-Mi
    • Research in Community and Public Health Nursing
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    • v.14 no.4
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    • pp.686-698
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    • 2003
  • Purpose: This is a descriptive correlation study purposed to provide basic data for comprehensive nursing care by analyzing the relationship between the burden and the quality of life of family caregivers of cancer patients treated with chemotherapy. Methods: As for the subjects of this study, 66 family caregivers who take care of cancer patients hospitalized and treated with chemotherapy participated in the research. The tool of this study was a structured questionnaire including questions concerning burden(19 items) and the quality of life(33 items). Collected data were analyzed using SPSS PC+ program through descriptive statistics, t-test, ANOVA, Pearson's correlation coefficient, and stepwise multiple linear regression. Results: 1) The mean score of burden was 2.6383. The mean score of quality of life was 3.3034. These score show that family caregivers perceive a moderate level of burden and the quality of life. 2) Family caregivers' burden was significantly related to symptoms in the cancer patient (r= 0.3501, P=0.0042) and family caregivers(r= 0.5340, P=0.0001). Family caregivers' quality of life was significantly related to symptoms in the cancer patient(r= -0.3528, P=0.0039) and family caregivers(r= -0.5472, P=0.0001). According to the result of examining' the relationship between burden and the quality of life, there was a statistically negative correlation(r= -0.6326, P=0.0001). 3) 'Family income after the onset of the patient' was the most important predictor of the burden of family caregivers($R^2$=0.158). 'Usual relationship with the patient' was the most important predictor of the quality of life of family caregivers($R^2$=0.138). Conclusions: The results presented above indicate that we must consider burden of family caregivers and symptoms experienced by them in order to improve the quality of life of family caregivers of cancer patients treated with chemotherapy.

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Health-Related Quality of Life among Women Caregivers of Older Adults with Dementia (치매노인을 부양하는 여성의 건강관련 삶의 질)

  • Kim, Myoung Soo;Kim, Dong-Hee;Kim, Jung Soon;Park, Kyung Yeon;Park, Nam Hee
    • Korean Journal of Adult Nursing
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    • v.19 no.1
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    • pp.24-34
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    • 2007
  • Purpose: The objective of this study was to define the predictors of health related quality of life(HRQoL) of women caregivers of the demented elderly patients. Methods: The subjects of this study were 140 pairs of patients with dementia and their caregivers. The characteristics of dementia patients and caregivers, Barthel index and SF-36 were measured in this study. T-test, ANOVA, Pearson correlation coefficient, and stepwise multiple regression were used for data analysis. Results: The health related quality of life(HRQoL) score of women caregivers was $288.35{\pm}66.10$ for norm based scoring. HRQoL of women caregivers was correlated with patients' ADL, severity of dementia, caregivers' age, burden, and family support. The major factors that affected the physical components of women caregivers of patients with dementia was the age of the caregiver, burden, and ADL which explained 36.0% of HRQoL. The main predictors of women caregivers' emotional state was the caregiver's burden. Conclusion: Patients' support systems must be implemented to improve the physical HRQoL of caregivers. A caregivers' burden relief program needs to be prepared to increase their emotional HRQoL and further studies and efforts will be needed to evaluate those effects.

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Responsibilities and Difficulties of Caregivers of Cancer Patients in Home Care

  • Ugur, Ozlem;Elcigil, Ayfer;Arslan, Deniz;Sonmez, Ayfer
    • Asian Pacific Journal of Cancer Prevention
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    • v.15 no.2
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    • pp.725-729
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    • 2014
  • Background: Having been known as a virulent disease in 1970s, cancer is now onsidered a chronic disease and 64% of cancer patients live for five years after diagnosis. Home care has gradually gained more importance and it is a great burden on the shoulders of caregivers. Caregivers have to undertake the responsibility of the cancer patient's home management, and organize care and arrange health care services according to the ever-changing condition of patients. Caregivers should be prepared for home care so they can provide accurate and complete care to patients. This descriptive study aims to investigate challenges that caregivers encounter in the home care of patients and the reasons for these challenges. Materials and Methods: The research group consisted of caregivers of outpatients in a daily treatment center in a university hospital. The research sampling consisted of 137 voluntary caregivers of patients who attended the Daily Treatment Center for control, chemotherapy or other supportive cares services between January-June, 2011. Data were collected with face-to-face interviews in the Daily Treatment Center. Ethics Committee approval was taken university hospital; caregivers and their patients were informed about the research and their approval was taken as well. Results: It was found that 54.01% of caregivers help patient's nutrition, 50.36% help medicine use, 26.28% help oral hygiene, 26.28% help to meet urinary needs and 51.82% help to change clothes, 69.34% of caregivers help to change bed sheets, 38.69% help the patient to communicate with their environment and 71.53% help to bring the patient to hospital or outside. Conclusions: This study, it was found that caregivers experience challenges due to following factors: patient nutrition, medicine use, oral and body hygiene, colostomy maintenance and stomach tube feeding, concern of dropping the patient, feeling incompetency in body temperature and fever control, fatigue, and lack of personal time.

The Comparison of the Stress and Coping Methods of Cancer Patients and Their Caregivers (암환자와 가족원의 스트레스와 대처방법 차이)

  • 김희승
    • Journal of Korean Academy of Nursing
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    • v.33 no.5
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    • pp.538-543
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    • 2003
  • Purpose: The purpose of this study was to identify the stress and the coping methodes in the cancer patients and their caregivers. Method: The stress method was measured by V AS(Visual Analogue Scale). The coping methodes was measured using the modified Ways of Coping Questionnaire. The phases of patient illness consisted of Ist(initial) stage, and 2nd(recurred) stage and 3rd(terminal) stage based on Lewandowski & Jones(1988) method. The data were collected by a survey of convenience sampling of 257 cancer patients and 196 of their caregivers from two hospitals in Seoul. The data were analyzed using paired t-test, unpaired t-test. Result: The stress level of cancer patients was lower than their caregivers. The cancer patients used emotion-focused coping mode than problem-focused coping mode. The caregivers problem-focused coping mode over emotion-focused coping mode. In the problem-focused coping mode, the caregivers significantly used two coping strategies that were ‘positve cope’, ‘information seeking’ more than patients. In emotion-focused coping mode, the caregivers significantly used one coping strategies that was ‘wish’ more than patients. The patients tended to used two coping strategies that were ‘blame’ and ‘emotion expression’ more than the caregivers. Conclusion: Further study needs to be done to positively identify these coping methods and develop interventions to assist patients and their caregivers.

Caregivers' Experience of Violence and Coping with It in Nursing Homes (노인요양보호사가 경험한 환자 및 보호자에 의한 폭력 경험과 대처)

  • Lee, Eun-Young;Kang, Hee-Sun;Kim, Kyung-Hee;Park, Kyung-Sook
    • Research in Community and Public Health Nursing
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    • v.23 no.2
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    • pp.134-143
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    • 2012
  • Purpose: The purpose of this study is to investigate verbal, physical and sexual violence to caregivers in nursing home workplaces. Methods: This cross-sectional study was done from October 17 to 31, 2011 at eight randomly selected nursing homes in Seoul and one nursing home in Gyeonggi, South Korea. This study explored their responses to violence and violent situations, and then investigated on how caregivers coped with workplace violence. Results: The results of this study show that most caregivers in nursing homes experience some form of violence. Verbal violence was more frequent than physical or sexual violence. Verbal and physical violence occurred most often while they were changing the clothes of patients and sexual violence occurred most often while they were showering patients. After experiencing violence, caregivers most often dealt with the situation by informing their colleagues of what was happened. Conclusion: These results suggest that institutional and administrative measures must be implemented to increase the prevention of violence against caregivers and to improve effective measures to deal with violence once it has occurred. Violence in nursing homes can be reduced through the combination of appropriate responses by caregivers and proper education of both patients and caregivers.

The Impact of Emotional Labor on Burnout for Caregivers of Stroke Patients (뇌졸중환자 간병인의 감정노동이 소진에 미치는 영향)

  • Kim, Chang-Suk;Kim, Jisoo
    • Korean Journal of Occupational Health Nursing
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    • v.24 no.1
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    • pp.31-38
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    • 2015
  • Purpose: The purpose of this study was to explore the impact of emotional labor on burnout in stroke patients' caregivers. Methods: Data were collected from 141 paid caregivers working at 3 hospital across Gyeonggi province from January to April 2014. Results: The caregivers' level of emotional labor showed 2.9/5.0 points and burnout, 2.5/5.0. A significant correlation was found among attentiveness to required display rules (p=.007), emotional dissonance (p=.001) and burnout. In a multiple regression, age (${\beta}$=.279, p=.001) and emotional dissonance (${\beta}$=.193, p=.046) were associated with burnout in caregivers. These factors attributed to 16.9% of variance in the burnout of caregivers. Conclusion: These results suggest that burnout in stroke patients' caregivers can be influenced by emotional dissonance as well as physical condition such as age. Accordingly, it is necessary to be develop support program to deal with mental labor to improve their mental health and lighten their workload for caregivers.

Role and Role Burden of Caregivers with Hospitalized Children (입원아동 보호자의 역할과 역할부담감)

  • Jeong, Eun;Kwon, In Soo
    • Korean Parent-Child Health Journal
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    • v.18 no.1
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    • pp.28-38
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    • 2015
  • Purpose: This study was conducted to identify the role and role burden of caregivers with hospitalized children. Methods: The participants included 149 main caregivers from two pediatric hospitals whose children have been hospitalized for at least 2 days at children's hospital. The data were collected from August 1 to september 30, 2013 using self-report questionnaires of checklist type for caregivers' role and Likert scale for role burden. Results: Role for hospitalized children showed that personal hygiene was the highest, and consultation with nurses and doctors was the lowest in total frequency per day. Of the role for the caregivers themselves and family, personal hygiene was the highest, and home management was the lowest. The degree of role burden perceived by hospitalized children's caregivers was the slightly high. Of the categories, emotional burden was the highest and dependent burden was the lowest. There were differences by caregivers' age, children's age, and children's health status. Conclusion: The caregivers performed various roles, especially more frequently on personal hygiene and nutrition for their hospitalized children and themselves and family, and had slightly high role burden. These results may contribute to develop nursing interventions that can help adapt on hospitalization of children and their caregivers.

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Factors of Caregiving Burden and the Effectiveness of Social Welfare Services for the Family Caregivers of the Impaired Older Persons (노인간병가족의 부담요인 및 부담완화를 위한 사회복지서비스와 실천방법의 효과에 관한 연구)

  • Lee, In-Jeong
    • Korean Journal of Social Welfare
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    • v.46
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    • pp.319-348
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    • 2001
  • The primary purpose of this study is to examine the buffering effect of social welfare services on the relationship between the level of older persons' impairment and burden experienced by the family caregivers. It also assessed the level of caregiving burden as well as the effect of both older person's impairment and the characteristics of the caregivers on burden. The survey data collected from 150 community residing family caregivers was used for analyses. Findings are as follows. First, the caregivers are more burdened in the deterioration of mental health, scarce time for oneself, and the suffering of social life than in other areas of burden. Second, the more severe the physical and the mental impairment of the elder, the more burden the caregivers experience. The caregivers' characteristics such as the worse mental health, the lower level of attachment to the elder, the longer caregiving hours are also related to the higher level of caregiving burden. Third, the caregivers' use of adult day care and respite care services buffer the relationship between the level of impairment of older persons and the caregiving burden. However, social work counselling, visiting nurse, homemaker services do not have such buffering effects. Among informal support, instrumental support buffers the relationship between the elder's physical impairment and burden, while emotional support buffers the relationship between the elder's mental impairment and burden. According to the results, implication for social welfare services and practice methods for the family caregivers was discussed.

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A Longitudinal Study on the Burdens of Caregivers in Families with Stroke Patients (뇌졸중 환자를 돌보는 가족간호자의 부담감에 대한 종적연구)

  • Kang, Sue Jin;Choi-Kwon, Smi
    • Korean Journal of Adult Nursing
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    • v.12 no.2
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    • pp.209-221
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    • 2000
  • This longitudinal study examines the burdens and related factors for stroke patient's primary family caregivers. Sixty-one patients treated for stroke at a general hospital in Chung-nam province and family member caregivers participated in this study from July 28, 1998 to August 1, 1999. Family caregivers' burdens were assessed by the burden scale originally developed by Zarit(1980) and Novak & Geust(1989) and modified by Oh's(1993) for use in Korea. The burden scale instrument consists of five subscales.: financial burden, social burden, physical burden, dependency burden, and emotional burden. Repeated ANOVA and Stepwise multiple regression were used in the data analyses. The results were as follows: The burden mean score was 3.23 in the hospital, 3.26 after hospital release, and 3.27 in the home environment. In the hospital, a patient's degree of cognition, and social support for family caregivers were significant factors affecting the sense of burden felt by family caregivers. After hospital release, the significant factors affecting the sense of burden were the degree to which stroke patients could participate in daily living activities, social support for family caregivers, and changing to a second caregiver. In the home environment, the most significant factor affecting the sense of burden was social support for family caregivers.

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Factors Influencing the Quality of Life of Caregiver using Day Care Service (노인주간보호서비스 이용 부양자의 삶의 질과 영향요인)

  • No, Hyun Jeong;Choi, Yeon Hee
    • Journal of East-West Nursing Research
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    • v.19 no.1
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    • pp.1-6
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    • 2013
  • Purpose: The purpose of this study was to identify factors influencing quality of life of caregivers using day care services. Methods: Data were collected from 14 different day care services in D city, with a total of 146 female caregivers as participants. All participants were at home caregivers whose patients were senior citizens older than 65. Data were collected from September 1 to 30 of 2008 and analyzed by t-test, ANOVA, Pearson's correlation coefficient, and stepwise multiple regression. Results: Quality of life among caregivers of day care services differed significantly according to state of health, other caregivers, job, and family income. Quality of life among caregivers showed correlation with caregiving burden. The significant predictors affecting quality of life were state of health, other caregivers, job, and family income and caregiving burden. A combination of these predictors accounted for 43.5% of the variance in quality of life. Conclusion: These findings show that quality of life of family caregivers using day care services is influenced by caregiving burden. Development of day care service programs is necessary in order to reduce caregiving burden of family caregivers for the elderly.