• The Journal of the Korea Contents Association
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• v.13 no.4
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• pp.239-249
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• 2013

The purpose of this study was to explore process of life experience for mothers of children with severe disabilities. Strauss and Corbin's Grounded theory approach was used. Total 17 mothers who have experience of caring for severely disabled child participated. In-depth interviews was done from January 2010 to May 2011. Three to seven interviews were done for each participant. As a result of this study, 119 concepts, 41 subordinate categories and 20 categories have been revealed. The experience of caring children with severe disabilities were 'desolate life' 'plunging in darkness' 'managing to pull oneself' 'rising again' and 'rediscovering of life'. The core category of selective coding was rediscovering of new life from life in darkness. It is suggested that welfare policies need to be modified and new policies need to established for mothers who care for severely disabled children.

• 재활복지
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• v.20 no.4
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• pp.79-106
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• 2016

This study examined the meanings of the disability education of the mothers who reared their children with brain lesions. For this purpose, Rennie's hermeneutic grounded theory was applied and the consented 7 mothers participated in this study. With the in-depth interviews, 53 meaning units, 16 subordinate categories and 7 hermeneutic categories were classified. These 7 hermeneutic categories were 'wailing miserably everyday', 'social mobilization of the surroundings', 'straight forward', 'smash rock with the eggs', 'looking at a faraway', 'learning together' and 'subjectivation of disability education.' The experience of disabled children education process was concurrent experience of frustration and hoping that moving toward a big hope through the resignation stage, the chasing stage, the vision stage, the challenge stage, and the small achievement stage. Repetitive common patterns of behavior revealed three types: wishy-washy type, realistic-strategy type, and indomitable-challenge type. Moreover, the core category of educational experience was concluded to be 'a pedagogical process of turning despair from severe disabilities into hope through education.' Based on the analysis results, concrete intervention plans for social welfare practice were suggested to support the disabled children's lives with high quality of education.

• Korean Journal of Child Education & Care
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• v.19 no.1
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• pp.159-174
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• 2019

Objective: The study wanted to find out what changes the mother, who is the main parent of the severely disabled children, experienced in their lives through the use of day hospitals and child care services, and what difficulties they had, and discussed policy practical improvements that could satisfy both the medical and developmental needs of the severely disabled. Methods: The participants of the study were 9 mothers of a child with severe disabilities who had experience using hospitals and kindergarten. They were recruited by snowball sampling method. Focus group interview and individual interview were conducted. Results: As a result of the analysis, the mother of severely handicapped child gradually began to seek the balance of life as her child grew and became aware of the institution other than the day hospital. - (e.g) Although I was distracted and worried for the first time, I was gradually adjusting to the time away from my child thinking positively. Children with severe disabilities were also positively influenced by various experiences. They become to show som positive behavior or feeling such as brightening facial expressions or smile as they were using daycare centers or kindergartens in addition to daytime hospitals. Conclusion/Implications: Through the results of this study, comprehensive policy proposals on child care, welfare, and medical care were discussed.

• Korean Journal of Social Welfare
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• v.69 no.1
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• pp.199-222
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• 2017

This study examined the parental experiences of the fathers who reared their children with brain lesions. Since a brain lesion is considered a lifelong disability, children with brain lesions need the medical and social management through their entire life. Due to the lack of specialized caring services and organizations in Korea for such children, their families are forced to take care of them. For this reason, it is necessary to study about the fathers who are rearing the children with brain lesions. For this purpose, four fathers had participated in this study and data were collected through one to one in-depth interviews. Using Giorgi(2004)'s phenomenological research method, the study results were as follows. The substantial themes were "charred heart", "surviving the hardships", "the ruins of life", "attitude against reality", "the unique composition of family life", "children as fate", "father's love." Based on the these analysis results, the implications were suggested to cure the psychological and institutional difficulties and to provide supportive services for the fathers and families who care the children with brain lesions.