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http://dx.doi.org/10.5392/JKCA.2013.13.04.239

Grounded Theoretical Approach to the Life of Mothers as a Caretaker of Children with a Severe Disability  

Jeun, Chan-Young (단국대학교 대학원 보건학과)
Seo, Mia (단국대학교 행정법무대학원 가족상담학과)
Publication Information
The Journal of the Korea Contents Association / v.13, no.4, 2013 , pp. 239-249 More about this Journal
Abstract
The purpose of this study was to explore process of life experience for mothers of children with severe disabilities. Strauss and Corbin's Grounded theory approach was used. Total 17 mothers who have experience of caring for severely disabled child participated. In-depth interviews was done from January 2010 to May 2011. Three to seven interviews were done for each participant. As a result of this study, 119 concepts, 41 subordinate categories and 20 categories have been revealed. The experience of caring children with severe disabilities were 'desolate life' 'plunging in darkness' 'managing to pull oneself' 'rising again' and 'rediscovering of life'. The core category of selective coding was rediscovering of new life from life in darkness. It is suggested that welfare policies need to be modified and new policies need to established for mothers who care for severely disabled children.
Keywords
Ground Theory; Mothers of Severely Disabled Children; Life Experience of Mothers;
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Times Cited By KSCI : 1  (Citation Analysis)
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1 G. Landsman, "Reconstructing motherhood in the age of 'perfect babies': Mothers of infants and toddlers with disabilities," Signs: J. of Women in Culture and Society, Vol.28, No.1, pp.69-101, 2003.
2 M. Greenspan, Exceptional' mothering in a 'normal' world. In Mothering against the odds: Diverse voices of contemporary mothers, London: Guilford Press, 1998.
3 J. Brett, "The experience of disability from the perspective of parents of children with profound impairment: Is it time for an alternative model of disability?," Disability & Society, Vol.17, No.7, pp.825-843, 2002.   DOI   ScienceOn
4 J. Brett, The journey to accepting support: how parents of profoundly disabled children experience support in their lives, Pediatric Nursing, Vol.16, No.8, pp.14-18, 2004.
5 이애란, 홍선우, 김지수, 주세진, "자폐성장애 아동 어머니의 삶의 전환 과정", 대한간호학회지, 제40권, 제6호, pp.808-819, 2010.   과학기술학회마을   DOI   ScienceOn
6 J. Read, Disability, the family and society: Listening to mothers. Buckingham, UK: Open University Press, 2000.
7 S. Ryan, "People don't do odd, do they?' Mothers making sense of the reactions of others towards their learning disabled children in public places," Children's Geographies, Vol.3, pp.291-306, 2005.   DOI   ScienceOn
8 A. Nelson, A meta-analysis: mothering other than normal children, Qualitative Health Research, Vol.12, pp.515-530, 2002.   DOI   ScienceOn
9 H. Graungaard and S. Anderson, "When resources get sparse: a longitudinal, qualitative study of emotions, coping and resource-creation when parenting a young child with severe disabilities," Health, Vol.15, No.2, pp.115-136, 2011.   DOI
10 M. Solomon, N. Pistang, and C. Barker, "The benefits of mutual support groups for parents of children with disabilities," American J. of Community Psychology, Vol.29, No.1, pp.113-132, 2001.   DOI   ScienceOn
11 이한선, 이경희, 최성규, "중증.중복장애자녀의 조기발견.진단에 따른 어머니의 양육경험에 대한 사례 연구", 한국지체부자유아교육학회지, 제46권, pp.187-201, 2005.
12 http:www.cyworld.com
13 김명규, 중증장애인 주간보호서비스 개선 방안에 관한 연구, 중앙대학교 사회 개발대학원 석사학위논문, 2002.
14 http://kostat.go.kr
15 http://blog.daum.net/cafe.naver.com
16 L. Wolfson and E. Grant, "Authoritative parenting and parental stress in parents of pre-school and older children with developmental disabilities," Child Care Health Development, Vol.29, No.2, pp.144-177, 2006.
17 이은진, 자아성장 집단미술치료가 발달장애아 어머니의 양육스트레스 및 모-자 상호작용에 미치는 영향, 대구대학교 박사학위 논문, 대구, 2005.
18 T. Heiman, "Parents of Children With Disabilities: Resilience, Coping, and Future Expectations," J. of Developmental and physical Disabilities, Vol.14, No.2, pp.159-171, 2002.   DOI   ScienceOn
19 B. Monsen, "Mother's experience of living worried when parenting children with spina bifida," J. of Pediatric Nursing, Vol.14, No.3, pp.157-163, 1999.   DOI   ScienceOn
20 A. Taanila, L. Syrjala, J. Kokkonen, and R. Jarvelin, "Coping of parents with physically and/or intellectually disabled children," Child: Care, Health & Development, Vol.28, No.1, pp.73-86, 2002.   DOI   ScienceOn
21 A. Strauss and J. Corbin, Basics of qualitative research in nursing. Philadelphia: J. B. Lippincott Company, 1998.
22 J. Shearn, and S. Todd, "Maternal employment and family responsibilities: the perspectives of mothers of children with intellectual disabilities," J. of Applied Research in Intellectual Disabilities, Vol.13, pp.109-131, 2000   DOI   ScienceOn
23 이대규, 장애아동을 둔 부부의 결혼만족도에 대한 연구, 가톨릭대학교 사회복지대학원 석사학위논문, 2008.
24 박재국, 서보순, 김혜리, "장애아동 부모의 양육핵심 역량 요인 탐색", 한국지체부자유아교육학회지 중복.지체부자유아연구, 제54권, 제1호, pp.61-85, 2011.
25 K. Lomborg and M. Kirkevold, "Truth and validity in grounded theory-a reconsidered realist interpretation of the criteria: fit, work, relevance and modifiability," Nursing Philosophy, Vol.4, No.3, pp.189-200, 2003.   DOI   ScienceOn
26 C. Chenitz and M. Swanson, From practice to grounded theory: Qualitative research in nursing Menlo park, CA: Addison Wesley, 1986.
27 G. Glaser and A. Strauss, The discovery of grounded theory, Chicago : Aldine, 1978.
28 S. Gregory, Mother and their deaf children, In Motherhood: meanings, practices, and ideologies, London : sage, 1991.
29 허정임, 박재국, "지체장애 부모의 양육실태 및 지원욕구조사", 한국지체부자유아 교육학술지 중복 지체부자유연구, 제52권, 제3호, pp.231-249, 2009.
30 이숙자, 장애아동 어머니의 스트레스와 심리적 증후에 관한 연구 : 다운증후군과 자폐아동 어머니를 중심으로, 전남대학교 대학원 석사학위논문, 전라남도, 1993.
31 최경화, 중증장애아 어머니의 삶과 정체성: 자녀의 생애주기를 중심으로, 경북 대학교 대학원 박사학위논문, 경상북도, 2011.
32 http://kostat.go.kr
33 J. Hubert, "My heart is always where he is. Perspectives of mothers of young people with severe intellectual disabilities and challenging behaviour living at home," British J. of Learning Disabilities, Vol.39, pp.216-224, 2010.
34 P. Huang, U. Kettler, and S. John, "Being concerned: caregiving for Taiwanese mothers of a child with cerebral palsy," J. of Clinical Nursing, Vol.21, pp.189-197, 2011.
35 H. Kellegrew, "Constructing daily routines: a qualitative examination of mothers with young children with disabilities," The American J. of Occupational Therapy, Vol.54, No.3, pp.252-259, 2000.   DOI