• Perspectives in Nursing Science
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• v.8 no.1
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• pp.62-72
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• 2011

Purpose: The purpose of this study was to investigate QOL and the factors related to family caregivers who care for Amyotrophic Lateral Sclerosis (ALS) patients. Methods: The subjects were 83 family caregivers caring for ALS patients who visited the neurology outpatient section of a tertiary hospital located in Seoul between January and July of 2008. Their demographic characteristics were assessed and data were collected using the amyotrophic lateral sclerosis functional rating scale (ALSFRS), the caregiver burden inventory (CBI), HADS, and SF-36. Results: The mean score of the physical health component (PHC) of the family caregiver's QOL was $62.6{\pm}24.4$, and the mean score of the mental health component (MHC) of their QOL was $57.7{\pm}22.4$. The mean score of caregiver burden was $76.5{\pm}30.7$. Anxious family caregivers amounted to 55.4% and depressed family caregivers accounted for 63.9% overall. In a multivariate analysis, the PHC of QOL was explained by caregiver burden (41.1%), depression (9.4%), caregiver gender (3.8%), and caregiver age (3.1%). Anxiety (39.8%), caregiver burden (10.9%), patient gender (5.4%) and depression (1.7%) were predictive factors of the MHC of QOL. Conclusion: Caregiver burden and depression affected both the PHC and the MHC. Caregiver burden affected the PHC more than it did the MHC of QOL, but anxiety affected the MHC more than it did the PHC of QOL.

• Journal of Korean Public Health Nursing
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• v.15 no.1
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• pp.125-147
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• 2001

The objective of study is to investigate the degree of burden of family who care for the elderly with dementia and to find out the factors related to the family burden as a pilot study. The number of subjects was total 137 and they were the families who were caring for elderly with dementia. The data was analyzed by SPSS/PC, t-test ANOVA. The results were as follows: 1. The score of family burden who were caring for elderly with dementia was 2.90 and the score of burden was high in case of the limitation of indivisual social activities. which was 3.09 and the lowest score was in case of the health of physical and limited which was 2.58 2. There was the correlation the level of dementia and the degree of burden of family who care for the elderly with dementia in character of dementia (p<0.05). 3. There was the correlation between the abnormal activities of the elderly with dementia and the degree of burdens of family (r=0.330). 4. There was the correlation between ADL of the elderly with dementia and the degree of burdens of family (r=-0.330). 5. The service duration had statistically significant correlation with burden In the character of family (P<0.05). 6. The using facility had statistically significant correlations with burden in the character of socity (P<0.05).

• Journal of Korean Academy of Nursing
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• v.46 no.5
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• pp.663-674
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• 2016

Purpose: The purposes of this study were to develop and test a prediction model for caregiving experiences including caregiving satisfaction and burden in dementia family caregivers. Methods: The stress process model and a two factor model were used as the conceptual frameworks. Secondary data analysis was done with 320 family caregivers who were selected from the Seoul Dementia Management Survey (2014) data set. In the hypothesis model, the exogenous variable was patient symptomatology which included cognitive impairment, behavioral problems, dependency in activity of daily living and in instrumental activity of daily living. Endogenous variables were caregiver's perception of dementia patient's unmet needs, caregiving satisfaction and caregiving burden. Data were analysed using SPSS/WINdows and AMOS program. Results: Caregiving burden was explained by patient symptomatology and caregiving satisfaction indicating significant direct effects and significant indirect effect from unmet needs. The proposed model explained 37.8% of the variance. Caregiving satisfaction was explained by patient symptomatology and unmet needs. Mediating effect of unmet needs was significant in the relationship between patient symptomatology and caregiving satisfaction. Conclusion: Results indicate that interventions focusing on relieving caregiving burden and enhancing caregiver satisfaction should be provided to caregivers with high levels of dementia patients' unmet needs and low level of caregiving satisfaction.

• Research in Community and Public Health Nursing
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• v.16 no.3
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• pp.260-269
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• 2005

Purpose: This study were to understand the caregiving situation of families with the demented elderly and to develop a self-help program for them. Method: A self-help program was designed to increase caregivers' confidence and skills in problem solving. In addition, it was designed to provide information about the demented elderly. The self-help program of this study was composed of nine sessions. Result: Family caregivers of elderly patients with dementia obviously experience high level of stress. which often leads the caregivers to negative outcomes such as depression, interference with social activities and health difficulties. That is, caring is stressful for caregivers because the demands of the caregiving situation tend to overwhelm the caregivers' coping resources. Therefore, families with demented elderly persons need assistances in order to be relieved from their care burden. Conclusion: The self-help program includes the understanding of dementia, the family caregiving experiences of the demented elderly persons, the time for self-care, the search for helping, the improving of interpersonal relations and communications.

• Research in Community and Public Health Nursing
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• v.19 no.2
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• pp.205-215
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• 2008

Purpose: This study was to compare the effects of individual and group intervention programs on the demented elderly and their families. Methods: The programs were applied to two groups, one by home visiting and the other by group intervention. The groups were composed of 14 elders and 12 elders, respectively, with their families. The programs were applied twice a week, ninety minutes per session for four weeks. Programs consisted of cognitive therapy, music and art therapy, and massage for the demented elderly, education on dementia, cognitive-behavioral intervention for problematic behavior, methods to lessen stress, and counselling for the families. Results: AER, problematic behavior, QOL of pts and QOL, caregiving burden, and relationship with the pts of caregivers were improved after each program but not significantly except QOL of pts (Z=-3.37, p=.00) in the group intervention. When the two interventions were compared with each other, the group intervention program was more effective than the home visiting program in all variables but not significantly except QOL of pts (U=32.00, p=.00). Conclusion: In summary, both the individual and group intervention programs were helpful to both pts and families, and even though there was no statistically significant difference between the two intervention programs except in QOL of pts, the group intervention was more effective.

• Proceedings of the KAIS Fall Conference
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• 2009.12a
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• pp.934-936
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• 2009

This study was to identify the correlation between the degree of burden, stress and social support of family caregivers in ICU patient. The subjects were 146 family care givers observed at a general hospital at D city. The level of stress that family caregivers experience the average points of 2.18, which is considered less than average. The level of burden that average point of 2.51. Points for level of subjective feeling ranged from 1.74 to 3.90. The average point of 3.03 is higher than that for objectively recognized feeling. The points for social support that average point of 3.03 for social support proves that families feel positive about the social support they are receiving. The level of stress which shows that the lower the income, the higher the stress. The effect on stress shows significance in subjective feelings of burden, social support, and employment, indicating that they have correlations with stress. Both the feeling of burden and social support have an impact upon the stress that patient families experience.

• Korean Journal of Social Welfare
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• v.64 no.1
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• pp.273-297
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• 2012

Using grounded theory method, this study analyzed the in-depth interviews with 11 parents of institutionalized children in order to find out how the experience of the parents on the process of the children's family reunification. According to the results, it was 'leaving one's child' that composed causal conditions, and also it was 'sentenced life' and 'adapting to a life without child' that composed existing conditions. Thus, the contextual condition was found out as 'a belief of family' and 'a belief of child caring' and the mediation conditions were 'power to recover' and 'not being as one's intentions'. Also, reaction/interaction strategies turned out as 'preparing a basis of child-care', 'playing a parent', 'standing against being adapted' and 'adjusting as their children back to family'. Finally, the analysis showed 'burdens on caring', 'wanting to leave one' child again', 'having stronger family membership' and 'being hopeful in a future' as results. The specific levels of the process were found out as following 4 steps, as time goes by. 1)Fostering children at institutions: become harsh parents(or a harsh parent), 2)After fostering: rebuild collapsed family in order to take the children back, 3)Family reunification: become aboveboard to oneself, family and the world, 4)After family reunification: try to keep the family taking precautions against resending. While taking their children back, the parents turned out to experience long, unremitting tension. Reflecting results of the analysis above, and in order to promote sending institutionalized children back to their families this article suggests practical alternatives for parents who left their children in institutions.

• Journal of Digital Convergence
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• v.14 no.7
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• pp.451-459
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• 2016

The purpose of this study is to examine the relationships between parenting experiences of married immigrant women and their mental health including self-esteem and depression. Data came from 471 married immigrant women with a child who participated in the home visiting program for children of multicultural families provided by Multicultural Family Support Centers. The results indicated that, the mothers' self-esteem was related to their perceptions of parenting, parenting stress, marital satisfaction, and social support. In addition, the mothers' depression was associated with their proficiency in Korean, household income, perception of parenting, parenting stress, knowledge on child development, marital satisfaction, and social support. These findings suggest that the parenting experiences of married immigrant women are closely related to their mental health. Parenting education programs that increase parenting efficacy and reduce parenting stress would be helpful to improve the mental health of married immigrant women.

• 한국노년학
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• v.28 no.4
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• pp.1249-1264
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• 2008

Guilt feelings are dysfunctional feelings that the primary caregiver of the frail elder are apt to have and those feelings increase a burden of caring, while there is lack of empirical study on the effect of guilt feelings on caring behaviors. In light of this, this study lays its purpose on examining the effect of the primary caregivers' guilt feelings on their burden of caring and request behaviors for help with caring, paying attention to their guilt feelings in our society where Confucian values toward supporting the elderly have remained. The questionnaire survey was conducted for 220 primary caregivers caring frail elders over 60 years of age by visiting. As a tool for measuring guilt feelings, a self-designed measure for caregivers was used (${\alpha}=.949$), and factors of guilt feelings were classified into four namely, the factors of lack of self-control, lack of resources, burnout, and the normative factor As a result, the following findings were derived. First, it was revealed that the guilt feelings of caregivers as family members have a positive correlation with a feeling of burden of caring and the feeling of burden have even effects on the four factors of guilt feelings. Second, when primary caregivers request help with caring, they feel guilty toward cohabiting family members and neighbors, and also they show no guilt feelings when using day-care services for the elderly. Especially, guilt feeling factors affecting primary caregivers were found to be the normative factor to cohabiting family members, the factor of lack of resources to neighbors, and the factor of burnout to using day-care services for the elderly. This result tells that the dysfunctional feelings of primary caregivers namely guilt feelings arising when asking help with caring not only increase their burden of caring but also can cause difficulties in sharing the role of the caregiver. Accordingly for the mental health of caregivers, we should develop programs with which we could understand and cope with their guilt feelings.

• Journal of Music and Human Behavior
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• v.20 no.1
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• pp.99-115
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• 2023

Given the ongoing discussion regarding remote music therapy following the COVID-19 pandemic and the pivotal role of parental involvement in it, this study investigated parents' perceptions on their roles in a synchronous videoconferencing music therapy for their children with developmental disabilities. A total of 32 participants participated in an online survey comprising 68 questions. Descriptive statistics summarized the collected responses, and Pearson's correlation was conducted to examine the relationship between perceived parental roles, psychological burden, and willingness to participate in future remote music therapy. The findings showed that parents of children with developmental disabilities acknowledged the benefits of tele-music therapy and possessed substantial information about its implementation. Furthermore, they reported their roles of providing physical, participatory, and mediating support. As parents exhibited greater satisfaction with their role in supporting their children's participation or managing their off-task behaviors, they perceived reduced psychological burden. These findings hold significant implications for expansion of tele-music therapy strategies to address the unique needs of children with developmental disabilities and support their parents as immediate mediators for their children.