• Clinical and Experimental Pediatrics
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• v.48 no.4
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• pp.448-452
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• 2005

Neurofibromatosis(NF) is an autosomal dominant disorder, probably of neural crest origin that affects all three germinal layers. It is a group of heterogeneous multisystemic neurocutaneous disorders involving both neuroectodermal and mesenchymal derivatives. Type 1(von Recklinghausen disease) is the most common neurocutaneous disorder among the eight subtypes. Previous reports showed various involvements in the renal organ. Renovascular hypertension is the most common major manifestation of renal involvement in this disease. However, we experienced a case of ectopic kidney concurrent with neurofibromatosis type 1. The diagnosis of neurofibromatosis had been made by typical skin manifestation on physical examination, and ectopic kidney was discovered accidentally during routine abdominal sonography. The etiological basis of this association is not clear. We report a rare case of coexisting neurofibromatosis and ectopic kidney in a 7-year-old girl with a brief review.

• Journal of the Korean Home Economics Association
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• v.44 no.4 s.218
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• pp.191-205
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• 2006

The purpose of the study was to develop family-based intervention program to be implemented and disseminated via "Healthy Family-Support Center." This preventive-empowerment program was designed to intervene with parenting mildly handicapped children enrolled at integrated kindergarten. The theoretical backgrounds employed were ecological theory, preventive family-based intervention approach, and theraplay theory. The pretest-posttest control-group design with random assignment was applied. The research model yielded a significant intervention effect(t=-1.294, p<0.05) on mothers' parenting stress. With proven effectiveness of family-based intervention program, the study further discussed why an ecological, family-based intervention model was a relevant alternative to investigate issues in family welfare, and why an individualized family service plan was a relevant tool to deliver services-in-context for the families who needed supports from exo-and macrosystems.

• The Journal of the Korea Contents Association
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• v.16 no.4
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• pp.387-398
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• 2016

The purpose of this research is to examine childcare teacher's cognition of human right awareness for handicapped children and consciousness of social integration. The subjects were 209 kindergarten teachers in G city. The collected data were analyzed by descriptive statistics, correlation, and regression analysis with SPSS ver. 14.0. The results are as follows: Among the childcare teacher's awareness about children with disabilities human right, awareness of right to survive, right to be protected, right to participate, and right to development had direct effects on their consciousness of social integration. Among the social supports influenced by childcare teacher's awareness of human right, informational support and material support had both direct and indirect effects on their consciousness of social integration. Therefore, as childcare teachers' awareness of human right is an important factor for their consciousness of social integration, a systemic human right education for human right awareness should be provided, the necessity of establishing various social support system should be recognized to foster the social environment of respecting young children's human right, and human right awareness should be practiced into action in daily life, in order to help childcare teachers to develop as the main agents of children's human right.

• The Journal of Korean Academic Society of Nursing Education
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• v.9 no.1
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• pp.155-162
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• 2003

The comparative study of the administration policy that the government and the local self-governing body have enforced to a handicapped child and the family, was made in South Korea and Japan. As data, I utilized brochures distributed to a handicapped child's guardian in the government publication, health center, and hospital of both countries and the homepage that each organization manages. With the investigation of (1) the handicapped child's present condition, population and entering-school situation, (2) the organization which can consult about a juvenile entering-school problem, (3) the public service with which the parents of handicapped child, or a handicapped child are provided and (4) the feedback surveys of (3)’s services, the followings were proved. In (1), the handicapped child's population and their school attendance are not be specified by the South Korea side. In (2), a private consultation organization is mainly opened and be hard to say that use is simple from the little of a kind. In (3), there is almost nothing than rehabilitation education as the administration policy, which is universally held for the handicapped child. Besides they cannot receive freely the education. In (4), it became clear not to carry out. The improvement from the direction of both hard and soft aspects - the institution of basic education for the handicapped child who lives in all areas and the equal opportunity to all children - is called for urgently.

• Journal of Korean Academy of Nursing
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• v.24 no.4
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• pp.666-677
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• 1994

In comparison with the long and continuous his-tory of research in the general area of stress and coping, theoretical and clinical interest in family stress and adaptation is a recent phenomenon. To understand the phenomena of family behavior, a comprehensive theoretical framework is needed to us provide an adequate background to for research. This study was designed to develop and test a hypothetical model for family stress and adaptation in families with handicapped children. A hypothetical model was constructed on the basis of the family stress theory developed by McCubbin etc. The model included six paths. For the purpose of model testing, empirical data was collected from May to August, 1992. The subjects of the study were 190 parents of chidren in five special schools and one private institute in Seoul and Choong Nam. An SPSS P $C^{+}$ and PC-LISREL 7.13 computer programs were used for descriptive and covariance structure analysis. The results of the study are as follows. (1) Family Stress(${\gamma}$$_{3l}$=-.288, T=-4.942) had a direct effect on Family Adaptation. (2) Family Functioning ($\beta$$_{21}$=-.373, T=5.595) had a direct effect on Situational Definition. (3) Family Functioning ($\beta$$_{31}$ =.334, T=5.375) had a direct effect on Family Adaptation. (4) Situational Definition( a2=.270, T=4.285) had a direct effect on Family Adaptation The model was supported by the empirical data. Thus it is suggested that the model could be adequately applied to family nursing care of families with a mentally handicapped child. In particular, the nursing interventions that enhance family functioning and the situational definition would improve family adaptation in families with mentally handicapped children.n.n.

• The Korean Nurse
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• v.31 no.5
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• pp.72-87
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• 1992

This study was designed to develop and lest a structural model for paternal adaplation and family stress in the families with the handicapped children. A hypothetical model was constructed on the basis of family stress theory developed by McCubbin etc. The model included 6 theoretical concepts and 11 paths. For the purpose of the model testing, empirical data were collected from May to August, 1992. The subject of the study constituted 190 mothers whose children admitted in the five special schools and one privale institutes in Seoul and Choong Nam. In data analysis, SPSS PC+ and PC-LISREL 7.13 computer program were utilized for descriptive and covariance structure analysis. The results of lhe study were as follows. (1) Hypothetical model showed a good fit to the empirical data [Chi-square = 21.19 (df = 7, P = o. 003), Goodness of Fit Index=O.986, Adjusted Goodness of Fit Indes=0.946, Root Mean Square lesidual=0.048), Non Normed Fit Index = 0.80, Normed Fit Index=0.91]. (2) The results of Hypothesis testing indicated: 1) Social support(${\gamma}_11=.238$, T=2.352), Family Functioning(${\gamma}_12=.729$, T=5.957) had direct effects on situational definition. 2) life event stress(${\gamma}_23=.284$, T=5.220) had direct effects on the effect of the handicapped chid on the family. 3) Family functioning(${\gamma}_32=-.239$, T= -3.370) had direct effects on paternal adapation. From the above results, the significance of this study can be delineated as follows : The construction and testing of the comprehensive model seem to be the first trial in Korea. The model was supported by empirical dala. Thus it was suggested that model could be adequately applied to framily nusing care with the handicapped.

• Journal of the Korean Home Economics Association
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• v.32 no.1
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• pp.93-102
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• 1994

The purpose of this study was to investigate the suitability of several knit fabrics for the hadicapped children's slacks. After the observation and wearing test abrasion resistance pilling liquid water transport properties and heat transport properties of the fabrics were tested. As specimens cotton/polypropylene interlock knits and sweat absorbent polyester knit fabric were selected and compared to the cotton denim and wool fabrics. As a result of observation test importance of extensibility durability and comfort related properties were recognized. Through the wearing test depending on the handicap type and orthoses different location and grade of pilling were observed. Knit fabrics used in this experiment were as durable as woven fabrics and showed excellent heat and liquid water transport properties. It was concluded therefore that cotton/polypropylene and sweat absorbent polyester knit fabrics are suitable materials for handicapped children's slacks.

• Journal of Korean society of Dental Hygiene
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• v.6 no.4
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• pp.361-374
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• 2006

The purpose of this study was to obtain basic data for development of oral health educational program on the control of handicapped children at social welfare facilities. For this research, it was investigated by a survey on the actual condition of dental health of handicapped children, and simultaneously by analyzing the relationships between the realities of child's dental condition and parents and guardian's acknowledgments and managements with regard to the dental health of children. This survey was conducted 135 children and their guardians being 4 social welfare facilities in Ulsan metropolitan city. 1. The average of DT, MT, FT and DMFT index were 1.82, 0.01, 0.98 and 2.84 respectively. 2. Rolling Toothbrushing method was the highest response(58.5%) and 3 times per a day(77.0%). A proxy of toothbrushing was parents(39.2%) and teacher(60.8%). 3. Recognition routes of toothbrushing method were family(13.3%), school(43.7%) and dental chinic(42.2%). 4. The numer of times electromotion tooth brushing was the highest response in more than 4 times per a day. Toothbrushing after eating between meals was higher negative response(50.4%). The number of times visiting dental clinic was the highest response in more than 5 times during a year(51.9%).

• The Korean Nurse
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• v.13 no.1 s.69
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• pp.38-43
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• 1974

• Physical Therapy Korea
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• v.5 no.2
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• pp.65-80
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• 1998

Parents of handicapped children are experiencing difficulties in their children's care, social isolation, change of life style and lirnited leisure time. Because the parents should take care of the children's daily life, they have lots of psychological and physical stress. Chronic stress of parents puts stress to the other family members and affects the development of children with handicap. The purpose of this study were to identify the level of stress in each of parents of children with motor problem, the characteristics of the children and general information related with the children, and to analyse the stress by reasons. Specially organized questionnaire were used for an investigation method. "Test of stress in mother who has children with chronic illness" by Kim Hee-soon were modified and used. The questionnaire answered by 43 mothers and 35 fathers were analyzed. Data analysis includes frequency analysis, Pearson correlation coefficients, paired-samples t-test and MANOV A by SPSSWIN. The results were as follows: 1) Degree of handicap was most moderate (46.5%), level of motor development was most pull to walk (34.9%), and combined handicap was 69.8%. 2) Sexual distribution represented that 51.2% male and 48.8% female. The cost of physical therapy was 69.8% in no more than 100,000 won. 3) The mean of age, for the mother was 32.8 years and 35.3 years. Level of motor development that mother and father expect was 88.4%, 83% walk alone. 4) Both mother and father experienced stress in other of Part II (changes in father was the illness status of the child and difficulty in taking care of child), Part III (prognosis of the child's condition), Part I (social-personal relationships and the responsibility of the care givers). In the total score of stress, mother's stress is indicated higher level than father's stress. 5) There was no correlationship between characteristics and stress of mother and father. 6) There was no statistically significant difference between characteristics and related general information of children with handicap and stress of mother and father. As a results, the mother of children with handicap are experiencing more stress than the father. Both of parents have the most difficulties in the changes in the illness status of the child and difficulty in taking care of child. This study can be used as resources of education, therapy and counselling for children with handicap and their parents. This study, also, can be used to encourage the quality of Iife for the children with handicapped and their family.