• Title/Summary/Keyword: family with dementia

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Experience of a Special Rating Dementia Service for Family Caregivers of Elderly People with Dementia (치매노인 가족의 치매특별등급서비스 이용 경험)

  • Cho, Hee Kyung;Chang, Soo Jung
    • Research in Community and Public Health Nursing
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    • v.29 no.2
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    • pp.231-243
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    • 2018
  • Purpose: This study tries to explore experiences with a special rating dementia service among family caregivers of elderly people with dementia. Methods: The participants were 11 family caregivers of elderly people with dementia and had used a day-care service from the special rating dementia service for more than 3 months. Data were collected through individual in-depth interviews and analyzed using content analysis. Results: Three categories emerged: "reminiscence of an entangled life", "feeling relieved from a stifled life", and "hope for a better life through help and support" with 8 sub-categories and 23 codes. By using the special rating dementia service, the participants experienced relief from the burden of caring for their elderly family member with dementia and restored their social relations or family relationships. They experienced a positive transition in which their caring for elderly family members with dementia was integrated into their daily lives, and they expressed their desires for better policies. Conclusion: These findings imply the importance and necessity of the special rating dementia service. Practical and systematic family support programs are necessary and proactive publicity activities by the government and public agencies are suggested to ensure that family caregivers can easily use the special rating dementia system.

The Effects of a Support Program for Family Caregivers of Elderly with Dementia on Empowerment and Attitudes toward Dementia (치매노인 가족 지지프로그램이 치매가족의 임파워먼트와 치매태도에 미치는 효과)

  • Kim, So-Yoon;Jeong, Seonghee
    • The Journal of Korean Academic Society of Nursing Education
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    • v.25 no.1
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    • pp.103-114
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    • 2019
  • Purpose: This research was conducted to identify the effects of providing support programs to families of elderly with dementia on family empowerment and attitudes toward dementia. Methods: A nonequivalent control group pre- and post-test design was used. Participants were 49 family caregivers, experimental (24) and control (25), recruited from families through a dementia support center in Y district. This program implemented Haearim, a support program for family caregivers of demented elders developed by the National Institute of Dementia in 2016. Outcome measures were empowerment and attitudes toward to dementia. Data were analyzed with a ${\chi}^2-test$, independent t-test, Fisher's exact probability test, paired t-test, and repeated measures ANOVA with SPSS/PC version 20.0. Results: Family empowerment (F=6.84, p=.002) and family caregivers' attitudes (F=16.48, p<.001) toward dementia in the experimental group improved significantly more than that of the control group after intervention. Conclusion: Results indicate that support programs for families of elderly with dementia are effective in positively changing empowerment and attitudes toward dementia among family caregivers.

A Study on the Care burden of Family Caregivers for Senile Dementia (노인성 치매환자를 간호하는 가족의 부담감에 대한 연구)

  • You Kwang Soo
    • Journal of Korean Public Health Nursing
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    • v.15 no.1
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    • pp.125-147
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    • 2001
  • The objective of study is to investigate the degree of burden of family who care for the elderly with dementia and to find out the factors related to the family burden as a pilot study. The number of subjects was total 137 and they were the families who were caring for elderly with dementia. The data was analyzed by SPSS/PC, t-test ANOVA. The results were as follows: 1. The score of family burden who were caring for elderly with dementia was 2.90 and the score of burden was high in case of the limitation of indivisual social activities. which was 3.09 and the lowest score was in case of the health of physical and limited which was 2.58 2. There was the correlation the level of dementia and the degree of burden of family who care for the elderly with dementia in character of dementia (p<0.05). 3. There was the correlation between the abnormal activities of the elderly with dementia and the degree of burdens of family (r=0.330). 4. There was the correlation between ADL of the elderly with dementia and the degree of burdens of family (r=-0.330). 5. The service duration had statistically significant correlation with burden In the character of family (P<0.05). 6. The using facility had statistically significant correlations with burden in the character of socity (P<0.05).

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Influencing Factors on Care Burden among Family Caregivers for Elders with Dementia: Focusing on Family Caregivers using a Support Center for Dementia (치매노인을 돌보는 가족부양자 부양부담의 영향 요인: 치매지원센터 이용자를 중심으로)

  • Lim, Kyung Choon
    • The Journal of Korean Academic Society of Nursing Education
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    • v.25 no.1
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    • pp.136-147
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    • 2019
  • Purpose: This study aimed to explore influencing factors on care burden among family caregivers for elders with dementia living at home. Methods: Participants in this study were 211 family caregivers who were taking care of elders registered at a support center for dementia located in S-gu, Seoul. Data were collected using a structured questionnaire. Data were analyzed with descriptive statistics, t-test, ANOVA, Pearson correlation coefficients, and multiple regression in SPSS WIN 23.0. Results: The care burden of family caregivers was mild to moderate ($40.31{\pm}21.50$) in this study. The factors influencing care burden among family caregivers for elders with dementia were the age, behavioral problems, and dependency in instrumental activities of daily living of demented elderly, in addition to the perceived health status and resting hours of family caregivers. Overall, these factors explained 46.5% of the total variability in care burden in this sample (F=13.01, p<.001). Conclusion: Findings from this study suggest that the characteristics of demented elderly and family caregivers can influence care burden differently. Individually tailored strategies based on the various caregiving contexts need to be developed to reduce the level of care burden among family caregivers for elders with dementia.

Respite Care for Family Caregivers of Elders with Dementia : Concept Clarification (재가 치매가족의 휴식 돌봄: 개념명료화)

  • Chang, Sung-Ok;Song, Mi-Ryeong;Kong, Gye-Soon;Choen, Suk-Hee
    • Journal of Korean Academy of Fundamentals of Nursing
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    • v.19 no.1
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    • pp.23-34
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    • 2012
  • Purpose: Respite care is not a discrete intervention, but encompasses a range of services. This research was conducted to clarify the phenomenon of respite care for family caregivers of elders with dementia from a nursing perspective. Method: The Hybrid Model of concept development was applied to clarify the concept of respite care for family caregivers of elders with dementia. The study was conducted in the following three steps, theoretical phase, fieldwork phase, and final analytic phase. Results: The definition of respite care for family caregivers of elders with dementia was delineated through integration of data analyses in theoretical and fieldwork phase, and has three dimensions; tailored supports for caregivers, tailored supports based on physical and cognitive function of elders with dementia and community interventions related to family care function. Conclusion: Through this study, the concept of respite care for family caregivers of elders with dementia is clarified and reformulated as nursing practice phenomena in the Korean context, which indicates ways to develop caring practice forms for a family living with an elder with dementia in a community setting.

A Study of the Family Caregiver's Burden for the Senile Dementia in a Rural Area (일부 농촌 지역 치매노인 가족의 부양부담에 관한 연구)

  • Jang, In-Sun
    • Journal of Korean Academic Society of Home Health Care Nursing
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    • v.2
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    • pp.60-76
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    • 1995
  • The purpose of this study was to analysis level on family caregiver's burden for the elderly with senile dementia in a rural area and to choose priority care group, thereby facilitating the development of interventions to reduce the caregiver's burden. For this purpose, data were collected by questionaire from June 10 to October 8, 1994. The instruments for data collection were Caregiver Burden Inventory by Novak(1989) and Zarit et al(1982), severity of dementia by Hughes Scales (1982), ADL by Lawton (1971), patients' family caregiving activity by pre-survey and reference review(Lee, 1993 ; Jang, 1990 ; Yoo, 1982). The subjects were 60 family caregiver of senile dementia in a rural area. The data was analysed by the use of t-test, ANOVA, correlation and multiple regression. The results were as follows : 1. Total burden was evaluated over average, the mean of family burden was 61.24. 2. Significant variables which were correlated to the family caregiver's burden were the severity of dementia(F=30.52, p<0.001), ADL(F=5.43, p<0.01), PADL(F=6.14, p<0.01), caregiver's health status(F=6.05, p<0.01), a view of patient's prognosis(F=4.08, p<0.05), the number of hours per day spent on caregiving(F=19.64, p<0.001), level of intimacy of caregiver and patients(F=7.16, p<0.001), the frequency of caregiving activity(F=5.31, p<0.01). 3. ADL was the most important predictor to family caregiver burden(R2=0.6611). In addition to this, the severity of dementia, level of intimacy of caregiver and patient, relationship with the patient accounted for 79% of family caregiver burden. 4. The criteria of priority care group were as follows ; the mean of family caregiver burden was above 58, above of moderate ADL, the number of hours per day spent on caregiving above of 8 hours, above of moderate dementia. By the the severity of dementia, number of priority care group, mild dementia was 10(43.4%), moderate dementia 23 (92.0%), sever dementia 12(100.0%).

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Cure Program Development for Caregivers of Elderly with Dementia (치매노인 부양자를 위한 치료프로그램 모형 개발)

  • Hong Dal-Ah-Gi
    • Korean Journal of Human Ecology
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    • v.7 no.4
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    • pp.41-54
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    • 2004
  • The purpose of this study was to develop the cure program for family caregivers of elderly with dementia, As the lifespan has been expanded, Most of family caregivers had serious problems which are burden for caregiving(economic burden. physical & social burden, negative elderly-family caregiving relationship) and the life quality of the elderly and family caregivers and the future social welfare alternatives for taking care of the elderly. To develop the cure program for family caregivers of elderly with dementia is very important. This program can prevent to be another elderly with dementia. The results can be used as basic data to develop educational programs for family caregivers.

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The effects of symptoms of dementia elderly on the primary caregiver's depression : moderating effects of family support (치매환자의 증상정도가 주부양자의 우울에 미치는 영향 : 가족지지의 보호효과를 중심으로)

  • Park, Sun Won;Kwak, Ju Yeon
    • Journal of Family Relations
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    • v.21 no.3
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    • pp.3-23
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    • 2016
  • Objectives: The purpose of this study is to examine the effects of symptoms of dementia elderly on the primary caregiver's depression. In addition, moderating effect of family support was examined. Based on the results, the necessity for intervention in the level of social welfare as a way to mitigate primary caregiver's depression was suggested. Method: In order to accomplish these purposes, a total of 197 who are spouse and adult-children of dementia elderly using day care facilities or services in Seoul, Gyeonggi, Busan province, South Korea were utilized. Data were analyzed by frequency analysis and descriptive statistics, regression model analysis with SPSS 18.0. Results: In case of analysis results, the mean value was reported 0.9 out of four point about primary caregiver's depression and the mean value of family support was reported 3.34 out of five point. And besides, the analysis result of dementia elderly's symptoms showed that prevalence of depression/dysphoria were 62.2%, prevalence of aberrant motor were 61.3%, prevalence of apathy/indifference were 56.6%. Crucial findings are as follows: the symptoms of dementia elderly was significantly associated with the primary caregiver's depression. At the same time, family support significantly influenced lower level of the primary caregiver's depression. While, in the relationship between the symptoms of dementia elderly and the primary caregiver's depression, family support has a moderation effect by important protection factor. Conclusions: From these findings, the necessities to provide the care service for dementia elderly to help improve symptoms of dementia as well as the policy and service to manage the mental health of the family as primary caregiver were suggested. Also, the necessities to provide the family therapy program to improve the relationship with family members were suggested.

Comparison of ADL and Symptoms in Elders with Dementia according to Family Resiliency (가족 복원력이 높은 집단과 낮은 집단간 치매노인의 일상활동능력 및 치매증상 비교)

  • Seomun Gyeong-Ae;Chang Sung-Ok;Lee Su-Jeong
    • Journal of Korean Academy of Fundamentals of Nursing
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    • v.12 no.1
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    • pp.81-90
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    • 2005
  • Purpose: The purpose of this study was to identify family resiliency, ADL in elders with dementia, and symptom for families with an elder with dementia. Method: The participants were 102 people who were caregivers to elders with dementia and who visited the out-patient department at S. hospital for follow up care. Data were collected from August to October 2003 using a questionnaire. The collected data were analyzed using descriptive statistics and t-test aided by the SPSS/PC. Result: Family resiliency for the whole sample was within normal limits but when the sample was quarter-divided by good and poor family resiliency, based on established cut-off scores, there were differences for some characteristics according to good/poor family resiliency. These differences were for perceived health state of caregivers (t=-2.78, p=.008), economic state of family (t=-3.34, p=.002), and ADL (t=-2.56, p=.014). Conclusion: Future research should focus on the way in which family resiliency can be enhanced and on the effects of interventions for those caregivers who report poor family resiliency.

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Housing Needs of Korean Family with Demented Elderly (한국치매노인 가족의 주거환경 개선요구)

  • 이윤희;이연숙
    • Journal of the Korean housing association
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    • v.15 no.1
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    • pp.141-152
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    • 2004
  • Most elderly victims of senile dementia in Korea are cared for at home. This creates hardship for their families. Recent research suggests that the physical environment can affect the treatment of dementia. In light of these findings, a prudent approach to the design of the housing environment of family with dementia sufferers is advisable. This study aims to determine the design factors that need to be considered for the housing environment of dementia, particularly for those suffering from Alzheimer's or Cerebrovascular dementia. For this study, and in-depth qualitative investigation method was employed. Principal caregivers were interviewed using various investigative tools, including objective measures, structured and non-structured questionnaires. The investigation results suggest that the need for housing environment improvement varies with the severity and type of dementia. The housing needs in this study, is expected to promote a focus on improved design management for the environment and housing of dementia and their families. The results also suggest the establishment of a welfare policy for senile dementia victims and their families.