• Title/Summary/Keyword: family caregiving

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The Factors affecting Burdens and Quality of Life of the Family Caregivers of Patients with Rare and Incurable Diseases Using Home Ventilators (가정용 인공호흡기를 적용한 희귀·난치성질환자를 돌보는 가족간호자의 부담감과 삶의 질 영향요인)

  • Hwang, Moon Sook;Lee, Mi Kyoung;Song, Jeong Rye
    • Korean Journal of Adult Nursing
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    • v.26 no.2
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    • pp.191-202
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    • 2014
  • Purpose: This study was aimed to survey the actual caregiving conditions of family caregivers who are caring patients with rare and incurable diseases using home ventilators at home, and to clarify any factors affecting their burdens and quality of life. Methods: A questionnaire survey was performed by the 159 subjects, and the questionnaires contained the actual conditions of caregiving activities, and caregiver's burdens and quality of life. The collected data was analyzed by ANOVA, Pearson's correlation, and stepwise linear regressions. Results: The mean of burden scores was 3.55 out of 5, and influencing variables included the relationships with patient (spouse), respite (moderate), health status, and diagnosis (non ALS), with the explanatory power of 30.0%. The mean of the quality of life was 2.58 point, and the influencing variables included burdens, health status, and respite (enough), with the explanatory power of 39.0%. Conclusion: In order to improve the quality of life among family caregivers caring for patients with using a home ventilator, it is required to develop strategies for reducing caregiving burdens as well as to introduce family respite welfare systems to family caregivers.

Grandmother-Adult Child Solidarity and Grandmother's Child-rearing Role: Moderated Mediation Effect of Caregiving Satisfaction and Relation with Grandchild (조모-성인자녀 결속도와 조모역할수행 간의 관계에서 돌봄만족과 손주관계의 조절된 매개효과)

  • Chung, Mi Ra;Choi, Hye Jeong
    • Human Ecology Research
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    • v.56 no.3
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    • pp.205-216
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    • 2018
  • This study examined how the relationship between grandmother-adult child solidarity, caregiving satisfaction, and grandmother's child-rearing role varies according to the relation with the grandchild. Mediation effects and moderated mediation effects were analyzed to investigate the relationship between these variables. The participants were 295 grandmothers raising preschool-aged grandchildren in the Seoul and Gyeonggi areas. Data was analyzed using SPSS 23.0 and PROCESS macro, performing correlation analysis and hierarchical regression analysis. The statistical significance of the indirect effect was examined using a bootstrapping procedure. The results are as follows. First, grandmother-adult child solidarity directly affects the grandmother's child-rearing role. Second, grandmother-adult child solidarity indirectly affects the grandmother's child-rearing role through caregiving satisfaction. Third, the direct and indirect effects of grandmother-adult child solidarity on the grandmother's child-rearing role are moderated by the relation with the grandchild. The direct effect of grandmother-adult child solidarity on grandmother's child-rearing role was therefore shown to be significant on the maternal grandmother. Fourth, the indirect effect of grandmother-adult child solidarity on the grandmother's child-rearing role through caregiving satisfaction was shown to be significant on the paternal grandmother. Based on the results of this study, we discussed ways to strengthen the capacity of co-parenting between grandparents and adult children.

Experiences of Family Caregivers of Patients with Terminal Cancer (말기 암환자 가족의 돌봄 경험)

  • Choi, Eun-Sook;Kim, Keum-Soon
    • Journal of Korean Academy of Nursing
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    • v.42 no.2
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    • pp.280-290
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    • 2012
  • Purpose: This study done to identify the experiences of families caring for patients with terminal cancer. The question was, "What is the caregiving experience of a family who has a member with terminal cancer?" Methods: Grounded Theory was applied and in-depth interviews were done with 11 family members. Interviews were recorded with the interviewees' consent and were transcribed and analyzed. Participants' relationships to patients were 6 spouses, 4 daughters, and 1 mother. The ages of the participants were between 32 and 62, with an average of 47.5. Results: The study showed "enduring with bonds" as the main category and the main factor affecting this category was the "patients' diagnosis of terminal cancer." The caregiving experience was divided into four stages: shock, confusion, struggle, and acceptance. Mediating factors were relationship with the patient, intimacy with the patient, social support, communication, and trust. Conclusively, participants underwent internal maturity, and changes occurred in family and social and personal life. Conclusion: The families took care of the patients with responsibility and love. The study results should help with the understanding of a family with a member with terminal cancer and should be used to develop nursing, mediating, and consulting programs for these caregivers.

A Study on the Determinants of Housewives' Caregiving Behavior to Their Elderly Parents-in-Law : Estimation of Covariance Structure Models for Fathers-in-Law and Mothers-in-Law (노인부양행위의 결정요인에 관한 연구 : 시부 및 시모에 대한 공변량구조모형 분석)

  • Kim, Sang-Wook;Yang, Chul-Ho
    • Korean Journal of Social Welfare
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    • v.35
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    • pp.51-83
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    • 1998
  • This study is designed to find out the determinants of housewives' caregiving behavior to their elderly parents-in-law. For this purpose, a tentative path model, constructed with major socio-demographic variables in the caregiver's family as exogenous variables, is proposed to account for caregiver's behavior to elderly parents-in-law. The model is estimated with data collected from a probability sample of housewives in Kwangju, Korea. Estimation of the model, separately for caregiver's fathers-in-law and mothers-in-law, in terms of maximum likelihood(ML) procedures in LISREL8 reveals that housewives' educational attainment, father-in-law's age, father-in-law's health status, and family size have statistically significant causal. effects on care giving behavior to fathers-in-law, and that housewives' educational attainment, mother-in-law's age, family size, and caregiving attitude have significant causal effects on caregiving behavior to mothers-in-law. Comparison of the two estimated models indicates caregiver's educational attainment, caretaker's age, and family size are prominent determinants of caregiving behavior that can be commonly generalized to the two models. Except for these common determinants, however, a nonnegligible amount of differences is identified between the two models. The findings are discussed and interpreted with suggesting some salient theoretical and policy implications.

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A Study on the Development of Self-help Program with Care Burden for Families with Demented Elderly Persons (치매노인 가족의 부양부담 경감을 위한 자조집단프로그램 개발)

  • Kim, Joung-Soon;Lee, Su-Ill;Kim, Ki-Tae;Park, Nam-Hee
    • Research in Community and Public Health Nursing
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    • v.16 no.3
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    • pp.260-269
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    • 2005
  • Purpose: This study were to understand the caregiving situation of families with the demented elderly and to develop a self-help program for them. Method: A self-help program was designed to increase caregivers' confidence and skills in problem solving. In addition, it was designed to provide information about the demented elderly. The self-help program of this study was composed of nine sessions. Result: Family caregivers of elderly patients with dementia obviously experience high level of stress. which often leads the caregivers to negative outcomes such as depression, interference with social activities and health difficulties. That is, caring is stressful for caregivers because the demands of the caregiving situation tend to overwhelm the caregivers' coping resources. Therefore, families with demented elderly persons need assistances in order to be relieved from their care burden. Conclusion: The self-help program includes the understanding of dementia, the family caregiving experiences of the demented elderly persons, the time for self-care, the search for helping, the improving of interpersonal relations and communications.

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A Study on the Influencing Factors in Family Functioning of Stroke Patients (뇌졸중 환자의 가족 기능에 영향을 미치는 요인 분석)

  • Cho, Bok-Hee
    • The Korean Journal of Rehabilitation Nursing
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    • v.1 no.1
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    • pp.1-14
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    • 1998
  • The purpose of this study was to identify the factors affecting family functioning of stroke patients. A descriptive survey research was conducted in which 65 stroke patients and their primary caregivers were conveniently sampled. Data were collected from July to September, 1998 through interviewing using a structured questionnare. The measuring instruments used were Barthel Index by Mahoney and Barthel(15 items), Quality of Relationship Scale by Archbold and Stewart(15 Items), Role Stress of Caregiver Scale by Yang(14 items), Situational Definition Scale by Lee(9 items), Family Hardiness Index by McCubbin, McCubbin. and Thompson(20 items), and Family Adaptability Cohesion Evaluation Scale(FACES-III) by Olson, Portner, and Lavee(20 items). The obtained data were analyzed using percentage, t-test, ANOVA, Duncan test, and Pearson coefficients correlation by SAS/PC program. The results were as follows; 1. Role Stress of Caregiver was not severe and Quality of Relationship was moderate. The level of Situational Definition of primary caregivers was not high but Family Hardiness and Family Functioning were rather high. 2. The following relationships between research variables and demographic characteristics of the primary caregivers of stroke patients were significantly different; occupation of caregiver between Quality of Relationship, occupation of caregiver between Situational Definition, family type between Role Stress, caregiving duration between Family Hardiness, caregiving duration between Family Functioning, and hospitalization days between Family Functioning. 3. The correlations between research variables were as follows; There was positively correlated between patient's ADL and Quality of Relationship. The relationship of the patient's ADL between Role Stress was negatively correlated. Quality of Relationship between Situational Definition, Family Hardiness, and Family Functioning were significantly correlated. The correlation of Situational Definition between Family Hardiness, and Situational Definition between Family Functioning were very high. As a result of these findings, Quality of Relationship, Role Stress, Situational Definition. and Family Hardiness were useful variables for identifying Family Functioning of stroke patients. It is important for the rehabilitation nurse to be knowledgeable about family functioning of stroke patients to promote rehabilitation process.

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An Ecological Study on Infant-Mother Attachment in a Nonmaternal Care (타인 양육 영아-어머니 애착에 대한 생태학적 연구)

  • 양연숙
    • Journal of the Korean Home Economics Association
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    • v.40 no.7
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    • pp.1-14
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    • 2002
  • This study investigated infant, mother/famny, and nonmaternal care characteristics contribution to infant- mother attachment through ecological perspective. Participants were forty 12-to 18-month-o1d infants and their mothers. Infants were observed in the Strange Situation to assess the pattern of infant-mother attachment; the Observational Ratings of the Caregiving Environment was used to assess the caregiving environment. Mothers were interviewed with the questionnaires, and observed in the laboratory "living room". There were significant effects of material sensitivity/responsiveness and good quality child care on secure attachment. Infant, mother/family, and nonmaternal care characteristics were mutually related.

Experiences of Family Caregivers of Cancer Patients Receiving Chemotherapy

  • Sercekus, Pinar;Besen, Dilek Buyukkaya;Gunusen, Neslihan Partlak;Edeer, Aylin Durmaz
    • Asian Pacific Journal of Cancer Prevention
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    • v.15 no.12
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    • pp.5063-5069
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    • 2014
  • Background: Cancer is a disease which affects not only patients but also their families physically and emotionally. The purpose of this study was to determine the needs, challenges and ways of coping of caregivers of cancer patients. Materials and Methods: In the study, a phenomenological approach was used. Data were collected through semi-structured individual interviews. The study sample comprised 16 family members providing care for a cancer patient. Results: The study findings are grouped under four main themes: the impact of caregiving, masking feelings, experienced challenges and expectations, and coping. During the caregiving process, patient relatives are affected physiologically, psychologically and socially. It was determined that patient relatives hid their feelings and avoided talking about the disease for fear that they might upset the patient, and that they had difficulty in coping with the patient's reactions during the treatment process. Family members had difficulties arising from the health system, hospital conditions and treatment in addition to transportation and financial problems. Support is very important in coping, but it was determined that some of the relatives of patients did not receive adequate support. Patient relatives expect that health care professionals should provide them with more information about their patient's condition and the course of the disease that their patients should be dealt with by the physicians specialized in cancer, and that psychological support should be provided both for them and for their patient. Conclusions: During the caregiving process, family members are faced with many difficulties and they exhibit different coping behaviors which health care professionals should take into account.

Elderly Caregiving and Health : Analysis of the mediate effect of social network and Satisfaction (노년기 수발 경험에 따른 건강 변화 : 사회적 관계망과 만족도의 매개효과 분석)

  • Lee, Seo-yeon
    • Journal of the Korea Academia-Industrial cooperation Society
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    • v.18 no.10
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    • pp.642-651
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    • 2017
  • This study aimed to examine the changes in the health status, social network and satisfaction of caregivers as a result of caregiving using a structural equation model. As a result, it was found that caregiving increased the level of depression and decreased the subjective health status in both men and women. The social network and satisfaction were found to differ according to gender. For the women caregivers, caregiving affected their subjective health status and depression. In the case of the men caregivers, the total effect of caregiving on their subjective health was 1.087(p<.05), while the indirect effect was 0.546(p<.05). Also, caregiving affected the subjective health status of the male caregivers through the functional family network as a mediating factor(0.42, p<.01). The results suggest the necessity to take these gender differences into consideration when discussing the health of caregivers. Also, the functional family network needs to be strengthened to prevent the deterioration of the health status of male caregivers.

An Ecological Analysis of Early Child Care Arrangements(2) (영유아 양육환경에 대한 생태학적 연구(2) -저소득층 지역 비취업모 가정을 중심으로-)

  • Lee, Young;Shin, Eun-Juh;Rha, Jong-Hay
    • Journal of the Korean Home Economics Association
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    • v.33 no.3
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    • pp.165-177
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    • 1995
  • The home environments, daily activities, caregiving behaviors of mothers, infant's verbal behaviors, attachment to mothers of home-reared infants from low SES families were observed. 30 two-year-old home-reared infants and their mothers were observed at home by the time sampling method. The HOME scale, the behavioral checking lists for caregiving behaviors and for the infants' verbal behaviors, and the Attachment Q-set were used for the observation. the total HOME scores were in the middle range and the scores of "Provision of apropriate play materials" was relatively high, but "Avoidance of restriction and physical punishment" was low. The most frequent caregiving behaviors shown by mothers were " Facilitating verbal development" and "Positive social-emotional inputs". The most frequent verbal behaviors shown by infants were " Information exchange" and " Language interpretation" . The infants' attachment security scores of their mothers tended to be low.

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