• Title/Summary/Keyword: family caregiving

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Study of the Positive and Negative Caregiving Experiences in the family members who care for the psychiatric mentally ill relatives (정신장애인 가족의 긍정적, 부정적 돌봄의 경험에 관한 연구)

  • Lee, Kwang-Ok;Kim, Hee-Jung
    • Research in Community and Public Health Nursing
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    • v.10 no.2
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    • pp.435-454
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    • 1999
  • The caregiving experiences of 100 family menbers of outpatients with schizophrenia and schizoaffective disorders were investigated for the presence of positive(positive family-patient relationship. patient' contribution to the family) and negative caregiving experience(objective and subjective burden) and their predictors. This study attempts to make the analysis of caregiving experience more useful by expanding the focus to incoporate these positive aspects of the experience of family caregiver. Objective burden consists of two elements: 'disruption of family life', 'care'(amount of caregiving related to activity of daily living). Subjective burden is defined as emotional reactions to the care giving and it comprised of 6 emotional subdimensions such as 'stigma', 'grief'. 'worry', 'pity', 'fear', 'despair'. Also we investigate the severity of patients' disturbing behaviors into two categories, positive and negative disturbing behaviors and patient' contribution to the family as a predictors of positive and negative caregiving experiences. This study use Pearson's correlation coefficient, Hierardhical regressions in the SAS Program. The results are as follows: 1. Respondents reported moderate level of objective burden 'disruption of family life' (mean = 2.48, range = 1-4), and 'care' (mean=2.54, range = 1-4), and slightly high level of total subjective burden(mean = 2.19, range = 1-4). Mean scores for the measure of the severity of behavioral disturbance indicated that the caregiver experienced negative disturbing behaviors around almost 'somtimes'(mean=2.28, range = 1-4), and positive disturbing behaviors 'almost not frequent'(mean=2.78. range=1-4). So they reported that they perceived patient's negative disturbing behaviors more than positive disturbing behaviors. Mean scores for the measure of the patient' contributions (mean = 1.99. range = 1-4) indicated that caregivers experienced these contributions a little. It means that there should be a positive aspect of possibilities of patient' family roles that can be developed in the daily life. Mean scores for the measure of the positive family-patient relationship indicated that caregivers experienced moderate level of positive family-patient relationship(mean=2.52, range = 1-4). 2. Hierardhical regression analysis 1) Hierardhical regression of 'disruption of family life' showed that the interaction between positive disturbing behaviors and patient' contributions (B = .20. p = .022) and caregiver's educational level(B=.06. p=.000) were 'significant and Hierardhical regression of 'care' showed that 'negative disturbing behaviors'(B= .35. p= .007). 'patient' contributions'(B= .28, p= .019). 'family income'(B=-.l1. p=.096) were significant. 2) Hierardhical regression of 'total subjective burden', 'stigma', 'grief', 'worry', 'pity'. 'fear', 'dispair' showed that 'positive disturbing behaviors'(B=.51. p=.000). 'negative disturbing behaviors' (B = .17, p = .026), 'caregiver's educational level'(B = .03. p=.036), 'family income'(B=.08. p=.041) were significant predictors of 'total subjective burden': 'positive disturbing behaviors'(B=.32. p=.066). 'negative disturbing behaviors'(B=.24, p=.096) 'durations of illness'(B= .03. p= .079) were significant predictors of 'stigma' 'negative disturbing behaviors'(B=.28. p=.005). 'patient sex'(B=-.32. p=.022). 'positive disturbing behaviors'(B=.28. p=.020), 'patient age'(B=.02. p=.010), 'caregiver age'(B=-01, p= .002) were significant predictors of 'grief' 'negative disturbing behaviors'(B= .28, p= .005). 'patient sex'(B= -.32. p=.039), 'caregiver age'(B=-.02, p= .023). 'caregiver's educational level'(B= .04, p = .044) were significant predictors of 'worry' 'patient sex'(B=-.46. p=.005). 'negative disturbing behaviors'(B= .28. p=.018), 'caregiver age'(B=-.01, p=.037) were significant predictors of 'pity' 'positive disturbing behaviors'(B=.83. p=.000). 'patient' contributions' (B = .22, p =.017). 'family income'(B=.09. p=.65) were significant predictors of 'fear' 'positive disturbing behaviors'(B=.49, p=.001). 'negative disturbing behaviors'(B= .24. p=.057) 'patient sex'(B=-.4l, p=.017), 'family income'(B=.14, p=.047) were significant predictors of 'dispair'. 3) Hierardhical regression of 'positive relationship' showed that 'patient contributions'(B=.32, p=.000). 'negative disturbing behaviors'(B= .24, p= .005), 'patient sex'(B=-.23, p=.036).

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Cure Program Development for Caregivers of Elderly with Dementia (치매노인 부양자를 위한 치료프로그램 모형 개발)

  • Hong Dal-Ah-Gi
    • Korean Journal of Human Ecology
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    • v.7 no.4
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    • pp.41-54
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    • 2004
  • The purpose of this study was to develop the cure program for family caregivers of elderly with dementia, As the lifespan has been expanded, Most of family caregivers had serious problems which are burden for caregiving(economic burden. physical & social burden, negative elderly-family caregiving relationship) and the life quality of the elderly and family caregivers and the future social welfare alternatives for taking care of the elderly. To develop the cure program for family caregivers of elderly with dementia is very important. This program can prevent to be another elderly with dementia. The results can be used as basic data to develop educational programs for family caregivers.

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A Study on the Caregiving and Adaptation in the Families who Awarded on Filial Piety (효행자 가족의 부양과 적응에 관한 연구)

  • 김서연
    • Journal of Families and Better Life
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    • v.17 no.2
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    • pp.75-92
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    • 1999
  • The purpose of this study was to investigate the caregiving and adaptation in families who awarded on filial piety. Using the qualitative methods-in depth interview genogram ecomap participation observation- 8 families were analyzed The major findings can be summarized as follows (1) These families showed very high family solidarity with strong collectivity. Their family role was interchangable and their familiarity was passed down from generation to generation. (2) Family members showed similar coping patterns on the basis of their own adaptationl Their coping was inclined toward acceptance especially religioous rather than emotional-focused ad hardly avoidance coping. (4) Although their economic emotional and service cares were family-centered with helps from their extended family household equipment for elder care was not prepared. (5) These families preferred to maintain this condition rather than to be well adapted. It was concluded that to help failed elder's family care iving social support program should be complemented in family life enrichment program for their children medical care program equipment rental program for elder in social network religion program and so on, Social norms forparent-children relation has be changed to more flexible care pattern. Also more social-emotional support has to be given to these families.

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An exploratory study of differences in the relationship between social support and caregiving self-efficacy among mothers of persons with intellectual disability across the life span (지적 장애인을 자녀로 둔 어머니의 사회적 지지가 돌봄 자기효능감(Caregiving Self-Efficacy)에 주는 영향: 장애인 생애주기의 조절효과에 대한 탐색적 연구)

  • Kim, Kyo-Yeon
    • Korean Journal of Family Social Work
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    • no.23
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    • pp.43-70
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    • 2008
  • This study investigated the relationship between social support and caregiving self-efficacy among 530 mothers of persons with intellectual disabilities in their childhood(age 3-12), adolescence(age 13-18), and adulthood(age 19-35), exploring the moderating effect of the life span affiliation of the children with disabilities. The analysis revealed that greater perception of social support predicted higher level of caregiving self-efficacy for all the mothers. However, the moderating effect was detected indicating that there were differences in the effects of social support on caregiving self-efficacy across groups. Although social support was found to have some positive effects on caregiving self-efficacy for each group of mothers of both adolescents and adults, no effects for a group of mothers of children. These findings suggested that greater emphasis be placed on the expanded provision of social support for families of persons with intellectual disabilities in their developmental stages following the childhood.

Effect of Family Resilience of Self-Sufficiency Program Participants on the Will to Be Self-Sufficient: Focusing on the Mediating Effect of Family Support (자활사업 참여자의 가족탄력성이 자활의지에 미치는 영향: 가족지지의 매개효과를 중심으로)

  • Kim, Jung-Hee
    • Journal of Family Resource Management and Policy Review
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    • v.25 no.3
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    • pp.1-15
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    • 2021
  • This study explored how the family resilience of participants in self-sufficiency programs relates to their willingness to be self-sufficient and analyzed the mediating effects of family support in the relationship. The subjects of the study were 283 people in their 20s to 70s who are participating in a local self-sufficiency center in Gangwon-do. Statistical analyses were conducted using IBM SPSS 18, with descriptive statistics, difference verification and regression, and mediating effects analyzed following Baron & Kenny(1986). The results of the analysis are as follows. First, we conducted difference verification between the sociodemographic characteristics of participants in the self-sufficiency program and major variables. There was a significant difference in the willingness to be self-sufficient in terms of the caregiving family and household income. Family resilience differed significantly depending on age group, marital status, health condition, household type, caregiving family, and homeownership, while family support differed significantly in age group, marital status, health condition, household type, caregiving family, and debt. Second, we conducted a hierarchical regression analysis to determine the factors influencing the will of self-sufficiency of those participating in the self-sufficiency program and found that the better the health condition, the presence of caregiving families, and the higher the level of family resilience and family support, the higher the level of will to be self-sufficient. Third, analyses of the mediating effect following Baron & Kenny(1986) have shown that family support has a full mediating effect on the relationship between family resilience and the will to be self-sufficient. Thus, we have verified that family resilience and family support are important factors as an alternative to improving the level of willingness for self-sufficiency program participants.

The Impact of the Korean Long-Term Care Insurance System on its Family Caregivers: Focusing on Family Caregiving Arrangement (노인장기요양보험제도에서 재가노인돌봄의 변화에 대한 연구)

  • Yang, Nanjoo;Choi, In-Hee
    • Korean Journal of Social Welfare Studies
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    • v.44 no.3
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    • pp.31-56
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    • 2013
  • The purpose of this study was to investigate the changes that family caregivers have experienced since using the Korean Long-Term Care Insurance(LTCI) system. In-depth interviews were conducted to determine how the services offered within the LTCI program had affected family caregiving and what changes they had incurred. Results from the qualitative content analysis show that the LTCI program significantly reduced the caregiving burden among family caregivers although burdens that family caregiver perceived varied greatly depending on the types of service that the family selected, and assigned family caregivers different identities and diverse roles(i.e., service user, family caregiver, certified care provider) depending on the service they use. The phenomenon of 'certified family care provider', which was not an intention of LTCI, demonstrates the practical need of elderly persons who require both care and the comfort of family and economic status of the family. Despite the positive impact of the LTCI policy on the family caregivers' burden and family relationship, the current LTCI system should be modified in order to better meet the needs of beneficiaries and their family caregivers.

The Burden and Caregiving Satisfaction of Primary Family Caregivers of Older Adults with Dementia: Cultural and Non-Cultural Predictors (치매노인을 돌보는 주가족 간호자의 부담감과 간호만족감: 문화적, 비문화적 요인)

  • Kong, Eun-Hi;Cho, Eunhee;Song, Misoon
    • 한국노년학
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    • v.29 no.2
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    • pp.701-716
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    • 2009
  • The aim of this study was to investigate the burden and caregiving satisfaction of primary family caregivers of older adults with dementia, and to identify cultural predictors and non-cultural predictors of burden and caregiving satisfaction. This study included 112 primary family caregivers of community-dwelling older adults with dementia who utilized 13 dementia day care centers in Seoul or Gyeonggi-do. Data were collected by survey questionnaires. The majority of the primary caregivers were female (81%) and daughters-in-law (46%). The mean burden score was 49.4 and the mean caregiving safisfaction score was 42.3. Regression analyses revealed that the significant predictors of primary caregivers' burden were the non-cultural factors of caregiver's perceived health (β= .421, p= .049) and care recipient's memory and behavioral problems (β= .183, p= .041). The cultural factor of familism (β= .466, p= .005) was the only significant predictor of caregiving satisfaction. There is more need to develop programs which improve caregiver's burden and caregiving satisfaction. Strategies to increase caregiver's utilization of the programs also need to be developed.

Conceptualizing Caregiving Supports for Families Who Have Children with Disabilities: A Concept Mapping Application (장애아동 가족을 위한 돌봄지원 개념화: 개념도 연구법을 활용하여)

  • Kim, Yu-Ri;Choi, Bogcheon
    • The Journal of the Korea Contents Association
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    • v.17 no.9
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    • pp.498-509
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    • 2017
  • Caregiving supports have been provided to decrease caregiving burdens of families of children with disabilities, but there are needs for improving caregiving services. The purpose of this study was to conceptualize content items and domains of caregiving supports from the perspectives of parents and service providers in order to help families of children with disabilities to decrease their caregiving burdens. This study used concept mapping that was useful for service-needs identification and program development. First, focus group interviews with two parent groups and one service provider group were conducted to generate a total of 31 items. Also, they sorted the items in terms of conceptual similarity and rated the items in terms of their needs. Next, the sorting data were analyzed using multidimensional scaling and cluster analysis and the rating data were calculated for mean. The results provided 31 content items in four domains: regular caregiving, activity-based caregiving, parent empowerment for caregving, and strengthening family relationships. All the domains were rated as important to decrease caregiving burdens. This study has practical implications for improving caregiving services and the related policies.

Resource Transfers from Adult Children to Their Elderly Parents (미국 성인자녀의 노부모에 대한 자원이전행동에 관한 연구)

  • Koh Sun-Kang
    • Journal of Families and Better Life
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    • v.23 no.1 s.73
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    • pp.187-195
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    • 2005
  • The purpose of this study is to examine the influence of parent-to-child financial transfers and economic resources on financial transfers, caregiving, and time donated from middle-aged adult children to their elderly parents. Analyzing data from the Wisconsin Longitudinal Study, which provides long-term observations of financial reciprocity and recent reports about elder care, the current study finds strong positive effects of prior parent-to-child financial transfers in the models of caregiving and time; which indicates the importance of reciprocity. In terms of determinants of resource transfers, the findings of logistic regression analyses suggest that the economic resources of parents and adult children are strong determinants of child-to-parent financial resource transfers. Sociodemographic characteristics of parents and respondents were observed as strong determinants of caregiving or time. In addition, caregiving responds more to the health and income levels of parents whereas donated time is responsive to the net worth of parents and parents' status. For adult children, gender is a strong determinant of both caregiving and time donation. The long-term health problem of adult children is a statistically significant predictor of caregiving, while the employment status of adult children and the number of siblings have statistically a significant association with time donated to care for the parents.

The Realities in the Elderly Caregiving and Its New Direction: Revisiting Caregiving Researches in the 1990s (노인부양의 현실과 그 새로운 방향: 1990년대 연구를 중심으로)

  • 손태홍
    • Journal of the Korean Home Economics Association
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    • v.39 no.11
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    • pp.27-42
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    • 2001
  • This paper reviews researches related with the elderly caregiving, which hale published during the 1990s. After analyzingthe 29 articles in this field, the major findings are as follows: First, the advantageous position in life chances which is consisted of socioeconomic status and resources tends to reduce th burden for the elderly care. The higher in social status, the more resources older adults have, the more advantageous in controlling their relationship with their children and caregivers. Second, values based on familism is more associated with providing caregiving services for their parents than those of filial piety. Third, the tendency that daughter-in-law takes the role of the primary caregiver suggests a possibility of diminishing her enthusiasm, and finally comes to recognize her role as an enforced one, as time goes by. Fourth, cargiving burden affects the diverse aspects of caregiver's way of life. When the lower class elderly has dementia, caregiving stress and hassle have reached at their peak level. For meeting the needs of reducing the burden for the elderly care, this study suggests community- based approach for the elderly care. This approach attempts to share the caregiving burden with local community. To share the burden means that the boundaries of caregivers does not limit family members, but to expand community. This attempt includes a plan that establishes multipurpose community center which provides comprehensive services and care for the aged. The theoretical rationale of this approach are also discussed.

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