• Title/Summary/Keyword: care burden of dementia

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A qualitative study on the present conditions and problems of oral health care in senile dementia patients (치매 노인의 구강건강관리실태 및 문제점에 관한 질적 연구)

  • Jung, Eun-Seo;Choi, Yoon-Young;Lee, Kyeong-Hee
    • Journal of Korean society of Dental Hygiene
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    • v.19 no.4
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    • pp.601-614
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    • 2019
  • Objectives: The purpose of this study was to investigate the present conditions and problems of oral health care in senior citizens with dementia using a qualitative research method, through focused group interviews. Methods: Data was collected for approximately one month from May 2019. The subjects were divided into two groups: care workers and family caregivers. Fifteen participants were included in the study. Results: In-depth interviews with the care workers revealed the following three categories: characteristics of senile dementia patients, oral health care in senile dementia patients, and oral health care education. In-depth interviews with the family caregivers revealed the following four categories: characteristics of senile dementia patients, oral health care in senile dementia patients, oral health care education, and burden of care. The central themes common to both the care workers and family caregivers were the challenges owing to the characteristics of senile dementia patients, poor health condition of the senile dementia patients, difficulty in oral health care of the senile dementia patients, the desire to receive oral health care education and related information, and to access the information more easily. Additional central themes specific to the care workers were, the applicability of the intervention programs, variability between the facilities, and the problems of oral health care education. An additional central theme specific to the family caregivers was the burden of care. Conclusions: It is necessary to provide oral health care education and information to care workers and family caregivers of senile dementia patients, and to manage and support the dental health professionals ready to care for senile dementia patients. In addition, support to the family caregivers should not be limited only to the financial aspects, but also consider the psychological and emotional difficulties.

Factors Influencing Care Burdens of Caregivers of Elders with Dementia who Request Dementia Domiciliary Welfare Services (재가복지서비스 신청 치매노인 주부양자의 부양부담감 영향 요인)

  • Lee, Young-Whee;Kim, Hwa-Soon;Cho, In-Sook
    • Journal of Korean Academy of Fundamentals of Nursing
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    • v.15 no.3
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    • pp.274-283
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    • 2008
  • Purpose. The purpose of the study was to identify the factors, which predict care burden perceived by caregivers of elders with dementia. Methods: The participants in this descriptive survey were 92 caregivers who used one of six daycare centers located in Incheon. The data were collected by questionnaires composed of items on general characteristics of the elders and caregivers, care burden, caregiver fatigue, and functional status of the elders. Results: General characteristics of the elders associated with care burden were age, gender, religion, and the presence of a spouse. Features of caregivers related to care burden were education, relationship with elderly, amount of rest, intention to care, monthly family income, and perceived family economic status. There were significant correlations among care burden, fatigue of caregiver and functional status of the elders. In stepwised multiple regression analysis, significant influencing factors were identified as caregiver fatigue, functional status of the elders, intention to care, relationship with the elders, amount of rest and elder's gender. Those variables explained 46% of variance of care burden. Conclusion: Functional status of elders and amount of rest were significant predictors and are supported by other previous studies. Future interventions for caregivers need to be focused on the slowing down of functional status of elders and increasing of number and length of caregiver's rest periods.

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Oral care practices for dementia patients and social support and depression in family caregivers of dementia patients (치매환자 부양가족의 치매환자 구강관리 실태 및 우울과 사회적지지)

  • Nam, Young-Ok;Lee, Kyeong-Hee;Park, Il-Soon
    • Journal of Korean society of Dental Hygiene
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    • v.19 no.5
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    • pp.845-858
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    • 2019
  • Objectives: This study aims to contribute to devising systems for family caregivers of dementia patients by examining the state of oral care of dementia patients, and depression and social support among family caregivers of dementia patients. Methods: Family caregivers of dementia patients in the metropolitan area were selected in this study. The inclusion criteria were individuals who have provided care for a dementia patient at home for at least six months and those who come in contact (including phone calls) with the patient at least twice a week. Results: Oral health knowledge of the elderly, caregiving burden, depression, and social support were examined. The mean scores for oral health knowledge of the elderly and caregiving burden were $57.11{\pm}16.94$ out of 100 and $17.33{\pm}8.61$ out of 48, respectively. Further, the mean caregiving behavior score, depression score, and social support score were $8.49{\pm}13.71$ out of 100, $5.11{\pm}3.05$ out of 10, and $72.75{\pm}17.03$ out of 100, respectively. Factors affecting oral health knowledge of the elderly were examined. The results showed that the level of oral health knowledge of the elderly increased with an increasing perception of a need for oral health education (p<0.05), caregiving burden (p<0.01), and social support (p<0.01). Conclusions: These findings suggest that developing and popularizing oral care intervention programs for family caregivers of dementia patients are necessary to ensure systematic oral care for dementia patients.

A Study of the Family Caregiver's Burden for the Elderly with Chronic disease in a Rural Area (일부 농촌 지역 노인 만성질환자 가족의 부담감에 관한 연구)

  • Jang, In-Sun
    • Journal of Home Health Care Nursing
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    • v.2
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    • pp.19-34
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    • 1995
  • The purpose of this study was to analysis level on family caregiver's burden for the elderly with chronic disease in a rural area and to choose priority care group, thereby facilitating the development of interventions to reduce the caregiver's burden. For this purpose, data were collected by questionaire from June 10 to October 8, 1994. The instruments for data collection were Caregiver Burden Inventory by Novak(1989) and Zarit et al(1982), severity of dementia by Hughes Scales(1982), ADL by Lawton(1971), patients' family caregiving activity by pre-survey and reference review(Lee, 1993 ; Jang, 1990 ; Yoo, 1982). The subjects were 213 family caregiver of elderly with chronic disease in a rural area. The data was analysed by the use of t-test, ANOVA, correlation and multiple regression. The results were as follows ; 1. Total burden was evaluated below average, the mean of family burden was 46.98. By the diagnostic classification, Hypertension was 27.37, DM 32.46, CVA 62.96, Dementia 61.24. 2. Significant variables which were correlated to the family caregiver's burden were the patient's disease diagnosis (F=33.82, p<0.001), severity of dementia(F=30.52, p<0.001), the status of disease management(F=11.53, p<0.001), ADL(F=10.54, p<0.001), PADL(F=7.50, p<0.001), income(F=7.17, p<0.001), caregiver's health status(F=24.53, p<0.001), a view of patient's prognosis (F=22.17, p<0.001), relationship with the patient(F=33.82, p<0.001), the number of hours per day spent on caregiving(F=77.52, p<0.001), level of intimacy of caregiver and patients(F=8.75, p<0.001), level of helping(F=4.90, p<0.01), the frequency of caregiving activity(F=3.80, p<0.01), the number of admission(F=5.54, p<0.01), the length of caregiving(F=4.43, p<0.01), other chronic patient in family(t=2.81, p<0.01), caregiver's job(F=3.11, p<0.01), the duration of illness(F=2.98, p<0.05), caregiver's religion(F=2.93, p<0.05), medical security(F=3.89, p<0.05), caregiving's helper(t=2.42, p<0.05). 3. PADL was the most important predictor to family caregiver burden(R2=0.6611). In addition to this, IADL, caregiver's health status, the length of caregiving. level of intimacy of caregiver and patients, patient's age, the patient's disease diagnosis and patient's job accounted for 76% of family caregiver burden. 4. The criteria of priority care group were as follows ; the mean of family caregiver burden was above 58, above of moderate ADL, the number of hours per day spent on caregiving above of 8 hours, above of moderate dementia. By the diagnostic classification, number of priority care group, Hypertension was 4 (8.0%), DM 4(8.0%), CVA 34(64.1%), Dementia 45(75.0%).

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A Study on the Burdens and Depressive Reactions on Families who Cared for Patients Suffering from Senile Dementia (치매노인을 돌보는 가족의 부담감과 우울반응에 관한 연구)

  • 김영자;이평숙
    • Journal of Korean Academy of Nursing
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    • v.29 no.4
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    • pp.766-779
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    • 1999
  • The purpose of this study was to investigate the relationship between the burden on families who live with an elderly person suffering from senile dementia, and the degree of their depression. There were 400 participants in this study, staying in the Seoul and Kyonggi areas from August 1, 1997 to February 28, 1998. Among the group, 100 participants took care of their patient at home, and another 300 participants left 100 patient at a day-care center, 100 sanatorium for senile dementia(asylum for helpless elderly people), 100 an infirmary for elderly people. Eventually 242 subjects out of the 400 were selected for the data analysis. The Zarit (1980) tool was employed to measure the degree of burden and Zung's(1965) “Self-Rating Depression Scale” was employed for the data analysis. The data was analyzed, and the percentage, t-test, ANOVA and Person's Correlation Coefficient were calculated. The results are as follows : 1. The average degree of burden that care-giving families felt was 49.13, which is somewhat high. 2. The average degree of depression that care -giving families felt was 51.95, which is relatively high. 3. The degree of burden was directly affected by the relation with the patient(F=2.48, P<.05), and the socio-economic status of the family(F=5.17, P<.05). Its also affected by the patient's educational status(F=2.17, P<.05). 4. The degree of depression of the family was significantly dependent on sex(t=-2.05, P<.05), age (F=2.99, P<.05), the relationship with the patient(F=3.65, P<.01), socio-economic status (F=7.74, P<.001), occupation(t=2.82, P<.01), health status(F=4.42, P<.01), and the place of residence(F=4.30, P<.01), The patient characteristics was significantly dependent on his/her educational status(F=3.85, P<.01), the period of suffering from senile dementia(F=2.47, P<.05), and smoking habit(F=6.17, P<.001). 5. The relationship between the degree of burden and that of depression reads r=0.43, which is statistically positive correlation in the high significant level. Upon analyzing the entire summation, most care-givers for elderly patients suffering from senile dementia lack time in caring for themselves. They also experience chronic fatigue and mental discomfort caused by the isolation from society, curtailment of certain activities, a sense of responsibility for their patients, and limits of their endurance in taking care of their patients over time. In conclusion, this study emphasizes the necessity for the following propositions : 1. In order to measure the degree of burden that Korean care-giving families undergo, a new tool must be developed on the basis of Korean culture. 2. An educational program based on the demands that care-giving families undergo must be developed, and its clinical effect also has to be examined.

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Influence of the Caregiver Burden on the Oral Health-related Quality of Life of the Spouse of an Elderly Person with Dementia at Home (재가 치매노인 배우자의 부양부담감이 구강건강관련 삶의 질에 미치는 영향)

  • Sung, Kiwol
    • Journal of Korean Public Health Nursing
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    • v.34 no.3
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    • pp.429-443
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    • 2020
  • Purpose: This study examined the influencing factors of caregiver burden on the oral health-related quality of life of the spouse of an elderly person with dementia at home. Methods: The participants were 115 spouses of dementia patients registered at dementia safety centers in five health centers in D city. Data were collected from June through December in 2019, using questionnaires of Oral Health Impact Profile (OHIP-49) and Burden Interview (BI). The data were analyzed using an independent t-test, one-way ANOVA, Pearson's correlation, and stepwise multiple regression analysis using the IBM SPSS Statistics 25.0 Program. Results: A negative correlation was observed between the oral health-related quality of life and caregiver burden (r=-37, p<.001). The caregiver burden (β=-.28, p=.001), subjective health status (β=.39, p<.001), and dental clinic visit (β=-.25, p=.002) explained 33.0% of the variance in the oral health-related quality of life. Conclusion: The development of nursing care for spouses of dementia patients will be needed to reduce the caregiver burden and enhance subjective health status and dental clinic visit, which influence the oral health-related quality of life of spouse of elderly people with dementia at home.

The Effects of Dementia Attitude, Burden of Behavioral and Psychological Symptom in Dementia(BPSD), and Nursing Professionalism on Dementia Nursing Performance among Long-term Care Hospitals Nurses (요양병원 간호사의 치매태도, 치매행동심리증상 부담감, 간호전문직관이 치매간호수행에 미치는 영향)

  • Kang, Da-Hai-Som
    • The Journal of the Convergence on Culture Technology
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    • v.6 no.4
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    • pp.301-309
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    • 2020
  • The purpose of this study was identify factors influencing dementia nursing performance among long-term hospitals nurses. Participants were 161 long-term hospitals nurses. Data were collected with structured qustionnaires from November 4 from December 13, 2019. Data were analyzed SPSS/WIN 21 program for descriptive statistics, t-test, ANOVA, Pearson's correlation coefficient, and stepwise multiple regression. The significant factors of the dementia nursing performance among long-term hospitals nurses were dementia attitude (β=.280, p=.001), nursing professionalism(β=.237, p=.006), burden form BPSD(β=-.174, p=.012), and dementia education experience(β=.166, p=.014). Therefore, in order to improve dementia nursing performance among long-term care hospital nurses, it is necessary to develop program and apply dementia education to establish a positive dementia attitude and nursing professionalism, and to reduce the burden of dementia behavioral and psychological symptoms.

Cure Program Development for Caregivers of Elderly with Dementia (치매노인 부양자를 위한 치료프로그램 모형 개발)

  • Hong Dal-Ah-Gi
    • Korean Journal of Human Ecology
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    • v.7 no.4
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    • pp.41-54
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    • 2004
  • The purpose of this study was to develop the cure program for family caregivers of elderly with dementia, As the lifespan has been expanded, Most of family caregivers had serious problems which are burden for caregiving(economic burden. physical & social burden, negative elderly-family caregiving relationship) and the life quality of the elderly and family caregivers and the future social welfare alternatives for taking care of the elderly. To develop the cure program for family caregivers of elderly with dementia is very important. This program can prevent to be another elderly with dementia. The results can be used as basic data to develop educational programs for family caregivers.

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Self-Care in Elders with Dementia: A Concept Analysis

  • Yeom Hye-A
    • Journal of Korean Academy of Nursing
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    • v.34 no.8
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    • pp.1402-1408
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    • 2004
  • Purpose: The purpose of this study was to analyze the concept of self-care in elders with dementia through a review of nursing literature and to provide more understanding of the definition and perspectives of the concept of self-care notion in elders with dementia. Methods: The technique developed by Walker and Avant was used as a guide in analyzing the concept of self-care. Results: Attributes of self-care in dementia may include a single or group of actions needed for sustaining life, a personal effort to maintain functional independence while minimizing other's assistance, an outcome behavior from the person's interaction with inter-personal and/or contextual environment, and a functional ability that may decline in parallel to cognitive impairment. Antecedents of self-care in dementia may include at least presence of a certain degree of cognitive appraisal for the self-care needs, self-willingness for the self-care action, spatial and visual orientation, cultural pre-conception of the self-care behavior, presence of environmental context/equipment available for self-care, and sufficient time available. The consequences may include sustaining of life, feel of satisfaction, achieving independence, extended life expectancy, increased self-confidence, decreased caregiver distress and/or burden, savings in health care costs. Discussion: Defining attributes and antecedents and consequences of self-care in dementia identified in this study provided empirical ground of a middle-range theory of self-care for a clinical population with dementia and generated possible hypotheses to be tested in future studies.

Effects of Burden and Family Resilience on the Family Adaptation of Family Caregivers of Elderly with Dementia (부양부담과 가족극복력이 치매노인 부양가족의 적응에 미치는 영향)

  • Jang, Hye Young;Yi, Myungsun
    • Korean Journal of Adult Nursing
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    • v.25 no.6
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    • pp.725-735
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    • 2013
  • Purpose: The purpose of this study was to investigate the levels of burden, family resilience and adaptation of caregivers of elderly patients with dementia, and further to identify factors influencing their adaptation. Methods: A cross-sectional descriptive study was designed. Data were collected from questionnaires distributed to 131 family caregivers of elderly patients who visited at the Centers for Dementia in Seoul during 2012~2013. The data were analyzed using descriptive statistics, t-test, ANOVA, Pearson's correlation analysis, and stepwise multiple regression. Results: The average age of the care giving subjects was 63.58, and 31.3% were male, and 41.2% were the spouses. Statistically significant relationships were found between burden and adaptation (r=-.38, p<.001), and between family resilience and adaptation (r=.52, p<.001), and between burden and family resilience (r=-.35, p=.001). Thirty percent of adaptation was explained by burden and family resilience. The most influencing factor to adaptation was family resilience which explained about 27% of the variance. Conclusion: The results of the study clearly indicate that family resilience explains better than burden on adaptation of family caregivers. Thus, to develop more effective nursing intervention for family caregivers of elderly patients with dementia, it would be necessary to integrate family resilience in the programs. 27% is not that much and I wonder if we have to do more work to identify the factors that influence care giving.