• 보건의료산업학회지
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• 제6권3호
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• pp.171-182
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• 2012

We tried to look for parenting stress and social support of parents who look after children with mental retardation, intellectual disability, physical disability, and deafness. We also tried to know type and severity of parenting stress and inform a necessity of a resource and social support through the study. We subjected parents who have children with disability and visit 7 medical centers to treat in the 4 cities. The parents filled out the questionnaire. We analysed the scale of parenting stress and social support using Likert 5 point scale. As a result of parenting stress and social support according to general characteristics by type of disability, parenting stress was very high regardless of type of disability. However, the parents who have children with disability had lower social support. In detail, the parents who have children with mental retardation had the highest parenting stress, and the parents who have children with deafness had the lowest parenting stress. In the social support, the parents who have children with mental retardation received high social support, and the parents who have children with intellectual disability received low social support.

• International Journal of Computer Science & Network Security
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• 제21권12호
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• pp.85-92
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• 2021

Distance learning for students with intellectual disabilities can prove beneficial, particularly if adjusted to their educational characteristics and needs. This study seeks to identify the views of parents living in Saudi Arabia, regarding the opportunities offered by distance learning for students with intellectual disabilities, alongside their challenges during the Covid-19 pandemic. The research employed qualitative methods using semi-structured interviews with six parents of students with intellectual disabilities. The results revealed a number of both opportunities and challenges, including issues related to the family, in addition, the data highlighted difficulties related to the educational process (i.e. a lack of variety of educational methods) and technical issues related to access to the Internet and the insufficient computer skills of both teachers and students. The findings have several important implications for future practice, including the need for training workshops for parents concerning the online platform, as well as further research to determine students' perspectives of their experiences with distance learning.

• 한국사회복지학
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• 제68권3호
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• pp.73-103
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• 2016

본 연구는 지적장애 부모를 둔 비장애 청소년들의 삶의 모습과 그들의 삶 속에서 드러난 어려움은 무엇인지 심층적으로 살펴보고, 이에 대한 사회복지적 함의를 제시하고자 한다. 이를 위해 2014년 1월부터 5월까지 청소년 5명을 중심으로 질적 사례연구 방법을 활용하여 사례 내 분석과 사례 간 분석을 하였으며, 연구결과의 신뢰성을 확보하기 위해 매 단계마다 엄격성을 확보하였다. 분석결과는 크게 '비장애 청소년의 성장이야기', '비장애 청소년의 세상살이 이야기'로 분석하였으며, '공부를 하라는 가족이 전혀 없음', '학업 성취감을 알아가며 앞으로 나아감', '나만의 공간으로 숨어버림', '일찍 어른이 되어버림', '다른 부모, 같은 사랑', '가족의 가족이 나를 키움', '나를 그대로 받아들여주는 친구가 있음', '가난한 생활에 짓눌려 살아옴', '힘듦과 힘냄의 양날에 서있음'으로 범주화 하였다. 분 연구결과를 바탕으로 이론적 지평을 넓히고, 가족의 장애이해, 부모역할훈련프로그램과 사례관리 등 실천적 방안을 제시하였으며, 실태조사와 경제적 지원을 위한 수당제도 등 정책적 방안을 함께 제시하였다.

• Journal of Dental Anesthesia and Pain Medicine
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• 제16권3호
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• pp.213-216
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• 2016

Children with an intellectual disability often demonstrate lack of cooperation during dental treatment and require behavioral management. A child with mild intellectual disability can be managed adequately using restraints and medication. However, in cases of profound intellectual disability, dental treatment under general anesthesia is usually required. In cases where the patient is an intellectually disabled child who has intellectually disabled parents, it is difficult to evaluate the patient's preoperative condition and to obtain consent for treatment under general anesthesia. Furthermore, they are unable to respond to emergencies after treatment. Therefore, dental treatment should be performed under general anesthesia with hospitalization for children with an intellectual disability. This case presents the dental treatment of an intellectually disabled child, who has intellectually disabled parents, and who required general anesthesia and hospitalization.

• International Journal of Computer Science & Network Security
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• 제22권11호
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• pp.338-347
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• 2022

The current study aimed to identify the reality of the transitional services provided to people with intellectual disabilities from the parent's point of view. The results indicated an average level, with an arithmetic mean (3.66) of the reality of transitional services provided to students with intellectual disabilities through the response of the study participants to the questionnaire consisting of (20) items. The dimension (social and societal skills) ranked first with an arithmetic average (4.03) with a high degree, through the response of the participants in the study to the items of the dimension consisting of (10) items. It was followed by the dimension (self-determination skills) with an arithmetic average of (3.29) to a medium degree, through the response of the participants in the study to the items of the dimension consisting of (10) items. The researchers recommend the necessity of joint planning by all relevant authorities, to solve the legal, societal, technical, and administrative problems and challenges that impede the provision of transitional services for students with intellectual disabilities.

• International journal of advanced smart convergence
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• 제9권1호
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• pp.54-62
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• 2020

According to the Ministry of Health and Welfare, "Status of Registered Persons with Disabilities", the number of people with disabilities is 2,494,460 as of 2015. The lowest rates of children with disabilities were intellectual disabilities (23%) and mental disorders (33.3%). The highest rates of screening were blindness (97%), heart failure (94.4%), and hearing impairment (92.7%). 65.2% of visually impaired people who have already had a disability at the time of marriage, and the remaining 34.8% can be thought to be the cause of high incidence of disability after marriage. 'SID (Seed in the Dark)' project was designed to recapture the visually impaired parent's desire for attachment and the space difficulties of the blind who want to be a normal parent to their children through a visual impairment of a father with 7-year-old daughter. Using Gear VR(Virtual Reality), the general public was able to feel the surroundings as if they had no vision and focused on the hearing. Especially, We expressed the sound wave visually and added the hilarious game element which grasps the terrain of the maze by sound wave like a 'blind person who perceives the surroundings by sound' and catches up with daughter. People with disabilities who are far from mental illness often have a form of family with children. The fact that the rate of childbirth is high means that there is relatively little problem in daily life. It is wondered that the rate of blindness among the visually impaired, which accounts for 10% of the total disabled, is the highest at 97%. This is because, in the case of the visually impaired, the obstacle is often caused by aging, accidents, or diseases due to inherited causes rather than the visual disorder. In particular, However, the fact that there is an obstacle in vision that accounts for 83% of the body's sensory organs causes other difficulties in the nursing process of children who are non-disabled. Parents do not know the face of child when their visual impairment is severe. Parents are extremely anxious about worry that they will be lost or abducted if their children are not by their side. And that the child recognizes the disability of his or her parents other than the other parents easily and takes it as a deficiency. Since visually impaired parents are mentally mature parents with non-disabled people, they may want their children not to feel deprived of their disability. The number of people with visual impairments has been increasing since 2001, and people with impairments often become disabled. In addition, there is much research on the problem of nondisabled parents who have children with disabilities, while there is relatively little interest and research on the problem of nondisabled child rearing of parents with disabilities.

• 한국콘텐츠학회논문지
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• 제17권9호
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• pp.587-596
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• 2017

본 연구는 장애아동을 둔 부모를 대상으로 작업수행능력과 여가만족도, 양육스트레스를 알아보고, 작업수행능력과 여가만족도가 양육스트레스에 어떠한 영향을 미치는지 알아보고자 하는데 목적이 있다. 자료수집 기간은 2017년 1월 10일부터 2017년 2월 17일까지였으며, 설문지 72부를 분석에 이용하였다. 연구도구는 구조화된 설문지로서 일반적인 특성을 묻는 문항, 양육스트레스 측정도구, 작업수행능력 측정도구, 여가만족을 묻는 측정도구를 사용하였다. 연구결과 장애아동의 일반적 특성에 따른 양육스트레스는 장애아동이 여자이며, 연령이 8~12세인 학령기인 경우, 장애유형이 발달장애와 지적장애인 경우, 장애등급이 1, 2급인 경우, 치료기관이 병원과 사설치료기관인 경우 높게 나타났다. 장애아동 부모의 작업수행능력, 양육스트레스, 여가만족과의 상관관계를 살펴본 결과 서로 유의미한 상관관계를 보였다. 장애아동 부모의 양육스트레스에는 작업수행능력 항목 중 작업, 사회적 통합, 경제적 자립과 여가만족도가 영향을 미치는 것으로 나타났다. 본 연구 결과들은 장애아동 부모의 양육 스트레스 중재를 위한 기초자료로 활용될 수 있을 것이다.

• 가정∙방문간호학회지
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• 제24권2호
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• pp.200-209
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• 2017

Purpose: This study aimed to evaluate the effects of sociodrama on mothers of adolescents receiving special education at school. Methods: The participants were 30 mothers of adolescents with autism and intellectual, physical, emotional, and behavioral disability (experimental group=8, control group=16, 4 excluded). Sociodrama was conducted over 6 weeks (6 sessions). Data were collected using a mixed method. A constructed questionnaire on parenting stress, depression, and parenting self-efficacy was distributed before and after the intervention. A focus group interview was conducted subsequently. Data were collected from May to June 2016 and analyzed using Wilcoxon-Mann-Whitney test and a content analysis. Results: The intervention group showed significant changes in parenting stress (Z=-2.34, p=.019), depression (Z=-.3.46 p=.001), and parenting self-efficacy (Z=-2.82, p=.029) compared with the control group. Results of the qualitative analysis exhibited two themes, namely "changes" and "healing and challenges," which were divided into 4 categories and 9 sub-categories. Conclusion: Sociodrama was effective in reducing the level of parenting stress and depression, and increased the level of parenting self-efficacy in participants. Sociodrama can be recommended as an intervention program for parents raising adolescents receiving special education.

• Journal of Genetic Medicine
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• 제18권2호
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• pp.127-131
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• 2021

Autosomal recessive spinocerebellar ataxia 20 (SCAR20; OMIM #616354) is a recently described disorder that is characterized by ataxia, intellectual disability, cerebellar atrophy, macrocephaly, coarse face, and absent speech. It is caused by loss-of-function mutations in SNX14. To date, all cases with homozygous pathogenic variants have been identified in consanguineous families. This report describes the first Korean cases of SCAR20 family caused by homozygous variants in SNX14. Two siblings were referred to our clinic because of severe global developmental delay. They presented similar facial features, including a high forehead, long philtrum, thick lips, telecanthus, depressed nasal bridge, and broad base of the nose. Because the older sibling was unable to walk and newly developed ataxia, repeated brain magnetic resonance imaging (MRI) was performed at the age of 4 years, revealing progressive cerebellar atrophy compared with MRI performed at the age of 2 years. The younger sibling's MRI revealed a normal cerebellum at the age of 2 years. Whole-exome sequencing was performed, and homozygous variants, such as c.2746-2A>G, were identified in SNX14 from the older sibling. Sanger sequencing confirmed homozygous SNX14 variants in the two siblings as well as a heterozygous variant in both parents. This report extends our knowledge of the phenotypic and mutational spectrum of SCAR20. We also highlight the importance of deep phenotyping for the diagnosis of SCAR20 in individuals with developmental delay, ataxia, cerebellar atrophy, and distinct facial features.