Korean Journal of Social Welfare (한국사회복지학)

Korean Academy of Social Welfare (한국사회복지학회)
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Qualitative Case Study on Life of non-disabled Adolescent of Parents with Intellectual Disability

지적장애 부모를 둔 비장애 청소년의 삶에 관한 질적 사례연구

  • Received : 2016.06.22
  • Accepted : 2016.08.03
  • Published : 2016.08.31
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Abstract

In this study, it investigates the life of normal adolescents who have parents with intellectual disability and their difficulties which suggested social welfare meanings of this study. In order to conduct wide and in-depth analysis on cases by utilizing the characteristics of qualitative case studies, it describes and analyzes the intellectual disability parents' normal children in detail from the viewpoint of an insider through in-depth interviews, various sources and diverse data collecting methods. As for the subject of this study, both parents should be persons with intellectual disability and their child shall be non-disabled and at least a high school student or older. Through the intentional sampling, five late adolescents who were in high school, all males participated in the study. The data collection process had been conducted from January 2014 to May, which is commonly utilized for qualitative case studies, and comparative analysis between cases were practiced for analysis. For credibility of the research results, it obtained severity at each stage by meeting the standard. The analysis results were largely divided into "growth story of non-disabled adolescents" and "life of non-disabled adolescents". Nine upper categories analyzed the common features in each case. The nine categories were "no one tells me to study", "advance while learning the sense of academic achievement", "hide into my own space", "having to grown up early", "different parents but same love", "relatives raised me", "have a friend who accepts me as I am", "being pressed by poverty", and "standing on a knife edge of being hurt and taking heart". Based on the in-depth research on normal teens that have intellectually disabled parents, theoretically speaking, this study expanded the prospect of study on intellectually disabled to their normal, intellectual teenage children. As for practical significance, understanding their parents' intellectual disability, parenting technique training, case management from the community level is suggested. Rregular real condition research of the families, allowance system for economic support et al. is suggested in policy aspect.

본 연구는 지적장애 부모를 둔 비장애 청소년들의 삶의 모습과 그들의 삶 속에서 드러난 어려움은 무엇인지 심층적으로 살펴보고, 이에 대한 사회복지적 함의를 제시하고자 한다. 이를 위해 2014년 1월부터 5월까지 청소년 5명을 중심으로 질적 사례연구 방법을 활용하여 사례 내 분석과 사례 간 분석을 하였으며, 연구결과의 신뢰성을 확보하기 위해 매 단계마다 엄격성을 확보하였다. 분석결과는 크게 '비장애 청소년의 성장이야기', '비장애 청소년의 세상살이 이야기'로 분석하였으며, '공부를 하라는 가족이 전혀 없음', '학업 성취감을 알아가며 앞으로 나아감', '나만의 공간으로 숨어버림', '일찍 어른이 되어버림', '다른 부모, 같은 사랑', '가족의 가족이 나를 키움', '나를 그대로 받아들여주는 친구가 있음', '가난한 생활에 짓눌려 살아옴', '힘듦과 힘냄의 양날에 서있음'으로 범주화 하였다. 분 연구결과를 바탕으로 이론적 지평을 넓히고, 가족의 장애이해, 부모역할훈련프로그램과 사례관리 등 실천적 방안을 제시하였으며, 실태조사와 경제적 지원을 위한 수당제도 등 정책적 방안을 함께 제시하였다.

Keywords

References

  1. 김미경, 2003, "어머니가 정동장애인 자녀의 행동문제와 부모의 양육태도", 대한신경정신학, 42(3): 360-367.
  2. 김미옥.김은경.박신애, 2013, "농촌지역 지적장애여성의 자녀양육에 관한 질적사례연구", 사회복지연구, 44(4): 5-29.
  3. 김미희, 2006, "장애인 부모와 함께 사는 자녀의 체험에 관한 해석학적 현상학적 글쓰기", 정신간호학회지, 15(1): 65-75.
  4. 김선숙.김예성, 2011, "아동기 및 청소년기 심리사회발달에 미치는 사회자본의 영향", 청소년학연구, 18(9): 53-71.
  5. 김성희.김성희.변용찬.손창균.이연희.이민경.이송희.강동욱.권선진.오혜경.윤상용.이선우, 2011, 2011년 장애인 실태조사, 보건복지부.한국보건사회연구원.
  6. 김소진, 2012, "지체장애 부모를 가진 비장애 자녀의 경험에 대한 연구-청년기 자녀를 중심으로", 한국장애인복지학, 19: 23-44.
  7. 김연진, 2011, "장애부모가정 청소년의 부모화 경험이 학교적응에 미치는 영향-사회적 지지의 조절효과를 중심으로", 성균관대학교 석사학위논문.
  8. 김영주, 2012, "여성지적장애인의 결혼과 자녀양육에 관한 질적연구", 울산대학교 석사학위논문.
  9. 김정희.정은주, 2012, "영유아 자녀를 둔 여성장애인의 자녀양육 어려움과 서비스 욕구 비교를 통한 가족지원전략", 유아특수교육연구, 12(1): 165-190.
  10. 김희경.이미형, 2011, "알코올 중독자 성인자녀인 대학생의 극복력에 영향을 미치는 요인", 대한간호학회지, 41(5): 642-651. https://doi.org/10.4040/jkan.2011.41.5.642
  11. 신경식․서아영 역, 2011, 사례연구방법 4판, Yin, R., 2009, Case Study Research: Design and Methods, 4th ed., 서울, 한경사.
  12. 안수영.이형실, 2009, "남녀 청소년의 또래관계에 영향을 미치는 요인", 한국가정과교육학회지, 21(3): 163-176.
  13. 오승환.김광혁, 2012, "가족빈곤이 고교진학에 미치는 영향", 사회과학연구, 28(4): 1-20.
  14. 윤희진, 2004, "장애인 부모를 둔 청소년 자녀의 심리.사회적 특성 연구", 한일장신대학교 석사학위논문.
  15. 이경상, 2011, "빈곤이 대학진학에 미치는 영향". 청소년복지연구, 13(3): 261-280.
  16. 이수정, 2008, "장애인 부모를 둔 성인자녀의 원가족 환경과 의사소통이 자아존중감에 미치는 영향", 청주대학교 석사학위논문.
  17. 장휘숙, 2010, "청년기 발달과업 성취가 청소년의 5요인 성격특성과 자기존중감 및 행복에 미치는 영향", 한국심리학회지:발달, 23(2): 1-17.
  18. 최경숙.송하나, 2010, 발달심리학 - 전 생애: 아동.청소년.성인, 교문사.
  19. 최인숙, 2008, "기혼 지적장애인의 특성과 사회적 관계 연구", 인하대학교 석사학위논문.
  20. 홍승아.이상원.이영미, 2007, 여성장애인 자녀양육 지원방안 연구, 한국여성정책연구원.
  21. 홍용희.노경주.심종희 역, 2000, 질적사례연구, Stake, E., 1995, The Art of Case Study Research, 서울, 창지사.
  22. Aunos, M., Feldman, M. A., and Goupil, G., 2008, "Mothering with intellectual disabilities: Relationship between social support, health and well-being, parenting and child behavior outcomes", Journal of Applied Research in Intellectual Disabilities, 21: 320-330. https://doi.org/10.1111/j.1468-3148.2008.00447.x
  23. Booth, T. and Booth, W., 1993, "Parenting with learning difficulties: lessons for practioners", British Journal of Social Work, 23(5): 459-480. https://doi.org/10.1093/bjsw/23.5.459
  24. Coren, E., Hutchfield, J., Thomae, M., and Gustafsson, C., 2010, Parent training support for intellectually disabled parents, The Cambell Collaboration.
  25. Dowdney, L. and Skuse, D., 1993, "Parenting provided by adults with mental retardation", Journal of Child Psychology and Psychiatry and Allied Disciplines, 34(1): 25-47. https://doi.org/10.1111/j.1469-7610.1993.tb00966.x
  26. Faureholm, J., 2010, "Children and their life experience", 63-78, in Parents with intellectual disabilities: Past, Present and Futures, editedd by Gwynnyth Llewellyn, Rannveig Traustadottir, David McConnell, Hanna Bjorg Siguajonsdottir, Wiley-Blackwell.
  27. Feldman, M. A., 1994, "Parenting education for parents with intellectual disabilities: A review of outcome studies", Research in Developmental Disabilities, 15(4): 299-332. https://doi.org/10.1016/0891-4222(94)90009-4
  28. Feldman, M. A., 2002, "Children of Parents with intellectual disabilities", 205-223, in The Effects of Parental Dysfunction on Children, edited by McMahon et al., New York: Kluwer Academic/Plenum.
  29. Feldman, M. A., and Walton-Allen, N., 1997, "Effects of maternal mental retardation and poverty on intellectual, academic, and behavioral status of school-age children", 235-244, in Families and mental retardation, edited by Blacher, Jan. and Barker, Bruce., AAMR.
  30. Glaun, D. E., and Brown, P. F., 1999, "Motherhood, intellectual disability and child protection: charactericstics of a court sample", Journal of Intellectual & Development Disability, 24(1): 95-105. https://doi.org/10.1080/13668259900033901
  31. Keltner B., Wise L. A., & Taylo,r G., 1999, "Mothers with intellectual limitations and their 2-year-old childre's developmental outcomes", Journal of Intellectual Developmental Disability, 24: 45-57. https://doi.org/10.1080/13668259900033871
  32. Lincoln, Y., and Guba. E., 1985, Naturalistic Inquiry, CA: Sage Publications.
  33. Llewellyn. G., 2013, "Parents with Intellectual Disability and their Children: Advances in Policy and Practice", Journal of Policy and Practice in Intellectual Disabilities, 10(2): 82-85. https://doi.org/10.1111/jppi.12033
  34. Llewellyn. G., and McConnell. D., 2002, "Mothers with learning difficulties and their support networks", Journal of Intellectual Disability Research, 46: 17-34. https://doi.org/10.1046/j.1365-2788.2002.00347.x
  35. Llewellyn, G., McConnell, D., Honey A., Mayes, R., and Russo. D., 2003, "Promoting health and home safety for children of parents with intellectual disability: a randomised controlled trial", Research in Developmental Disabilities, 24: 405-431. https://doi.org/10.1016/j.ridd.2003.06.001
  36. McConnell, D., Mayes, R., and Llewellyn, G., 2008, "Women with intellectual disability at risk of adverse pregnancy and birth outcomes", Journal of Intellectual Disability Research, 52(6): 529-535. https://doi.org/10.1111/j.1365-2788.2008.01061.x
  37. McConnell, R., Llewellyn, G., and Bye, R., 1997, "Providing services for parents with intellectual disability: parent needs and service constraints", Journal of Intellectual & Developmental Disability, 22(1): 5-17. https://doi.org/10.1080/13668259700033251
  38. McConnell, R., Llewellyn, G., Rachel, M., Russo, D., and Honey, A., 2003, "Developmental profiles of children born to mothers with intellectual disability", Journal of Intellectual & Developmental Disability, 28: 122-134. https://doi.org/10.1080/1366825031000147067
  39. Newman, T., 2002, "Young carers' and disabled parents: time for a change of direction?", Disability & Society, 17(6): 613-625. https://doi.org/10.1080/0968759022000010407
  40. O'Neill, A. M., 1985, "Normal and Bright Children of Mentally Retarded Parents: The Huck Finn Syndrome", Child Psychiatry and Human Development, 15(4): 255-268. https://doi.org/10.1007/BF00706369
  41. Perkins, T. S., Holburn, S., Deaux, K., Flory, M. J., and Vietze, P. M., 2002, "Children of mothers with intellectual disability: Stigma, mother-child relationship and self-esteem", Journal of Applied Research in Intellectual Disabilities, 15(4): 297-313. https://doi.org/10.1046/j.1468-3148.2002.00140.x
  42. Ronai, C. R., 1997, "On loving and hating my mentally retarded mother", Mental Retardation, 35(6): 417-432. https://doi.org/10.1352/0047-6765(1997)035<0417:OLAHMM>2.0.CO;2
  43. Siguajonsdottir., H. B. and Traustadottir, R., 2010, "Family within a family", 49-62, in Parents with intellectual disabilities: Past, Present and Futures, edited by Llewellyn, G., Traustadottir, R., McConnell, D., and Siguajonsdottir H. B., Wiley-Blackwell.
  44. Traustadottir, R., and Sigurjonsdottir, H. B., 2008, "The 'mother' behind the mother: Three generations of mothers with intellectual disabilites and their family support networks", Journal of Applied Research in Intellectual Disabilities, 21(4): 331-340. https://doi.org/10.1111/j.1468-3148.2008.00450.x
  45. Tymchuk, A. J., and Feldman, M. A., 1991, "Parents with mental retardation and their children: review of research relevant to professional practice", Canadian Psychologist, 32(3): 486-496. https://doi.org/10.1037/h0079023
  46. Wade, C., Mildon, L., and Matthews, J., 2007, "Service Delivery to Parents with an Intellectual Disability: Family-Centred or Professionally Centred?", Journal Applied Research in Intellectual Disabilities, 20(2): 87-98. https://doi.org/10.1111/j.1468-3148.2005.00297.x
  47. Wade, C., Llewellyn, G., and Matthews, J., 2011, "Modeling Contextual Influences on Parents Disability and Their Children", American Journal on Intellectual and Developmental Disabilities, 116(6): 419-437. https://doi.org/10.1352/1944-7558-116.6.419