• Title/Summary/Keyword: Parents of Children with Disability

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Uncertainty, Social Support & Powerlessness in Mothers of Handicapped Children (장애아 어머니의 불확실성, 사회적 지지 및 무력감)

  • Park Eun Sook;Oh Won Oak
    • Child Health Nursing Research
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    • v.5 no.2
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    • pp.151-166
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    • 1999
  • The purposes of this study were to measure the degree of perceived uncertainty, social support & powerlessness, to examine the relationship between the perceived uncertainty, social support & powerlessness and then to find the predictors of powerlessness in mother's of handicapped children. The subjects of this study consist of 102 mothers of handicapped children, registered at rehabilitation & handicapped children school. Data was collected from September 1998 to March 1999. The tools used in this study were Mishel's the Parents' Perception of Uncertainty Scale (28 item, 4 likert scale), Miller's Powerlessness measurement Scale(28 itewt 4 likert scale) & Cohen's Interpersonal Support Evaluation List (40 items, 4 likert scale). Data was analyzed by t-test, ANOVA, Duncan comparison, Pearson Correlation coefficient & Stepwise multiple regression Results of this study are summarized as follows : 1. Mothers perceived their uncertainty to be slightly high(Mn 2.50). The degree of perceived uncertainty by the four components were followed as : lack of clarity(2.69), unpredictability(2.56), ambiguity(2.56) & lack of information(2.46). The degree of perceived uncertainty of the mothers of handicapped children revealed to be influenced significantly by age of children, admission experience, disability types of children. 2. The degree of mothers' powerlessness was measured to be slightly high(Mn 2.14). The degree of perceived powerlessness of the mothers with handicapped children revealed to be influenced significantly by age of children, duration of illness admission experience,8E marital status of the mothers. 3. Mothers perceived their social support to be slightly high(Mn 2.71). The degree of perceived social support revealed to be influenced significantly by sex of children, married state of mothers. 4. Mothers' uncertainty was related positively to the mothers' powerlessness(r=.33, p=.0008). And also mothers' powerlessness was related inversely to social support(r=-.50, p=.0001). But, mothers' uncertainty was not related to social support significantly. 5. To analyze the variables which affect powerlessness, stepwise regression was implemented. As a result, about 61% of the powerlessness were explained by social support, marital status of the mothers and perceived uncertainty. Based upon these results, it is recommended that the nurses, who are caring handicapped children and their families, provide various support programs for them to overcome their difficulties. Also programs which decrease the uncertainty & powerlessness used social support multidimensionally & individually are recommended to be developed.

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Adaptation Resilience in Relation to Parenting Stress for Mothers with Children of Developmental Disabilities (학령 전 발달장애아 어머니의 적응유연성과 양육스트레스의 관계)

  • Yang, Sim-Young
    • The Journal of the Korea Contents Association
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    • v.14 no.1
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    • pp.280-293
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    • 2014
  • The following research is based on a strengths perspective for analyzing the effects of adaptation resilience on parenting stress. The subject were 170mothers whose children have developmental disabilities and attend pre-school and social welfare centers for early education. The results were following: 1) The order of dimensional scores from highest to lowest were social resources, structuralization of personality, social achievement, personal strengths, perception of future, strength of family cohesion. 2) The parenting stress of the subjects came out to be lower than average scoring 2.71 out of 5. Dimensionally, grief of parents came out to be the highest. 3) Adaptation resilience and parenting stress for subjects exhibited a negative correlation. Within adaptation resilience, the dimensions of perception of future, personal strengths, social resources came out to be factors that have significant effects on parenting stress. 4) factors relating to the mother's adaptation resilience were more important than general characteristics belonging to handicapped children and their mothers for the purpose of explaining and predicting parenting stress.

A Qualitative Study on the Growth and Development of Peer Counselors in the Field of Disability based on Grounded Theory (근거이론에 의한 장애분야 동료상담사들의 성장과 발전에 관한 질적연구)

  • Park, Jong-Hwan;Park, Hee-Sung
    • The Journal of the Korea Contents Association
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    • v.22 no.1
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    • pp.516-534
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    • 2022
  • The purpose of this study is to explore the growth and development process of peer counselors in the field of disability. The field experiences of 19 peer counselors with disabilities and peer counselors who parents of children with disabilities were analyzed using the grounded theory method. As a result, first, central phenomenon were 'assuming the role of a peer counselor' and 'motor of role performance'. Intervening conditions were 'the perception that counseling is difficult', 'self-consciousness deriving from the lack of competency' and 'the status of insufficient peer counseling'. Action/interaction strategies were 'strengthening inner capacities' and 'promoting external activities'. Consequences were 'change and growth as a peer counselor', 'an expansion of activities other than peer counseling', and 'propose development tasks for peer counseling'. Second, their growth and development process was confirmed in four stages: 'the stage of introductory counseling education beyond disability', 'the stage of growth through change', 'the stage of career exploration through Competency Enhancement', and 'the stage of entry through role challenge'. Third, main theme was 'growth and development as a peer counselor is based on capacity building'.

Traumatic Brain Injury in Children under Age 24 Months : Analysis of Demographic Data, Risk Factors, and Outcomes of Post-traumatic Seizure

  • Yoon, Sang-Youl;Choi, Yeon-Ju;Park, Seong-Hyun;Hwang, Jeong-Hyun;Hwang, Sung Kyoo
    • Journal of Korean Neurosurgical Society
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    • v.60 no.5
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    • pp.584-590
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    • 2017
  • Objective : Traumatic brain injury (TBI) in children under age 24 months has characteristic features because the brain at this age is rapidly growing and sutures are opened. Moreover, children this age are completely dependent on their parents. We analyzed the demographic data and risk factors for outcomes in TBI patients in this age group to elucidate their clinical characteristics. Methods : We retrospectively reviewed the medical records and radiological films of children under 24 months who were admitted to Kyungpook National University Hospital from January 2004 to December 2013 for TBI. Specifically, we analyzed age, cause of injury, initial Glasgow coma scale (GCS) score, radiological diagnosis, seizure, hydrocephalus, subdural hygroma, and Glasgow outcome scale (GOS) score, and we divided outcomes into good (GOS 4-5) or poor (GOS 1-3). We identified the risk factors for post-traumatic seizure (PTS) and outcomes using univariate and multivariate analyses. Results : The total number of patients was 60, 39 males and 21 females. Most common age group was between 0 to 5 months, and the median age was 6 months. Falls were the most common cause of injury (n=29, 48.3%); among them, 15 were falls from household furniture such as beds and chairs. Ten patients (16.7%) developed PTS, nine in one week; thirty-seven patients (61.7%) had skull fractures. Forty-eight patients had initial GCS scores of 13-15, 8 had scores of 12-8, and 4 had scored 3-7. The diagnoses were as follows : 26 acute subdural hematomas, 8 acute epidural hematomas, 7 focal contusional hemorrhages, 13 subdural hygromas, and 4 traumatic intracerebral hematomas larger than 2 cm in diameter. Among them, two patients underwent craniotomy for hematoma removal. Four patients were victims of child abuse, and all of them had PTS. Fifty-five patients improved to good-to-moderate disability. Child abuse, acute subdural hematoma, and subdural hygroma were risk factors for PTS in univariate analyses. Multivariate analysis found that the salient risk factor for a poor outcome was initial GCS on admission. Conclusion : The most common cause of traumatic head injury in individuals aged less than 24 months was falls, especially from household furniture. Child abuse, moderate to severe TBI, acute subdural hematoma, and subdural hygroma were risk factors for PTS. Most of the patients recovered with good outcomes, and the risk factor for a poor outcome was initial mental status.

A Comparative Study on the Korean Child Welfare Law and the Japanese Child Welfare Law (한일 아동복지법의 내용에 관한 비교연구)

  • Lee, Hye-Won
    • Korean Journal of Social Welfare
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    • v.58 no.2
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    • pp.167-195
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    • 2006
  • The purpose of this study is to suggest the revision direction of the Korean Child Welfare Law based on the results of the comparative analysis on the Korean Child Welfare Law and the Japanese Child Welfare Law. The main results are: Both laws have only two provisions about children's participation right. The child protective system in Japan secures the swiftness of within-two-months period of temporary protection through the child consulting center, the investigation right by the child welfare worker, publicity, enforcement on the parents' rights, and the network with the nearest child supporting center. Furthermore, those provisions with the notifying obligation by a finder of the child who needs protection and the limit of protection period are guaranteed in order to ensure the effectiveness of law enforcement. However, Korean child protective system functions only as pre-substitutive service. While the provisions for the disability children account for 21.2% of the total Japanese law, there is no provision on that in the Korean law. The Japanese law is substantially different from the Korean law in a sense that it obligates the minimum quality criteria of child service and national financial burden on the child welfare. While the Japanese law clearly stipulates the national responsibility in relation to the degree of the rights, the Korean law does not directly touch upon it. Furthermore, the Japan's law guarantees that not only children but also protectors retain the right to choose and apply for services.

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