• 한국주거학회논문집
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• 제15권5호
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• pp.1-11
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• 2004

This study has been performed to review pre-school children's needs for privacy within normal residential space. In this study, there were three circumstances in which children need to stay alone without being interrupted by their parents; First, they strongly want to be stay quiet until relieving their anger or fear, shortly after disciplined and impugned by their parents. Second, infant children need to obtain their own territory in order to demonstrate ownership and dignity in their sley space. Third, there are also special circumstances of privacy needs among families with intrusive parents such as alcoholics and heavy smokers, or for the children of disability. In Korea, it is presumed that more than 60 percent the pre-school children aging three to six are in deficit of privacy for relieving their emotional disturbance, but no research has been documented for the case of disabled or interrupted children. Therefore in this study, it was primarily proposed that empirical studies need to be peformed among Korean preschoolers, in order to evaluate privacy needs in the perspectives of ordinary family lives, individual household behaviors, and special conditions of disability or offensive family members.

• Child Health Nursing Research
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• 제26권3호
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• pp.338-347
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• 2020

Purpose: The Life Transition Scale (LTS) consists of 24 items that assess the life transition process of parents of autistic children. This study aimed to examine the validity and reliability of the LTS in parents of children with a wide spectrum of disabilities. Methods: Data were collected from 260 parents of children with disabilities through self-report questionnaires. Validity was examined using exploratory and confirmative factor analysis to determine the factor structures of the LTS; socio-demographic differences in LTS scores were examined using the t-test or ANOVA. Reliability was examined using Cronbach's α coefficient. Results: A four-factor structure was validated (χ²=640.0, p<.001, GFI=.81, RMSEA=.07, NNFI=.89, CFI=.89, PNFI=.74, Q [χ²/df]=2.60). The validity of the LTS was verified by exploratory factor analysis, with factor loading ranging from .30 to .80. There were significant differences in the accepting phase according to children's and parents' age and the type of disability, and in the wandering phase according to parental gender, educational level, job, and socioeconomic status. The Cronbach's αs for the reliability of each of the four structures were acceptable, within a range of .80~.90. Conclusion: The LTS is a valid and reliable measurement to assess the life transition process of parents with disabled children.

• 한국사회복지학
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• 제68권3호
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• pp.73-103
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• 2016

본 연구는 지적장애 부모를 둔 비장애 청소년들의 삶의 모습과 그들의 삶 속에서 드러난 어려움은 무엇인지 심층적으로 살펴보고, 이에 대한 사회복지적 함의를 제시하고자 한다. 이를 위해 2014년 1월부터 5월까지 청소년 5명을 중심으로 질적 사례연구 방법을 활용하여 사례 내 분석과 사례 간 분석을 하였으며, 연구결과의 신뢰성을 확보하기 위해 매 단계마다 엄격성을 확보하였다. 분석결과는 크게 '비장애 청소년의 성장이야기', '비장애 청소년의 세상살이 이야기'로 분석하였으며, '공부를 하라는 가족이 전혀 없음', '학업 성취감을 알아가며 앞으로 나아감', '나만의 공간으로 숨어버림', '일찍 어른이 되어버림', '다른 부모, 같은 사랑', '가족의 가족이 나를 키움', '나를 그대로 받아들여주는 친구가 있음', '가난한 생활에 짓눌려 살아옴', '힘듦과 힘냄의 양날에 서있음'으로 범주화 하였다. 분 연구결과를 바탕으로 이론적 지평을 넓히고, 가족의 장애이해, 부모역할훈련프로그램과 사례관리 등 실천적 방안을 제시하였으며, 실태조사와 경제적 지원을 위한 수당제도 등 정책적 방안을 함께 제시하였다.

• 호스피스학술지
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• 제5권2호
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• pp.54-63
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• 2005

The purpose of this study is to examine the requirement for child life support specialist and fetal education for children with cancer. This research presented was composed with three chapters : First chapter, I presented the purpose, scope and definitions of this research. Second chapter, I defined about hospice care service for children with cancer and kind of pediatric cancer. And general characteristics of children with cancer, a understanding character of death and dietary therapy. Lastly, I defined and investigated about spiritual care. Third chapter, I concluded with some of findings and final suggestions based on the results. According to the developmental stages children with cancer are disability of communication competence and more dependence on their parents, therefore parents' decision making were more difficulty. And parents with a child who suffers from a cancer needs a counseling in order to discover the meaning of life. Parents' psychological experience about the caring for their child suffering from pediatric cancer was equal to broken hearts due to shadow of the child's death from time to time. In other words a parents with a child who suffers from a cancer needs comprehensive services such as hospice, consultor as well as wide experienced pediatrician and nurse. Child life support specialist can help them recover and improve their o주 potential strength in behalf of overcoming their difficulties. And pastoral counseling can help them reduce the fear and anxiety about unknown world and death. The systematically developed a school-based counseling program would help children adjust to the difficulties after a perfect cure because of children adjusted to school well when they have good peer relationships.

• 한국엔터테인먼트산업학회논문지
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• 제14권4호
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• pp.411-419
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• 2020

본 연구의 목적은 장애아동부모의 양육스트레스와 우울의 관계에서 사회적 지지의 매개효과를 알아보고, 장애아동부모의 스트레스와 우울을 완화하기 위한 방법과 방향을 제시하는 것이다. 이를 위해 광주광역시 재활기관, 재활클리닉 및 복지관을 이용하는 장애아동부모 150명을 대상으로 양육스트레스, 우울, 사회적 지지 척도를 사용하여 설문을 실시하였다. 수집된 자료는 SPSS 24.0 프로그램을 사용하여 기술통계, 상관분석, 단순회귀분석, 다중회귀분석을 실시하였다. 본 연구의 주요 결과는 다음과 같다. 첫째, 양육스트레스와 우울은 정적 상관관계, 양육스트레스와 사회적 지지, 사회적 지지와 우울은 부적 상관관계가 있는 것으로 나타났다. 둘째, 양육스트레스는 우울을 예측하는 변인으로 나타났다. 셋째, 사회적 지지는 양육스트레스와 우울의 관계를 부분적으로 매개하는 것으로 나타났다. 본 연구결과를 종합하면, 장애아동부모가 양육스트레스로 인하여 우울을 경험할 때 충분한 사회적 지지가 제공된다면 그들의 우울 수준은 낮아지는 것으로 나타났다. 결론적으로 장애아동부모의 양육스트레스와 우울을 감소시킬 수 있는 지역사회 스트레스 대처 프로그램을 개발하고 제공할 필요성을 시사한다.

• Journal of Dental Anesthesia and Pain Medicine
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• 제16권3호
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• pp.213-216
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• 2016

Children with an intellectual disability often demonstrate lack of cooperation during dental treatment and require behavioral management. A child with mild intellectual disability can be managed adequately using restraints and medication. However, in cases of profound intellectual disability, dental treatment under general anesthesia is usually required. In cases where the patient is an intellectually disabled child who has intellectually disabled parents, it is difficult to evaluate the patient's preoperative condition and to obtain consent for treatment under general anesthesia. Furthermore, they are unable to respond to emergencies after treatment. Therefore, dental treatment should be performed under general anesthesia with hospitalization for children with an intellectual disability. This case presents the dental treatment of an intellectually disabled child, who has intellectually disabled parents, and who required general anesthesia and hospitalization.

• 한국콘텐츠학회논문지
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• 제13권3호
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• pp.444-455
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• 2013

본 연구의 목적은 언어장애아동의 부모들이 언어치료실을 선택할 때 중요하게 고려하는 선택속성이 무엇인가를 탐색하는데 있었다. 자료는 예비조사, 계층분석용(AHP) 설문지 구성을 위한 1차 조사 그리고 계층 분석용 2차 조사의 3단계 절차를 통해 수집되었다. 총 대상자의 수는 252명이었다. 연구결과는 다음과 같았다. 첫째, 부모들이 언어치료실을 선택할 때 가장 중요하게 생각하는 상위속성들 간의 우선순위는 '치료사 속성', '프로그램 속성', '물리적 속성' 순이었으며, 하위속성들 중에서는 '치료사의 학력과 전공', '유대관계 형성능력', '경력 및 자격증 급수', '친절성과 신뢰성' 그리고 '부모상담' 순으로 높은 우선순위를 나타냈다. 둘째, 연령집단별로 학령전기와 학령기로 나누어 분석한 결과, 6세 이하의 학령전기 아동의 부모들은 '치료사의 경력 및 자격증급수', '부모상담', '교재교구의 다양성'을 각 상위속성별로 가장 중요한 하위속성으로 선택한 반면, 학령기 아동의 부모들은 '치료사의 학력 및 전공', '언어치료 비용', '거리 교통 주차'를 각각 최우선 순위로 선택하였다. 본 연구는 언어장애아동 부모들의 언어치료실 선택속성들을 분석하여 향후 효율적인 언어치료 프로그램을 계획하기 위한 기초 자료를 제공했다는데 의의가 있다.

• 가정과삶의질연구
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• 제24권5호
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• pp.141-159
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• 2006

It is generally blown that foster children often have special needs such as disability and psycho-behavioral problems. It is also known that foster parents will provide better care with those children when they are coping well with foster children with special needs. The purpose of the study was to explore the perceptions foster parents have and what factors affect their decisions to care for children with special needs. Literature review reveals that successful foster parent care is related to the foster parents' motivation, role perception, and social support systems. foster parents' motivation is related to 'altruism toward foster child', 'the egocentrism of the foster parent', 'previous experience with adoption' and 'the past experiences of the foster parent'. Role perceptions of the foster parent consist of 'supporting the internal system of the foster child' and 'supporting the external system of the foster child'. The social support system is characterized as the limited notions of a family oriented concept. In addition, a foster parent's decision to look after special-needs children is related to their motivation while the decision to foster disabled children is related to the levels of available social support systems as well as motivation. The results of the study implies that the motivation level and that of social support system are closely related to different aspects of the special-needs foster child; this factor should also be considered when recruiting foster parents or placing special needs children.

• 한국생활과학회지
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• 제14권1호
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• pp.35-46
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• 2005

This study investigates the differences in parent-related stress, social support, and school adjustment according to self-esteem of children with disabled and non-disabled parents. The data were collected from 176 students between 4th and 6th grade in Chungbuk area. For a data analysis, mean, frequency, percent, three-way ANOVA, and Pearson's correlation were used. The results show that children's perceived parent-related stress, social support, and school adjustment are varied according to their self-esteem. Those with higher self-esteem were found to have tusker perception level in social support and school adjustment. On the contrary, they were found to have lower level in parent-related stress. The findings indicate further that girls have a closer relationship with their teachers than boys and that children with disabled parents have a closer relationship with their teachers than those with non-disabled parents. However, as opposed to prediction, parental disability itself caused no difference in the level of parent-related stress.

• 동의신경정신과학회지
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• 제21권1호
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• pp.13-42
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• 2010

Objectives: This study is to investigate the method for assesment of cerebral palsy(CP), especislly focusing on function assesment Methods: We searched the recent date of the publication and paper in Cerebral Palsy Results: Measuring the function of children with cerebral palsy is mobility, self-care and social ability. Early adequate evaluation of motor development and prognosis of degree of long-term motor disability is very important not only for parents, but also for correct management of goal oriented rehabilitation treatment and for planning of preventive measures. 1. Gross Motor Function Classification System(GMFCS) is valuable to prognostication about gross motor progress in children with CP, using longitudinal observation. 2. Gross Motor Function Measure(GMFM) is the instrument most commonly used to measure gross motor function in children with cerebral palsy(CP). 3. Pediatric Evaluation of Disability Inventory(PEDI) is one of the most commonly used assessments for children with a disability. Conclusions: The functional Assesment of children with CP are used GMFCS, GMFM and PEDI.