Parents of handicapped children are experiencing difficulties in their children's care, social isolation, change of life style and lirnited leisure time. Because the parents should take care of the children's daily life, they have lots of psychological and physical stress. Chronic stress of parents puts stress to the other family members and affects the development of children with handicap. The purpose of this study were to identify the level of stress in each of parents of children with motor problem, the characteristics of the children and general information related with the children, and to analyse the stress by reasons. Specially organized questionnaire were used for an investigation method. "Test of stress in mother who has children with chronic illness" by Kim Hee-soon were modified and used. The questionnaire answered by 43 mothers and 35 fathers were analyzed. Data analysis includes frequency analysis, Pearson correlation coefficients, paired-samples t-test and MANOV A by SPSSWIN. The results were as follows: 1) Degree of handicap was most moderate (46.5%), level of motor development was most pull to walk (34.9%), and combined handicap was 69.8%. 2) Sexual distribution represented that 51.2% male and 48.8% female. The cost of physical therapy was 69.8% in no more than 100,000 won. 3) The mean of age, for the mother was 32.8 years and 35.3 years. Level of motor development that mother and father expect was 88.4%, 83% walk alone. 4) Both mother and father experienced stress in other of Part II (changes in father was the illness status of the child and difficulty in taking care of child), Part III (prognosis of the child's condition), Part I (social-personal relationships and the responsibility of the care givers). In the total score of stress, mother's stress is indicated higher level than father's stress. 5) There was no correlationship between characteristics and stress of mother and father. 6) There was no statistically significant difference between characteristics and related general information of children with handicap and stress of mother and father. As a results, the mother of children with handicap are experiencing more stress than the father. Both of parents have the most difficulties in the changes in the illness status of the child and difficulty in taking care of child. This study can be used as resources of education, therapy and counselling for children with handicap and their parents. This study, also, can be used to encourage the quality of Iife for the children with handicapped and their family.
Choi Bo Ga;Jeon Gwee Yeon;Chung Chung Hee;Kim Soo Young
Journal of the Korean Home Economics Association
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v.43
no.4
s.206
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pp.79-95
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2005
The Purpose of this study was to develop a comprehensive and integrated child-care services model for children both with and without disabilities. The comprehensive perspective included several dimensions such as education, child welfare, family welfare, and community welfare. Survey research based on theories and models regarding the integrated child-care services was carried out to determine the overall needs of child-care institutions, parents, and community members. The results revealed the need for development in the following three areas: (1) edu-care curriculums for integrated programs, (2) programs for supporting family members who have disabilities children, and (3) improved community members' perception about integrated child-care services. A model was developed for fulfil these identified needs.
Journal of The Korean Society of Integrative Medicine
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v.9
no.3
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pp.1-8
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2021
Purpose : There is a lack of research on this field in the Republic of Korea, especially those that have seen the effect of interaction between siblings through sensory integration therapy (SIT). Therefore, this study sought to find out the effectiveness of SIT with siblings through the Revised Knox Preschool Play Scale (RKPPS) and playtime. Methods : The experimental group consisted of 10 disabled children, and 10 normal siblings of the disabilities joined the program as a helper. In addition, 10 children with disabilities conducted the intervention as a control group. The difference between the experimental group and the control group is whether they participate with their sibling or not during the intervention period. The present study was conducted a SIT for 40 minutes per week for the experimental and the control group and then had 10 minutes of an interview with the parents of children with disabilities. A total of 10 programs were implemented for 10 weeks. Results : The experimental group showed statistically significant differences in space management, material management, pretense/symbolic, participation, and total scores. The control group showed significant differences between pre and post results in the participation and the total scores. The experimental group and the control group showed significant differences in the pre-post comparison results. The comparison of post-intervention between both groups of the RKPPS and playtime results showed a statistically significant increase in the experimental group. Conclusion : The sibling SIT showed better play level and time than the individual therapy. However, comparisons before and after the intervention in the level of play showed significant results only in participation and total scores in the control group. Clinically, it is recommended to make good use of sibling relationships when applying SIT, and if that is not possible, continuous observation is needed that children who received treatment become familiar with the environment in which they can be treated.
Many studies verified the relationship between parenting stress and the abuse of children with disability. It means that disability is a risk factor for abuse. The purpose of this study is to examine the parenting stress as a predictor of child abuse potential. For this study, 150 parents of children with disabilities were recruited. A personal questionnaire, parenting stress index, and potential factors of child abuse were responded. According to the results, parents who have children with disabilities reported high parenting stress and also parenting stress significantly affected parents' attitudes toward child abuse. Income, level of education, social involvement, governmental support, and social services for disabled were related to parenting stress and child abuse. Stepwise multiple regression analysis identified the variables of social involvement and social services for disabled as the most important variables in explaining parenting stress and child abuse. This study suggests that social supports and services for the parents of children with disabilities should be provided.
This study examines the mediating effects of self-efficacy between self-differentiation and depression by analyzing 105 parents who have at least one child with a disability. Regression analysis confirmed all hypothesis between self-differentiation, self-efficacy, and depression. There exists partially or complete mediation. That is the indirect effect on depression, self-efficacy explains the relationships between self-differentiation and depression to be as minimum as 24 percent to as maximum as 100 percent. This demonstrates that the self-efficacy significantly affects the relationship between self-differentiation and depression. Findings of this study recommend that self-efficacy should be enhanced through improving the level of self-differentiation. The results also imply that rehabilitation counselors need to understand the way of improving self-efficacy as well as the fact that the influencing factors of self-differentiation on self-efficacy is important. The findings of this study are informative for researchers, educators, and clinicians for mental health and psychological rehabilitation who assist the parents of children with disabilities.
The purpose of this study is to determine the parent-perceived effect of adaptive seating devices on the lives of infant or young children with physical and brain lesion disabilities(age 1-13y) and their families. Using the seating device for disabled parents of 42 people with disabilities who use FIATS-AS to investigate functional outcomes. All parents completed the FIATS-AS 4 times-2 times before and 2 times after their child received a new adaptive seating system. Repeated-measures analysis of variance detected significant mean differences among the FIATS-AS scores. Also to estimating the impact of the new seating intervention for the 3 age cohorts using the FIATS-AS scores. The FIATS-AS detected a significant interaction between age cohort and interview time. Providing adaptive seating devices has been found that the positive effects on guardians. The change was significant in 1~7 years of age. Environmental modification, such as seating and other assistive technology devices, may have an important role to play in the lives of young children with disabilities and their families.
The Journal of Korean Academy of Sensory Integration
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v.13
no.1
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pp.33-43
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2015
Objective : The purpose of this study is to investigate the effect of parent education program with sensory integration approach on the parent's understanding of sensory processing ability of their own children with developmental delays. Methods : The period of this study is from March 15, 2015 to May 10, 2015. The participants of this study were thirty of parents who have children with developmental delays. The participants were randomly divided as experimental group (15 parents) and control group (15 parents) and an educational program was provided to those parents in the experimental group. The education program was developed based on sensory integration approach and 1:1 intensive individual counseling education. Short Sensory Profile (SSP) & a specially designed questionnaire were used to evaluate the parent's understanding of sensory processing ability of their children with developmental delays. The effect of between the groups was analyzed using an independent two samples t-test, and the effect of the intervention within a group was measured using the paired t-test. Results : After the intervention of parent education program, the total score of SSP was significantly decreased and the score of the parent questionnaire was significantly increased (p<.05). Conclusion : The results of this study show that parent education program with sensory integration approach is effective to improve the parent's understanding of sensory processing ability of their children with developmental delays. This study can be used as a good resource for therapists who is planning to provide sensory integration treatment for children with disabilities.
Caregiving supports have been provided to decrease caregiving burdens of families of children with disabilities, but there are needs for improving caregiving services. The purpose of this study was to conceptualize content items and domains of caregiving supports from the perspectives of parents and service providers in order to help families of children with disabilities to decrease their caregiving burdens. This study used concept mapping that was useful for service-needs identification and program development. First, focus group interviews with two parent groups and one service provider group were conducted to generate a total of 31 items. Also, they sorted the items in terms of conceptual similarity and rated the items in terms of their needs. Next, the sorting data were analyzed using multidimensional scaling and cluster analysis and the rating data were calculated for mean. The results provided 31 content items in four domains: regular caregiving, activity-based caregiving, parent empowerment for caregving, and strengthening family relationships. All the domains were rated as important to decrease caregiving burdens. This study has practical implications for improving caregiving services and the related policies.
A serious disease in a family influences the entire family member given the fact that the members closely interact with each other. Especially in terms of pediatric nursing, study on family gains importance as the need to care of families whose children with developmental disabilities and chronic disease This study was done based on The Resiliency Model of Family Adjustment and Adaptation(McCubbin, 1991) is intended to examine the stress of parents whose children suffer from cleft lip or /and cleft palate. It also helps them to cope with the stress and analyze the relationship between the stress and coping This study used Family Inventory of Life Events and Changes (FILE) and Coping Health Inventory for Parents(CHIP) for measuring family stress and coping. The two instruments are revised to fit the social and cultural environment of Korean culture. Data collection was done from April 18, 1996 to May 18, 1996 at 8 University medical centers located in Seoul. Those who answered questionnaires were 84 parents whose children have cleft lip or /and cleft palate. SPSS PC+ was used to analyze the data collotted. Programs used for data analysis were t-test, ANOVA, Pearson correlation coefficient. The study is summarized as follows .1. The average score of family stress is 10.46(percentage of the full score 24.90) and 'finance and business strains'(3.25), and 'intrafamily strains'(2.65) ranked the highest. The average score of family's coping is 1.93, which is close to the answer of' moderately helpful' and they are measured to put their utmost efforts to' intergration and cooperation of family and optimistic definition on the situation'. 2. There is no significant statistical correlation between the family stress and coping. 3. Mothers show more stress than fathers in the parts of 'illness and family care strains' and 'losses'(t〓-2.34, t〓-2.32, p<.05). 4. Fathers show more willingness to cope with the stress than mothers do in the parts of' seeking social support','self-esteem','emotional comfort' 5. Mothers are more stress than fathers in the parts of family stress and its coping with it by usual traits(t〓-2.78, p<.05). Parents with religion are measured to cope more willingly than those who are not 6. Income of a family shows positive correlationship with family coping (r〓.28, p<.05). The study shows that gender difference is significant variable in studying on family stress and coping. Mothers get more stress than fathers, which has much to do with the fact that they are in charge of raising children and keeping houseworks. Accordingly, managing family crisis and its survival can be induced by giving support for the mothers, studying fathers including the rest of the family members and giving nursing care and arbitration ; religious background is also considered to be one of the important factors in family stress , judging from the relationship between family income and family's coping, caring given to suffering children is needed on societal levels. The above considerations bring up the need to have a longitudinal study of children with congenital anomaly including cleft lip or /and cleft palate and their families about family stress and coping. Resiliency programs on family system and their effectiveness and the relationship between the enlarged families with social and cultural values reflecting Korean tradition are also needed to be studied.
The purpose of this study was to investigate the influence of stress in families of children with disabilities upon a problem-solving ability based on a buffering effect of family resilience through life cycle. To achieve this purpose, the subjects in this study was 546 parents who have kindergarten, elementary, middle & high school students in special schools. The date for this study were derived from questionaries and the answer sheet was analyzed by SPSS(VER. 14). A descriptive statistics, correlation analysis, hierarchical moderating regression analysis were used to investigate the general information and the difference of perception between groups. The findings of this study were as follows: Higher belief system, higher organization type, higher communication process of the family with disabled children tend to appear more positive influences on buffering effects for stresses of family and solving-problem abilities. Findings from the current study demonstrate that the buffering effect of family resilience indicate to have positive influences on the relationship between the stress and the problem-solving ability in the family with disabled children.
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