• Title/Summary/Keyword: Medical My Data

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Personal Health Record/Electronic Medical Record Data Trading Model for Medical My Data Environments (마이데이터 환경에서 개인의 전자 건강/의료 데이터 활용을 위한 데이터 거래모델)

  • Oh, Hyeon-Taek;Yang, Jin-Hong
    • The Journal of Korea Institute of Information, Electronics, and Communication Technology
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    • v.13 no.3
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    • pp.250-261
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    • 2020
  • Today, data subjects should be considered to utilize various personal data. To support this paradigm, the concept of "My Data" has proposed and has realized in various industrial sectors, including medial sectors. Based on the concept of the medical My Data, this paper proposes a personal health record (PHR) and an electronic medical record (EMR) data trading model. Particularly, this paper proposes a system model to support the medical My Data environment and relevant procedure among stakeholders for PHR/EMR data trading that ensures the rights of data subjects. Based on the proposed system model, this paper also proposes various mathematical models to analyze the behavior of stakeholders and shows the feasibility of the proposed data trading model that satisfies the requirements of both data subjects and data consumers.

The Study on the Review of Domestic Laws for Utilizing Health and Medical Data and of Mediation for Medical Disputes (보건의료데이터 활용을 위한 국내 법률검토 및 의료분쟁에 대한 조정 제도 고찰)

  • Byeon, Seung Hyeok
    • Journal of Arbitration Studies
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    • v.31 no.2
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    • pp.119-135
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    • 2021
  • South Korea has the most advanced technology in the Fourth Industrial Revolution era because of its high-speed Internet commercialization. However, the industry is shrinking due to its various regulations in building and its utilization of personal information as big data. Currently, South Korea's personal data utilization business is in its early stages. In the era of the 4th Industrial Revolution, it is difficult for startups to use data. There are various causes here. Above all, legal regulations to protect personal information are emphasized. This study confirms that transactions of personal medical records through My Data can be made. Moreover, it confirms that there is a need for a mediating role between stakeholders. This study lacks statistical access in the process of performing stakeholder roles. However, personal medical records will be traded safely in the future, and new subjects will enter the market. Furthermore, the domestic bio-industry will develop. Through this study, various problems were derived in establishing Medical MyData in Korea. Moreover, it looks forward to continuing various studies in the health care sector in the future.

MyData Personal Data Store Model(PDS) to Enhance Information Security for Guarantee the Self-determination rights

  • Min, Seong-hyun;Son, Kyung-ho
    • KSII Transactions on Internet and Information Systems (TIIS)
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    • v.16 no.2
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    • pp.587-608
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    • 2022
  • The European Union recently established the General Data Protection Regulation (GDPR) for secure data use and personal information protection. Inspired by this, South Korea revised their Personal Information Protection Act, the Act on Promotion of Information and Communications Network Utilization and Information Protection, and the Credit Information Use and Protection Act, collectively known as the "Three Data Bills," which prescribe safe personal information use based on pseudonymous data processing. Based on these bills, the personal data store (PDS) has received attention because it utilizes the MyData service, which actively manages and controls personal information based on the approval of individuals, and it practically ensures their rights to informational self-determination. Various types of PDS models have been developed by several countries (e.g., the US, Europe, and Japan) and global platform firms. The South Korean government has now initiated MyData service projects for personal information use in the financial field, focusing on personal credit information management. There is also a need to verify the efficacy of this service in diverse fields (e.g., medical). However, despite the increased attention, existing MyData models and frameworks do not satisfy security requirements of ensured traceability, transparency, and distributed authentication for personal information use. This study analyzes primary PDS models and compares them to an internationally standardized framework for personal information security with guidelines on MyData so that a proper PDS model can be proposed for South Korea.

Medical Aid Beneficiaries' Experiences of Receiving Medical Aid Case Management (의료급여 수급자가 인식한 의료급여 사례관리 이용 경험)

  • Cho, Jeonghyun;Song, Myeongkyeong;Jeong, Kyungin;Kim, Samsook
    • Journal of Korean Public Health Nursing
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    • v.34 no.1
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    • pp.112-124
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    • 2020
  • Purpose: This study aimed to explore the perception of medical aid beneficiaries on their experiences of receiving case management. Methods: Data were collected through in-depth interviews with sixteen medical aid beneficiaries who had been receiving medical aid case management from at least one year ago. The data were analyzed using the NVivo software program for its qualitative content analysis. Results: Three categories emerged from the data: "not perceived but come into my territory", "realized the necessity of changes and begin to take care of my own health", and "satisfied passively with some of my changes." With respect to these categories, eight sub-categories were ultimately identified. Conclusion: It would be effective if both medical aid beneficiaries and case managers can set the case management goals and management plans together at the beginning of case management. It is also needed to develop a comprehensive case management model tailored to the characteristics and needs of the beneficiaries.

Reliability and Validity of an Iranian Version of the European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire for Patients with Multiple Myeloma: the EORTC QLQ-MY20

  • Ahmadzadeh, Ahmad;Yekaninejad, Mir Saeed;Saffari, Mohsen;Pakpour, Amir H;Aaronson, Neil K
    • Asian Pacific Journal of Cancer Prevention
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    • v.17 no.1
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    • pp.255-259
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    • 2016
  • Background: Reliable and validated instruments are needed in order to study the quality of life in myeloma patients. This study aimed to translate and explore the psychometric properties of the European Organisation for Research and Treatment of Cancer (EORTC) myeloma module (QLQ-MY20) in Iranian patients. Materials and Methods: Two hundred and fifteen patients with multiple myeloma (MM) were recruited from Imam Khomeini Hospital, Tehran. A standard forward-backward translation procedure was implemented. Participating patients were asked to complete the EORTC QLQ-C30 and the QLQ-MY20 three times, at study entry, after two weeks, and again after three months. Data were tested for the range of measurement, internal consistency, test-retest reliability, known group comparison, responsiveness and factor structure. Results: Mean age of the patients was 60.7 years. No floor and ceiling effects were seen for the QLQ-MY20. Cronbach's ${\alpha}$ was greater than 0.80 for all three multi-item scales (ranging from 0.82 to 0.93). All four scales had test-retest reliability of 0.85 or greater. Results of the confirmatory factor analysis that the hypothesized 3-scale measurement model of the QLQ-MY20. Moreover, the Persian version for the QLQ-MY20 differentiated between subgroups of the patients in terms of beta-2 microglobulin, fracture and performance status. The responsiveness of the QLQ-MY20 to change over time was confirmed within 3 months. Conclusions: the results of our study indicate that our Iranian version of the QLQ-MY20 is a feasible, reliable and valid questionnaire for assessing the condition-specific quality of life of patients with MM.

A Study on the Effective Guarantee of the Right to Portability of Personal Health Information (개인건강정보 이동권의 실효적 보장에 관한 연구)

  • Kim, Kang Han;Lee, Jung Hyun
    • The Korean Society of Law and Medicine
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    • v.24 no.2
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    • pp.35-77
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    • 2023
  • As the amendment to the Personal Information Protection Act, which newly established the basis for the right to request transmission of personal information, was promulgated through the plenary session of the National Assembly, MyData, which was previously applied only to the financial sector, could spread to all fields. The right to request transmission of personal information is the right of the information subject to be guaranteed for the realization of MyData. However, since the right to request transmission of personal information stipulated in the Personal Information Protection Act is designed to be applied to all fields, not a special field such as the medical field, it has many shortcomings to act as a core basis for implementing MyData in Medicine. Based on this awareness of the problem, this paper compares and analyzes major legal trends related to the right to portability of personal health information at home and abroad, and examines the limitations of Korea's Personal Information Protection Act and Medical Act in realizing Medical MyData. Under the Personal Information Protection Act, the right to request transmission of personal information is insufficient to apply to the medical field, such as the scope of information to be transmitted, the transmission method, and the scope of the person obligated to perform the transmission, etc.. Regulations on the right to access medical information and transmission of medical records under the Medical Act also have limitations in implementing the full function of Medical My Data in that the target information and the leading institution are very limited. In order to overcome these limitations, this paper prepared a separate and independent special law to regulate matters related to the use and protection of personal health information as a measure to improve the legal system that can effectively guarantee the right to portability of personal health information, taking into account the specificity of the medical field. It was proposed to specifically regulate the contents of the movement and transmission system of personal health information.

The Relationship between Financial Mydata Service Characteristics and Intention to Use: The Moderating Effects of Innovativeness and Technology Security (금융 마이데이터 서비스 특성과 수용의도의 관계: 개인혁신성과 기술적 보안성의 조절효과)

  • Changyong Sohn;Hyunsun Park;Sanghyun Kim
    • Knowledge Management Research
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    • v.23 no.4
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    • pp.133-157
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    • 2022
  • As data becomes a new core resource with high attention, MyData service is spreading to various fields such as finance, medical care, and the public sector. However, research on the behavior of MyData service users is insufficient. Therefore, this study aims to empirically examine the effect of MyData service traits on value perception and acceptable behavior particularly in the financial sector where MyData service is most active. To this end, this study proposed a research model based on the literature. 295 survey responses were collected from individuals and analyzed using AMOS 26.0 for hypothesis testing. As a result of the analysis, it was found that self-information control, financial convenience, and personalized service had a significant effect on perceived value, and that perceived value had a significant effect on the intention to accept MyData service. Furthermore, this study examined the role of personal innovation and technological security in the relationship between variables by suggesting them as moderators. Results show that individual innovation was found to strengthen the relationship between two variables(self-information control and personalized service) and perceived value. Also, technological security was shown to strengthen the relationship between perceived value and intention to accept financial MyData services. The findings are expected to provide useful information to understand the factors affecting the acceptance of financial MyData service users and to understand the importance of individual innovation levels and technological security.

Design of Mobile Telemedicine System using RFID based on Embedded Linux (임베디드 리눅스 환경에서 RFID 기반의 Mobile Telemedicine System 구현)

  • Yun, Chan-Young
    • Proceedings of the Korea Contents Association Conference
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    • 2006.05a
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    • pp.479-482
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    • 2006
  • Mobile Telemedicine uses common technologies that provide a conduit for information exchange between physicians nurses and patients. In addition to patient records, medical professionals will obtain vital signs and other reference data through Ubiquitous Sensor networks(USN). In this paper about a design and implementation of RFID reader platform that received RFID tag information from patients tags, transmit the data to SBC(Single board computer) based on Intel PXA255 ARM CPU and SBC transmit the data to MySQL server in hospital using by Wireless Internet. his system that based on Embedded Linux is composed of RFID module, ARM processor, RS-232 interface, and Wireless LAN. This paper also provides a brief overview and concept of RFID reader, and proposes the design and implementations of the RFID reader platform used QT and MySQL based on Embedded Linux.

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Performance Analysis of RDBMS and MongoDB through YCSB in Medical Data Processing System Based HL7 FHIR (HL7 FHIR 기반 의료 데이터 처리 시스템에서 YCSB를 통한 RDBMS와 MongoDB의 성능 분석 연구)

  • Jeon, Dong-cheol;Lee, Byung Mun;Hwang, Heejoung
    • Journal of Korea Multimedia Society
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    • v.21 no.8
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    • pp.934-941
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    • 2018
  • There are some limits on cost and efficiency for large amount of data in RDBMS, and NoSQL is starting to gain popularity. In medical institutions, data forms are different between organizations, and that makes difficulty for interoperability between organizations. In this paper we focused on performance issues between RDMBS and NoSQL in medical documents. We had built two different environment and had experiment comparative analysis of NoSQL with RDBMS based on medical data. We used medical HL7 FHIR as a medical data standard. Also YCSB benchmark tool was used for performance comparison. Experiments shows that NoSQL has better performance in large amounts of medical data processing systems that have over 10,000~100,000 records.

A Phenomenological Study on the Spontaneous Abortion Experiences of Women (여성의 자연유산 경험에 대한 현상학적 연구)

  • Hong, Ju-Eun;Park, Jum-Mi
    • Women's Health Nursing
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    • v.23 no.2
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    • pp.63-77
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    • 2017
  • Purpose: The purpose of this study was to explore essences and meaning in experiences of women who have had spontaneous abortion. Methods: A phenomenological methodology was used for the study. A total of five women with the spontaneous abortion participated in the study. In-depth interviews were done for data collection, and the data were analyzed using Colaizzi's method. Results: Five theme clusters, along with 32 sub-themes and 13 themes. The five theme clusters were: 'Waiting and expecting pregnancy', 'Desire to overcome the spontaneous abortion', 'My baby makes me cry and laugh', 'My precious baby', and 'Want to hear with sympathy and talk with you', Conclusion: The women who have had the spontaneous abortion experiences can prevent potential physical and psychological complications after miscarriage by getting education and intervention in nursing. Moreover, they may experience that negative factors of the spontaneous abortion can be turned into positive things through emotional support of family and medical teams.