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http://dx.doi.org/10.17661/jkiiect.2020.13.3.250

Personal Health Record/Electronic Medical Record Data Trading Model for Medical My Data Environments  

Oh, Hyeon-Taek (Intelligent Tech Team, KAIST Institute for IT Convergence)
Yang, Jin-Hong (Department of Healthcare IT, INJE University)
Publication Information
The Journal of Korea Institute of Information, Electronics, and Communication Technology / v.13, no.3, 2020 , pp. 250-261 More about this Journal
Abstract
Today, data subjects should be considered to utilize various personal data. To support this paradigm, the concept of "My Data" has proposed and has realized in various industrial sectors, including medial sectors. Based on the concept of the medical My Data, this paper proposes a personal health record (PHR) and an electronic medical record (EMR) data trading model. Particularly, this paper proposes a system model to support the medical My Data environment and relevant procedure among stakeholders for PHR/EMR data trading that ensures the rights of data subjects. Based on the proposed system model, this paper also proposes various mathematical models to analyze the behavior of stakeholders and shows the feasibility of the proposed data trading model that satisfies the requirements of both data subjects and data consumers.
Keywords
Data Subjects; Data Trading; Electronic Medical Record; Medical My Data; Personal Health Record;
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1 E. Ramirez, J. Brill, M. K. Ohlhausen, J. D. Wright, and T. McSweeny, "Data Brokers: A Call for Transparency and Accountability", Federal Trade Commission, May 2014.
2 A. Rieke, H. Yu, D. Robinson, and J. von Hoboken, "Data Brokers in An Open Society", Open Society Foundations, November 2016.
3 M. Little, "Personal Data Futures: The Disrupted Ecosystem - How user-control of personal data could 'game-change' Big Data and reconfigure the Internet", OVUM, January 2014.
4 Regulation (EU) 2016/679 of the European Parliament and of the Council on the protection of natural persons with regard to the processing of personal data and on the free movement of such data, and repealing Directive 95/46/EC (General Data Protection Regulation), OJ 2016/L 119/1, 27 April 2016.
5 Y. Lee, "A Study on the Revision Trend of Data 3 Act", The Journal of Comparative Private Law, vol. 27, no. 2, pp. 423-463, May 2020.
6 pde.cc. Personal data ecosystem consortium - empowering people with their personal data. [Online]. Available: https://pde.cc/
7 P. Kumaraguru and L. F. Cranor, "Privacy Indexes: A Survey of Westin's Studies," in CMU-ISRI-5-138. Institute for Software Research International, School of Computer Science, Carnegie Mellon University, December 2005.
8 M. Karampela, S. Ouhbi, and M. Isomursu, "Connected Health User Willingness to Share Personal Health Data: Questionnaire Study", J Med Internet Res, vol. 21, no. 11, November 2019.
9 E. F. Franklin, H. M. Nichols, L. House, J. Buzaglo, and K. Thiboldeaux, "Cancer Patient Perspectives on Sharing of Medical Records and Mobile Device Data for Research Purposes." Journal of Patient Experience, May 2020.
10 Ponemon Institute, "Privacy and Security in a Connected Life : A Study of European Consumers". Trend Micro and Ponemon Institute, 2015.
11 J. Parra-Arnau, "Optimized, direct sale of privacy in personal data marketplaces," Information Sciences, vol. 424, pp. 354-384, 2018.   DOI
12 Z. Su, Q. Qi, Q. Xu, S. Guo, and X. Wang, "Incentive scheme for cyber physical social systems based on user behaviors," IEEE Transactions on Emerging Topics in Computing, 2018.
13 Tian, J. Li, W. Li, B. Ramesh, and Z. Cai, "Optimal contract-based mechanisms for online data trading markets," IEEE Internet of Things Journal, vol. 6, October 2019.
14 X.-B. Li and S. Raghunathan, "Pricing and disseminating customer data with privacy awareness," Decision Support Systems, vol. 59, pp. 63-73, 2014.   DOI
15 H. Oh, S. Park, G. M. Lee, H. Heo and J. K. Choi, "Personal Data Trading Scheme for Data Brokers in IoT Data Marketplaces," IEEE Access, vol. 7, pp. 40120-40132, 2019.   DOI
16 H. Oh, S. Park, G. M. Lee, J. K. Choi and S. Noh, "Competitive Data Trading Model With Privacy Valuation for Multiple Stakeholders in IoT Data Markets," IEEE Internet of Things Journal, vol. 7, no. 4, pp. 3623-3639, April 2020.   DOI
17 Vijay Krishna, "Auction Theory", Academic Press, 2002.
18 KISDI, "A Study on the Internet Policy Framework in the era of 4th Industrial Revolution", Report 2018-0-00373, Oct. 2018.
19 W. Zhang, S. Yuan, and J. Wang, "Optimal real-time bidding for display advertising", In Proceedings of the 20th ACM SIGKDD international conference on Knowledge discovery and data mining (KDD '14). ACM, New York, NY, USA, 2014.
20 V. Benndorf and H.-T. Normann, "The willingness to sell personal data,"The Scandinavian Journal of Economics, vol. 120, no. 4, pp. 1260-1278, 2018.   DOI
21 World Economic Forum, Rethinking Personal Data: A New Lens for Strengthening Trust, 2014.