• 한국산학기술학회논문지
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• 제19권8호
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• pp.276-282
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• 2018

본 논문은 일개 지역암센터에서 제공되는 재가암환자관리프로그램의 만족도와 요구에 대한 조사를 통해 프로그램의 질 향상을 높이기 위해 시행하였다. 재가암환자관리에 등록된 된 환자와 보호자를 대상으로 2015년 3월부터 2015년 10월까지 자체적으로 개발된 설문지를 통해 면대면으로 조사를 시행하였다. 환자 59명과 보호자 41명, 총 101명을 대상으로 설문조사가 이루어졌다. 암종에서는 유방암이 주된 암이었으며 재가암환자의 방문회수에 대하여 51명(86%)의 환자와 36명(85%)의 환자 보호자가 만족하였다. 서비스 신청경로는 환자의 경우 암센터홍보지가 22명(37.29%), 보호자의 경우에는 주변사람의 권유가 11명(26.19%)으로 가장 많았다. 환자에게 직접 제공되는 처치를 제외하고 가장 선호하는 것은 심리상담이었으며, 나들이와 암종별 교육의 만족도도 높게 나타났다. 프로그램의 만족도는 5점 척도에서 $4.14{\pm}1.21$로 비교적 높게 나왔으며 환자가 보호자보다 높았으나 통계적으로 의미는 없었다($4.29{\pm}1.11$, $3.93{\pm}1.31$, p=0.141). 자아존중감은 보호자가 환자보다 높았으나 통계적으로 유의하지 않았다. 향후 재가암환자와 보호자들의 삶의 질을 높일 수 있도록 심리상담과 환자의 경제적인 상황을 고려한 맞춤형 프로그램개발이 필요할 것이다.

• 재활간호학회지
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• 제2권2호
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• pp.184-192
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• 1999

Hemodialysis is a way of treatment for the patients with acute and chronic renal failure. "Marginal man" depicts the enormous amount of stress that hemodialytic patients suffer. It is known that family with chronic illness get stressed along with the patients and they need nursing care also. This qualitative study was conducted in order to identify the family adaptation process in patients with hemodialysis. 6 dyads of hemodialytic patients and caregivers were interviewed for this research. By way of grounded theoretical strategy the data was collected from October 20, 1999 to November 20, 1999. at a hemodialytic unit that was located in Iksan, Chonbuk by the researcher. The main research questions were "What's the adaptation experience of a patient since after being received with hemodialysis?" to the patients, and "What's the family adaptation experience of hemodialysis?" to the caregivers. The collected data was analyzed by grounded theoretical strategy built by Glaser & Strauss in 1967. Results were as follows; 7 grounded concepts were observed from the patients with hemodialysis and 4 grounded concepts were found from the caregivers. Two categories were derived ; 1) Holding hope that is related with treatment 2) Changing a value system.

• 대한간호학회지
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• 제45권5호
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• pp.650-660
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• 2015

Purpose: The purpose of this study was to develop an instrument to measure the parenting behavior of primary caregivers of children in early childhood. Methods: An instrument was developed according to Devellis's instrument development process. The participants in this study who completed the main survey were 370 mothers and grandmothers. The survey was conducted from June 1 to July 30, 2014, and collected data were analyzed using item analysis, half-split reliability and Cronbach's ${\alpha}$ coefficient, exploratory and confirmatory factor analysis, convergent validity. Results: The factor structure of the instrument showed the cumulative variance as 55.7% in the factor analysis. As a result of a confirmatory factor analysis, a four-factor structure was found to be appropriate, and the construct validity and convergent validity of the instrument were thereby confirmed. The finalized parenting behavior instrument consisted of 26 items and four independent factors: affectionate, laissez-faire, educational and impulsive. A five-point Likert scale was employed, and a higher score in a particular factor showed that most of the behaviors belonged to the factor. Conclusion: The instrument developed in this study was found to be reliable and valid, and can be used to develop parent-child relationship building.

• 한국노년학
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• 제38권4호
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• pp.1127-1148
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• 2018

본 연구는 치매환자가 보여주는 다양한 증상의 정도가 주부양자의 케어스트레스에 미치는 영향을 살펴보고, 이에 대한 보호요인으로써 전문가지지 및 가족지지의 영향을 검증하는 것을 목적으로 한다. 이를 위해 서울, 경기, 부산 3개 지역의 주간보호센터 및 병원, 요양시설 10곳을 대상으로 한 설문조사를 활용하였다. 연구대상으로 치매 진단기간 5년 이내인 치매환자의 배우자 및 자녀부양자 191명을 선정하였고, 다중회귀분석을 통해 연구모형 검증에 대한 분석을 진행하였다. 연구결과 치매환자의 증상정도는 주부양자가 느끼는 정신적 고통인 케어스트레스에 정적인 영향을 나타냈다. 전문가지지와 가족지지의 보호효과를 검증한 결과, 전문가지지는 치매환자의 증상으로 인한 주부양자의 케어스트레스를 완화시켜주는 것으로 나타난 반면, 가족지지의 보호효과는 유의미한 영향을 나타내지 않았다. 본 연구결과는 의료진 및 사회복지사와 같은 전문가지지는 주부양자의 케어스트레스 완화에 효과적이지만 친척과 같은 가족들의 지지는 케어스트레스 완화에 효과적이지 않았음을 보여준다. 분석결과를 바탕으로 본 연구는 치매환자의 부양가족을 대상으로 한 정기적인 치매 증상에 관한 교육의 필요성, 주부양자의 케어스트레스 감소를 위한 지원 정책의 확대, 치매전문인력 구성의 확대 및 협업 시스템의 구축, 치매환자 부양가족구성원 간의 기능 증진을 위한 개입 필요성을 제언하였다.

• 중환자간호학회지
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• 제5권1호
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• pp.1-11
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• 2012

Purpose:The purpose of this study was to examine the effects of video-centered information among family members intensive care unit (ICU). Methods: A quasi-experimental, nonequivalent control group, pretest-posttest design was used. Participants (n=86) were family members who were the main caregivers for the patient in ICU. An experimental group (n=43) watched a video while the control group (n=43) was provided a leaflet. Levels of environmental stress, anxiety and nursing need satisfaction were measured by questionnaires before and after the interventions. Data were analyzed with ${\chi}^2$ test, paired t-test, independent t-test, Fisher's exact test and ANCOVA. Results: There were no differences in environmental stress (F=1.88, $p$=.065), and anxiety (t=0.37, $p$=.711) between 2 groups, but there was a significant difference in nursing need satisfaction (t=3.01, $p$=.004). Conclusion: Providing video-centered information would be an effective nursing intervention by improving nursing need satisfaction among family, the main caregivers members of patients in ICU.

• Asian Pacific Journal of Cancer Prevention
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• 제14권7호
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• pp.4415-4419
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• 2013

Background: Measuring effects of cancer on family caregivers is important to develop methods which can improve their quality of life (QOL). Nevertheless, up to now, only a few tools have been developed to be used in this group. Among those, the Caregiver Quality of Life Index-Cancer Scale (CQOLC) has met minimum psychometric criteria in different populations in spite of conflicting results. The present study was conducted to evaluate reliability and validity of CQOLC among Turkish cancer family caregivers. Materials and Methods: The CQOLC was administered to 120 caregivers, along with Beck Depression Inventory (BDI), Medical Outcomes Study MOS 36- Item Short Form Health Survey (SF-36), State-Trait Anxiety Inventory (STAI), and Multidimensional Scale of Perceived Social Support (MSPSS). Internal consistency and test-retest stability were used to investigate reliability. Construct validity was examined by using known group method, convergent, and divergent validity. For the known group method, we hypothesized that CQOLC scores would differ between depressed and non-depressed subjects. We investigated convergent validity by correlating scores for CQOLC with scores for other similar measures including SF-36 and STAI. The MSPSS was completed at the same time as CQOLC to provide divergent validity. Results: The values for internal consistency and test-retest correlation were 0.88 and 0.96, respectively. The CQOLC discriminated those who were depressed from those who were not. Convergent validity supported strong correlations between CQOLC scores and two main component scores (PCS, MCS) in SF-36 although there was a weak correlation between CQOLC and STAI scores. Regarding divergent validity, the correlation between CQOLC and MSPSS was in the low range, as expected. Conclusions: The Turkish CQOLC is a reliable and valid tool and it can be utilized to determine QOL of family caregivers.

• 대한간호학회지
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• 제27권4호
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• pp.953-960
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• 1997

The purpose of this study was to explore and describe the experience of caregivers with mentally ill children. The sample consists of 4 participants who care for their children with mentally ill. They were asked open-ended questions in order for them to talk about their experiences. With permission of the subjects, the interviews were recorded and transcribed. The methodology utilized was the Colaizzi's phonomenological approach. The interview data was organized by themes into 5 categories anguish, positive emtion, maturation, acceptance of the disease, and seeking information. These 5 themes were further categorized into 4 main groups : emotional impact, spiritual maturation, adapting to the illness, and seeking support needs. The results of this study have clinical and theoretical implications not only for psychiatric nursing in Korea but also for all clinicians working with the families of the mentally ill.

• 대한간호학회지
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• 제34권5호
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• pp.881-890
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• 2004

Purpose: The purpose of this study was to explore women caregivers' lived experiences in caring at home for a family member with dementia and to identify conditions that oppress women in the context of family caregiving. Method: This study was conducted within the feminist perspectives using qualitative secondary data. Ten secondary data conveying self reflective contents were selected from the 25 original data obtained in 1999 to 2000. Result: Six themes that emerged from the qualitative thematic content analysis were; androcentric view of family caregiving, undervalued family caregiving by the family members, Self rationalization in the context of family caregiving, family-centric care mechanism, exemplary caring within the family context, and inter-familial relationships among women. Conclusion: The main focus of feminist research is to provide empowerment for the women, research participants and to bring about social change of oppressive constraint through some actions. On the basis of the research findings, therefore, action strategies from feminist perspectives were suggested in some aspects of health care delivery sectors, nursing education and research sectors, and administrative sectors.

• 대한가정학회지
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• 제40권9호
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• pp.207-221
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• 2002

The purpose of this study was to examine the effects of perceived gain in caregiving on the positive aspects of psychological well-being. The data were gathered from 262 informal caregivers who provided care for relatives or friends in need due to illness or disability. The main results were as follows: First, overall level of perceived gain in caregiving was above the median level. Second, higher gains were perceived by the caregivers who were more educated and who had more remote relationships with care recipients. Third, perceived gain was a significant variable influencing caregiver' psychological well-being. In addition, when the perceived gain variable was added to the regression model, no socio-demographic characteristics of the caregiver and the caregiving context were found to be related to psychological well-being. Theoretical and practical implications of these results were discussed.

• Journal of Hospice and Palliative Care
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• 제17권2호
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• pp.66-74
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• 2014

목적: 본 연구의 목적은 소생술 포기(Do Not Resuscitate, DNR)와 사전의료의향서(Advance Directives, AD)에 대한 환자 보호자와 의료인의 인식을 파악하고 비교하고자 함에 있다. 방법: 이 연구에서는 5개 종합 병원에 입원한 환자 보호자 145명과 이를 담당한 의료인 272명을 대상으로 2009년 9월 21일부터 15일간 조사를 실시하였다. 조사내용은 소생술 포기에 대한 인식 14문항, 연명 의료 중지 선택제에 대한 인식 3문항, 직업유무, 성별, 연령을 포함한 20문항으로 구성하였다. 결과: 소생술 포기와 사전의료의향서에 대한 필요성은 환자 보호자와 의료인에서 모두 높았으며, 특히 의료인이 환자 보호자보다 그 필요성을 더 많이 인식하였다(DNR ${\chi}^2=44.56$, P<0.001; AD ${\chi}^2=16.23$, P<0.001). 의료인은 소생술 포기에 대한 설명을 환자나 환자 보호자에게 제공해야 한다는 인식이 높았으나 환자 보호자의 경우 환자 보다 환자 보호자에게 제공해야 한다는 인식이 높았다. 소생술 포기와 사전의료의향서의 필요성에 대한 주 이유는 '회복 불가능한 환자의 고통 경감'으로 나타났다. 또 소생술 포기 결정 시기는 '말기질환 입원 즉시'가 가장 많았으며 의사결정은 '환자와 환자 가족이 상의하여 결정한다'는 의견이 가장 많았다. 소생술 포기에 대한 지침서의 필요성과 이로 인한 요구도 증가 역시 환자 보호자 보다 의료인이 높게 인식하였다(${\chi}^2=7.41$, P=0.0025). 결론: 이 연구 결과 한국 사회에서 소생술 포기와 사전의료의향서의 결정은 환자 보호자에 의존하는 경향이 높을 것으로 사료되며 따라서 환자와 환자 보호자가 이에 대한 객관적인 정보를 제공받아야 한다. DNR과 AD의 적용은 말기환자의 고통 경감이 주요한 이유로 나타나 호스피스와 연계한 후속 연구의 필요성이 나타났다. 의료인도 환자 보호자와의 인식 차이를 인지하고 DNR과 AD 결정을 위한 의사소통 시 이를 충분히 고려해야 한다.