• Journal of Hospice and Palliative Care
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• 제20권3호
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• pp.177-187
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• 2017

목적: 2017년 8월부터 말기 암 이외에도 후천성 면역결핍 증후군, 만성 폐쇄성 폐질환, 간경화 환자들에게도 호스피스 완화의료가 적용될 예정이다. 이에 본 연구에서는 비암성 질환 전문가들을 대상으로 세 가지 질환에서의 호스피스 완화의료의 목표, 내용 및 적용 방법에 대한 심층 면담을 통해, 호스피스 완화의료에 대한 생각, 인식, 태도에 대해 살펴보아, 국내 실정에 맞는 비암성 호스피스 완화의료 진료 모델 마련에 기여하고자 하였다. 방법: 본 연구는 반구조적 심층 면담조사를 통한 질적 연구이다. 암환자의 호스피스 완화의료를 담당하는 네 명의 임상 의사가 85편의 문헌 검색을 통해 핵심 질문을 선정하여 총 11명의 비암성 질환 전문가들에게 면담을 하고 질적 연구 방법에 따라 분석되었다. 결과: 전문가들은 비암성 질환의 말기환자를 정의하기 어렵다고 하였고, 호스피스 완화의료의 목표와 내용은 암환자들을 대상으로 한 것과 다르지 않다고 하였지만, 통증보다는 다른 신체 증상과 정서적 문제에 중점을 두어야 한다고 하였다. 또한, 말기라고 진단할 수 있는 시점에 호스피스 완화의료를 적용해야 한다고 하였다. 질환 별로 특수한 점들(AIDS 환자들의 항바이러스제 사용, COPD 환자들의 호흡곤란, LC 환자들의 간이식)과 의료진들에 대한 교육의 필요성에 대해 언급하였다. 호스피스 완화의료 적용 시 환자들이 자신을 포기한다는 느낌을 받을 수 있다고 하였고 정부의 재정 지원 문제에 대해서도 언급하였다. 결론: 비암성 질환에 대한 호스피스 완화의료 도입의 문제점을 최소화하기 위해서는 심도 있는 논의를 통해 비암성 질환의 말기환자에 대한 정의를 마련해야 할 필요가 있다. 또한, 비암성 말기환자들을 돌보는 의료진과 현재 말기 암환자의 호스피스 완화의료를 담당하고 있는 인력의 협력이 필요하다.

• 여성건강간호학회지
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• 제5권3호
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• pp.410-419
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• 1999

This study sought to figure out women's functional status after childbirth under the Sanhujori. Functioal status was defined as the women's readiness to assume infant care responsibilities and resume her usual activities including household, social and community, self-care and occupational activity. A convenience sample of 211 women who are in the postpartal period of the range from 1 week to 3 months above and residing in Seoul. Korea was studied from January, 1997 to December, 1998 for two years. Mean age of respondents was 29.9 years and mean of the present postpartal period was 7.5 weeks. The present postpartal period was of 5-8 weeks 26.5%, 3-4weeks 26.1%, 9-12 week 23.7% and below 2 weeks 7.1%, 32.7% of women had a job and the mean period of return to job was 2.76 weeks. During Sanhujori the non professional care giver was family members from women's maiden home 73.5% and only 2% of husband. The period women needed for the recovery from now was 5.39 weeks and it means that women need 12.9weeks for recovery after childbirth. For the present subjective health status after childbirth, bad was 20.2%, good 18.3 and average 61.5% and for the recovery status, completely recovered 29.5%, slightly 61.8% and rarely 8.7%. The mean of functional status at the 7.5weeks was baby care activity 3.65, household 2.57, self-care 2.46, occupational 2.44 and social 1.53 in rank. Except baby care the functional status was generally low or very low. The related factors to the functional status were the period and subjective evaluation of Sanhujori women experienced, the present period of postpartum, and subjective feeling of recovery. This result strongly reflects the effects of Sanhujori culture and Sanhujori per se on women's postpartal life including functional status and reconfirmed the relationship between health status and the experience of Sanhujori after delivery as the previous findings from various study showed. It provides a challenge to the professional care givers to research further on the effects of Sanhujori on the health status, health recovery after abortion or delivery from the various aspects through the cross-sectional and longitudinal research for the refinement of the reality of Sanhujori not only as cultural phenomenon but as an inseparable factor influencing in women's postpartal healthy adaptation and for the appropriateness of intervention and quality of care for desirable health outcome.

• Journal of Hospice and Palliative Care
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• 제16권2호
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• pp.74-79
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• 2013

본 고는 지난 15년간 한국 호스피스 완화의료학회지에 발표된 논문의 내용과 경향을 파악함으로써 향후 연구의 방향을 제시하는데 그 목적이 있다. 1998년부터 2012년까지 총 240편(종설 51편, 원저 189편)의 논문을 5년 단위로 분류하여 살펴보았다. 분석틀에는 저자 정보(지역 및 직종)와 논문 정보(대상자, 주제, 설계유형, 분석방법, 윤리적 고려, 다학제 접근, 연구기금 수혜, 그리고 표본수 산정)를 포함하였다. 게재논문의 총 편수는 갈수록 증가하고 있으나 이는 종설의 증가에 따른 것으로 원저의 게재 증가는 매우 미미하였다. 연구 주제는 보건사업과 신체증상에 관한 것이 가장 많았고, 저자의 지역간 편차는 해소되었으며, 직종에서는 간호사의 논문 편수 증가가 두드러졌다. 연구기금 수혜 논문은 증가하고 있었고, 다학제간 접근과 보호자를 대상으로 한 연구는 줄어드는 추세를 보였으며, 연구설계에서는 실험연구와 방법론적 연구가 미약한 증가세를 보였다. 질적 측면에서는, 윤리적 고려나 연구참여 동의를 받는 연구가 증가하였고, 표본수 추정을 한 연구는 미약하게 증가하였으며, 통계기법에서는 보정 후 비교법이 줄어드는 추세였지만, 새로운 통계기법의 사용은 증가하였다.

• 임상간호연구
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• 제22권2호
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• pp.142-151
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• 2016

Purpose: The aim of this study was to identify the effects of hope and Self-efficacy on posttraumatic growth in mothers of children with cancers. Methods: A descriptive research design was used and 102 mothers participated in the study. They were primary care givers of children with cancers who were being treated at a tertiary care hospital in Seoul. A structured questionnaires which measured the degree of hope, self-efficacy, and posttraumatic growth was used for data collection. Data analysis was conducted using descriptive statistics, independent t-test, one-way analysis of variance, Pearson correlation coefficient, and multiple regression. Results: There were positive correlations between posttraumatic growth and hope (r=.44, p<.001) as well as self-efficacy (r=.33, p=.003). The major predictors of posttraumatic growth were religion (${\beta}=0.29$, p=.001), only child or first child (${\beta}=-0.25$, p=.015), the number of children in the family (${\beta}=0.25$, p=.016), and hope (${\beta}=0.38$, p=.001). This model explained about 30.4% of the total variables found in posttraumatic growth (F=9.84, p<.001). Conclusion: The findings from this study show that posttraumatic growth in mothers of children with cancers is largely predicted by hope indicating a need to develop nursing intervention programs to enhance hope in these mothers.

• The Journal of Korean Physical Therapy
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• 제6권1호
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• pp.49-60
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• 1994

Stress is experienced when a person tries to maintain stability in the face of life change but is not able to meet the adaptive demands of change. This can be especially true for the parents who has a cerebral palsy childs who needs long term rare, where parents, are the primary source of care and responsibility. Successful coping leads to maintenance of the parents role and this has an effect on the health status of the child. This descriptive study was attempted to identify stress factors, levels and helpful coping patterns for parents who must take care of cerebral palsy children. Data were collected from 43 subjects who were parents of children diagnosed with cerebral palsy The informations gathered from March 25, 1994 to April 14, 1994 by means of structured questionnaires were analyzed. Two instruments were used to collect the data 1) Lee's stress questionnaire consisted of 33 stress factors and measured by four point Likert scale. 2) Modified Chronic Health Inventory for parents: The modified CHIP included 43 items of coping methods with four point Likert scale. The results of this study were as follows: 1) Stress items could have a maximum score of three points, for a total possible score of 132 points. The mean score for the total was 92.02 points. The item mean score was 2.85 points showing that the parents were experiencing moderate to much stress. 2) The items with the highest stress items were 16 items. The stress items with the lowest mean scores were 10 items. 3) Of the stress categories: The highest stress category was related to changes in the illness status of the child and difficulty in taking rare of the child. The second stressful category was related to the prognosis of the child's condition. The least stress was noticed to social-personal relationships and the responsibility of the care givers. 4) Items measuring coping in the parents had a maximum score of three points each with a total possible roping score of 172 points. The mean score for the total was 103,9 paints. The item mean score was 2.42 points indicating that there were responses of little helpful to moderately helpful on each coping pattern. 5) The most helpful coping items were 7 items. The least helpful coping items were 2 items. 6) Effectiveness of the coping for each patterns was examined : Understanding the illness condition from communication with parents of children with the same condition and consultation with the medical team was the most helpful coping pattern. Family's coorperation and integration and optimism were a moderately helpful coping pattern. Social support psychological stability and self esteem were the least helpful toping pattern. In conclusion, the highest stress for parents of children with cerebropalsy was found to be very stressful changes in the illness of the child and to taking care of a child who is suffering. The parents were helped by the coping methods using understanding of the illness condition through consultation with the medical learn and communication with parents in the same situation. Based on the knowledge, care could develop intervention strategies appropriate for them, help them to develop their effective coping patterns, and give support them in the process of coping with their stress.

• 한국콘텐츠학회논문지
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• 제17권5호
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• pp.366-375
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• 2017

본 연구는 의료급여환자와 가족 3인, 요양병원에 4년 이상 근무한 경험이 있는 종사자 5인에 대한 심층면접조사를 통하여 도덕적해이가 우려되고 있는 의료급여환자의 요양병원 이용과정과 입원, 의료서비스, 퇴원과 전원 등에 대하여 분석하였다. 주요 분석결과와 함의는 다음과 같다. 첫째, 요양병원 입원은 의료급여환자의 선택보다는 의료기관간의 연계와 유치를 위한 경쟁적 홍보에 의해서 이루어지고 있었다. 둘째, 의료급여환자의 요양병원 장기입원의 원인은 본인부담이 적어서 도덕적 해이를 유발할 수도 있었지만 거주지 부재, 간병인 부재 등 퇴원 후 사회적인 보호수단이 없는 것도 주요 원인이었다. 셋째, 대다수 의료급여환자들이 치료가 필요한 상태이지만, 건강보험환자에 비해 필요성이 높지 않음에도 입원을 유지하는 경우가 있었다. 넷째, 요양병원의 의료서비스는 재활서비스가 주를 이루고 있으며, 간호인력과 간병인의 역할이 중요하였다. 다섯째, 의료급여환자들은 요양병원 의료비를 수급비와 가족지원 등으로 부담하고 있지만, 일부 환자들은 병원에서 간병비나 본인부담을 면제 혹은 감면받고 있었다. 여섯째, 공공기관과 사회복지기관은 요양병원에 환자를 의뢰한 이후 지속적인 관리를 하지 않고 있으며, 퇴원 후 지역사회서비스 연계가 필요한 것으로 나타났다.

• 한국식품영양학회지
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• 제29권6호
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• pp.1070-1078
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• 2016

This study investigated the nutrition education realities and nutrition status of children in community child centers, by analyzing the status of nutrition education, nutrition quotient (NQ), and the level of maintaining dietary guidelines. The subjects were 173 children from grades 1 to 6, enrolled in community child centers, Jinju, Kyungnam. The NQ was examined by a questionnaire, which was a checklist of 19 food behavior items. The distribution of scores (out of 100) in the nutrition quotient were as follows: total score of NQ was 59.4, balance 56.6, diversity 60.6, moderation 65.6, regularity 60.9, and practice 56.7. Nutrition quotient was higher in the higher graders due to significant differences in the area of variety. The level of maintaining dietary guidelines was higher in girls, especially in the area 'eat politely with family', and higher amongst the upper graders in the area 'have safe snack wisely'. To improve the eating habits and nutritional status of the children in community child centers, their nutritional state should be checked with regular and systematic education, and their nutritional management should be pursued continuously. Since the assessment of the eating behaviors and the nutritional state of children is important at home as well as in schools and community child centers, nutritional education should be further extended to the parents and their care givers. This study can be implemented as basic material for the nutritional education of children, to minimize the dangers of malnutrition and to help build up the right eating habits amongst children in community child centers.

• Journal of Nutrition and Health
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• 제25권7호
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• pp.668-683
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• 1992

To evaluate the current practices of the tube feeding and the status of tube feeding patient 76 adult in-patients at 6 hospitals located in Seoul and Chung-buk province were examined through reviewing patient charts observing patients and interviewing patients nurses dietitians patients' family or care-givers. The results were as follows : 1) An average age of the patients was 54.5 years with 41% over 60 years old. Patients with decreased mental status dysphagia esophageal obstruction and respiratory problem were fed by tubes. 2) The range of duration of tube feeding is between 4 days and 6 years. Most patients were received formula through nasogastric tube(89.5%) while 7.9% of gastrostomy and 2.6% of jejunostomy. Administration method for formula were bolus feeding regardless of the route of formula delivery. 3) Mean total calories received for men were 1590 kcal and 1450 kcal for female. Mean volume per meal was 282m, l and mean frequency of feeding was 5.68 while mean feeding interval 3$\frac{1}{4}$ hours and mean rate of infusion 68.4ml/min. All patients received hospital-blenderi-zed formula as the major source of nutrition. Home-blenderized formula and commercial formula as a supplement were used 35%, 13.2% respectively. 4) Thirty-eight percent of patients was hypoalbuminemia and 61% was at the moderate level of deficiency in hemoglobin. 5) Complications associated with tube feeding were diarrhea (22.4%) constipation(21.1%) vomiting(11.8%) and so on. 6) Serum albumin levels of patients who have complications associated with tube feeding were significantly lower than those of patients without complications In planning a tube feeding regimen the type of a formula must be integrated with both a delivery system and a protocol for administering the tube feeding. the multidisciplinary effort required to deliver enteral therapy is essential to improve current practices used at hospitals.

• 성인간호학회지
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• 제13권2호
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• pp.262-276
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• 2001

The purpose of this study is to investigate the correlation among the stroke patient family's health, burden and quality of life which is based upon the comparative appreciation of the adult stroke patient's family and elderly stroke patient's family. For this purpose, data were collected from the family care-givers for two groups of stroke patients under sixty years old and over sixty years of age, admitted at K Hospital and H Hospital in Seoul. The instruments for this research are based on the tool for measuring physical health and psychological health developed by Yang, Young-hee(1992), the tool for measuring the sense of burden by Seo, Mee-hae and Oh, Ga-sil(1993), and the tool for the quality of life by Noh, Yoo-ja(1988). The sampling for this study was done from December, 2000 until February, 2001. Questionnaire data were drawn up by personal interviews aided by the staff nurses. The analysis of collected data are based on general characteristics calculated at the rate of 100 percent of the average, t-test, ANOVA(some difference on a level with p<.05 being subsquently confirmed by DMR) for Health Status, Burden, Quality of Life and Pearson Correlation to verify the hypothetical correlation among the subjects. The results of this study are as follows: 1. In the adult stroke patient family, the factors influencing the physical health proved to be age, present occupation and family-formation. Here, the factors influencing psychological health turned out to be age, matrimonial status, present occupation and family-formation. In the elderly stroke patient family, the factors influencing physical health proved to be age, gender, final academic status, matrimonial status, present occupation, and relation with the patient. Here, the factors influencing the psychological health were age, final academic status, matrimonial status, present occupation, relation with the patient and family-formation. In the former case, the influencing factors upon the burden were shown to be age, final academic status, matrimonial status, relation with the patient and family-formation. In the latter case, the influences upon the burden were age, gender, final academic status, matrimonial status, present occupation and relation with the patient. In the former case, the influences on the quality of life were gender, and economic situation. In the later case, the influencing factors on the quality of life were age, final academic status, matrimonial status, present occupation, and relation with the patient. 2. The rate of the physical condition in the former case turned out to be 2.83, and the psychological condition 2.37. The physical condition of the latter case was 2.76, and the psychological condition 2.46. The rate of the burden in the former case was 3.14, and that of the latter case was 3.04. The rate of quality of life in the former case proved to be 2.46, and that of the latter case 2.55. 3. The rate of correlation between the burden and the quality of life appeared to be the high counter-correlation (r= -.573). The rate of correlation between the psychological health and the burden of a simialr (r= -.565). The rate of correlation between the physical health and the psychological health proved to be a moderate correlation (r= .372), The rate of correlation between physical health and the burden turned out to be a low counter-correlation (r= -.276). According to this study, there proved to be a very close correlation among the stroke patient family's health, the burden and quality of life. Thus, it would be necessary to find out various nursing interventions in order to mitigate the stroke patient family's burden in the process of caring for the patients.

• 대한간호학회지
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• 제24권3호
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• pp.413-431
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• 1994

The purpose of this study was to build a substantive theory about the experience of the family whose child has died of cancer The qualitative re-search method used was grounded theory. The interviewees were 17 mothers who had cared for a child who had died of cancer Traditionally in Korea, mothers are the care givers in the family and are considered sensitive to the family's thoughts, feelings. The data were collected through in-depth interviews by the investigator over a period of nine months. The data were analyzed simultaniously by a constant comparative method in which new data are continuously coded into categories and properties according to Strauss and Corbin's methodology. The 16 concepts which were found as a result of analyzing the grounded data were, -left over time, the empty place, meaninglessness, inner sadness, situational sadness, heartache, physical pain, guilt, resentment, regret, support / stigmatization, finding meaning in the death, changing attitudes about life and living, changing attitudes about health, changing religious practice and changing family relations. Five categories emerged from the analysis. They were emptiness, consisting of left over time, the empty place and meaninglessness ; sadness, consisting of inner sadness and situational sadness ; pain, consisting of heartache and physical pain ; bitterness, consisting of guilt, resentment, regret, sup-port / stigmatization and finding meaning in the death : and transition, consisiting of changing attitudes about life and living, changing attitudes about health, changing religious practice and changing family relations. These categories were synthesized into the core concept, -the process of filling the empty space. The core phenomenon was emptiness. Emptiness varied with the passing of time, was perceived differently according to support / stigmatization and finding meaning in the death, was followed by sad-ness, pain, and bitterness, and finally resulted in changes in attitudes about life and living and about health, and in changes in religious practice and family relations. The process of filling the empty space proceeded by ① accepting realty, ② searching for the reason for the child's death, ③ controlling the bitter feelings, ④ reconstructing the relationships ameng death, illness and health and ⑤ filling the emptiness by resolving causes of child's death, adopting, having another child or with work. Six hypotheses were derived from the analysis. ① The longer the bereavement, the mere the empty space becomes filled. ② The longer the hospitalization, the more sup-port the family needs. ③ The more the sadness, pain and bitterness are expressed, the mere positive changes emerge. ④ Family support faciliates the process of filling the empty space. ⑤ Higher family cohesiveness faciliates the process of filling the empty space. ⑥ The greater the variety of reasons attributed to the child's death, the greater the variety of patterns of change. Four propositions related to emptiness and bitter-ness were developed. ① When the sense of emptiness is great and bitterness is manifested by severe feelings of guilt and resentment, the longer the process of fill-ing the empty space. ② When the sense of emptiness is great and the family is highly motivated to get rid of the bitterness, the shorter the process of filling the empty space. ③ When the sense of emptiness is less and bitter-ness is manifested by severe feelings of guilt and resentment, the process of filling the empty space is delayed. ④ When the sense of emptiness is less and the family is highly motivated to get rid of the bitterness, the process of filling the empty space goes on to completion. Through this substantive theory, nurses under-stand the importance of emptiness and bitterness in helping the family that has lost a child through cancer fill the empty space. Further research to build substantive theories to explain other losses may con-tribute to a formal theory of how family health is restored after human tragedies are experienced.