• 제목/요약/키워드: Ethical Problems

검색결과 242건 처리시간 0.041초

유전체 코호트 연구의 윤리적 고려 사항 (Ethical Considerations in Genomic Cohort Study)

  • 최은경;김옥주
    • Journal of Preventive Medicine and Public Health
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    • 제40권2호
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    • pp.122-129
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    • 2007
  • During the last decade, genomic cohort study has been developed in many countries by linking health data and genetic data in stored samples. Genomic cohort study is expected to find key genetic components that contribute to common diseases, thereby promising great advance in genome medicine. While many countries endeavor to build biobank systems, biobank-based genome research has raised important ethical concerns including genetic privacy, confidentiality, discrimination, and informed consent. Informed consent for biobank poses an important question: whether true informed consent is possible in population-based genomic cohort research where the nature of future studies is unforeseeable when consent is obtained. Due to the sensitive character of genetic information, protecting privacy and keeping confidentiality become important topics. To minimize ethical problems and achieve scientific goals to its maximum degree, each country strives to build population-based genomic cohort research project, by organizing public consultation, trying public and expert consensus in research, and providing safeguards to protect privacy and confidentiality.

사회복지정보화의 윤리적 쟁점 - 사회보장정보시스템을 통한 데이터감시를 중심으로- (Social Welfare Ethics in the Information Age - Focusing on Dataveillance through Social Welfare Information System -)

  • 김수영
    • 한국사회복지학
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    • 제68권1호
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    • pp.193-224
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    • 2016
  • 본 연구는 사회보장정보시스템을 통한 데이터감시를 사례로, 사회복지영역의 정보화를 둘러싼 윤리적 쟁점들을 짚어보는 데 그 목적이 있다. 2015년 정부는 차세대 사회보장정보시스템을 개발하면서 정보시스템을 통한 부정수급 적발과 사각지대 발굴기능을 강화할 계획이라고 밝혔다. 그러나 부정수급과 사각지대를 조사하기 위해서는 취약계층에 대한 데이터감시가 불가피하다. 이에 본 논문은 데이터 감시를 둘러싼 논쟁들을 살펴보고, 이어서 사회보장정보시스템을 활용한 데이터감시가 어떤 윤리적 문제점을 안고 있는지 프라이버시, 정확성, 소유권, 접근성의 이슈를 중심으로 구체적으로 분석했다. 나아가 데이터감시를 넘어 정보화 시대에 사회복지가 고민해야할 본질적인 윤리적 딜레마들을 살펴본 후, 시론적 수준에서나마 윤리적 난제들을 개선하기 위한 방안을 제안해보고자 했다.

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Newborn Screening of Lysosomal Storage Diseases, Including Mucopolysaccharidoses

  • Kim, Su Jin
    • Journal of mucopolysaccharidosis and rare diseases
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    • 제3권1호
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    • pp.9-13
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    • 2017
  • Tandem mass spectrometry and other new technologies for the multiplex and quantitative analysis of dried blood spots have emerged as powerful techniques for the early screening and assessment of newborns for lysosomal storage diseases (LSDs). Screening newborns for these diseases is important, since treatment options, including enzyme replacement therapy or hematopoietic transplantation, are available for some LSDs, such as infant-onset Pompe disease, Fabry disease, some types of mucopolysaccharidoses (MPSs), and Krabbe disease. For these diseases, early initiation of treatment, before symptoms worsen, often leads to better clinical outcomes. Several problems, however, are associated with newborn screening for LSDs, including the development of accurate test methods to reduce low false-positive rates and treatment guidelines for late-onset or mild disease variants, the high costs associated with multiplex assays, and ethical issues. In this review, we discuss the history, current status, and ethical problems associated with the newborn screening for LSDs, including MPSs.

분자영상의 윤리 및 규제 (Ethical and Regulatory Problems of Molecular Imaging)

  • 정재민
    • 대한핵의학회지
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    • 제38권2호
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    • pp.140-142
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    • 2004
  • As a molecular imaging is the most up-to-date technology in Nuclear Medicine, it has complicate ethical and regulatory problems. For animal experiment, we have to follow institutional animal care committee. for clinical experiment, we have to get approval of Institutional Review Board according to Helsinki declaration. In addition, approval from Korea Food and Drug Administration (KFDA) is essential for manufacturing and commercialization. However, too much regulation would suppress development of new technology, which would result in the loss of national competitive power. In addition, most new radioactive ligands for molecular imaging are administered to human at sub-pharmacological and sub-toxicological level. In conclusion, a balanced regulation is essential for the safety of clinical application and development of new technology.

패션 소비자의 가치, 지식 및 지속가능한 소비행동에 관한 연구 (The Value, Knowledge, and Sustainable Consumption Behavior of Fashion Consumers)

  • 석효정;이은진
    • 한국의류학회지
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    • 제37권3호
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    • pp.424-438
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    • 2013
  • This study examines the value, knowledge and sustainable consumption behavior of fashion consumers. The study shows that universalism/harmony, security/benevolence, power, and tradition/faith have positive effects on buying/usage behavior; however, hedonism/wealth has a negative effect. Stimulation/self-direction and universalism/harmony positively influence boycott behavior; however, power has a negative influence. Universalism/harmony and politeness have positive impacts on care/disposing behavior. Consumer knowledge about fashion related environmental problems, labor practices, ethical issues and sustainable environment knowledge influence sustainable buying/usage behavior; in addition, knowledge about ethical issues and sustainable environmental problems positively influence boycott and care/disposing behavior. Moreover, there were significant differences in values, knowledge, and consumption behavior by age.

College Students' Perspectives on ChatGPT Integration in Higher Education and Relevant Ethical Considerations

  • Pyong Ho Kim;Ji Won Yoon;Ju Hyung Yoo
    • International Journal of Advanced Culture Technology
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    • 제12권1호
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    • pp.234-241
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    • 2024
  • In higher education, integration of technologies - particularly generative artificial intelligence (AI) such as ChatGPT - has become increasingly widespread, serving numerous purposes to its stakeholders. While users acknowledge the utility of technology, concerns have emerged regarding its misuses. The present study is designed to investigate authentic perspectives and opinions of college freshman students to critically address the relevant concerns, and suggest meaningful solutions. To this end, seven college freshman student participants were recruited in a four-days-long online questionnaire. Their responses indicated that the college student participants appear to find ChatGPT positive in terms of its practicality and usefulness. However, they also showed concerns about a few potential issues (i.e., possible plagiarism and copyright problems). With recommendations the student participants suggested to reduce the aforementioned problems, the article discusses implications of the findings, providing valuable insights into the balance between implementation of AI technologies and dealing with the associated challenges in higher education in general.

새로운 간호윤리학 방법론;통합된 사례방법론 (An integrated Method of New Casuistry and Specified Principlism as Nursing Ethics Methodology)

  • 엄영란
    • 간호행정학회지
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    • 제3권1호
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    • pp.51-64
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    • 1997
  • The purpose of the study was to introduce an integrated approach of new Casuistry and specified principlism in resolving ethical problems and studying nursing ethics. In studying clinical ethics and nursing ethics, there is no systematic research method. While nurses often experience ethical dilemmas in practice, much of previous research on nursing ethics has focused merely on describing the existing problems. In addition, ethists presented theoretical analysis and critics rather than providing the specific problems solving strategies. There is a need in clinical situations for an integrated method which can provide the objective description for existing problem situations as well as specific problem solving methods. We inherit two distinct ways of discussing ethical issues. One of these frames these issues in terms of principles, rules, and other general ideas; the other focuses on the specific features of particular kinds of moral cases. In the first way general ethical rules relate to specific moral cases in a theoretical manner, with universal rules serving as "axioms" from which particular moral judgments are deduced as theorems. In the seconds, this relation is frankly practical. with general moral rules serving as "maxims", which can be fully understood only in terms of the paradigmatic cases that define their meaning and force. Theoretical arguments are structured in ways that free them from any dependence on the circumstances of their presentation and ensure them a validity of a kind that is not affected by the practical context of use. In formal arguments particular conclusions are deduced from("entailed by") the initial axioms or universal principles that are the apex of the argument. So the truth or certainty that attaches to those axioms flows downward to the specific instances to be "proved". In the language of formal logic, the axioms are major premises, the facts that specify the present instance are minor premises, and the conclusion to be "proved" is deduced (follows necessarily) from the initial presises. Practical arguments, by contrast, involve a wider range of factors than formal deductions and are read with an eye to their occasion of use. Instead of aiming at strict entailments, they draw on the outcomes of previous experience, carrying over the procedures used to resolve earlier problems and reapply them in new problmatic situations. Practical arguments depend for their power on how closely the present circumstances resemble those of the earlier precedent cases for which this particular type of argument was originally devised. So. in practical arguments, the truths and certitudes established in the precedent cases pass sideways, so as to provide "resolutions" of later problems. In the language of rational analysis, the facts of the present case define the gounds on which any resolution must be based; the general considerations that carried wight in similar situations provide warrants that help settle future cases. So the resolution of any problem holds good presumptively; its strengh depends on the similarities between the present case and the prededents; and its soundness can be challenged (or rebutted) in situations that are recognized ans exceptional. Jonsen & Toulmin (1988), and Jonsen (1991) introduce New Casuistry as a practical method. The oxford English Dictionary defines casuistry quite accurately as "that part of ethics which resolves cases of conscience, applying the general rules of religion and morality to particular instances in which circumstances alter cases or in which there appears to be a conflict of duties." They modified the casuistry of the medieval ages to use in clinical situations which is characterized by "the typology of cases and the analogy as an inference method". A case is the unit of analysis. The structure of case was made with interaction of situation and moral rules. The situation is what surrounds or stands around. The moral rule is the essence of case. The analogy can be objective because "the grounds, the warrants, the theoretical backing, the modal qualifiers" are identified in the cases. The specified principlism was the method that Degrazia (1992) integrated the principlism and the specification introduced by Richardson (1990). In this method, the principle is specified by adding information about limitations of the scope and restricting the range of the principle. This should be substantive qualifications. The integrated method is an combination of the New Casuistry and the specified principlism. For example, the study was "Ethical problems experienced by nurses in the care of terminally ill patients"(Um, 1994). A semi-structured in-depth interview was conducted for fifteen nurses who mainly took care of terminally ill patients. The first stage, twenty one cases were identified as relevant to the topic, and then were classified to four types of problems. For instance, one of these types was the patient's refusal of care. The second stage, the ethical problems in the case were defined, and then the case was analyzed. This was to analyze the reasons, the ethical values, and the related ethical principles in the cases. Then the interpretation was synthetically done by integration of the result of analysis and the situation. The third stage was the ordering phase of the cases, which was done according to the result of the interpretation and the common principles in the cases. The first two stages describe the methodology of new casuistry, and the final stage was for the methodology of the specified principlism. The common principles were the principle of autonomy and the principle of caring. The principle of autonomy was specified; when competent patients refused care, nurse should discontinue the care to respect for the patients' decision. The principle of caring was also specified; when the competent patients refused care, nurses should continue to provide the care in spite of the patients' refusal to preserve their life. These specification may lead the opposite behavior, which emphasizes the importance of nurse's will and intentions to make their decision in the clinical situations.

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초등학생 정보통신 윤리 의식의 진단.처방 시스템 개발 및 적용 (The Development and Application of Diagnosis.Prescription System for Information and Communication Ethics of Elementary School Students)

  • 김정랑
    • 정보교육학회논문지
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    • 제10권3호
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    • pp.353-361
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    • 2006
  • 최근 인터넷을 사용하는 연령대가 점점 낮아지고 있어 초등학교 정보통신 윤리교육의 필요성과 중요성이 강조되고 있으며, 다양한 정보통신 윤리 교재 개발과 교사 연수 등이 실시되고 있으나 교사와 학부모 대다수는 학교, 사회, 가정에서 정보통신 윤리교육이 매우 미흡하다고 보고 있다. 따라서 본 논문에서는 효율적인 정보통신 윤리교육을 위해 초등학생의 정보통신 윤리의식 수준을 진단하고, 학생뿐만 아니라 교사와 학부모에게도 진단에 따른 적절한 처방을 제시함으로써 학생 개개인의 수준에 맞는 정보통신 윤리교육이 이루어질 수 있도록 시스템을 개발하여 적용하였다. 적용한 결과 학생은 자신의 정보통신 윤리의식 수준을 자각할 수 있었고, 스스로 문제를 해결할 수 있는 정보를 제공받았다. 교사와 학부모는 학생의 의식 수준을 파악하여 그에 따른 다양한 지도 자료와 방법을 안내받음으로써 효율적인 정보통신 윤리교육을 할 수 있는 계기가 되었다.

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독거노인 돌봄에 있어 인간중심의 IT 활용방안에 관한 연구 (A Study on Human-Centered IT Utilization in Caring for Elderly People Who Live Alone)

  • 최소연
    • 디지털융복합연구
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    • 제20권2호
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    • pp.455-462
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    • 2022
  • 본 연구는 COVID-19로 기술을 활용한 비대면 지역사회 돌봄서비스의 수요가 증가함에 따라 독거노인 돌봄에 있어 인간 중심의 IT 활용방안을 모색하기 위해 진행되었다. 전문가 대상 FGI를 통해 ICT 활용 돌봄서비스 현황, 전달체계의 문제, 윤리적 이슈를 확인하였다. IT를 활용한 서비스로 독거노인의 생활안전과 고독사 예방을 위한 보조기술인 '돌봄플러그'와 정서적 지지의 반려로봇이 활용되고 있었다. 전달체계 상의 문제로는 일상생활 지원을 위한 보조기술 활용에 대한 신뢰 부족, 공급자중심, 일률적 제공이라는 문제가 도출되었으며 대면서비스의 보조적 수단으로 활용되어야 하고 통제 가능하며 편이성이 담보되어야 할 필요성이 제시되었다. 인간중심의 IT 활용을 위한 윤리적 이슈로 '자기결정권의 보장', '사생활보호', '충분한 알권리의 보장', 그리고 '사각지대 포괄'의 이슈가 제시되었다. 연구 결과를 토대로 이용자 중심의 설계 필요성과 인간중심의 보조기술 활용을 위안 윤리지표의 필요성을 제시하였다.

기후변화에 대응하는 과학기술의 책임과 기후변화윤리 - 책임을 중심으로 - (The Responsibilities of the Science Technology and the Ethics of the Climate Changes)

  • 변순용
    • 한국철학논집
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    • 제28호
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    • pp.7-34
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    • 2010
  • 기후변화와 관련된 윤리적인 문제는 지금까지 인류가 겪어왔던 유형의 문제와는 성격이 매우 다르다. 기후변화의 예측, 완화 및 적응을 위한 인간의 행위에서 요청되는 윤리의 문제를 접근하는데 있어서 우선 기후변화윤리의 담론에서 나타나는 인간중심주의를 벗어나야 한다. 강한 의미의 인간중심주의는 인간 종 이기주의라는 비판을 거세게 받고 있으며, 대부분의 환경교육에서는 약한 의미의 생태학적으로 계몽된 인간중심주의 논리로 환경윤리적 요청을 정당화하고 있다. 기후변화윤리의 담론에서는 이러한 인간중심주의적 사고를 지양해야 한다. 기후변화의 윤리와 과학기술에서 탈인간중심주의화를 통해 인간의 도덕적인 고려의 대상범위를 확장해야 한다. 이를 통해 기후변화윤리에서 제기되는 요청들에 대한 사회적인 합의를 도출해야 한다. 물론 이러한 합의는 과학적인 근거와 사회구성원들의 가치에 기초해야 한다. 둘째, 기후변화로 파생되는 문제는 시급한 문제이면서도 장기적인 성격의 문제이다. 그리고 기후변화에 대한 과학적인 사실의 전달도 중요하지만, 윤리교육을 통해 기후변화가 갖는 윤리적 의미가 지속적으로 강조되어야 한다. 끝으로, 기후변화윤리교육에서 지속 가능성은 기후변화윤리에서 제기되는 다양한 당위적 요청들을 정당화하는데 매우 중요하게 작용할 것이다.