• Title/Summary/Keyword: End-of-life Care

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Stress due to End-of-Life Care, Coping Strategies, and Psychological Well-being among Nurses in Neonatal Intensive Care Units (신생아집중치료실 간호사의 임종간호 스트레스, 대처방식 및 심리적 안녕감)

  • Kwon, Eun Hee;Ju, Hyeon Ok;Jeung, Eun Ok;Han, Chun Hee;Im, Jin Ju;Lee, You Ri;Jung, Min Seung;Park, So Yeon
    • Child Health Nursing Research
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    • v.24 no.4
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    • pp.475-483
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    • 2018
  • Purpose: This study aimed to identify stress levels due to end-of-life care, coping strategies, and psychological well-being among nurses in neonatal intensive care unit, and to investigate the effect of stress levels and coping strategies on their well-being. Methods: A total of 128 nurses in the neonatal intensive care units of general hospitals in B city participated. The data were collected using a self-report questionnaire. The collected data were analyzed using descriptive statistics, the t-test, ANOVA, the Pearson correlation coefficient, and hierarchical regression with SPSS version 22.0. Results: The coping strategy that nurses most often used was seeking social support. The factors affecting the well-being of the participants were wishful thinking, problem-focused coping and seeking social support, in order. Those 3 variables explained 21 % of the total variance in psychological well-being. Problem-focused coping and seeking social support were positively associated with psychological well-being, while wishful thinking showed a negative association. Conclusion: In order to improve the psychological well-being of nurses in neonatal intensive care units, it is necessary to provide nurses with a program to build a social support system and to improve their problem-based coping skills.

The Theory of Meaning in Hospice Care

  • Starck, Patricia L.
    • Journal of Hospice and Palliative Care
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    • v.20 no.4
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    • pp.221-225
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    • 2017
  • Care for the human spirit is a core component of quality end-of-life care. Logotherapy, based on the premise that the primary motivation of human beings is to find meaning and purpose in life, can be helpful in providing care for patients, families, and loved ones in hospice care. The use of Socratic dialog in posing questions about one's life experiences, values, and attitudes is a useful method of evoking reflection. Guidance for finding meaning, even until one's last moments, can be found in the three categories: (a) tasks or deeds, (b) experiences of love and beauty, and (c) attitudes chosen in spite of a fate that cannot be changed. Self-transcendence, defined as getting outside the self for the good of others, can add meaning to life. A growing body of research concerning meaning-centered therapy is promising for improving spiritual well-being and a sense of meaning and purpose in life.

Models of Care for Frail Older Adults

  • Ersek, Mary;Byun, Eee-Seung
    • Journal of Hospice and Palliative Care
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    • v.14 no.2
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    • pp.71-80
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    • 2011
  • The growth of the aging population in Korea will challenge health and social services. As Korean society changes, the U.S. models of end-of-life care and geriatric care for frail older adults may have increasing relevance for the Korean healthcare system. This article reviews three U.S. models of care for frail older adults: hospice and palliative care, the Program for All-Inclusive Care for the Elderly (PACE), and the transitional care model. We describe the strengths and limitations of each model and discuss ways in which these models could be adapted for the Korean healthcare system.

Willingness to Write Advance Directives and Related Factors among Women University Students (일개 여자대학교 학생의 사전의사결정서 작성의향에 영향을 미치는 요인에 관한 연구)

  • Ko, Chung Mee;Koh, Chin-Kang
    • Journal of Korean Academy of Fundamentals of Nursing
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    • v.20 no.1
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    • pp.46-55
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    • 2013
  • Purpose: The purpose of this study was to identify university students' willingness to write advance directives and factors related to this willingness. Method: A cross-sectional survey design was used and 400 nursing students and 287 non-nursing students participated in the study. Data were collected by convenience sampling using self-report questionnaires. Data were analyzed with descriptive statistics, t-test, ANOVA, correlation, and multiple regression. Results: The mean score for willingness to write advance directives was 4.09. From the multiple regression analysis, predictors of willingness to write advance directives were found to be majoring in nursing, awareness of advance directives, preference for autonomous decision making related to the end of life care, family preference related to the end of life care, and self esteem. Conclusion: The study results indicate that various factors are related to willingness to write advance directives and nurses need to consider client characteristics, knowledge, and own values when taking care of issues on advance directives.

Factors Affecting Research Participation of Bereaved Families of Terminal Cancer Patients: A Prospective Preliminary Study

  • Kim, Ye Won;Lee, Yuntaek;Hwang, In Cheol;Hwang, Sun Wook;Kim, Hyo Min;Shim, Jae Yong;Choi, Youn Seon;Lee, Yong Joo
    • Journal of Hospice and Palliative Care
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    • v.19 no.3
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    • pp.233-239
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    • 2016
  • Purpose: Little is known regarding the factors associated with the willingness of family caregivers of terminal cancer patients to participate in a bereaved survey. This study aimed to ascertain the pre-loss factors that predict actual participation in a bereaved survey. Methods: We conducted a prospective observational study using data from two multi-center surveys at the end-of-life and after loss. In order to identify the pre-loss factors associated with participating in the bereaved survey, we used a step-wise multivariate logistic regression analysis. Results: Among 185 bereaved individuals, 30 responded to the survey (response rate: 16.2%). There were differences between the participation group and the non-participation group regarding religion, economic status, and perceived quality of care as assessed by the Quality Care Questionnaire-End of Life. A final multivariate model revealed that bereaved individuals who professed a religion (adjusted odds ratio [aOR]=5.01; P=0.008), had a high income (aOR=4.86, P=0.003), and satisfied with the care for familial relationship (aOR=4.49, P=0.003) were more likely to engage in the bereaved survey. Conclusion: Our finding suggests that improving the quality of end-of-life care may promote actual participation in a bereaved survey through easing post-loss distress. More attention should also be paid to those bereaved individuals who are hesitant to participate in a bereaved survey.

Hospice and Palliative Care in End Stage Liver Disease (말기 간질환 환자에서의 호스피스 완화의료)

  • Kim, Moon Young
    • Journal of Hospice and Palliative Care
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    • v.20 no.3
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    • pp.167-172
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    • 2017
  • End-stage liver disease (ESLD) is a terminal condition of cirrhosis which cannot be treated without liver transplantation. Thus, it is natural for patients to consider hospice/palliative care (HPC). Since the recent legislation of the Act on Decisions on Life-Sustaining Treatment for Patients in Hospice and Palliative Care or at the End of Life (Act No. 14013) in Korea, the practicality of this law has become an issue. The criteria for HPC should be defined with consideration to how the severity of each ESLD complication may vary by individual patients. Generally, patients qualify if they have an intractable condition despite aggressive treatment such as the hepatorenal syndrome, hepatic encephalopathy or variceal hemorrhage. However, the option of liver transplantation should be sufficiently discussed with patients and their families before making a decision on HPC. The evaluation of which ESLD patients should receive HPC should be based on a long-term doctor-patient relationship and sufficient objective data. Therefore, a multidisciplinary approach and mutual consultation among cirrhosis specialists and doctors with other expertise are essential to offer optimal and balanced treatments between liver-specific treatment and HPC. Discussed in this review are adequate criteria for HPC and special considerations for ESLD at the point of HPC.

Relationship of Knowledge of End-of-life care, Life-Sustaining Treatment, and Advance Directive with the Educational Needs regarding Advance Directives Writing among Nurses in General Hospital in Convergence Era (융합적 시대에서 종합병원 간호사의 임종기 치료, 연명치료, 사전의료의향서에 대한 지식과 사전의료의향서 작성에 대한 교육요구도의 관계)

  • Jeong, Ji-Hyun;Cheon, Jooyoung
    • Journal of Internet of Things and Convergence
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    • v.6 no.1
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    • pp.45-53
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    • 2020
  • This study aimed to examine the relationship of the knowledge of end-of-life(EOL) care, life-sustaining treatment(LST), and advance directive(AD) with the educational needs regarding AD writing among nurses in convergence era. For this cross-sectional study, participants were 169 nurses at a general hospital in South Korea. Data were collected from July 19 to 26 in 2018 using structured questionnaires. Knowledge on EOL care scored 8.56 out of 11 points, knowledge on LST scored 5.11 out of 6 points, and knowledge on AD scored 8.02 out of 9 points. Educational needs regarding AD writing scored 4.31 out of 5 points. There were statistically correlations between knowledge on LST and educational needs regarding AD writing (r=.182, p=.018), and between knowledge on AD and educational needs regarding advance AD writing (r=.234, p=.002). The findings can be used to develop the educational program regarding AD.

The Problems and the Improvement Plan of the Hospice/Palliative Care and Dying Patient's Decisions on Life-Sustaining Treatment Act (연명의료결정법의 문제점 및 개선 방안)

  • Kim, Myunghee
    • Journal of Hospice and Palliative Care
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    • v.21 no.1
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    • pp.1-8
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    • 2018
  • Nearly 20 years after the Boramea Hospital case, the act on decisions on life-sustaining treatment for patients in hospice and palliative care or at the end of life has taken effect on February 4, 2018 as recommended by the National Bioethics Committee. However, during the legislation process, some parts of the bill that stakeholders and concerned parties did not see eye to eye were either revised or removed. Moreover, the hospice and palliative care part was added in the last minute before the enactment. As a result, the law includes parts that are not in line with the recommendations from the National Bioethics Committee, thereby causing various problems. Therefore, it is crucial to monitor how the decisions on life-sustaining treatments are made in the field and gather various opinions of concerned parties to identify and address problems in the early stage of the implementation of the law. Based on the data, the legislation must be amended to fulfill its purpose that is "to protect the dignity and value of human beings by assuring the best interests of the patients and by respecting their self-determination".

A Study of Social Workers' Understanding of Elderly Patients' and Family Caregivers' Rights to End-of-Life Care Decisions and of Their Own Roles in the Process (노인환자와 가족의 임종의료결정 권리 및 사회복지사 역할 이해도 - 장기요양 입소 시설 사회복지사를 대상으로 -)

  • Han, Sooyoun
    • Journal of Hospice and Palliative Care
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    • v.18 no.1
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    • pp.42-50
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    • 2015
  • Purpose: This study was aimed to analyze how social workers understand the rights for elderly patient and family caregiver to make end-of-life (EOL) care decisions and their roles the decision making process. Methods: The study employed a quantitative research method of collecting data from a structured questionnaire that was filled out by 334 social workers at long-term care facilities. Data were analyzed by descriptive statistics, mean differences, correlation between variables, using SPSS 20.0 program. Results: The mean score for the understanding the rights to an EOL care decision was $3.46{\pm}0.69$ and of their own roles $3.48{\pm}0.84$. The level of understanding significantly differed by social workers' experience of assisting a process to make an EOL care decision such as advance directives and life sustaining treatment, work experience, and the number of beds. Positive correlation was observed between the level of understanding of the rights for EOL care decisions and of social workers' roles (Pearson r=0.329, P<0.001). Conclusion: This study proposes development of an education program for social workers and devising standards for the EOL care decision making process to protect elderly patients, family caregivers as well as social workers in a long term care facility.

Lived experiences toward moral distress among long-term care hospital nurses: A phenomenological approach (요양병원 간호사의 도덕적 고뇌 경험: 현상학적 접근)

  • Lee, So young;Kim, Jung A
    • The Journal of Korean Academic Society of Nursing Education
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    • v.26 no.2
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    • pp.167-175
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    • 2020
  • Purpose: The purpose of this study was to explore the subjective experience of moral distress among nurses working in long-term care hospitals. Methods: A phenomenological approach was used for the study. Data were collected from May to July, 2019 using open-ended questions during in-depth interviews. Participants were nurses working in long-term care hospitals and had reported experiences of moral distress. Nine nurses participated in this study. Results: Three themes emerged from the analysis using Colaizzi's method: (1) confusion and distress about the meaning of care, (2) a feeling of helplessness caused by connivance, (3) enduring in the organization. Conclusion: Sufficient labor supply, environmental improvements, programs for improving interpersonal skills, education and counseling on end-of-life care, and recognition improvement about long-term care hospitals are suggested to reduce the moral distress of long-term care hospital nurses.