Journal of Hospice and Palliative Care

Korean Society for Hospice and Palliative Care (한국호스피스완화의료학회)
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Factors Affecting Research Participation of Bereaved Families of Terminal Cancer Patients: A Prospective Preliminary Study

  • Kim, Ye Won (Department of Family Medicine, Gachon University Gil Medical Center) ;
  • Lee, Yuntaek (Department of Family Medicine, Gachon University Gil Medical Center) ;
  • Hwang, In Cheol (Department of Family Medicine, Gachon University Gil Medical Center) ;
  • Hwang, Sun Wook (Department of Family Medicine, Catholic University St. Paul's Hospital) ;
  • Kim, Hyo Min (Department of Family Medicine, Kyungpook National University Medical Center) ;
  • Shim, Jae Yong (Department of Family Medicine, Yonsei University College of Medicine) ;
  • Choi, Youn Seon (Department of Family Medicine, Korea University Guro Hospital) ;
  • Lee, Yong Joo (Department of Palliative Medicine, Catholic University Seoul St. Mary's Hospital)
  • Received : 2016.05.19
  • Accepted : 2016.07.15
  • Published : 2016.09.01
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Abstract

Purpose: Little is known regarding the factors associated with the willingness of family caregivers of terminal cancer patients to participate in a bereaved survey. This study aimed to ascertain the pre-loss factors that predict actual participation in a bereaved survey. Methods: We conducted a prospective observational study using data from two multi-center surveys at the end-of-life and after loss. In order to identify the pre-loss factors associated with participating in the bereaved survey, we used a step-wise multivariate logistic regression analysis. Results: Among 185 bereaved individuals, 30 responded to the survey (response rate: 16.2%). There were differences between the participation group and the non-participation group regarding religion, economic status, and perceived quality of care as assessed by the Quality Care Questionnaire-End of Life. A final multivariate model revealed that bereaved individuals who professed a religion (adjusted odds ratio [aOR]=5.01; P=0.008), had a high income (aOR=4.86, P=0.003), and satisfied with the care for familial relationship (aOR=4.49, P=0.003) were more likely to engage in the bereaved survey. Conclusion: Our finding suggests that improving the quality of end-of-life care may promote actual participation in a bereaved survey through easing post-loss distress. More attention should also be paid to those bereaved individuals who are hesitant to participate in a bereaved survey.

목적: 말기암환자 가족간병인의 사별가족 연구참여와 관련된 요인에 대해서는 알려진 바가 적다. 본 연구에서는 사별가족 연구에 실제 참여를 예측하는 임종 전 요인에 대해 살펴보고자 한다. 방법: 임종 전과 사별 후에 시행된 다기관 조사연구 자료를 이용하여, 전향적 관찰연구를 진행하였다. 사별가족 연구 참여와 관련된 요인을 추출하기 위해, 단계적 다변량 로지스틱 회귀분석을 이용하였다. 결과: 185명의 사별가족 중, 30명이 사후조사에 참여하였다(응답률: 16.2%). 사후조사 참여군과 비참여군은, 종교, 경제적 상태 그리고 임종 전 인지되었던 돌봄의 질에서 차이를 보였다. 최종 다변량 모델에 의하면, 종교를 가지고 있던 가족(adjusted odds ratio [aOR]=5.01, P=0.008), 높은 경제수준을 가진 가족(aOR=4.86, P=0.003) 그리고 가족 내 관계형성에 대한 돌봄에 만족했던 가족(aOR=4.49, P=0.003)이 그렇지 않은 가족에 비해 더 사후 연구에 참여를 하였다. 결론: 본 연구에 의하면, 임종기 돌봄의 질을 향상시키는 것은 사후 고통을 줄임으로써 사별가족연구에의 참여를 촉진시킨다. 사별가족 연구참여를 망설이는 사별가족들의 특성에 관심을 가질 필요가 있다.

Keywords

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