• Research in Community and Public Health Nursing
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• v.14 no.1
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• pp.120-131
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• 2003

Purpose: to investigate nursing service needs of dementia caregivers in the community, and, also to provide basic data that is helpful in developing nursing intervention for them. Method: MMSE-K exam was administered on 15,216 men more than 65years old who live in Gu, Seoul city, and the subject of this study were caregivers of 792 demented elderly who were below 20 points in the MMSE-K exam. Result: Total score of nursing service needs of family appeared lower than average. By specific area, information nursing needs was the highest(M=3.29), and therapeutic nursing needs (M=3.31), welfare service nursing needs(M=3.32), emotional support nursing needs (M=3.34) followed in order. The factors which increased the total score of nursing service needs of dementia caregivers as general and physical characteristics were man (p=.04), lower ADL (p=.00) and IADL(p=.00), longer length of sick days(p=.01), having diseases(p=.03), decline of cognition(p=.00), existence of dementia symptom(p=.00). And. high economic status(p=.03), good caring attitude(p=.00) were family characteristics which increased the nursing service needs of caregivers. As predicting variables dementia symptom (10.4%), caring attitude(1.9%), existence of economic activity (1.5%), and length of sick days(1.2%) exhibited explanation power in order. Conclusion: In future, active intervention methods that correspond to family nursing service needs have to be developed, and it is also needed to develop nursing intervention strategy on specific problem with dementia problematic behavior, exercise etc.. Also, it is needed to do research on the caring attitude of dementia family because active caring attitude of family was significant influencing factor on nursing service needs of family.

• Journal of the Korean Home Economics Association
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• v.34 no.4
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• pp.145-160
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• 1996

The purpose of this study was to identify caregiving situations and to examine resources for adjustment among family caregivers of the elderly with dementia. Thereby the study can provide the basic information for the development of education programs for family caregivers through in-depth interview. The main result of this study was as follows : 1) The major problems identified by family caregivers I caring for the elderly with dementia were related to care recipient's toileting and to care recipient's confusion and wandering. 2) The family caregiver expressed feelings of burden including chronic fatigue, depression, guilt and frustration. 3) The factors influencing the adjustment of family caregivers for demented elderly were quality of relationship, motivation for caregiving, circumstances of caregiving, social support and coping strategies.

• Journal of Korean Academy of Nursing
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• v.43 no.3
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• pp.389-398
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• 2013

Purpose: The purpose of the study was to understand and describe the overcoming experiences of family members caring for elderly patients with dementia at home. Methods: Data came from autobiographies on the overcoming experiences of caregiving from 31 participants, who had submitted the autobiographies to a public contest held by the Seoul Metropolitan Center for Dementia in 2012. Data were analyzed using qualitative content analysis. Results: Four overcoming stages emerged from the analysis: confronting stage; challenging stage; integrating stage; and transcendental stage, representing transformation of experiences from frustration and suffering to happiness and new hope in life. The confronting stage illustrates severe negative feelings and exhaustion occurring after the diagnosis of dementia. The challenging stage signifies major driving forces in taking good care of their patients. It includes tender loving memories about the patients as well as family and social supports. The integrating stage shows genuine empathy for the patients' situation and the happiness of 'here and now', while the transcendental stage represents new hope in the future. Conclusion: Health professionals need to support caregivers to find true meaning of caring and happiness in everyday life, while providing specific information on dementia care and relieving various negative feelings.

• The Journal of the Korea Contents Association
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• v.16 no.2
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• pp.320-331
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• 2016

This study was conducted to find a practical implication regarding efficient and smooth service utilization including care burden reduction of family caregivers by empirically analyzing the factors influencing the dementia patient home care intention of family caregivers, based on Anderson's behavior model. For this study, the subjects and characteristics suitable for the study purpose were selected using the source data of "A Survey on the Dementia Recognition and Needs" targeting 26 cities and countries in Gyeonggi-do and then secondary analysis was conducted. This study targeted 539 dementia families, and based on Anderson's behavior model, variables related to predisposing factors, enabling factors and need factors were inserted, and hierarchical regression analysis was applied. The analysis result showed that at a significance level of 5%, the home care intention was high when family caregivers were not living in cities, they were spouses or children and their economic level was high as predisposing factors, and the dementia-related attitude was positive as a enabling factor, and the degree of dementia was mild and care burden was low as need factors. Moreover, need factors were relatively important variables among the three factors mentioned above. These findings demonstrate that for improving the home care intention, there is a need to construct a support strategy, which considers the degree of dementia and economic characteristics and develop diverse counseling and education programs for a positive attitude towards dementia and a differentiated strategy depending on regional and family characteristics.

• Korean Journal of Adult Nursing
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• v.28 no.1
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• pp.71-82
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• 2016

Purpose: The purpose of this study was to investigate the effect of Family Resilience Reinforcement Program (FRRP) for family caregivers of the elderly with dementia on the family resilience, caregiver burden, family adaptation, perceived health status and depression. Methods: FRRP was implemented for 60 minutes each time, once a week, for 8 weeks. According to 3 factors of Walsh's Family resilience theory, FRRP was organized and specified as redefining 'belief system' in 1 to 2 sessions, figuring out one's own 'organizational pattern' in 3 to 5 sessions, enhancing 'communication process' in 6 to 8 sessions. A total of 46 family caregivers were assigned into either the experimental group with FRRP or the control group. Data were collected from February 18 to April 12, 2013 at the dementia support centers, and the data of 36 participants were finally analyzed. Results: The experimental group reported statistically significant differences in family resilience (p=.002), caregiver burden (p=.012), family adaptation (p<.001), and perceived health status (p=.002) compared to those in the control group. No significant difference was found between the two groups in depression. Conclusion: In the light of these results, FRRP is considered to decrease caregiver burden and to influence family resilience, family adaptation and perceived health status positively. The developed FRRP is considered to be an efficient nursing intervention for strengthening family resilience of the given population. It warrants future research expanding the range of target population to those caregivers of the patients with other chronic conditions.

• Journal of muscle and joint health
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• v.23 no.1
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• pp.9-18
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• 2016

Purpose: The purpose of this study was to verify the effectiveness of Dongsasub training for the family caregivers of patients with dementia on their care burden, depression, and self-esteem. Methods: An one-group pretest-posttest quasi-experimental design was used. Six family caregivers recruited from a support center for dementia in Seoul and participated in this study. Once a week, the Dongsasub training was provided for 90 minutes during eight weeks. Results: Depression was significantly lower (z=-2.01, p=.044), and self-esteem was significantly higher (z=-2.21, p=.027) than before Dongsasub training. However, care burden was not significantly different between pre and post program (z=-1.58, p=.115). Conclusion: The results of this study indicate that the Dongsasub training can be used as a nursing intervention in community settings to decrease depression and improve self-esteem for the family caregivers of patients with dementia.

• Journal of Korean Public Health Nursing
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• v.13 no.2
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• pp.1-11
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• 1999

The purpose of this study was to provide the elderly and their family kowledge about senile dementia and to get them to have positive attitude about senile dementia. The subjects were 204 elderly who lived in the whole country. The data were collected from Sep. to Dec., 1998, using a 36 items questionnaire and analyzed by SAS program for t-test, ANOVA. Scheffe test, Pearson Correlation Coefficients. The results were as follows: 1. The mean score of knowledge about senile dementia was $9.33\pm2.68$(range 0-15), The elderly who was unschooled, lived in Kyung Sang province, didn't have any hobby or interest, didn't access to informations about senile dementia got lower score than the others. 2. The examples of knowledge test items about senile dementia that the subjects above fifty percents answered uncorrectly were 'the patient of senile dementia doesn't die soon', 'senile dementia is uncurable disease', 'the symptoms of senile dementia is apparent in new and strange circumstances', 'the pood and lonely elderly is apt to have senile dementia'. 3. The mean score of attitude about senile dementia was $15.87\pm2.25$(range 0-20) and attitude about senile dementia was relatively positve. Attitude about senile dementia by general characteristic was not significantly different. 4. The examples of attitude test items about senile dementia to which the majority of subjects agreed were 'It is a pity to see the patient suffered from senile dementia', 'It is difficult to take care of senile dementia patient' and so on. 5. The correlation between kowledge and attitude about senile dementia was very low. Therefore this study suggests that it is crucial to educate the elderly and their family to induce positive attitude about senile dementia.

• Journal of Korean Academy of Nursing
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• v.46 no.5
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• pp.663-674
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• 2016

Purpose: The purposes of this study were to develop and test a prediction model for caregiving experiences including caregiving satisfaction and burden in dementia family caregivers. Methods: The stress process model and a two factor model were used as the conceptual frameworks. Secondary data analysis was done with 320 family caregivers who were selected from the Seoul Dementia Management Survey (2014) data set. In the hypothesis model, the exogenous variable was patient symptomatology which included cognitive impairment, behavioral problems, dependency in activity of daily living and in instrumental activity of daily living. Endogenous variables were caregiver's perception of dementia patient's unmet needs, caregiving satisfaction and caregiving burden. Data were analysed using SPSS/WINdows and AMOS program. Results: Caregiving burden was explained by patient symptomatology and caregiving satisfaction indicating significant direct effects and significant indirect effect from unmet needs. The proposed model explained 37.8% of the variance. Caregiving satisfaction was explained by patient symptomatology and unmet needs. Mediating effect of unmet needs was significant in the relationship between patient symptomatology and caregiving satisfaction. Conclusion: Results indicate that interventions focusing on relieving caregiving burden and enhancing caregiver satisfaction should be provided to caregivers with high levels of dementia patients' unmet needs and low level of caregiving satisfaction.

• Korean Journal of Adult Nursing
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• v.12 no.4
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• pp.629-640
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• 2000

The purpose of this study was to develop and validate the scale to measure dementia patient's caregiver burden of Korea. In the first phase of the study, 15 caregivers of dementia patients were interviewed to provide narrative data from which items were developed. Initially 65 items were generated from the interview data of 15 caregivers. Content validity was judged by two separate panels of experts with 27 professionals and 30 family caregivers. These items were analyzed through the Index of Content Validity and 33 items were selected which met .80 or more of the CVI. This preliminary FCBSD-K was tested with 207 adult caregivers for reliability and construct validity including item analysis and orthogonal(Varimax) factor analysis. Eight items were deleted because of high or low item-item correlation. The result of the second factor analysis produced six factors that coincided with the conceptual framework posed for the scale developed. The six factors were labeled as 'physio social factor' 'emotional factor' 'family cultural factor' 'role obligation' 'guilt feeling' and 'financial & supportive system factor'. The alpha coefficient relating to internal consistency was .9264 for reliability. In conclusion, cultural factor is related to dementia patient's caregiver burden and FCBSD-K was useful in assessing the dementia patient's caregiver burden in Korea.

• Journal of Preventive Medicine and Public Health
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• v.54 no.5
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• pp.317-329
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• 2021

Objectives: The aim of this study was to identify the association between cohabitation status and sleep quality in family members of people with dementia (PwDs). Methods: Data of 190 365 participants aged ≥19 years from the 2018 Korea Community Health Survey were analyzed. Participants were categorized according to their cohabitation status with PwDs. Multiple logistic regression and ordinal logistic regression analyses were performed to evaluate the relationship between the cohabitation status of PwDs' relatives and sleep quality measured using the Pittsburgh Sleep Quality Index (PSQI) and PSQI subscales. Results: Compared to participants without PwDs in their families, both cohabitation and non-cohabitation with PwDs were associated with poor sleep quality (cohabitation, male: odds ratio [OR],1.28; 95% confidence interval [CI], 1.08 to 1.52; female: OR, 1.40; 95% CI, 1.20 to 1.64; non-cohabitation, male: OR, 1.14; 95% CI, 1.05 to 1.24; female: OR, 1.23; 95% CI, 1.14 to 1.33). In a subgroup analysis, non-cohabiting family members showed the highest odds of experiencing poor sleep quality when the PwD lived alone (male: OR, 1.48; 95% CI, 1.14 to 1.91; female: OR, 1.58; 95% CI, 1.24 to 2.01). Cohabiting male and female participants had higher odds of poor subjective sleep quality and use of sleeping medications than non-cohabiting male and female participants, respectively. Conclusions: The residence of PwDs and cohabitation status may contribute to poor sleep quality among PwDs' family members. The circumstances faced by cohabiting and non-cohabiting family members should be considered when evaluating sleep quality in family members of PwDs, and appropriate interventions may be needed to improve sleep quality in both cohabiting and non-cohabiting family members.