• The Journal of Korean Academy of Sensory Integration
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• v.18 no.1
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• pp.1-12
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• 2020

Objective : In this study, we are going to check the impact of the daily performance of a child with developmental disabilities on the parent's burden and quality of life. Methods : 120 parents of children with developmental disabilities were targeted in Chungcheong and Jeolla provinces. To measure the daily performance ability of children with developmental disabilities, we used evaluative Pediatric Evaluation of Disability Inventory and The burden of parents was measured by Family Burden Questionnaire and the quality of life by Beach Center Family Quality of Life Scale. Based on the data collected, independent t-test, one-way anova, Pearson correlation analysis and regression analysis were conducted to check the impact of a child's daily performance ability of developmental disability on the parent's burden and quality of life. Results : The daily performance ability of a children with developmental disabilities showed a negative correlation with the burden of the parents and a positive correlation with the quality of life. The hygiene and bowel & bladder control of children with developmental disabilities had an important influence on parent's burden, while hygiene, toileting, and bowel & bladder control of children with developmental disabilities had a significant effect on their parent's quality of life. Conclusion : It has been shown that the daily performance ability of a children with developmental disabilities has a major influence on parent's burden and quality of life. In order to reduce the burden and improve quality of life, therapeutic intervention, education and interview programs for daily life of children with developmental disabilities need to be carried out systematically by occupational therapists.

• The Journal of the Korea Contents Association
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• v.20 no.2
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• pp.382-393
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• 2020

The purpose of this study is to identify the usability of parents of developmental rehabilitation services for disabled children. To that end, 120 disabled children and 120 parents were surveyed in 17 cities, including nine cities in Gangwon Province, welfare centers and private institutions in the military. Data analysis used SPSS Statistics 18 and the main findings are as follows. First, there was a significant difference in the type of supply and demand in the general characteristics of parents using the developmental rehabilitation service. Second, the service use characteristics of the developmental rehabilitation service showed a statistically significant difference in the service satisfaction of the private care institution, and third, the process and effect of the service provision of the developmental rehabilitation service were shown to be significant in the service satisfaction level. Fourth, the effect of choice on service satisfaction was significantly shown in the accessibility of developmental rehabilitation services. The significance of the research results is to confirm that the service provision and access to the services of developmental rehabilitation services increases the satisfaction level of disabled children's parents. Accordingly, the discussion and implications for improving the satisfaction level of the use of parents using the developmental rehabilitation service were presented.

• Korean Journal of Family Social Work
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• no.53
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• pp.199-234
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• 2016

This study deals with the psycho-social development of children raised by disabled parents. In particular, we are willing to examine the influence of parental factors such as social engagement and future forecast on the change of children's psycho-social development. Using the three waves of Korean Welfare Panel Study data, these predictors were examined through the Latent Growth Curve Modeling. The result shows that parent's disability has a negative influence on their children's psycho-social development. However, similar to the findings of the previous studies, the degree of this influence tends to be decreased as children grow up. Lastly, two parental factors have a direct influence on the psychological development of children. Furthermore, parent's social engagement has an indirect influence on the change of sociality of children through the psychological change of them. This result means that we should encourage disabled parents to participate actively in social activities and think positively about their future.

• Korean Journal of Social Welfare
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• v.66 no.4
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• pp.181-205
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• 2014

The purpose of this study is to analyze the process of growth of parental empowerment of the family of the children with development disabilities in an online parental community. For this purpose, 250 posts were selected from a web-forum of an online-community(internet CAFE) for patients with developmental disabilities in a Korean portal site. In addition, the selected posts were analyzed based on the grounded theory method. The results showed that the parents with high risk children for developmental disabilities interacted with each other in short answers, self-addressing, and discussion type interactions under the causal condition in which the subject parents were in need of help and sympathy. The factors that significantly affected the focus event, which is the interactive communication between the posters of the original threads and replies, included the moderating conditions based on whether the conversation was respectful, friendly, or for general evaluation, as well as the contextual condition of exclusive attitudes. The strategies of the interactions were composed of two categories of self-reflections and sharing through a human relationship. The results of these interactions were either further interactions (sharing) or shying away. With regard to the process of reinforcing the collective empowerment of the family, the 'determination,' 'tips,' and 'empathy' models were used for the explanation of the process. Lastly, we discovered that trust, support, continuous interactions, specific and practical information, as well as provision of diversified perspectives through collective experiences are necessary to achieve such improvement of collective family empowerment.

• Therapeutic Science for Rehabilitation
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• v.13 no.1
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• pp.49-63
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• 2024

Objective : The purpose of this study was to investigate parental perspectives on cognitive rehabilitation using a combination of phenomenological research methodology and word cloud analysis. Methods : Interviews were conducted with five parents of children with developmental disabilities. Word cloud analysis was conducted using Python, and five researchers analyzed the meaning units and themes using phenomenological methods. Words with high frequency were considered as a heuristic tool. Results : A total of 43 meaning units and nine components related to the phenomenon of cognitive rehabilitation were derived, and three themes were finalized. The main themes encompassed the definition of cognitive rehabilitation, challenges associated with cognitive rehabilitation, and factors influencing the selection of a cognitive rehabilitation institute. Cognitive rehabilitation emerged as a treatment focused on improving learning, daily functioning, and cognitive abilities in children with developmental disabilities. The perceived issues with cognitive rehabilitation pertained to treatment methods, therapist expertise, and associated costs. In addition, parents highlighted the importance of therapist expertise, humane personality, and affordability of cost and schedule when choosing a cognitive rehabilitation institute. Conclusion : Parents expressed expectations for substantial improvements in their children's daily functioning through cognitive rehabilitation. However, challenges were identified in clinical practices. Going forward, we expect that cognitive rehabilitation will evolve into a better therapeutic support service addressing the concerns raised by parents.

• The Journal of Korean Academy of Sensory Integration
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• v.20 no.2
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• pp.22-35
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• 2022

Objective : This study was conducted to investigate the stress, anxiety, depression, and quality of life that parents of children with disabilities have according to their general characteristics and determine the correlation between stress, anxiety, depression, and quality of life. Methods : The subjects were 242 parents of children with disabilities under the age of 13 receiving treatment at rehabilitation centers for the disabled, rehabilitation hospitals, and child development centers located in D, B, and U metropolitan cities. Results : According to the result of analyzing the correlation between stress, anxiety, and depression that the parents of children with disabilities felt and the quality of their lives, the quality of their lives correlated negative with their stress, anxiety, and depression. In the case of the results according to the parents' general characteristics, stress showed a significant difference depending on the education level, monthly income, and anxiety showed a significant difference depending on child rearing time, occupation, and public transportation. Additionally, depression and the quality of life had a significant difference depending on child rearing time, education level, occupation, and monthly income. Conclusion : The results of this study identified the importance of the mental health of the parents of children with disabilities and the correlation between their mental health and quality of life. Social distancing and quarantine rules that children with disabilities must follow have limited their opportunities to receive education and treatment, so the influence of stress, anxiety, depression that the parents of children with disabilities who should continue to take care of their children should be considered. Based on these results, it is necessary to develop support services for the parents of children with disabilities for enhancement in their mental health in preparation for other disasters in the future.

• Journal of Digital Convergence
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• v.14 no.9
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• pp.63-72
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• 2016

Given that the number of people with developmental disabilities is continuously increasing in Korea, we need to pay attention to the lives of parents who rear the children with developmental disabilities. Accordingly, this study examined the effects of parenting stress on the quality of life in parents of children with developmental disabilities, and moderating effects of information application in the process. This study conducted a survey to 194 parents who rear such children in Chungnam and Chungbuk provinces. This study utilized PASW Statistics 18.0 for analysis, and the study results are as follows. First, it was found that parenting stress was more than average level, and information application was somewhat lower than average level. Quality of life was found to be lower than average level, and the level of relationship with neighborhood and emotional condition was relatively lower than other sub-factors. Second, influential factors of life quality were parenting stress, disability degree, information application, residential area, and disability type. Third, information application was found to have moderating effects on the relationship between parenting stress and quality of life. Based on such empirical analysis results, this study suggested concrete and comprehensive working strategies to improve quality of life in parents of children with developmental disabilities.

• The Journal of the Korea Contents Association
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• v.16 no.10
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• pp.492-502
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• 2016

This study examined the effects of parenting stress on the quality of life in parents of children with disability, and moderating effects of welfare service perception in the process. This study conducted a survey to 327 parents who rear such children in Chungnam, Chungbuk and Daejeon provinces. This study utilized SPSS 18.0 for analysis, and the main results of this study were as follows. First, the level of parenting stress is shown higher level in parents who rear the children with developmental disabilities. The level of welfare service perception and quality of life is shown higher level in parents who rear the children with physical disabilities. Second, common influential factors of life quality were parenting stress, welfare service perception, sex of parents, disability degree and residential area. For parents who rear the children with developmental disabilities, education level of parents and for parents who rear the children with physical disabilities, age of Children show to be influential. Third, welfare service perception is shown to be statistically significant so that moderating effects is found in the relationship between the parenting stress and quality of life. Based on such empirical analysis results, this study suggested concrete and comprehensive working strategies to improve quality of life in parents of children with disabilities.

• The Journal of the Korea Contents Association
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• v.17 no.9
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• pp.587-596
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• 2017

The purpose of this study was to investigate the effects of occupational performance ability and leisure satisfaction on parenting stress in parents with disabled children. The data collection period was from January 10, 2017 to February 17, 2017, and 72 questionnaires were used for analysis. The research tool was a structured questionnaire which comprised the following components: general characteristics questionnaire, parenting stress measurement tool, occupational performance ability tool, and leisure satisfaction questionnaire. The results of this study were as follows. The general characteristics of children with high parenting stress were as follows: female, age 8-12, developmental and intellectual disability, disability grade 1 and 2, in the case of private treatment institutions. There was a significant correlation between parental occupational performance ability, parenting stress, and leisure satisfaction. Occupation, social integration, and economic independence, and leisure satisfaction were the factors influencing parenting stress. The results of this study can be used as basic data for the parenting stress intervention of parents with disabilities.

• Journal of the Korea Academia-Industrial cooperation Society
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• v.20 no.6
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• pp.421-429
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• 2019

This study seeks to discuss the effects of social support, acceptance of disability, and the sense of economic stability on the part of parents of children with developmental disabilities who are receiving treatment and training at a child development center has on family function. A survey was given to 252 parents of children who were using the child development center in S city. In the relationship between social support and family function, the mediating effects of the disability acceptance and the social support, the disability acceptance and the family function were used to verify the adjustment effect of the economic stability. The results of this study are as follows. First, as a result of checking the moderating effect of economic stabilization, social support, family function, disability acceptance and family function did not show any effect on economic stability. Second, as a result of verifying whether the relationship between social support and family function is mediated by disability acceptance, disability acceptance partially mediated the relationship between social support and family function. This study is significant in that it provided basic data for the development of a program to help children with developmental disabilities function properly.