The Journal of Korean Academy of Sensory Integration (대한감각통합치료학회지)

Korean Academy of Sensory Integration (대한감각통합치료학회)
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The Effect of Patent's Burden and Quality of Life on the Daily Performance Ability of Children With Developmental Disabilities

발달장애아동의 일상생활 수행능력이 부모의 부담감과 삶의 질에 미치는 영향

  • Lee, In-Young (Dept. of Occupational Therapy, Jeonbuk National University Hospital) ;
  • Lee, Jae-Shin (Dept. of Occupational Therapy, Konyang University) ;
  • Cha, Tae-Hyun (Dept. of Occupational Therapy, Konyang University) ;
  • Yoo, Doo-Han (Dept. of Occupational Therapy, Konyang University)
  • 이인영 (전북대학교병원) ;
  • 이재신 (건양대학교 작업치료학과) ;
  • 차태현 (건양대학교 작업치료학과) ;
  • 유두한 (건양대학교 작업치료학과)
  • Received : 2019.11.27
  • Accepted : 2020.06.19
  • Published : 2020.06.30
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Abstract

Objective : In this study, we are going to check the impact of the daily performance of a child with developmental disabilities on the parent's burden and quality of life. Methods : 120 parents of children with developmental disabilities were targeted in Chungcheong and Jeolla provinces. To measure the daily performance ability of children with developmental disabilities, we used evaluative Pediatric Evaluation of Disability Inventory and The burden of parents was measured by Family Burden Questionnaire and the quality of life by Beach Center Family Quality of Life Scale. Based on the data collected, independent t-test, one-way anova, Pearson correlation analysis and regression analysis were conducted to check the impact of a child's daily performance ability of developmental disability on the parent's burden and quality of life. Results : The daily performance ability of a children with developmental disabilities showed a negative correlation with the burden of the parents and a positive correlation with the quality of life. The hygiene and bowel & bladder control of children with developmental disabilities had an important influence on parent's burden, while hygiene, toileting, and bowel & bladder control of children with developmental disabilities had a significant effect on their parent's quality of life. Conclusion : It has been shown that the daily performance ability of a children with developmental disabilities has a major influence on parent's burden and quality of life. In order to reduce the burden and improve quality of life, therapeutic intervention, education and interview programs for daily life of children with developmental disabilities need to be carried out systematically by occupational therapists.

목적 : 본 연구에서는 발달장애아동의 일상생활 수행능력이 부모의 부담감 및 삶의 질에 미치는 영향에 대해서 확인하고자 한다. 연구방법 : 충청 및 전라지역에서 발달장애아동의 부모 120명을 대상으로 하였다. 발달장애아동의 일상생활 수행능력을 측정하기 위해 소아장애 평가도구를 사용하였고, 부모의 부담감은 가족부담감 측정도구와 삶의 질은 삶의 질 척도로 설문을 실시하였다. 수집된 자료를 바탕으로 발달장애아동의 일상생활수행능력이 부모의 부담감과 삶에 질에 미치는 영향을 확인하고자 독립표본 t-검정, 일원배치분산분석, 피어슨 상관 분석과 회귀분석을 실시하였다. 결과 : 발달장애아동의 일상생활 수행능력은 부모의 부담감과 음의 상관관계를 보였고, 부모의 삶의 질과는 양의 상관관계를 보였다. 발달장애아동의 대소변 조절과 위생관리는 부모의 부담감에 중요한 영향을 주었으며, 발달장애아동의 위생관리, 화장실이용, 대소변조절은 부모의 삶의 질에 중요한 영향을 주었다. 결론 : 발달장애아동의 일상생활 수행능력은 부모의 부담감과 삶의 질에 주요한 영향을 미치는 것으로 나타났다. 부모의 부담감 감소와 삶의 질 증진을 위해 발달장애아동의 일상생활에 대한 치료적 중재와 교육, 면담 프로그램이 작업치료사들에 의해서 체계적으로 진행될 필요가 있다.

Keywords

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